Guest guest Posted February 6, 2012 Report Share Posted February 6, 2012 Ariel Ann is my 4 week old granddaughter; she was just diagnosed with polymicrogyria; evidently she has a very rare form that affects the entire brain. We are waiting for further testing to determine how this is going to affect Ariel. We know that her hearing and sight are good; they have both been tested. We are currently waiting to see if they can get her oxegen sat levels to where they need to be in order for Ariel to eat normally, they are feeding her through a tube because when she was eating from a bottle her sat levels would drop. She is having trouble maintaining her body temperature. We live in the Branson, MO area and Ariel is up at Children's Hospital in St. Louis; it is hard to have her so far away, we are just hoping that they can get her stable enough to come home soon. This is all so new, she was only diagnosed on Friday 2/3, so we are looking for information and support. Thanks in advance for any that you can share. Grandma Kathy Quote Link to comment Share on other sites More sharing options...
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