/was: /was:Re: neuroimmune research

[Guest guest]

:

Well, it is only partly . But is pretty restrictive, not saying that in

a bad way, just saying that means antiviral and psychotropic meds and a

diet. If I am wrong, please correct me.

I am also uncomfortable sharing anymore publicly, although, as I stated, the

list has been very kind, but the protocol I used in recovering our girl goes

beyond , although I think has an important contribution to make and

many are starting to listen.

I got no less than 6 private emails asking me for information and I don't have

the time or the energy to reply individually about the same issues.

If those of you can figure out a way for all of us to get together so I won't be

needlessly repeating myself, I would be game. Very technophobic here, also very

basic computer skills.

Re: /was:Re: neuroimmune research

,

I can only speak for myself but I would like to see the answers to s

questions on-list. I am not offended by information. Many times others ask

questions that I need answers to also. Thanks for sharing this healthy

discussion. Anything that might help our kids and it is related.

N.

[Guest guest]

Thanks, , that is helpful. Psychotropic drugs include SSRI's, for one, or

anything for brain function or anything a psychiatrist might deal with.

Re: /was:Re: neuroimmune research

>

>

> ,

> I can only speak for myself but I would like to see the answers

to s

> questions on-list. I am not offended by information. Many

times others ask

> questions that I need answers to also. Thanks for sharing this

healthy

> discussion. Anything that might help our kids and it is

related. N.

>

>

>

[Guest guest]

Hi ,

I wanted to make it clear that my son is, while I hesitate to say

" recovered " , certainly indistinguishable from his peers. We have not used

ANY SSRI's at all. We have used anti virals, anti fungals and ALOT of diet.

He is healthier now than he has ever been and the light bulb continues to

shine at 100w most days, unless of course he is sick. He is independent,

plays hockey, goes to Beavers, plays piano beautifully all without an aide.

We also never did ABA/IBI either.

Lori

Re: /was: /was:Re: neuroimmune research

Thanks, , that is helpful. Psychotropic drugs include SSRI's, for

one, or anything for brain function or anything a psychiatrist might deal

with.

Re: /was:Re: neuroimmune research

>

>

> ,

> I can only speak for myself but I would like to see the answers

to s

> questions on-list. I am not offended by information. Many

times others ask

> questions that I need answers to also. Thanks for sharing this

healthy

> discussion. Anything that might help our kids and it is

related. N.

>

>

>

[Guest guest]

Okay, not sure why you would want to make that clear to me, but I have been

notified. Best wishes for your child's continued recovery.

> >

> > :

> >

> > Well, it is only partly . But is pretty

restrictive, not

> saying that in a bad way, just saying that means

antiviral and

> psychotropic meds and a diet. If I am wrong, please correct

me.

> >

> > I am also uncomfortable sharing anymore publicly, although,

as I

> stated, the list has been very kind, but the protocol I used in

> recovering our girl goes beyond , although I think

has an

> important contribution to make and many are starting to listen.

> >

> > I got no less than 6 private emails asking me for

information and

> I don't have the time or the energy to reply individually

about the

> same issues.

> >

> > If those of you can figure out a way for all of us to get

together

> so I won't be needlessly repeating myself, I would be game.

Very

> technophobic here, also very basic computer skills.

> >

> >

> > Re: /was:Re: neuroimmune research

> >

> >

> > ,

> > I can only speak for myself but I would like to see the

answers

> to s

> > questions on-list. I am not offended by information. Many

> times others ask

> > questions that I need answers to also. Thanks for sharing

this

> healthy

> > discussion. Anything that might help our kids and it is

> related. N.

> >

> >

> >

[Guest guest]

Hi ,

My son is just over 7 and we started with Dr. Goldberg just before he turned

4. We have rotated on and off the assorted anti fungal and anti viral drugs

with great success, keep him on a VERY tight diet and do BayGam injections

every 3 weeks. My sons labs have improved, his IgE has dropped from in the

3000's to as low as 1100. Right now we are seeing some persistent viral

activity that has caused his white cell count to decline, his liver function

to go up again and his IgE is on the rise again. We are about to go back to

Valtrex which in the past was our antiviral of choice so I am hoping we get

on top of it ASAP. However this is the first time his health appears to be

off, yet we are seeing no " behaviour " at all. He appears better and

healthier than ever!

We have never tried SSRI's. My son was fairly high functioning when we

started although echolailic, quite scripted with poor eye contact, although

always cognitively VERY bright. Today he really is indistinguishable from

his peers. He is independently involved in team sports,is a loving, patient

and very attentive big brother to his two younger siblings, including his

infant sister. He gets top grades in his grade 2 class, even though he is

the youngest in the grade.

Hope this helps.

Lori

/was: /was:Re: neuroimmune research

Lori...just wondering how long on meds, how labs are these days, and

how old is your child. I have to wonder if ssri's may have a place,

but maybe not long term for everyone.

Thanks

> >

> > :

> >

> > Well, it is only partly . But is pretty

restrictive, not

> saying that in a bad way, just saying that means

antiviral and

> psychotropic meds and a diet. If I am wrong, please correct

me.

> >

> > I am also uncomfortable sharing anymore publicly, although,

as I

> stated, the list has been very kind, but the protocol I used in

> recovering our girl goes beyond , although I think

has an

> important contribution to make and many are starting to listen.

> >

> > I got no less than 6 private emails asking me for

information and

> I don't have the time or the energy to reply individually

about the

> same issues.

> >

> > If those of you can figure out a way for all of us to get

together

> so I won't be needlessly repeating myself, I would be game.

Very

> technophobic here, also very basic computer skills.

> >

> >

> > Re: /was:Re: neuroimmune research

> >

> >

> > ,

> > I can only speak for myself but I would like to see the

answers

> to s

> > questions on-list. I am not offended by information. Many

> times others ask

> > questions that I need answers to also. Thanks for sharing

this

> healthy

> > discussion. Anything that might help our kids and it is

> related. N.

> >

> >

> >

[Guest guest]

-

The only part I want to know and without breaking any HIPPA

rules,unless you changed your name your child was never a patient of

Dr. Goldberg

Elyse Goldberg

-- In , " Cochran " <Ladyshrink111@...>

wrote:

>

> Okay, not sure why you would want to make that clear to me, but I

have been notified. Best wishes for your child's continued recovery.

>

>

>

>

> > >

> > > :

> > >

> > > Well, it is only partly . But is pretty

> restrictive, not

> > saying that in a bad way, just saying that means

> antiviral and

> > psychotropic meds and a diet. If I am wrong, please correct

> me.

> > >

> > > I am also uncomfortable sharing anymore publicly, although,

> as I

> > stated, the list has been very kind, but the protocol I used

in

> > recovering our girl goes beyond , although I think

> has an

> > important contribution to make and many are starting to

listen.

> > >

> > > I got no less than 6 private emails asking me for

> information and

> > I don't have the time or the energy to reply individually

> about the

> > same issues.

> > >

> > > If those of you can figure out a way for all of us to get

> together

> > so I won't be needlessly repeating myself, I would be game.

> Very

> > technophobic here, also very basic computer skills.

> > >

> > >

> > > Re: /was:Re: neuroimmune research

> > >

> > >

> > > ,

> > > I can only speak for myself but I would like to see the

> answers

> > to s

> > > questions on-list. I am not offended by information.

Many

> > times others ask

> > > questions that I need answers to also. Thanks for

sharing

> this

> > healthy

> > > discussion. Anything that might help our kids and it is

>

> > related. N.

> > >

> > >

> > >

[Guest guest]

Elyse and group:

I implied nor said nor meant to imply or say no such thing.

My posts have been respectful and considerate. I believe your husband's

contribution has merit and said so. How do you dare call me names?

Your attitude is a good example of people who care more about ego and fame and

credit and money than the children. Your comments are shameful!

There is reputable science to prove more than your husband's contributions.

Think about the children.

Re: /was:Re: neuroimmune

> research

> > > > >

> > > > >

> > > > > ,

> > > > > I can only speak for myself but I would like to see

> the

> > > answers

> > > > to s

> > > > > questions on-list. I am not offended by

information.

> > Many

> > > > times others ask

> > > > > questions that I need answers to also. Thanks for

> > sharing

> > > this

> > > > healthy

> > > > > discussion. Anything that might help our kids and it

> is

> > >

> > > > related. N.

> > > > >

> > > > >

> > > > >