Thank you Marcia

[Guest guest]

Nicolle, I just wanted to tell you that Marcia gave some great advice on

asking your doc about trying Ankinra or remicade instead of waiting for the

enbrel to be approved. The wait time now is almost a year, or that was the

last I heard. There is no reason to wait and have joint destruction happen

when you can take something else that is availble and hopefully stop the

destruction in it's tracks. Stills can be very agressive joint wise during

the first 3 years. In about 25 percent of all stills patients have the

agressive joint destruction occour early on and that is the reason doctors

need to treat it more aggressivly with mtx, enbrel, remicade or kineret.

Jen

[Guest guest]

Thank you again Marcia for your return to the list. When I first

found the list and read your emails. I knew I had to do everything

possible to get my son to Dr G. It is a long rough road but we have slow

but steady improvement which I am not seeing other places because I

believe this is indeed a medical disease and if you don't treat it of

course you won't get better. Jerri