newly diagnosed Sensory Disorder

[Guest guest]

My 23 month old son was diagnosed just yesterday with Sensory

Integration and Immune Deficiency Syndrome. I have no idea what to

think or what to even begin doing for my little boy. If any one is in

or has been in the same boat your advice would be a blessing. I have

no idea where to begin or where to go for help.

[Guest guest]

1. The out of sync child ( Caarol Stock Kranowitz)

2. The Sensory Connection ( Kashman)

www.sensoryresources.com

www.sensorysmarts.com

email me and will give you more info.

flames21@...

newly diagnosed Sensory Disorder

> My 23 month old son was diagnosed just yesterday with Sensory

> Integration and Immune Deficiency Syndrome. I have no idea what to

> think or what to even begin doing for my little boy. If any one is in

> or has been in the same boat your advice would be a blessing. I have

> no idea where to begin or where to go for help.

>

>

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent Coalition.

>

>

[Guest guest]

Have your child receive a thorough evaluation by an Occupational Therapist (OT)

who has experience with Sensory Integration. He/she will be able to help you

see what your child's sensory needs are and will create a " sensory diet " to

address those needs. You can probably get this done through a local social

services agency which handles developmental disability issues or though your

school district's early intervention program.

HTH,

Heidi

-------------- Original message --------------

From: " greshammomma " <greshammomma@...>

> My 23 month old son was diagnosed just yesterday with Sensory

> Integration and Immune Deficiency Syndrome. I have no idea what to

> think or what to even begin doing for my little boy. If any one is in

> or has been in the same boat your advice would be a blessing. I have

> no idea where to begin or where to go for help.

>

>

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent Coalition.

>

>

[Guest guest]

is it a primary immune def. syndrome or secondary?

I've been told the viral aspects of makes it a secondary

immune dys syndrome.

The main support group for PID is in Towson, land

Unsure of a contact but I know they do have a website ....

doris

-maryland

>

> My 23 month old son was diagnosed just yesterday with Sensory

> Integration and Immune Deficiency Syndrome. I have no idea what to

> think or what to even begin doing for my little boy. If any one is in

> or has been in the same boat your advice would be a blessing. I have

> no idea where to begin or where to go for help.

>

[Guest guest]

I just thought I'd mention - when my child started

Diflucan, we saw a significant reduction in sensory

issues. Perhaps a probiotic and sugar/carb

restriction would be helpful as well...

--- theshabbysheep@... wrote:

> Have your child receive a thorough evaluation by an

> Occupational Therapist (OT) who has experience with

> Sensory Integration. He/she will be able to help

> you see what your child's sensory needs are and will

> create a " sensory diet " to address those needs. You

> can probably get this done through a local social

> services agency which handles developmental

> disability issues or though your school district's

> early intervention program.

>

> HTH,

> Heidi

>

> -------------- Original message --------------

> From: " greshammomma " <greshammomma@...>

>

> > My 23 month old son was diagnosed just yesterday

> with Sensory

> > Integration and Immune Deficiency Syndrome. I have

> no idea what to

> > think or what to even begin doing for my little

> boy. If any one is in

> > or has been in the same boat your advice would be

> a blessing. I have

> > no idea where to begin or where to go for help.

> >

> >

> >

> >

> >

> >

> >

> > Responsibility for the content of this message

> lies strictly with

> > the original author(s), and is not necessarily

> endorsed by or the

> > opinion of the Research Institute and/or the

> Parent Coalition.

> >

> >

[Guest guest]

Hi -

I think I responded before but didn't catch the part

of the Immune deficiency syndrome. That even adds

more impact... if the immune system is deficient, the

liklihood of candida/yeast/fungal infections, being

opportunistic as they are, is even more likely. It is

not necessarily an overall cause, but surely a

potential contributing factor. Yeast problems are

very common in kids, and some type of immune

response to it can set up sensory problems, as well as

chronic viral infections, or any other chronic

infection or reaction (including food reactions) that

could be setting up inflammation of the central

nervous system.

What type of immune deficiency in particular does your

child have? And does he have a history of thrush?

If your child is going to be receiving treatment, you

may very well see a significant improvement in the

sensory problems as his body is supported by treatment

and any infections gotten under control. In the

meantime, research therapy and find a good

occupational therapist. Depending on age, if younger

than 3, there may be an early intervention program

available for free where an OT could come to your home

or daycare and give therapy. Call a children's

hospital or autism support group for a good referral.

Hope that helps and hang in there - a lot improvement

can take place once a problem is recognized, and

sensory problems can wreak havoc on behaviors, so even

though you may be very distressed right now, your

family's quality of life may soon improve.

--- greshammomma <greshammomma@...> wrote:

> My 23 month old son was diagnosed just yesterday

> with Sensory

> Integration and Immune Deficiency Syndrome. I have

> no idea what to

> think or what to even begin doing for my little boy.

> If any one is in

> or has been in the same boat your advice would be a

> blessing. I have

> no idea where to begin or where to go for help.

>

>

>

>

>

>

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