Re: Re: New to board

[Guest guest]

Hi

Siera is on the treatment now, a jab every second day for 16 days and a blood

pressure check daily.

Did your girl Ella have any side effects? Siera is very irritable, now has an

ear infection and is also vomiting a few times a day, which they said could be

the ear infection. She is also peeing alot! She has nights where she cries for

hours, Doc said it is prob the ear infection, which I am hoping will clear now

shes on antibotics but I do worry that its its making her feel irritible all the

time.

She goes onto an oral taper from next Friday.

She has been spasm free since starting the treatment but I'm not getting my

hopes up as they may come back when she comes off it.

Thanks for your messages

Kat

________________________________

To: polymicrogyria

Sent: Tue, 7 June, 2011 6:52:22 AM

Subject: Re: New to board

Dear Kat,

You're welcome!

I hope you will have success with ACTH. I'm glad your neuro is familiar with

it. If you have any trouble getting the medication, please email me directly

mdaniel78 [at] gmail [dot] com. I can give you the contact information of

the associate director of specialty distribution at Questcor who can

probably assist you. I'm not certain how it works outside of the US, but I

imagine they have dealt with that before.

Best wishes,

" Thank you for your email - it helped alot

Posted by: " Kat Reid " cutekat@... cutekat@...

Thu Jun 2, 2011 1:39 am (PDT)

Hi

i just wanted to thank you for sharing your info with me. You mentioned the

ACTH

treatment.... we saw the neuro team 3 weeks ago and I mentioned it to the

lead

neuro doc and she agreed to give it a go, as she has worked in USA she knew

all

about it and has arranged to try Siera on it starting next week. I'm not

going

to get my hopes up but if it helps at all I will be very happy.

How is Ella doing?

Cheers

Kat "

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