Re: Re: Bilateral frontoparietal Polymicrogyria

September 6, 2011

You meant she has no problems in feeding or speech, How old is she

Best Regards,

Lina Kurdi

> Lina

>

> I believe that only 80% of PMG diagnosis have seizures. Just what I've read.

>

> Also, my daughter had ONLY right sided weakness and seizures. No speech,

feeding or cognition. She does have a learning disability from seizures /

medications.

>

> Sent from my iPhone

>

> > One more question please, what r z other symptoms of PMG other than

seizures.

> >

> > Best Regards,

> > Lina Kurdi

> >

> > >

> > > Thats wonderful! God bless!

> > >

> > > To: polymicrogyria

> > > From: gelica_11@...

> > > Date: Tue, 6 Sep 2011 08:37:30 -0700

> > > Subject: Re: Bilateral frontoparietal Polymicrogyria

> > >

> > > Hello,

> > >

> > > I would like to share our sons story...

> > >

> > > Our son was born very premature, 27 weeks gestation.. He had tons of

respiratory issues at that time due to his early birth his lungs being extremely

under developed..he had his typical preemie complications nothing out of the

ordinary.. Two days after birth he had a head ultrasound which showed a brain

hemorrhage which is common in premature birth due to the delicateness of the

baby.. A day or so later doctors told us the hemorrhage had resolved and when

the time of discharge came close an MRI would be done to examine his brain.. The

MRI is routine at discharge.. After 80 some days in the hospital our son had his

MRI and it was sent to a local children's hospital it was looked at by a

pediatric neurologist and the findings said Generalized polymicrogyria.. His

NICU doctor had to look it up he had not a clue of how or what to say.. He had

never come across a person with PMG. The info he gave us was a few online

printouts that gave a very dark and scary outcome.. He had very limited info and

at discharge on my sons 92nd day in the NICU he went home breathing on his own

and drinking from a bottle on his own.. We followed up with pediatric

neurology.. And all she said was... PMG presents it's self differently in every

child it's to early to say what he can do and can't do we just have to take the

appropriate measures to maximize his capabilities.. Of course me being the

curious mother and working in the medical field I did tons of online research

which gives Grimm hope.. I fell into a deep depression if it wasn't for my

husband and my mother that helped my through it I don't know how I would have

done it.. They have always remained very optimistic.. Our son turns 2 in oct and

has limited speech he does not walk he can bear weight on both legs now and

takes little steps... has No feeding or breathing issues his cognition is

extraordinary!! And no seizures!! We have had therapist and doctors jaw

dropped.. He is extremely smart and I'm not saying that because he is my son but

because we see it and have been told.. When it comes to his " PMG " love does not

blind us we see the facts the actions. We want our son to reach his goals with

or without limitations.. He receives physical and occupational therapy. He also

has an infant/ toddler teacher. Every morning I thank God for my son he gives me

strength.. Thank you for taking the time and reading about our son M..

> > >

> > > ~ASC

> > >

> > > Sent from my iPhone

> > >

September 6, 2011

This is a great story to hear, and like they say every child is unique in

his/her development and response, nobody can expect anything from any child. God

knows how things would go.let's always hope for the best, it's easy to say but

hard to apply I know.

Love,

Lina

> Hello,

> I would like to share our sons story...

> Our son was born very premature, 27 weeks gestation.. He had tons of