Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 1. I don't believe LDN is part of the protocol 2. LDN was discussed on the Autism-Immune group in the last 6 mths. I don't think anything positive was passed because I didn't email myself information on it :-) but feel free to subscribe to that group and check their archives. They have a number of knowledgeable people on that listserve who do a very good job of presenting information in an unbias way. 3. If LDN is needed for myelination, why is demyelination occuring? is there an autoimmune process occuring (as is such with demyelinating conditions)? Is LDN then just bandaiding the problem? Do you really want to take LDN for the rest of your life or do you want to be rid of the problem by finding out what is causing the problem? Is the cause viral? bacterial? genetics? environmental? diet? or everything listed above? just food for thought doris -maryland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 dr mccandless is doing the ldn study. i am on the list and i have read many good stories about it. of course, not every child will benefit from it. worth looking into though. ldn is sort of an immune modulator. vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 In a message dated 2/20/2006 5:21:20 PM Pacific Standard Time, base2@... writes: We're on the list too (and in the study). Definitely some kids do seem to have difficulty with this drug, but for others it's amazing. I'd say my son no longer seems autistic. It's like he woke up. my son tried ldn twice with not good results. i plan on giving it another try at a later time. however, just because MY child didnt do well doesnt mean that it is bad for every child. again, each child is different and will respond differently. besides, i have a " tough nut " . however, im glad your child is doing well with it. that is what this bio medical journey is all about. finding what actually works that get the results needed. vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 I wasn't sure if LDN was part of the protocol. I don't think it's " needed " for myelination. I just remember reading something about it building it up and when I saw the post about the relationship to language I thought that might explain why it seems to make a dramatic change for some kids (but, of course, not others). I really don't know the answer to any of your other questions. I haven't researched it enough yet. On Feb 19, 2006, at 7:51 PM, Doris and Steve wrote: > 1. I don't believe LDN is part of the protocol > > 2. LDN was discussed on the Autism-Immune group in the last 6 > mths. > I don't think anything positive was passed because I didn't email > myself > information on it :-) > but feel free to subscribe to that group and check their archives. > They have a number of knowledgeable people on that listserve > who do a very good job of presenting information in an unbias way. > > 3. If LDN is needed for myelination, why is demyelination occuring? > is there an autoimmune process occuring (as is such with demyelinating > conditions)? Is LDN then just bandaiding the problem? > Do you really want to take LDN for the rest of your life or do you > want to be rid of the problem by finding out what is causing > the problem? Is the cause viral? bacterial? genetics? > environmental? diet? or everything listed above? > > just food for thought > > doris > -maryland > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 It is not part of the nids protocol. --- base2 <base2@...> wrote: > I wasn't sure if LDN was part of the protocol. > > I don't think it's " needed " for myelination. I just > remember reading something about it building it up > and > when I saw the post about the relationship to > language > I thought that might explain why it seems to make a > dramatic change for some kids (but, of course, > not others). > > I really don't know the answer to any of your other > questions. I haven't researched it enough yet. > > > > On Feb 19, 2006, at 7:51 PM, Doris and Steve > wrote: > > > 1. I don't believe LDN is part of the > protocol > > > > 2. LDN was discussed on the Autism-Immune > group in the last 6 > > mths. > > I don't think anything positive was passed because > I didn't email > > myself > > information on it :-) > > but feel free to subscribe to that group and check > their archives. > > They have a number of knowledgeable people on that > listserve > > who do a very good job of presenting information > in an unbias way. > > > > 3. If LDN is needed for myelination, why is > demyelination occuring? > > is there an autoimmune process occuring (as is > such with demyelinating > > conditions)? Is LDN then just bandaiding the > problem? > > Do you really want to take LDN for the rest of > your life or do you > > want to be rid of the problem by finding out what > is causing > > the problem? Is the cause viral? bacterial? > genetics? > > environmental? diet? or everything listed above? > > > > just food for thought > > > > doris > > -maryland > > > > > > Barb Katsaros barbkatsaros@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 I can understand. I've read very mixed results. On Feb 20, 2006, at 1:42 PM, Barb Katsaros wrote: > It is not part of the nids protocol. > > --- base2 <base2@...> wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 We're on the list too (and in the study). Definitely some kids do seem to have difficulty with this drug, but for others it's amazing. I'd say my son no longer seems autistic. It's like he woke up. On Feb 20, 2006, at 4:57 PM, vickila1@... wrote: > dr mccandless is doing the ldn study. i am on the list and i have > read many > good stories about it. of course, not every child will benefit from > it. > worth looking into though. ldn is sort of an immune modulator. > > vicki > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Absolutely! I agree that everyone has different results. What works for one child may not work for another. But it definitely is exciting when you do find thing(s) that work. Good luck to you Vicki! I'm sure with all your research you're going to find the right protocol (or sequence of protocol) that makes a difference. > > > > my son tried ldn twice with not good results. i plan on giving it > another > try at a later time. however, just because MY child didnt do well > doesnt mean > that it is bad for every child. again, each child is different and > will > respond differently. besides, i have a " tough nut " . however, im > glad your > child is doing well with it. that is what this bio medical journey > is all about. > finding what actually works that get the results needed. > > vicki > Quote Link to comment Share on other sites More sharing options...
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