Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Does anyone have a working phone number or e-mail address for Dr. Dobyns. I would love to make an appt. with him for Cristina. Thanks Subject: To those of you who have seen Dr. Dobyns To: polymicrogyria Date: Thursday, August 26, 2010, 4:10 PM Thank you to all of your responses to my other intro message and for welcoming me into the group. It seems like Dr. Dobyns is the only doctor in the country who specializes in PMG and other similar disorders. (If anyone knows of anyone else, please let me know.) For those of you who have seen Dr. Dobyns, did you actually go to his office or did you have a remote/over the phone appointment? We live on the east coast, so it will take great effort and expense to get us to Seattle, but we will do what we have to to have Callie seen by someone who is familiar with PMG. Once we have the appointment I am wondering what to expect. Can you please tell me if you found it worth it? Was he better able to give a prognosis? I would imagine he would be because he has so many cases to compare her to vs. the neurologists around here who only see a case or two of PMG each year (if that). Please let me know if you have any advise for getting the most out of the appointment. Thanks! Mommy to Callie, 9 months old with BPP + Infantile Spasms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 His number is he is at Seattle Childrens Hospital ________________________________ To: polymicrogyria Sent: Sat, January 22, 2011 5:08:56 PM Subject: Dr. Dobyns Does anyone have a working phone number or e-mail address for Dr. Dobyns. I would love to make an appt. with him for Cristina. Thanks Subject: To those of you who have seen Dr. Dobyns To: polymicrogyria Date: Thursday, August 26, 2010, 4:10 PM Thank you to all of your responses to my other intro message and for welcoming me into the group. It seems like Dr. Dobyns is the only doctor in the country who specializes in PMG and other similar disorders. (If anyone knows of anyone else, please let me know.) For those of you who have seen Dr. Dobyns, did you actually go to his office or did you have a remote/over the phone appointment? We live on the east coast, so it will take great effort and expense to get us to Seattle, but we will do what we have to to have Callie seen by someone who is familiar with PMG. Once we have the appointment I am wondering what to expect. Can you please tell me if you found it worth it? Was he better able to give a prognosis? I would imagine he would be because he has so many cases to compare her to vs. the neurologists around here who only see a case or two of PMG each year (if that). Please let me know if you have any advise for getting the most out of the appointment. Thanks! Mommy to Callie, 9 months old with BPP + Infantile Spasms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Children's Hospital in Seattle also has a toll free number 1- ________________________________ To: polymicrogyria Sent: Sat, January 22, 2011 8:14:19 AM Subject: Re: Dr. Dobyns His number is he is at Seattle Childrens Hospital ________________________________ To: polymicrogyria Sent: Sat, January 22, 2011 5:08:56 PM Subject: Dr. Dobyns Does anyone have a working phone number or e-mail address for Dr. Dobyns. I would love to make an appt. with him for Cristina. Thanks Subject: To those of you who have seen Dr. Dobyns To: polymicrogyria Date: Thursday, August 26, 2010, 4:10 PM Thank you to all of your responses to my other intro message and for welcoming me into the group. It seems like Dr. Dobyns is the only doctor in the country who specializes in PMG and other similar disorders. (If anyone knows of anyone else, please let me know.) For those of you who have seen Dr. Dobyns, did you actually go to his office or did you have a remote/over the phone appointment? We live on the east coast, so it will take great effort and expense to get us to Seattle, but we will do what we have to to have Callie seen by someone who is familiar with PMG. Once we have the appointment I am wondering what to expect. Can you please tell me if you found it worth it? Was he better able to give a prognosis? I would imagine he would be because he has so many cases to compare her to vs. the neurologists around here who only see a case or two of PMG each year (if that). Please let me know if you have any advise for getting the most out of the appointment. Thanks! Mommy to Callie, 9 months old with BPP + Infantile Spasms Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 We took our daughter to see dr walsh at childrens hospital Boston. Google walsh lab at childrens hospital for more info. We thought he was very helpful. Sent from my iPhone T On Jan 22, 2011, at 4:59 PM, merlin rothamel wrote: > Children's Hospital in Seattle also has a toll free number 1- > > ________________________________ > > To: polymicrogyria > Sent: Sat, January 22, 2011 8:14:19 AM > Subject: Re: Dr. Dobyns > > His number is he is at Seattle Childrens Hospital > > ________________________________ > > To: polymicrogyria > Sent: Sat, January 22, 2011 5:08:56 PM > Subject: Dr. Dobyns > > > Does anyone have a working phone number or e-mail address for Dr. > Dobyns. I > would love to make an appt. with him for Cristina. Thanks > > > > > > Subject: To those of you who have seen Dr. Dobyns > > To: polymicrogyria > > Date: Thursday, August 26, 2010, 4:10 PM > > Thank you to all of your responses to my other intro message and for > welcoming > > me into the group. > > It seems like Dr. Dobyns is the only doctor in the country who > specializes in > > PMG and other similar disorders. (If anyone knows of anyone else, > please let me > > know.) For those of you who have seen Dr. Dobyns, did you actually > go to his > > office or did you have a remote/over the phone appointment? We live > on the east > > coast, so it will take great effort and expense to get us to > Seattle, but we > > will do what we have to to have Callie seen by someone who is > familiar with PMG. > > Once we have the appointment I am wondering what to expect. Can you > please tell > > me if you found it worth it? Was he better able to give a prognosis? > I would > > imagine he would be because he has so many cases to compare her to > vs. the > > neurologists around here who only see a case or two of PMG each year > (if that). > > Please let me know if you have any advise for getting the most out > of the > > appointment. > > Thanks! > > > > Mommy to Callie, 9 months old with BPP + Infantile Spasms > > Quote Link to comment Share on other sites More sharing options...
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