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Re: Digest Number 2664

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I saw some letters Re: Pro's and Con's of ABA therapy and want to offer some

objective guidelines.

1. Don't rely on other " opinions " of what ABA or any other type of therapy

involves,

go to the leading experts in their fields especially for cutting edge

therapies that are not

recognized by the majority of the medical community.

2. Every child will have a unique response to any therapy whether ABA,

nutritional, chelation etc. Because each child has had different

environmental exposures, and has different

genetic strengths and weaknesses that are unique to them, they will have a

different response.

3. It would be in every child's best interest if their parents explored every

available legitimate opportunity to improve their child's well being. Yes, do

get the positive and negative

experiences of parents who have tried different therapies. But remember your

child is unique and you cannot base your decision on what another child or

parent's experience has been.

I have had the awesome privilege of having Dr. Megson in Richmond, VA

treating my 5 year old environmentally poisoned son, , for the last 1 1/2

years. Under Dr. Megson's

supervision and guidance we are using nutritional therapy and GFLF diet and had

some significant gains with my son. He began ABA therapy last October ( and is

still receiving it!) and

again continues to have some significant breakthroughs. In February of this

year, under Dr Schwartz's supervision we began a chelation protocol with 4

months initially using DMSA

and this July we added ALA. We have seen some absolutely fabulous gains with

both, but the most significant since starting the ALA. Is he " cured " ? I don't

know... I don't think any of us

know exactly what the primary health issue or issues are for . But I do know

all the things we have tried have made a positive impact , and improved his

life and ours.

Will other families see this response in their children? I don't know, but I

would think it would be worth a try.

Re: ABA therapy... my son is and has always been very loving, loves to be held,

hugged, cuddled etc. ABA therapy has not changed that aspect of him one bit. He

loves to climb up on his

therapists lap and give them big hugs. He loves his therapy sessions, on the

days he does not get therapy he will go and look out the front window around the

time the therapists normally

arrive and look for them. He definitely anticipates his therapy sessions with

enthusiasm. ABA therapy gives my son small successes in a world that usually has

little positive feedback.

When ABA therapy is done correctly, and for those who understand how to motivate

a child, there is little if ever need for negative feedback. Negative feedback

has a crucial place in the

life of all of us. Correct behavior is rewarded with successes. Incorrect

behavior does not allow us to reach our goals. This is definitely a simplified

version, but think about it in

your own life. You speed a lot... you get a ticket ( or two!). You follow the

speed limit.... no more speeding tickets.

Anyway there is my " opinion "

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  • 4 months later...

In a message dated 12/27/02 12:35:16 AM Pacific Standard Time, writes:

Date: Thu, 26 Dec 2002 17:58:06 -0800

From: "connie schmitt" <coniaimee@...>

Subject: meds

Hi everyone,

Two questions...first, what is a normal dose of Prednisone and Imuran? Second did anyone get CT scans in the begining stages? I requested one for my son prior to his first biopsey (Dec. 30). His CT is on Sat.

Thanks for all the support

Connie

Devin's mom

There is no "normal" dose; the amount varies depending on the severity of disease and the method of treatment chosen, the "strategy of attack." I began at 80 mg Prednisone, 100 Imuran. However, that's more Prednisone than most AIH people need. I was given a CAT scan the first day I was seen by the doctor.

Harper

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  • 3 years later...

I just wanted to weigh in on the supplements, my daughter is a patient of Dr.

G. we just tested her zinc and found it low. He said to give a supplement

that was pure, without other ingredients added. Which you can find at the health

food store. When I looked at the local Walmart, the one they sold listed about

10 additional ingredients. She also takes slow fe, calcium, and trace

minerals all recommended by him based on her blood work. She also takes

anti-viral,

ssri's, and anti fungal.

Joni

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Joni,

Kirkman labs has zink that is more pure.Dr. G has recommanded

Kirkman for multivitamin before.

http://www.kirkmanlabs.com/products/minerals/zinc/H_Zinc_C_100_Spec02

3.html

Jin

>

> I just wanted to weigh in on the supplements, my daughter is a

patient of Dr.

> G. we just tested her zinc and found it low. He said to give a

supplement

> that was pure, without other ingredients added. Which you can find

at the health

> food store. When I looked at the local Walmart, the one they sold

listed about

> 10 additional ingredients. She also takes slow fe, calcium, and

trace

> minerals all recommended by him based on her blood work. She also

takes anti-viral,

> ssri's, and anti fungal.

> Joni

>

>

>

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