Re: anyone use speech videos

[Guest guest]

Shari, I just want to say that our kids develop in spurts so it never hurts to

prepare for issues. Sorry no advice on these programs but I know waiting for

speech is difficult esp the kids fustration level. We did some sign time videos

and youtube has several videos similar like that reading baby. Can I ask what

kind PMG? Left sided damage usually causes more problems.

Diane

anyone use speech videos

Hello,

My son is 18 months and kind of has 2 words (really just one, Dad and sometimes

again Momma) and a few sounds. We have a speech therapist but I've heard

different things about videos to use as well. Has anyone tried Baby BumbleBee

http://www.babybumblebee.com/store/Level_1set.htm or teach2talk

http://www.teach2talk.com/teach2talk-basic-language-set.html

He said Momma and babba in Feb and then lost them until saying Dad/did/d sounds

a few months ago.

Thanks,

Shari

[Guest guest]

Diane,

 

Does your child have PMG on only one side of the brain? My grandson has it on

his Right side of the brain, His left brain is totally normal. He is now 14

months old, babbles only, cant sit up yet, but has just started commando

crawling around the floor with his right arm, his left one we just make sure is

not pinned underneath him. We live in Australia and there are no support groups

here. Are you people using sign language with your kids? That has not been

mentioned to us here.

Deb Hedley

Ph: 03 93489469 W

0407233831

________________________________

To: " polymicrogyria " <polymicrogyria >

Sent: Thursday, 29 September 2011 10:03 AM

Subject: RE: anyone use speech videos

Shari, I just want to say that our kids develop in spurts so it never hurts to

prepare for issues. Sorry no advice on these programs but I know waiting for

speech is difficult esp the kids fustration level. We did some sign time videos

and youtube has several videos similar like that reading baby. Can I ask what

kind PMG? Left sided damage usually causes more problems.

Diane

anyone use speech videos

Hello,

My son is 18 months and kind of has 2 words (really just one, Dad and sometimes

again Momma) and a few sounds. We have a speech therapist but I've heard

different things about videos to use as well. Has anyone tried Baby BumbleBee

http://www.babybumblebee.com/store/Level_1set.htm or teach2talk

http://www.teach2talk.com/teach2talk-basic-language-set.html

He said Momma and babba in Feb and then lost them until saying Dad/did/d sounds

a few months ago.

Thanks,

Shari

------------------------------------

[Guest guest]

Yes Nisha has right sided PMG but did have a language delay too. I have found

great help with understanding her condition when her physiatrist told me it is

called left hemiplegia cerebral palsy from PMG. Their is a great list serve thru

hemi.org from chasa that many Ausies also are on that may be a resource to here

all about hemis issues and helpful suggestions.

Diane

RE: anyone use speech videos

Shari, I just want to say that our kids develop in spurts so it never hurts to

prepare for issues. Sorry no advice on these programs but I know waiting for

speech is difficult esp the kids fustration level. We did some sign time videos

and youtu

[Guest guest]

My 10 month old has left side Pmg caused by cmv. He's also partially deaf

(profound loss in the left ear, mild to moderate loss in the right). One of our

first speech therapists was an auditory something or other specialist and she

told me to sing, sing, sing and sing some more to him. So I always have and he

babbles like crazy. Says mama and dada. I have no idea if the singing is the

reason for him doing so well verbally or not, but I like to believe it is.

“I am learning all the time. The tombstone will be my diploma.â€

— Eartha Kitt

> Yes Nisha has right sided PMG but did have a language delay too. I have found

great help with understanding her condition when her physiatrist told me it is

called left hemiplegia cerebral palsy from PMG. Their is a great list serve thru

hemi.org from chasa that many Ausies also are on that may be a resource to here

all about hemis issues and helpful suggestions.

>

> Diane

> RE: anyone use speech videos

>

> Shari, I just want to say that our kids develop in spurts so it never hurts to

prepare for issues. Sorry no advice on these programs but I know waiting for

speech is difficult esp the kids fustration level. We did some sign time videos

and youtu

>

>

> ------------------------------------

>

>

[Guest guest]

He has Bilateral Perisylvian PMG. Overall, he's doing amazing. In the last month

has just started pushing himself to a sit and his combat crawling, which he's

been doing for the last 4-5 months, is finally somewhat evolving into more tummy

off the floor.

His lungs are a real issue as he has Pulmonary Hypertension, which is what often

times puts him in the hospital, quite often when he gets sick. We've had an

amazing healthy summer, with no hospital overnights since April, which I believe

is why he's progressing so well.

I really appreciate how well he's doing. I know it can be so much worse and we

are hoping things continue to go forward with him. As you mentioned, it's just

really frustrating for both of us when I can't understand him. Of course at 18

months even many typical kids don't really have a lot of language but I can feel

he would be ready to talk if only his brain would coordinate to help him. And I

know it will only get worse the older he gets if I can't help him communicate

more clearly. We keep up with the signs, including a couple of DVD's I

occasionally have him watch. I think he's finally just beginning to do " more "

but it's not consistent.

I'm going to try singing more like Kim suggested. And I think I'll try one of

the sets I listed as well. Who knows, I'm up for trying anything.

Thanks to all who responded!

>

> Shari, I just want to say that our kids develop in spurts so it never hurts to

prepare for issues. Sorry no advice on these programs but I know waiting for

speech is difficult esp the kids fustration level. We did some sign time videos

and youtube has several videos similar like that reading baby. Can I ask what

kind PMG? Left sided damage usually causes more problems.

> Diane

>

>

> anyone use speech videos

>

> Hello,

>

> My son is 18 months and kind of has 2 words (really just one, Dad and

sometimes again Momma) and a few sounds. We have a speech therapist but I've

heard different things about videos to use as well. Has anyone tried Baby

BumbleBee http://www.babybumblebee.com/store/Level_1set.htm or teach2talk

http://www.teach2talk.com/teach2talk-basic-language-set.html

>

> He said Momma and babba in Feb and then lost them until saying Dad/did/d

sounds a few months ago.

>

> Thanks,

> Shari

>