Guest guest Posted February 20, 2012 Report Share Posted February 20, 2012 Dear Brie, Wow! Thank you so much for starting this. I love the website and your mission. I'm so happy to have this for our children. I just went to the Epilepsy Pipeline Conference and there were a number of patient advocacy groups there and I was thinking that we really need one too. And here it is!! Great job! I will take a closer look at it over the next few days and give you any thoughts I have. How can we include our kids in the faces of pmg page? Also, have you advertised it on the Facebook page for 'Families affected by polymicrogyria'? All the best, Quote Link to comment Share on other sites More sharing options...
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