RE: does PMG always mean seizures?

[Guest guest]

my son Isaac is 9 years old and has never had a seizures he has CBPS

Leanne

does PMG always mean seizures?

does anyone know of/have a case of PMG where the child does NOT

experience seizures. I am getting more than a little bummed out by the

number of stories that state seizures started between ages 2-5. my son

is only 18 mo and seizure fre...so far. I may not want to know the

answer to this question but would prefer to face things realistically.

thanks,

amy, mom to aidan w/ generalized PMG

[Guest guest]

My son is seizure free since the age of one. He is now eleven.

Mercedes -Bran!

--- El mié 1-oct-08, Roach escribió:

De: Roach

Asunto: RE: does PMG always mean seizures?

A: polymicrogyria

Fecha: miércoles, 1 octubre, 2008, 2:30 pm

i have a 3.5 year old with unilateral pmg on right side....seizure free. the

docs still say she will 90% have them at some point, but so far so good

heather

To: polymicrogyria@ yahoogroups. comFrom: billyamywood@ att.netDate: Wed, 1 Oct

2008 21:23:25 +0000Subject: does PMG always mean seizures?

does anyone know of/have a case of PMG where the child does NOT experience

seizures. I am getting more than a little bummed out by the number of stories

that state seizures started between ages 2-5. my son is only 18 mo and seizure

fre...so far. I may not want to know the answer to this question but would

prefer to face things realistically. thanks, amy, mom to aidan w/ generalized

PMG

____________ _________ _________ _________ _________ _________ _

Get more out of the Web. Learn 10 hidden secrets of Windows Live.

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[Guest guest]

All of these responses about children without seizures is giving me so much

hope.  Thank you for asking this question, and to everyone who took time to

respond!!

 

Kate, mom to Ethan 3, BPP

Subject: RE: does PMG always mean seizures?

To: polymicrogyria

Date: Wednesday, October 1, 2008, 8:50 PM

My daughter is 8 with bilateral perisylvian syndrome and has never had seizures.

good luck

christina

____________ _________ _________ __

> To: polymicrogyria@ yahoogroups. com

> From: billyamywood@ att.net

> Date: Wed, 1 Oct 2008 21:23:25 +0000

> Subject: does PMG always mean seizures?

>

>

> does anyone know of/have a case of PMG where the child does NOT

> experience seizures. I am getting more than a little bummed out by the

> number of stories that state seizures started between ages 2-5. my son

> is only 18 mo and seizure fre...so far. I may not want to know the

> answer to this question but would prefer to face things realistically.

>

> thanks,

> amy, mom to aidan w/ generalized PMG

>

>

>

____________ _________ _________ _________ _________ _________ _

Get more out of the Web. Learn 10 hidden secrets of Windows Live.

http://windowslive. com/connect/ post/jamiethomso n.spaces. live.com-

Blog-cns!550F681DAD532637! 5295.entry? ocid=TXT_ TAGLM_WL_ domore_092008

[Guest guest]

I thought they we were going to miss it. started having seizures right

before he turned 5. BUT he has had only 1 year since, and it seems to happen in

May. so weird. ANyway, it is possible that it isn't going to be alot of

seizures.

We are thinking about ya

Dianna and

---- amy wrote:

> does anyone know of/have a case of PMG where the child does NOT

> experience seizures. I am getting more than a little bummed out by the

> number of stories that state seizures started between ages 2-5. my son

> is only 18 mo and seizure fre...so far. I may not want to know the

> answer to this question but would prefer to face things realistically.

>

> thanks,

> amy, mom to aidan w/ generalized PMG

>

[Guest guest]

I thought they we were going to miss it. started having seizures right

before he turned 5. BUT he has had only 1 year since, and it seems to happen in

May. so weird. ANyway, it is possible that it isn't going to be alot of

seizures.

We are thinking about ya

Dianna and

---- amy wrote:

> does anyone know of/have a case of PMG where the child does NOT

> experience seizures. I am getting more than a little bummed out by the

> number of stories that state seizures started between ages 2-5. my son

> is only 18 mo and seizure fre...so far. I may not want to know the

> answer to this question but would prefer to face things realistically.

>

> thanks,

> amy, mom to aidan w/ generalized PMG

>

[Guest guest]

Hi.

was 7 in August and has never(knock wood) had a seizure. Dr

Dobyns said that he will remain at an 80% risk of developing them

throughout his lifetime, but so far so good. He has not had an EEG

since he was 2, but that one came back with no irregularities.

Good luck!

Sue

Mom to Meghan(12) and (7)BFPP, microcephaly, moderate spastic quad CP

>

>

> Subject: RE: does PMG always mean seizures?

> To: polymicrogyria

> Date: Wednesday, October 1, 2008, 8:50 PM

>

>

>

>

>

>

>

> My daughter is 8 with bilateral perisylvian syndrome and has never

had seizures. good luck

> christina

> ____________ _________ _________ __

> > To: polymicrogyria@ yahoogroups. com

> > From: billyamywood@ att.net

> > Date: Wed, 1 Oct 2008 21:23:25 +0000

> > Subject: does PMG always mean seizures?

> >

> >

> > does anyone know of/have a case of PMG where the child does NOT

> > experience seizures. I am getting more than a little bummed out by the

> > number of stories that state seizures started between ages 2-5. my son

> > is only 18 mo and seizure fre...so far. I may not want to know the

> > answer to this question but would prefer to face things realistically.

> >

> > thanks,

> > amy, mom to aidan w/ generalized PMG

> >

> >

> >

>

> ____________ _________ _________ _________ _________ _________ _

> Get more out of the Web. Learn 10 hidden secrets of Windows Live.

> http://windowslive. com/connect/ post/jamiethomso n.spaces.

live.com- Blog-cns!550F681DAD532637! 5295.entry? ocid=TXT_ TAGLM_WL_

domore_092008

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi

Finlay never had a seizure, but has an irregular EEG. He is not on

medication.

Annelies

does PMG always mean seizures?

> >

> >

> > does anyone know of/have a case of PMG where the child does NOT

> > experience seizures. I am getting more than a little bummed out by the

> > number of stories that state seizures started between ages 2-5. my son

> > is only 18 mo and seizure fre...so far. I may not want to know the

> > answer to this question but would prefer to face things realistically.

> >

> > thanks,

> > amy, mom to aidan w/ generalized PMG

> >

> >

> >

>

> ____________ _________ _________ _________ _________ _________ _

> Get more out of the Web. Learn 10 hidden secrets of Windows Live.

> http://windowslive. com/connect/ post/jamiethomso n.spaces.

live.com- Blog-cns!550F681DAD532637! 5295.entry? ocid=TXT_ TAGLM_WL_

domore_092008

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

My daughter also has Bilateral perisylvian PMG- 2.5. She has not had seizures

YET... I would love to hear more about how she is doing, functioning, schooling.

My daughter has low tone, still not walking 100% independently but jsut learned

to crawl, nonverbal although we are trying pictures and switches but cognitively

it's a little challenging. She will start in an integrated classroom in April.

We live in the Boston area.  Have a good day

 

Subject: RE: does PMG always mean seizures?

To: polymicrogyria

Date: Wednesday, October 1, 2008, 8:50 PM

My daughter is 8 with bilateral perisylvian syndrome and has never had seizures.

good luck

christina

____________ _________ _________ __

> To: polymicrogyria@ yahoogroups. com

> From: billyamywood@ att.net

> Date: Wed, 1 Oct 2008 21:23:25 +0000

> Subject: does PMG always mean seizures?

>

>

> does anyone know of/have a case of PMG where the child does NOT

> experience seizures. I am getting more than a little bummed out by the

> number of stories that state seizures started between ages 2-5. my son

> is only 18 mo and seizure fre...so far. I may not want to know the

> answer to this question but would prefer to face things realistically.

>

> thanks,

> amy, mom to aidan w/ generalized PMG

>

>

>

____________ _________ _________ _________ _________ _________ _

Get more out of the Web. Learn 10 hidden secrets of Windows Live.

http://windowslive. com/connect/ post/jamiethomso n.spaces. live.com-

Blog-cns!550F681DAD532637! 5295.entry? ocid=TXT_ TAGLM_WL_ domore_092008

[Guest guest]

Hi shannon,

riley is 8 years old and we have been very lucky. She walks like a typical 8

year old and can ride a bike and plays soccer (although a little clumsy).

Cognitively she is 100% okay and is in a regular classroom doing well.

Oral motor is her issue. We did the botox for drooling and then had her

submandibular glands removed and parotid glands ligated which has helped

tremendously although not 100%. We are going to start her on a low-dose of

robinul to see if it will improve further. Her speech has improved

significiantly in the last six months and you can understand about 75% of what

she says although it is far from normal. She has been getting 2 hours of speech

a week in her school and than we have supplemented that with 2 hours a week

private speech therapy. She has been in private speech therapy twice a week

since the age of 2.

So, overall she is doing great. Is your daughter in speech therapy? Have you

gone to the Walsh Lab in Boston? We went there about one and a half years ago

to give blood for their research study in PMG. My brother lives in the

Boston-brookline area and we will probably go up next year; perhaps we can try

and get together at that time.

christina

To: polymicrogyria@...: sdoneil2000@...: Thu, 2 Oct

2008 09:16:05 -0700Subject: RE: does PMG always mean seizures?

Hi ,My daughter also has Bilateral perisylvian PMG- 2.5. She has not

had seizures YET... I would love to hear more about how she is doing,

functioning, schooling. My daughter has low tone, still not walking 100%

independently but jsut learned to crawl, nonverbal although we are trying

pictures and switches but cognitively it's a little challenging. She will start

in an integrated classroom in April. We live in the Boston area. Have a good

day Subject: RE:

does PMG always mean seizures?To: polymicrogyria@...: Wednesday,

October 1, 2008, 8:50 PMMy daughter is 8 with bilateral perisylvian syndrome and

has never had seizures. good luckchristina____________ _________ _________ __>

To: polymicrogyria@ yahoogroups. com> From: billyamywood@ att.net> Date: Wed, 1

Oct 2008 21:23:25 +0000> Subject: does PMG always mean

seizures?> > > does anyone know of/have a case of PMG where the child does NOT>

experience seizures. I am getting more than a little bummed out by the> number

of stories that state seizures started between ages 2-5. my son> is only 18 mo

and seizure fre...so far. I may not want to know the> answer to this question

but would prefer to face things realistically.> > thanks,> amy, mom to aidan w/

generalized PMG> > > ____________ _________ _________ _________ _________

_________ _Get more out of the Web. Learn 10 hidden secrets of Windows

Live.http://windowslive. com/connect/ post/jamiethomso n.spaces. live.com-

Blog-cns!550F681DAD532637! 5295.entry? ocid=TXT_ TAGLM_WL_ domore_092008

[Guest guest]

My daughter is 10 and has never had seizures. She is dx with bilateral

polymicrogyria by Dr Walsh's group in Boston

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

, or anyone, can you explain in detail what the surgery entails and how

it works for drooling. My daughter suffers with drooling although the amount

varies alot from day to day.

Dom, father to Chloe, aged 7 diffuse bilateral pmg, G tube, rotational osteotomy

ops on each hip, epilepsy, cannot sit, walk, talk etc, however a happy smiley

(most of the time) little girl

does PMG always mean

seizures?> > > does anyone know of/have a case of PMG where the child does NOT>

experience seizures. I am getting more than a little bummed out by the> number

of stories that state seizures started between ages 2-5. my son> is only 18 mo

and seizure fre...so far. I may not want to know the> answer to this question

but would prefer to face things realistically.> > thanks,> amy, mom to aidan w/

generalized PMG> > > ____________ _________ _________ _________ _________

_________ _Get more out of the Web. Learn 10 hidden secrets of Windows

Live.http://windowslive. com/connect/ post/jamiethomso n.spaces. live.com-

Blog-cns!550F681DAD532637! 5295.entry? ocid=TXT_ TAGLM_WL_ domore_092008

[Guest guest]

Hi Dom,

Her surgery was done by an ENT at s Hopkins. It involved an overnight stay

at the hospital. They surgery was about 3 or 4 hours in length. She had two

incisions under her mandible where the ENT removed the submandibular glands. It

was under general anesthesia. After surgery she had two drains (one on each

side) but they were removed the next morning. He ligated the parotid glands

thru her mouth.

She drank but did not eat for about 5 days. Pain was controlled with

medications. She did overall. There is another little boy who had the

procedure done around the same time as riley in Atlanta. He also did well.

If you decide to do it, I would definitely make sure the ENT has done the

procedure before. It is an aggressive treatment for drooling but one we do not

regret.

christina

________________________________

> To: polymicrogyria

> From: b_chlo@...

> Date: Thu, 2 Oct 2008 21:11:47 +0100

> Subject: Re: does PMG always mean seizures?

>

>

> , or anyone, can you explain in detail what the surgery entails and

how it works for drooling. My daughter suffers with drooling although the amount

varies alot from day to day.

>

> Dom, father to Chloe, aged 7 diffuse bilateral pmg, G tube, rotational

osteotomy ops on each hip, epilepsy, cannot sit, walk, talk etc, however a happy

smiley (most of the time) little girl

>

> does PMG always mean seizures?>>> does anyone

know of/have a case of PMG where the child does NOT> experience seizures. I am

getting more than a little bummed out by the> number of stories that state

seizures started between ages 2-5. my son> is only 18 mo and seizure fre...so

far. I may not want to know the> answer to this question but would prefer to

face things realistically.>> thanks,> amy, mom to aidan w/ generalized PMG>>>

____________ _________ _________ _________ _________ _________ _Get more out of

the Web. Learn 10 hidden secrets of Windows Live.http://windowslive.

com/connect/ post/jamiethomso n.spaces. live.com- Blog-cns!550F681DAD532637!

5295.entry? ocid=TXT_ TAGLM_WL_ domore_092008 [Non-text portions of this message

have been removed]

>

> __________________________________________________________

> Stay up to date on your PC, the Web, and your mobile phone with Windows Live.

> http://clk.atdmt.com/MRT/go/msnnkwxp1020093185mrt/direct/01/

>

>

[Guest guest]

thank you all so much for your replies! i can't tell you how much more

hopeful i feel. now maybe we can face the possibility of seizures with

out constant heart-pounding fear or anxiety. who knows maybe we'll even

get lucky. really appreciate the support.

amy, mom to aidan

[Guest guest]

My granddaughter Lindsey turned 6 in May and had her first seizure this

last July.  She's had three since then.   About 2 or so weeks apart.  They saw

the neurologist last week.  She is now on Keppra 2X's daily.  She seems to be

doing O.K. so far.  Just a little quiet and drowsy.  The neuro reassured us that

when her blood leveled out she wouldn't be drowsy.  We'll see.  In three months

she will have an EEG done and see the doctor immediately after.  It seems from

this site that most are at risk for seizures but not every child has them. 

Aiden might be one to escape them.  You just never know I guess.  The doctor

told us that they are more scary for the parents and grandparents than for the

child.  Hopefully, for Lindsey, they will stay under control with Keppra.  If

not we'll deal with it like everything else.   Just don't borrow trouble or wait

for the other shoe to drop.  It would be such wasted energy to worry when in

fact

Aiden may never have a seizure.  Hope this helps.  Take care.

Bonnie(grandmother to Lindsey 6 YO)W/bi-lateral PMG

> does anyone know of/have a case of PMG where the child does NOT

> experience seizures. I am getting more than a little bummed out by the

> number of stories that state seizures started between ages 2-5. my son

> is only 18 mo and seizure fre...so far. I may not want to know the

> answer to this question but would prefer to face things realistically.

>

> thanks,

> amy, mom to aidan w/ generalized PMG

>

[Guest guest]

my daughters started when she was 3mts old, and now is 15 mts.  And she has had

them every day!!

Subject: does PMG always mean seizures?

To: polymicrogyria

Date: Wednesday, October 1, 2008, 4:23 PM

does anyone know of/have a case of PMG where the child does NOT

experience seizures. I am getting more than a little bummed out by the

number of stories that state seizures started between ages 2-5. my son

is only 18 mo and seizure fre...so far. I may not want to know the

answer to this question but would prefer to face things realistically.

thanks,

amy, mom to aidan w/ generalized PMG

[Guest guest]

My daughter Rowan is 18 months old and has only had 1 seizure this

summer, but it was mild and several days after a vaccination so I think

it was due to the vax. She has all of her cognitive functions so far

and knows about 20 signs. She does not speak at all and is tube fed,

but she is crawling. She has Bilateral PMG and diagnosed with 80%

chance of having seizures. We'll keep our fingers crossed that she

doesn't!! We are also participating in research with Dr Dobyns in

Chicago. Email me if you have any other questions. Kesa

[Guest guest]

I don't know if i have actually post on here before or not, but my son

is 21 months old, and it is hard to tell if he is actually having

seizures or not. He has had two EEG's done, and one was even 24 hours,

and they didn't find any activity. He has staring spells that he just

can't seem to break out of, but very very few and far between. So i,

like you, am very hopefull that Lukas wont have to experience seizures,

but it seems very likely that he will.

[Guest guest]

Staring spells are a form of seizures...I would watch that carefully..sometimes

its a cue to something bigger down the road.   was having staring spells

too..but we didnt know that staring spells were seizure related back then.

We come to love not by finding a perfect person, but by learning to see an

imperfect person perfectly.

-Sam Keen, from To Love and Be Loved

Subject: Re: does PMG always mean seizures?

To: polymicrogyria

Date: Friday, October 3, 2008, 12:05 PM

I don't know if i have actually post on here before or not, but my son

is 21 months old, and it is hard to tell if he is actually having

seizures or not. He has had two EEG's done, and one was even 24 hours,

and they didn't find any activity. He has staring spells that he just

can't seem to break out of, but very very few and far between. So i,

like you, am very hopefull that Lukas wont have to experience seizures,

but it seems very likely that he will.

[Guest guest]

My son is 20 months old and has not had a siezure but sometimes there are

strange things that he does that concerns me.  Last week during the night he was

fussing so I picked him up to get him back to sleep and he did, but then he

started jerking his legs up quickly to his abdomen and kicking out.  He would do

it several times and then stop.  He would do it agian after a few minutes.  It

lasted for about an hour.  They were not the normal kind some kids do to fight

sleep.  It was strange, but was told by his neuroligst to not be concerned. 

Does this seem normal or am I reading too much into it since I'm scared of him

having siezures?

Thanks,

and Gage

From: bccrance <bccranceyahoo (DOT) com>

Subject: Re: does PMG always mean seizures?

To: polymicrogyria@ yahoogroups. com

Date: Friday, October 3, 2008, 12:05 PM

I don't know if i have actually post on here before or not, but my son

is 21 months old, and it is hard to tell if he is actually having

seizures or not. He has had two EEG's done, and one was even 24 hours,

and they didn't find any activity. He has staring spells that he just

can't seem to break out of, but very very few and far between. So i,

like you, am very hopefull that Lukas wont have to experience seizures,

but it seems very likely that he will.

[Guest guest]

Get a 2nd opinion from an Epileptologist................

Videotape if he does it again.

It DOES sound like seizure to me. Possible infantile Spasm type

Here is where you can find epilepsy centers in your area

http://www.naeclocator.org/find.htm

Good luck!

Donna(mom to Trevor, 12 yrs old Moderate BPNH-PMG, seizures(VNS & meds)

Chesapeake, Virginia

What is an EPILEPTOLOGIST

The quintessential EPILEPTOLOGIST is a physician who is Board Certified in

Neurology (or Pediatric Neurology, or Neurosurgery), Board Certified in EEG

(Clinical Neurophysiology), had Fellowship training at an Academic Epilepsy

Center, had Postdoctoral training in Basic Research. This physician may or may

not additionally have a higher degree (e.g. Masters, Ph.D.). S/He usually

belongs to a number of Academic Societies: American Epilepsy Society (AES),

American Clinical Neurophysiology Society (ACNS) [formally Am. EEG Soc.],

American Academy of Neurology (AAN), Child Neurology Society (CNS), Epilepsy

Foundation of America (EFA), Society for Neuroscience (SN), American Association

for the Advancement of Science (AAAS).

The Epileptologist predominantly sees patients with epilepsy, seizures, and

spells (the three are different) at a program which has multidisciplinary

support (outpatient, inpatient; medical, surgical, experimental treatments;

psychology, psychiatry; social; nursing; pharmacy).

In addition to patient care, an Epileptologist must concurrently be engaged in

Research. [ NIH Homepage, Nat'l Inst. Neurological Disease and Stroke ] The

research may be either clinical e.g. antiepileptic drug studies, epidemiology,

surgical, etc.; or basic e.g. anatomic, biochemical, computer modeling, EEG,

genetic, etc.

The Epileptologist teaches others in the Health field (medical students,

Neurology residents, Epilepsy Fellows, nurses, pharmacists, etc.) as well as

researchers in training (predoctoral, postdoctoral).

Finally, an Epileptologist is concerned about the non-medical issues of Epilepsy

(social injustice, driving regulations, access to employment and healthcare,

quality of life). He may pursue this through local and/or national organizations

such as EFA.

As the field of Epilepsy grew, Basic Research scientists became involved not

only with epilepsy research, but with the broader aspects of teaching and public

service. Although excluded from direct patient care as non-physicians, they

nevertheless embodied the full ideal of an Epileptologist.

In the 1980's, the concept of EPILEPTOLOGIST was embraced by clinical

researchers and nurses, the later forming their own Neuroscience Nursing

Society.

More and more medical and non-medical professions began to use the term in

association with persons who wished to emphasize their subspecialty of

expertise. However, just as there are seizures and pseudoseizures, there are

pseudo-epileptologists. These are people in both the medical and non-medical

professions who lack much of the training and expertise described above. Since

imitation is a form of flattery, the field of Epilepsy is justified in saying it

has now matured and flourished into a major force within the medical community.

Despite the fact that Epilepsy affects just as many people as Diabetes, it is an

illness which is in the closet. An unpopular illness with great social stigma.

Neurology as a whole is a small specialty, and the trends in healthcare further

decrease referrals to Neurologist from Primary Care Providers.

HOW DO EPILEPSY PATIENTS GET TO AN EPILEPTOLOGIST? Most don't!

Most are treated by Family Practitioners, General Practitioners, Internists,

Pediatricians. Most benefit from community standard medicine. For patients which

appear to be more difficult to manage, referrals are made to Neurologists or

Neurosurgeons for another level of care. Finally, the highest level of expertise

is the Epileptologist. These 100 individuals spread throughout the United States

couldn't possible handle all 4 million people with epilepsy. They are usually

very busy seeing medically intractable patients, patients with difficult to

diagnose spells, pseudoseizures, and epilepsy surgical candidates. However, if a

patient doesn't think he or she is getting what is listed in the epilepsy BILL

OF RIGHTS, they can ask for a referral.

--------------------------------------------------------------------------------

Criteria for Epilepsy Centers

Return to COPE

From: Brown

To: polymicrogyria

Sent: Friday, October 03, 2008 10:17 PM

Subject: Re: Re: does PMG always mean seizures?

My son is 20 months old and has not had a siezure but sometimes there are

strange things that he does that concerns me. Last week during the night he was

fussing so I picked him up to get him back to sleep and he did, but then he

started jerking his legs up quickly to his abdomen and kicking out. He would do

it several times and then stop. He would do it agian after a few minutes. It

lasted for about an hour. They were not the normal kind some kids do to fight

sleep. It was strange, but was told by his neuroligst to not be concerned.

Does this seem normal or am I reading too much into it since I'm scared of him

having siezures?

Thanks,

and Gage

From: bccrance <bccranceyahoo (DOT) com>

Subject: Re: does PMG always mean seizures?

To: polymicrogyria@ yahoogroups. com

Date: Friday, October 3, 2008, 12:05 PM

I don't know if i have actually post on here before or not, but my son

is 21 months old, and it is hard to tell if he is actually having

seizures or not. He has had two EEG's done, and one was even 24 hours,

and they didn't find any activity. He has staring spells that he just

can't seem to break out of, but very very few and far between. So i,

like you, am very hopefull that Lukas wont have to experience seizures,

but it seems very likely that he will.

[Guest guest]

my daughter did the exact same thing last may 2007 for a whole week. i mentioned

to her neurologist what you also described, jerking arm and leg for half hour

but her eyes closed. the neurologist stated most nocturnal seizures have eyes

opened, but since she's had seizures before he increased her trileptal dosage.

it helped since she hasn't had one since then. i hope that helps.

 

trinity's mom

lionella

Re: does PMG always mean seizures?

To: polymicrogyria@ yahoogroups. com

Date: Friday, October 3, 2008, 12:05 PM

I don't know if i have actually post on here before or not, but my son

is 21 months old, and it is hard to tell if he is actually having

seizures or not. He has had two EEG's done, and one was even 24 hours,

and they didn't find any activity. He has staring spells that he just

can't seem to break out of, but very very few and far between. So i,

like you, am very hopefull that Lukas wont have to experience seizures,

but it seems very likely that he will.