Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Jin, Don't panic yet! There may well be another explanation for what is going on... such as a tic. Could he be coming down with something or have a bacterial infection of some sort? As far as what is common with seizures, the answer is as complex as trying to describe a " typical " child with . There are a many types of seizures (and combinations thereof) and and many levels of severity, as well as huge variances in how often seizures occur (but I will say that being overtired seems to be a major trigger in many children). The best thing to do right now is probably just to let Dr. G know and see what he says. You might want to try to get a video of the head shaking if that is at all possible... it might help a Dr. figure out what it is, but honestly the only real way to tell is an EEG and even then... I was told by the neurologist who read my son's 3-day EEG that absence seizures are difficult to discern. With 72 hours straight of EEG tape they still weren't sure if he was having absence seizures, although they did identify several other types of seizures. If you want a great source of information about seizures, go to " epilepsy.com " . I think it is a wonderful resource. It may very well be something else, though, especially since he is doing so well right now. Hang in there! Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Caroline, Thank you very much for reply. What is a tic? I hope it is not seizure too. I know you have been though it, and it was not easy. I remember another mom talk about seizure after increasing Strattra. I am just so nervous about it. He is in six grade, it will be to much to catch up with peers if there are any serious setback. We do not have a family history of seizure, so it is one point on our side since I read it more likely run in the family. I sent an email this morning to ask if teachers saw same thing in school. We just had conference last night, and teachers have all good things to say this time. He is getting A, B, B-, and a C+. (His standardize test results usually much higher), compare to he usually get c, d, and even f at beginning of the year) it was a big step forward. I was not quite happy with the grades compare to his standardized test), but the teachers remind me that he does not pay attention all the time, he does not do teacher ask him to do all the time (He think he is correct, and teachers are wrong), all considered, he is doing well, and I had to agree. He did not have any modification to his curriculum, so he is working like every body else. He has less un-prefer task, has less argument with teacher than before, can move on quickly after a setback, so teacher are happy, as result, he do not have to bring a lot of more work to home, and able to have some time for himself each day. He is definitely catching up to the peers. I hate to imaging that all this progress get wiped out. Jin > > Jin, > > Don't panic yet! > > There may well be another explanation for what is going on... such as a tic. > Could he be coming down with something or have a bacterial infection of some > sort? > > As far as what is common with seizures, the answer is as complex as trying > to describe a " typical " child with . There are a many types of seizures > (and combinations thereof) and and many levels of severity, as well as huge > variances in how often seizures occur (but I will say that being overtired > seems to be a major trigger in many children). > > The best thing to do right now is probably just to let Dr. G know and see > what he says. You might want to try to get a video of the head shaking if > that is at all possible... it might help a Dr. figure out what it is, but > honestly the only real way to tell is an EEG and even then... I was told by > the neurologist who read my son's 3-day EEG that absence seizures are > difficult to discern. With 72 hours straight of EEG tape they still weren't > sure if he was having absence seizures, although they did identify several > other types of seizures. > > If you want a great source of information about seizures, go to > " epilepsy.com " . I think it is a wonderful resource. > > It may very well be something else, though, especially since he is doing so > well right now. Hang in there! > > Caroline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Jin, Here is the best description I was able to find for a " tic " . It's not really considered to be a form of seizure as far as I know. Below is (I made some snips here and there) from the Dr. Greene website, which I love. " Tics are common--more common than most people think. They are repeated, involuntary muscle movements and they often increase during times of stress, including things like the strep or ear infections. " Jin, tics can be part of PANDAS, so if Dr. Goldberg has been watching your son's strep antibodies (through ASO titer on the blood work) and they are high, that might be a clue. Caroline > From: jinyang061629 <yanglou@...> > Reply-< > > Date: Fri, 24 Feb 2006 15:19:45 +0000 > < > > Subject: Re: absence seizure > > Caroline, > Thank you very much for reply. What is a tic? I hope it is not > seizure too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Caroline, Thank you very much. All in all, I think it more related tics then seizure. He did have a quite stressful 2 weeks physically, and mentally. More than 4 hour SAT testing, 3 hour TKD testing (jumping, kicking, punching, and 2 mile running), and 3 day outdoor ed with school at downstate somewhere. He was having sore throat, and a little under weather. He really did not have time to relax, and recover. I will ask for more testing at next weeks phone consult, see if his ASO titer is ok. He rarely gets any step. But the physical, and mental stress many change things. Thanks for help me sort through. I feel much better after I understand a little more. Jin > > Jin, > > Here is the best description I was able to find for a " tic " . It's not > really considered to be a form of seizure as far as I know. > > Below is (I made some snips here and there) from the Dr. Greene website, > which I love. > > " Tics are common--more common than most people think. They are repeated, > involuntary muscle movements and they often increase during times of stress, > including things like the strep or ear infections. " > > Jin, tics can be part of PANDAS, so if Dr. Goldberg has been watching your > son's strep antibodies (through ASO titer on the blood work) and they are > high, that might be a clue. > > Caroline > > > > From: jinyang061629 <yanglou@...> > > Reply-< > > > Date: Fri, 24 Feb 2006 15:19:45 +0000 > > < > > > Subject: Re: absence seizure > > > > Caroline, > > Thank you very much for reply. What is a tic? I hope it is not > > seizure too. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Jin, You are so welcome. I'm glad you feel better. If it is a tic, it may just disappear as quickly as it it started. Please share what you learn with us after speaking to Dr. G... I'm always interested to hear, because it seems that after a while everything everyone goes through on the list happens to one of my boys! The more I read, the more I realize I don't know, so I'm always interested to read more information about everything. Caroline > From: jinyang061629 <yanglou@...> > Reply-< > > Date: Sat, 25 Feb 2006 23:15:08 +0000 > < > > Subject: Re: absence seizure > > Caroline, > > Thank you very much. All in all, I think it more related tics then > seizure. He did have a quite stressful 2 weeks physically, and > mentally. More than 4 hour SAT testing, 3 hour TKD testing (jumping, > kicking, punching, and 2 mile running), and 3 day outdoor ed with > school at downstate somewhere. He was having sore throat, and a > little under weather. He really did not have time to relax, and > recover. > > I will ask for more testing at next weeks phone consult, see if his > ASO titer is ok. He rarely gets any step. But the physical, and > mental stress many change things. > > Thanks for help me sort through. I feel much better after I > understand a little more. > Jin Quote Link to comment Share on other sites More sharing options...
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