Re: GI problems/family history of Autoimmune disease

[Guest guest]

Thanks for posting this. Can anyone relate?

(We have hstory of autoimmune disease, celiac disease, food

allergy...kid didn't have a chance!)

--- In , Doris and Steve <sjsmith@...>

wrote:

>

> Gastrointestinal Problems and Family History of Autoimmune Disease

Are More Common in Children with Autistic Spectrum Disorder with

Language Regression Than Those Without Regression

>

> Valicenti-McDermott, McVicar, Herbert Cohen,

Isabelle Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center,

AECOM, Bronx, NY; Pediatrics/CHAM, AECOM, Bronx, NY; Neurology,

AECOM, Bronx, NY.

>

> BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

colitis, occurred at higher frequency in children with Autistic

Spectrum Disorder(ASD), but there is no comparative data between

children with and without history of language regression(LR).

> OBJECTIVE: To compare the clinical characteristics, frequency of

GI symptoms, and its relationship to family history of autoimmune

disorders in children with ASD with or without a history of LR.

> DESIGN/METHODS: Cross sectional study with structured interview in

100 children with ASD. Interview included: Childhood Autism Rating

Scale(CARS), GI Questionnaire, and Familial Autoimmune

Questionnaire. Language regression was defined as the parental

report of loss of any words.

> RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean

age was 9.6 y. Children with LR had a higher CARS than those without

LR (39.3 vs 36.3, p=0.03) Only 40% of children with LR were toilet

trained compared to 72% non-LR (p=0.03). Overall, 68% had one or

more GI complaint. Children with LR have more GI problems (84% vs

61% p=0.04), especially chronic diarrhea (40 % vs 12% p=0.006) and

increased number of bowel movements (1.9 1 vs 1.3 1 p=0.03).

Family history of celiac disease or inflammatory bowel disease was

greater in children with LR (24% vs 0 p=0.001). Fourteen percent of

the total group had food allergies (LR 24% vs noLR 11% p=0.2).

Family history of autoimmune disease was present in 34% of children

with ASD. Rheumatoid arthritis was higher in those with LR (30% vs

11% p=0.03) with no differences in the frequency of other autoimmune

disorders. Of the 8 children with family history of autoimmune

disease and LR, 6(75%) also had history of chronic diarrhea compared

with 4(16%) of the 25 with family history of autoimmune disease and

no LR (p=0.023).

> CONCLUSIONS: Children with ASD with history of LR have a higher

rate of GI symptoms, in particular chronic diarrhea, than children

with ASD without a history of LR. Family history of rheumatoid

arthritis was elevated in those with LR. There is an association

between children with LR, family history of autoimmune disease and

chronic diarrhea, which suggests a shared autoimmune pathophysiology.

>

[Guest guest]

What is the treatment if any for autoimmune colitis?

GI problems/family history of Autoimmune disease

Gastrointestinal Problems and Family History of Autoimmune Disease Are

More Common in Children with Autistic Spectrum Disorder with Language

Regression Than Those Without Regression

Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx, NY;

Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

colitis, occurred at higher frequency in children with Autistic Spectrum

Disorder(ASD), but there is no comparative data between children with

and without history of language regression(LR).

OBJECTIVE: To compare the clinical characteristics, frequency of GI

symptoms, and its relationship to family history of autoimmune disorders

in children with ASD with or without a history of LR.

DESIGN/METHODS: Cross sectional study with structured interview in 100

children with ASD. Interview included: Childhood Autism Rating

Scale(CARS), GI Questionnaire, and Familial Autoimmune Questionnaire.

Language regression was defined as the parental report of loss of any

words.

RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean age was

9.6 y. Children with LR had a higher CARS than those without LR (39.3 vs

36.3, p=0.03) Only 40% of children with LR were toilet trained compared

to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

Children with LR have more GI problems (84% vs 61% p=0.04), especially

chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac disease or

inflammatory bowel disease was greater in children with LR (24% vs 0

p=0.001). Fourteen percent of the total group had food allergies (LR 24%

vs noLR 11% p=0.2). Family history of autoimmune disease was present in

34% of children with ASD. Rheumatoid arthritis was higher in those with

LR (30% vs 11% p=0.03) with no differences in the frequency of other

autoimmune disorders. Of the 8 children with family history of

autoimmune disease and LR, 6(75%) also had history of chronic d! iarrhea

compared with 4(16%) of the 25 with family history of autoimmune disease

and no LR (p=0.023).

CONCLUSIONS: Children with ASD with history of LR have a higher rate of

GI symptoms, in particular chronic diarrhea, than children with ASD

without a history of LR. Family history of rheumatoid arthritis was

elevated in those with LR. There is an association between children with

LR, family history of autoimmune disease and chronic diarrhea, which

suggests a shared autoimmune pathophysiology.

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

I'd be curious to know how autoimmune colitis differs from regular

colitis (or ulcerative

colitis) since ulcerative colitis is considered an autoimmune disease.

For Ulcerative Colitis (just regular colitis) There's " maintenance "

medications like Asacol and

Pentasa (from the sulfa drug family) that help with controlling

inflammation (and also supposedly

help prevent colon cancer!), but for full-blown flares it's usually

steroids and immunosuppressants.

There's also some other things like Remicade and maybe some newer

things I'm unaware of... but

generally IBD patients are put on immunosuppressants which are usually

pretty successful in

keeping the disease under control.

If " autoimmune colitis " is merely a less severe form of ulcerative

colitis then perhaps diet

alone would be sufficient in controlling symptoms.

On Apr 28, 2006, at 8:33 AM, K. Fischer wrote:

> What is the treatment if any for autoimmune colitis?

>

> GI problems/family history of Autoimmune disease

>

> Gastrointestinal Problems and Family History of Autoimmune Disease Are

> More Common in Children with Autistic Spectrum Disorder with Language

> Regression Than Those Without Regression

>

> Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx, NY;

> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

>

> BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

> colitis, occurred at higher frequency in children with Autistic

> Spectrum

> Disorder(ASD), but there is no comparative data between children with

> and without history of language regression(LR).

> OBJECTIVE: To compare the clinical characteristics, frequency of GI

> symptoms, and its relationship to family history of autoimmune

> disorders

> in children with ASD with or without a history of LR.

> DESIGN/METHODS: Cross sectional study with structured interview in 100

> children with ASD. Interview included: Childhood Autism Rating

> Scale(CARS), GI Questionnaire, and Familial Autoimmune Questionnaire.

> Language regression was defined as the parental report of loss of any

> words.

> RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean age

> was

> 9.6 y. Children with LR had a higher CARS than those without LR (39.3

> vs

> 36.3, p=0.03) Only 40% of children with LR were toilet trained compared

> to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

> Children with LR have more GI problems (84% vs 61% p=0.04), especially

> chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

> movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac disease

> or

> inflammatory bowel disease was greater in children with LR (24% vs 0

> p=0.001). Fourteen percent of the total group had food allergies (LR

> 24%

> vs noLR 11% p=0.2). Family history of autoimmune disease was present in

> 34% of children with ASD. Rheumatoid arthritis was higher in those with

> LR (30% vs 11% p=0.03) with no differences in the frequency of other

> autoimmune disorders. Of the 8 children with family history of

> autoimmune disease and LR, 6(75%) also had history of chronic d!

> iarrhea

> compared with 4(16%) of the 25 with family history of autoimmune

> disease

> and no LR (p=0.023).

> CONCLUSIONS: Children with ASD with history of LR have a higher rate of

> GI symptoms, in particular chronic diarrhea, than children with ASD

> without a history of LR. Family history of rheumatoid arthritis was

> elevated in those with LR. There is an association between children

> with

> LR, family history of autoimmune disease and chronic diarrhea, which

> suggests a shared autoimmune pathophysiology.

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent

> Coalition.

>

>

>

>

>

[Guest guest]

We sure can. We have histories, ulcerative colitis/Crohn's disease,

Hashimoto's thyroiditis, food allergies. Dr. G has been saying this

all along. Nice to see a published study that bears it out.

> >

> > Gastrointestinal Problems and Family History of Autoimmune Disease

> Are More Common in Children with Autistic Spectrum Disorder with

> Language Regression Than Those Without Regression

> >

> > Valicenti-McDermott, McVicar, Herbert Cohen,

> Isabelle Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center,

> AECOM, Bronx, NY; Pediatrics/CHAM, AECOM, Bronx, NY; Neurology,

> AECOM, Bronx, NY.

> >

> > BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

> colitis, occurred at higher frequency in children with Autistic

> Spectrum Disorder(ASD), but there is no comparative data between

> children with and without history of language regression(LR).

> > OBJECTIVE: To compare the clinical characteristics, frequency of

> GI symptoms, and its relationship to family history of autoimmune

> disorders in children with ASD with or without a history of LR.

> > DESIGN/METHODS: Cross sectional study with structured interview in

> 100 children with ASD. Interview included: Childhood Autism Rating

> Scale(CARS), GI Questionnaire, and Familial Autoimmune

> Questionnaire. Language regression was defined as the parental

> report of loss of any words.

> > RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean

> age was 9.6 y. Children with LR had a higher CARS than those without

> LR (39.3 vs 36.3, p=0.03) Only 40% of children with LR were toilet

> trained compared to 72% non-LR (p=0.03). Overall, 68% had one or

> more GI complaint. Children with LR have more GI problems (84% vs

> 61% p=0.04), especially chronic diarrhea (40 % vs 12% p=0.006) and

> increased number of bowel movements (1.9 1 vs 1.3 1 p=0.03).

> Family history of celiac disease or inflammatory bowel disease was

> greater in children with LR (24% vs 0 p=0.001). Fourteen percent of

> the total group had food allergies (LR 24% vs noLR 11% p=0.2).

> Family history of autoimmune disease was present in 34% of children

> with ASD. Rheumatoid arthritis was higher in those with LR (30% vs

> 11% p=0.03) with no differences in the frequency of other autoimmune

> disorders. Of the 8 children with family history of autoimmune

> disease and LR, 6(75%) also had history of chronic diarrhea compared

> with 4(16%) of the 25 with family history of autoimmune disease and

> no LR (p=0.023).

> > CONCLUSIONS: Children with ASD with history of LR have a higher

> rate of GI symptoms, in particular chronic diarrhea, than children

> with ASD without a history of LR. Family history of rheumatoid

> arthritis was elevated in those with LR. There is an association

> between children with LR, family history of autoimmune disease and

> chronic diarrhea, which suggests a shared autoimmune pathophysiology.

> >

>

[Guest guest]

I've had autoimmune colitis (in my case, sort of a hybrid between

Ulcerative Colitis and Crohn's disease) for 30 years. There are

several drug options to treat it, none of which worked for me.

Prednisone stops the inflamation, but long-term use causes side

effects that are hideous and dangerous. Plus, ironically, it ruins

your immune system in the long run! And sometimes you can't wean all

the way off. I finally found a solution for my case using turmeric

capsules (in health food/vitamin stores) three times a day with meals

and drinking cabbage juice during a bad patch with diarrhea, or just

eating raw cabbage in a salad for maintenance.

Donna

>

> What is the treatment if any for autoimmune colitis?

>

> GI problems/family history of Autoimmune disease

>

> Gastrointestinal Problems and Family History of Autoimmune Disease Are

> More Common in Children with Autistic Spectrum Disorder with Language

> Regression Than Those Without Regression

>

> Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx, NY;

> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

>

> BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

> colitis, occurred at higher frequency in children with Autistic Spectrum

> Disorder(ASD), but there is no comparative data between children with

> and without history of language regression(LR).

> OBJECTIVE: To compare the clinical characteristics, frequency of GI

> symptoms, and its relationship to family history of autoimmune disorders

> in children with ASD with or without a history of LR.

> DESIGN/METHODS: Cross sectional study with structured interview in 100

> children with ASD. Interview included: Childhood Autism Rating

> Scale(CARS), GI Questionnaire, and Familial Autoimmune Questionnaire.

> Language regression was defined as the parental report of loss of any

> words.

> RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean age was

> 9.6 y. Children with LR had a higher CARS than those without LR (39.3 vs

> 36.3, p=0.03) Only 40% of children with LR were toilet trained compared

> to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

> Children with LR have more GI problems (84% vs 61% p=0.04), especially

> chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

> movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac disease or

> inflammatory bowel disease was greater in children with LR (24% vs 0

> p=0.001). Fourteen percent of the total group had food allergies (LR 24%

> vs noLR 11% p=0.2). Family history of autoimmune disease was present in

> 34% of children with ASD. Rheumatoid arthritis was higher in those with

> LR (30% vs 11% p=0.03) with no differences in the frequency of other

> autoimmune disorders. Of the 8 children with family history of

> autoimmune disease and LR, 6(75%) also had history of chronic d! iarrhea

> compared with 4(16%) of the 25 with family history of autoimmune disease

> and no LR (p=0.023).

> CONCLUSIONS: Children with ASD with history of LR have a higher rate of

> GI symptoms, in particular chronic diarrhea, than children with ASD

> without a history of LR. Family history of rheumatoid arthritis was

> elevated in those with LR. There is an association between children with

> LR, family history of autoimmune disease and chronic diarrhea, which

> suggests a shared autoimmune pathophysiology.

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent Coalition.

>

>

>

>

>

[Guest guest]

The *right* diet for that person.

Kristy

GI problems/family history of Autoimmune disease

Gastrointestinal Problems and Family History of Autoimmune Disease Are

More Common in Children with Autistic Spectrum Disorder with Language

Regression Than Those Without Regression

Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx, NY;

Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

colitis, occurred at higher frequency in children with Autistic Spectrum

Disorder(ASD), but there is no comparative data between children with

and without history of language regression(LR).

OBJECTIVE: To compare the clinical characteristics, frequency of GI

symptoms, and its relationship to family history of autoimmune disorders

in children with ASD with or without a history of LR.

DESIGN/METHODS: Cross sectional study with structured interview in 100

children with ASD. Interview included: Childhood Autism Rating

Scale(CARS), GI Questionnaire, and Familial Autoimmune Questionnaire.

Language regression was defined as the parental report of loss of any

words.

RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean age was

9.6 y. Children with LR had a higher CARS than those without LR (39.3 vs

36.3, p=0.03) Only 40% of children with LR were toilet trained compared

to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

Children with LR have more GI problems (84% vs 61% p=0.04), especially

chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac disease or

inflammatory bowel disease was greater in children with LR (24% vs 0

p=0.001). Fourteen percent of the total group had food allergies (LR 24%

vs noLR 11% p=0.2). Family history of autoimmune disease was present in

34% of children with ASD. Rheumatoid arthritis was higher in those with

LR (30% vs 11% p=0.03) with no differences in the frequency of other

autoimmune disorders. Of the 8 children with family history of

autoimmune disease and LR, 6(75%) also had history of chronic d! iarrhea

compared with 4(16%) of the 25 with family history of autoimmune disease

and no LR (p=0.023).

CONCLUSIONS: Children with ASD with history of LR have a higher rate of

GI symptoms, in particular chronic diarrhea, than children with ASD

without a history of LR. Family history of rheumatoid arthritis was

elevated in those with LR. There is an association between children with

LR, family history of autoimmune disease and chronic diarrhea, which

suggests a shared autoimmune pathophysiology.

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

Donna,

I'm glad to hear you found something that helps. My daughter has

Crohn's-colitis and I was able to find some chinese herbs that

helped. Unfortunately, sometimes it takes a lot of time and

experimentation to find out what helps a particular individual.

It's nice to hear simple turmeric and some dietary changes made

a difference for you. That's awesome!

On Apr 28, 2006, at 10:33 AM, princesspeach wrote:

> I've had autoimmune colitis (in my case, sort of a hybrid between

> Ulcerative Colitis and Crohn's disease) for 30 years. There are

> several drug options to treat it, none of which worked for me.

> Prednisone stops the inflamation, but long-term use causes side

> effects that are hideous and dangerous. Plus, ironically, it ruins

> your immune system in the long run! And sometimes you can't wean all

> the way off. I finally found a solution for my case using turmeric

> capsules (in health food/vitamin stores) three times a day with meals

> and drinking cabbage juice during a bad patch with diarrhea, or just

> eating raw cabbage in a salad for maintenance.

>

> Donna

>

>

>

>>

>> What is the treatment if any for autoimmune colitis?

>>

>> GI problems/family history of Autoimmune disease

>>

>> Gastrointestinal Problems and Family History of Autoimmune Disease Are

>> More Common in Children with Autistic Spectrum Disorder with Language

>> Regression Than Those Without Regression

>>

>> Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

>> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx,

>> NY;

>> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

>>

>> BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

>> colitis, occurred at higher frequency in children with Autistic

>> Spectrum

>> Disorder(ASD), but there is no comparative data between children with

>> and without history of language regression(LR).

>> OBJECTIVE: To compare the clinical characteristics, frequency of GI

>> symptoms, and its relationship to family history of autoimmune

>> disorders

>> in children with ASD with or without a history of LR.

>> DESIGN/METHODS: Cross sectional study with structured interview in 100

>> children with ASD. Interview included: Childhood Autism Rating

>> Scale(CARS), GI Questionnaire, and Familial Autoimmune Questionnaire.

>> Language regression was defined as the parental report of loss of any

>> words.

>> RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean age

>> was

>> 9.6 y. Children with LR had a higher CARS than those without LR (39.3

>> vs

>> 36.3, p=0.03) Only 40% of children with LR were toilet trained

>> compared

>> to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

>> Children with LR have more GI problems (84% vs 61% p=0.04), especially

>> chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

>> movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac disease

>> or

>> inflammatory bowel disease was greater in children with LR (24% vs 0

>> p=0.001). Fourteen percent of the total group had food allergies (LR

>> 24%

>> vs noLR 11% p=0.2). Family history of autoimmune disease was present

>> in

>> 34% of children with ASD. Rheumatoid arthritis was higher in those

>> with

>> LR (30% vs 11% p=0.03) with no differences in the frequency of other

>> autoimmune disorders. Of the 8 children with family history of

>> autoimmune disease and LR, 6(75%) also had history of chronic d!

>> iarrhea

>> compared with 4(16%) of the 25 with family history of autoimmune

>> disease

>> and no LR (p=0.023).

>> CONCLUSIONS: Children with ASD with history of LR have a higher rate

>> of

>> GI symptoms, in particular chronic diarrhea, than children with ASD

>> without a history of LR. Family history of rheumatoid arthritis was

>> elevated in those with LR. There is an association between children

>> with

>> LR, family history of autoimmune disease and chronic diarrhea, which

>> suggests a shared autoimmune pathophysiology.

>>

>>

>>

>>

>>

>> Responsibility for the content of this message lies strictly with

>> the original author(s), and is not necessarily endorsed by or the

>> opinion of the Research Institute and/or the Parent

>> Coalition.

>>

>>

>>

>>

>>

[Guest guest]

Some people swear by the Specific Carbohydrate Diet for inflammatory

bowel disease, celiac disease, and there's a whole contingent of

parents who are using it for their kids on the spectrum. I tried it

for my colitis; I found it very difficult to stick with, so it didn't

work out well for me, but it's very healthful -- *if* you don't have

to avoid nuts. They use nut flours instead of grains to make breads,

cakes, and pastries. Unfortunately, the diet doesn't allow nuts

because they are so highly allergenic.

> >>

> >> What is the treatment if any for autoimmune colitis?

> >>

> >> GI problems/family history of Autoimmune disease

> >>

> >> Gastrointestinal Problems and Family History of Autoimmune

Disease Are

> >> More Common in Children with Autistic Spectrum Disorder with Language

> >> Regression Than Those Without Regression

> >>

> >> Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

> >> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx,

> >> NY;

> >> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

> >>

> >> BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

> >> colitis, occurred at higher frequency in children with Autistic

> >> Spectrum

> >> Disorder(ASD), but there is no comparative data between children with

> >> and without history of language regression(LR).

> >> OBJECTIVE: To compare the clinical characteristics, frequency of GI

> >> symptoms, and its relationship to family history of autoimmune

> >> disorders

> >> in children with ASD with or without a history of LR.

> >> DESIGN/METHODS: Cross sectional study with structured interview

in 100

> >> children with ASD. Interview included: Childhood Autism Rating

> >> Scale(CARS), GI Questionnaire, and Familial Autoimmune Questionnaire.

> >> Language regression was defined as the parental report of loss of any

> >> words.

> >> RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean

age

> >> was

> >> 9.6 y. Children with LR had a higher CARS than those without LR

(39.3

> >> vs

> >> 36.3, p=0.03) Only 40% of children with LR were toilet trained

> >> compared

> >> to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

> >> Children with LR have more GI problems (84% vs 61% p=0.04),

especially

> >> chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

> >> movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac

disease

> >> or

> >> inflammatory bowel disease was greater in children with LR (24% vs 0

> >> p=0.001). Fourteen percent of the total group had food allergies

(LR

> >> 24%

> >> vs noLR 11% p=0.2). Family history of autoimmune disease was

present

> >> in

> >> 34% of children with ASD. Rheumatoid arthritis was higher in those

> >> with

> >> LR (30% vs 11% p=0.03) with no differences in the frequency of other

> >> autoimmune disorders. Of the 8 children with family history of

> >> autoimmune disease and LR, 6(75%) also had history of chronic d!

> >> iarrhea

> >> compared with 4(16%) of the 25 with family history of autoimmune

> >> disease

> >> and no LR (p=0.023).

> >> CONCLUSIONS: Children with ASD with history of LR have a higher

rate

> >> of

> >> GI symptoms, in particular chronic diarrhea, than children with ASD

> >> without a history of LR. Family history of rheumatoid arthritis was

> >> elevated in those with LR. There is an association between children

> >> with

> >> LR, family history of autoimmune disease and chronic diarrhea, which

> >> suggests a shared autoimmune pathophysiology.

> >>

> >>

> >>

> >>

> >>

> >> Responsibility for the content of this message lies strictly with

> >> the original author(s), and is not necessarily endorsed by or the

> >> opinion of the Research Institute and/or the Parent

> >> Coalition.

> >>

> >>

> >>

> >>

> >>

[Guest guest]

I had my daughter on it for about a year. It seemed to help her

condition

from worsening at the time (and she was very ill then) but she never

really

improved while on it. It just slowed the symptoms down which was really

not good enough (she was on the verge of having her colon removed so

I needed visible, concrete improvement).

But I have heard of many people having success with this diet. I think

for people who can follow it, it's worth trying. But to do both SCD and

together, that's like giving up almost all foods!!!

On Apr 29, 2006, at 10:57 AM, princesspeach wrote:

> Some people swear by the Specific Carbohydrate Diet for inflammatory

> bowel disease, celiac disease, and there's a whole contingent of

> parents who are using it for their kids on the spectrum. I tried it

> for my colitis; I found it very difficult to stick with, so it didn't

> work out well for me, but it's very healthful -- *if* you don't have

> to avoid nuts. They use nut flours instead of grains to make breads,

> cakes, and pastries. Unfortunately, the diet doesn't allow nuts

> because they are so highly allergenic.

>

>

>

>>>>

>>>> What is the treatment if any for autoimmune colitis?

>>>>

>>>> GI problems/family history of Autoimmune disease

>>>>

>>>> Gastrointestinal Problems and Family History of Autoimmune

> Disease Are

>>>> More Common in Children with Autistic Spectrum Disorder with

>>>> Language

>>>> Regression Than Those Without Regression

>>>>

>>>> Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

>>>> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx,

>>>> NY;

>>>> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

>>>>

>>>> BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

>>>> colitis, occurred at higher frequency in children with Autistic

>>>> Spectrum

>>>> Disorder(ASD), but there is no comparative data between children

>>>> with

>>>> and without history of language regression(LR).

>>>> OBJECTIVE: To compare the clinical characteristics, frequency of GI

>>>> symptoms, and its relationship to family history of autoimmune

>>>> disorders

>>>> in children with ASD with or without a history of LR.

>>>> DESIGN/METHODS: Cross sectional study with structured interview

> in 100

>>>> children with ASD. Interview included: Childhood Autism Rating

>>>> Scale(CARS), GI Questionnaire, and Familial Autoimmune

>>>> Questionnaire.

>>>> Language regression was defined as the parental report of loss of

>>>> any

>>>> words.

>>>> RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean

> age

>>>> was

>>>> 9.6 y. Children with LR had a higher CARS than those without LR

> (39.3

>>>> vs

>>>> 36.3, p=0.03) Only 40% of children with LR were toilet trained

>>>> compared

>>>> to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

>>>> Children with LR have more GI problems (84% vs 61% p=0.04),

> especially

>>>> chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

>>>> movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac

> disease

>>>> or

>>>> inflammatory bowel disease was greater in children with LR (24% vs 0

>>>> p=0.001). Fourteen percent of the total group had food allergies

> (LR

>>>> 24%

>>>> vs noLR 11% p=0.2). Family history of autoimmune disease was

> present

>>>> in

>>>> 34% of children with ASD. Rheumatoid arthritis was higher in those

>>>> with

>>>> LR (30% vs 11% p=0.03) with no differences in the frequency of other

>>>> autoimmune disorders. Of the 8 children with family history of

>>>> autoimmune disease and LR, 6(75%) also had history of chronic d!

>>>> iarrhea

>>>> compared with 4(16%) of the 25 with family history of autoimmune

>>>> disease

>>>> and no LR (p=0.023).

>>>> CONCLUSIONS: Children with ASD with history of LR have a higher

> rate

>>>> of

>>>> GI symptoms, in particular chronic diarrhea, than children with ASD

>>>> without a history of LR. Family history of rheumatoid arthritis was

>>>> elevated in those with LR. There is an association between children

>>>> with

>>>> LR, family history of autoimmune disease and chronic diarrhea, which

>>>> suggests a shared autoimmune pathophysiology.

>>>>

>>>>

>>>>

>>>>

>>>>

>>>> Responsibility for the content of this message lies strictly with

>>>> the original author(s), and is not necessarily endorsed by or the

>>>> opinion of the Research Institute and/or the Parent

>>>> Coalition.

>>>>

>>>>

>>>>

>>>>

>>>>

[Guest guest]

The doctors that are really into SCD for autism now say to avoid the nuts and

just do meat, vegetables, some fruits and no grains or nuts. Nuts are high in

an amino acid that promotes viral activity.

-

princesspeach <donnaaron@...> wrote:

Some people swear by the Specific Carbohydrate Diet for inflammatory

bowel disease, celiac disease, and there's a whole contingent of

parents who are using it for their kids on the spectrum. I tried it

for my colitis; I found it very difficult to stick with, so it didn't

work out well for me, but it's very healthful -- *if* you don't have

to avoid nuts. They use nut flours instead of grains to make breads,

cakes, and pastries. Unfortunately, the diet doesn't allow nuts

because they are so highly allergenic.

> >>

> >> What is the treatment if any for autoimmune colitis?

> >>

> >> GI problems/family history of Autoimmune disease

> >>

> >> Gastrointestinal Problems and Family History of Autoimmune

Disease Are

> >> More Common in Children with Autistic Spectrum Disorder with Language

> >> Regression Than Those Without Regression

> >>

> >> Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

> >> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx,

> >> NY;

> >> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

> >>

> >> BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

> >> colitis, occurred at higher frequency in children with Autistic

> >> Spectrum

> >> Disorder(ASD), but there is no comparative data between children with

> >> and without history of language regression(LR).

> >> OBJECTIVE: To compare the clinical characteristics, frequency of GI

> >> symptoms, and its relationship to family history of autoimmune

> >> disorders

> >> in children with ASD with or without a history of LR.

> >> DESIGN/METHODS: Cross sectional study with structured interview

in 100

> >> children with ASD. Interview included: Childhood Autism Rating

> >> Scale(CARS), GI Questionnaire, and Familial Autoimmune Questionnaire.

> >> Language regression was defined as the parental report of loss of any

> >> words.

> >> RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean

age

> >> was

> >> 9.6 y. Children with LR had a higher CARS than those without LR

(39.3

> >> vs

> >> 36.3, p=0.03) Only 40% of children with LR were toilet trained

> >> compared

> >> to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

> >> Children with LR have more GI problems (84% vs 61% p=0.04),

especially

> >> chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

> >> movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac

disease

> >> or

> >> inflammatory bowel disease was greater in children with LR (24% vs 0

> >> p=0.001). Fourteen percent of the total group had food allergies

(LR

> >> 24%

> >> vs noLR 11% p=0.2). Family history of autoimmune disease was

present

> >> in

> >> 34% of children with ASD. Rheumatoid arthritis was higher in those

> >> with

> >> LR (30% vs 11% p=0.03) with no differences in the frequency of other

> >> autoimmune disorders. Of the 8 children with family history of

> >> autoimmune disease and LR, 6(75%) also had history of chronic d!

> >> iarrhea

> >> compared with 4(16%) of the 25 with family history of autoimmune

> >> disease

> >> and no LR (p=0.023).

> >> CONCLUSIONS: Children with ASD with history of LR have a higher

rate

> >> of

> >> GI symptoms, in particular chronic diarrhea, than children with ASD

> >> without a history of LR. Family history of rheumatoid arthritis was

> >> elevated in those with LR. There is an association between children

> >> with

> >> LR, family history of autoimmune disease and chronic diarrhea, which

> >> suggests a shared autoimmune pathophysiology.

> >>

> >>

> >>

> >>

> >>

> >> Responsibility for the content of this message lies strictly with

> >> the original author(s), and is not necessarily endorsed by or the

> >> opinion of the Research Institute and/or the Parent

> >> Coalition.

> >>

> >>

> >>

> >>

> >>

[Guest guest]

Low allergy diet (like the diet) is important for

ulcerative colitis, and infection control seems

important too, but that isn't widely recognized yet...

just noticed this a lot in my family. Nuts are bad

news, as can be broccoli. It's also important to use

probiotics (low strain), and often iron

supplementation (homeopaths also believe iron is

anti-inflammatory - I wonder if this is 'true-ish'?).

Most often, though, doctors seem to only prescribe

meds, which are also important.

Stress can also seriously exacerbate it (although I

wonder if it is actually the flare-up causing a stress

reaction and difficulty handling stress rather than

the other way around).

Most of the doctors we've been in contact with are

just using the local anti-inflammatories like Asacol,

and in worse cases, immunosuppresants, and in bad

flares, prednisone.

We've noticed in our family that antibiotics and

Diflucan can really help the ulcerative colitis, but

they were prescribed for other reasons - not as

treatment for that illness... just noticed a very

positive response.

I'd bet the protocol could go a long way in

helping with ulcerative colitis, but I don't know if

anyone has had that experience or not?

--- " K. Fischer " <elfischer@...> wrote:

> What is the treatment if any for autoimmune colitis?

>

__________________________________________________

[Guest guest]

From what my daughter's GI explained, there is a subset

of IBD patients for whom Diflucan and other antibiotics

can help. Evidentially, there's a breath analyzer test that

can help determine if one falls in this subset.

> We've noticed in our family that antibiotics and

> Diflucan can really help the ulcerative colitis, but

> they were prescribed for other reasons - not as

> treatment for that illness... just noticed a very

> positive response.

[Guest guest]

I didn't know that the diet does not allow nuts? Dr. Goldberg said my

san can have processed peanut butter.

GI problems/family history of Autoimmune disease

>>>>

>>>> Gastrointestinal Problems and Family History of Autoimmune

> Disease Are

>>>> More Common in Children with Autistic Spectrum Disorder with

>>>> Language

>>>> Regression Than Those Without Regression

>>>>

>>>> Valicenti-McDermott, McVicar, Herbert Cohen, Isabelle

>>>> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy Center, AECOM, Bronx,

>>>> NY;

>>>> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology, AECOM, Bronx, NY.

>>>>

>>>> BACKGROUND: Gastrointestinal problems(GI), including an autoimmune

>>>> colitis, occurred at higher frequency in children with Autistic

>>>> Spectrum

>>>> Disorder(ASD), but there is no comparative data between children

>>>> with

>>>> and without history of language regression(LR).

>>>> OBJECTIVE: To compare the clinical characteristics, frequency of GI

>>>> symptoms, and its relationship to family history of autoimmune

>>>> disorders

>>>> in children with ASD with or without a history of LR.

>>>> DESIGN/METHODS: Cross sectional study with structured interview

> in 100

>>>> children with ASD. Interview included: Childhood Autism Rating

>>>> Scale(CARS), GI Questionnaire, and Familial Autoimmune

>>>> Questionnaire.

>>>> Language regression was defined as the parental report of loss of

>>>> any

>>>> words.

>>>> RESULTS: Of the 100, 25 had history of LR and 82 were male. Mean

> age

>>>> was

>>>> 9.6 y. Children with LR had a higher CARS than those without LR

> (39.3

>>>> vs

>>>> 36.3, p=0.03) Only 40% of children with LR were toilet trained

>>>> compared

>>>> to 72% non-LR (p=0.03). Overall, 68% had one or more GI complaint.

>>>> Children with LR have more GI problems (84% vs 61% p=0.04),

> especially

>>>> chronic diarrhea (40 % vs 12% p=0.006) and increased number of bowel

>>>> movements (1.9 1 vs 1.3 1 p=0.03). Family history of celiac

> disease

>>>> or

>>>> inflammatory bowel disease was greater in children with LR (24% vs 0

>>>> p=0.001). Fourteen percent of the total group had food allergies

> (LR

>>>> 24%

>>>> vs noLR 11% p=0.2). Family history of autoimmune disease was

> present

>>>> in

>>>> 34% of children with ASD. Rheumatoid arthritis was higher in those

>>>> with

>>>> LR (30% vs 11% p=0.03) with no differences in the frequency of other

>>>> autoimmune disorders. Of the 8 children with family history of

>>>> autoimmune disease and LR, 6(75%) also had history of chronic d!

>>>> iarrhea

>>>> compared with 4(16%) of the 25 with family history of autoimmune

>>>> disease

>>>> and no LR (p=0.023).

>>>> CONCLUSIONS: Children with ASD with history of LR have a higher

> rate

>>>> of

>>>> GI symptoms, in particular chronic diarrhea, than children with ASD

>>>> without a history of LR. Family history of rheumatoid arthritis was

>>>> elevated in those with LR. There is an association between children

>>>> with

>>>> LR, family history of autoimmune disease and chronic diarrhea, which

>>>> suggests a shared autoimmune pathophysiology.

>>>>

>>>>

>>>>

>>>>

>>>>

>>>> Responsibility for the content of this message lies strictly with

>>>> the original author(s), and is not necessarily endorsed by or the

>>>> opinion of the Research Institute and/or the Parent

>>>> Coalition.

>>>>

>>>>

>>>>

>>>>

>>>>

[Guest guest]

Processed peanut butter IS usually ok since it's so

processed that much of the 'allergen' is processed

away. But nut flowers, unprocessed nut butters, and

nuts themselves are out.

They are also difficult proteins to digest - although

a book I've read (can't say that it is accurate or

not, but there's lots of logic) says you can prepare

nuts for easier digestion by soaking in salt water for

24 hours then dehydrating them, and that it is the

only way nuts should be consumed. It says that nuts

are full of an enzyme that prevents them from

sprouting (same applies to our whole grains), and that

in the digestive tract, it can likewise de-activate

the enzymes in our GI tract that would be digesting

them. It makes a lot of sense, since we know enzyme

pathways and digestion and metabolism are frequently

dysfunctional in our kids. (Pasteurization destroys

the enzymes that aid digestion in milk, and

ultr-pasteurization changes the protein structure even

more and makes enzymes " not fit " .) I wonder just how

much this incomplete digestion is responsible for the

IgG reactions to foods our kids are having. I also

wonder if this is why enzyme supplements are not as

successful as many would like... because the

enzyme-blocking acids are not disabled?

I guess that's a lot more info than you were asking.

--- Argie Olivo <golivo@...> wrote:

> I didn't know that the diet does not allow

> nuts? Dr. Goldberg said my

> san can have processed peanut butter.

> GI problems/family history of

> Autoimmune disease

> >>>>

> >>>> Gastrointestinal Problems and Family History

> of Autoimmune

> > Disease Are

> >>>> More Common in Children with Autistic

> Spectrum Disorder with

> >>>> Language

> >>>> Regression Than Those Without Regression

> >>>>

> >>>> Valicenti-McDermott, McVicar,

> Herbert Cohen, Isabelle

> >>>> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy

> Center, AECOM, Bronx,

> >>>> NY;

> >>>> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology,

> AECOM, Bronx, NY.

> >>>>

> >>>> BACKGROUND: Gastrointestinal problems(GI),

> including an autoimmune

> >>>> colitis, occurred at higher frequency in

> children with Autistic

> >>>> Spectrum

> >>>> Disorder(ASD), but there is no comparative

> data between children

> >>>> with

> >>>> and without history of language

> regression(LR).

> >>>> OBJECTIVE: To compare the clinical

> characteristics, frequency of GI

> >>>> symptoms, and its relationship to family

> history of autoimmune

> >>>> disorders

> >>>> in children with ASD with or without a

> history of LR.

> >>>> DESIGN/METHODS: Cross sectional study with

> structured interview

> > in 100

> >>>> children with ASD. Interview included:

> Childhood Autism Rating

> >>>> Scale(CARS), GI Questionnaire, and Familial

> Autoimmune

> >>>> Questionnaire.

> >>>> Language regression was defined as the

> parental report of loss of

> >>>> any

> >>>> words.

> >>>> RESULTS: Of the 100, 25 had history of LR and

> 82 were male. Mean

> > age

> >>>> was

> >>>> 9.6 y. Children with LR had a higher CARS

> than those without LR

> > (39.3

> >>>> vs

> >>>> 36.3, p=0.03) Only 40% of children with LR

> were toilet trained

> >>>> compared

> >>>> to 72% non-LR (p=0.03). Overall, 68% had one

> or more GI complaint.

> >>>> Children with LR have more GI problems (84%

> vs 61% p=0.04),

> > especially

> >>>> chronic diarrhea (40 % vs 12% p=0.006) and

> increased number of bowel

> >>>> movements (1.9 1 vs 1.3 1 p=0.03). Family

> history of celiac

> > disease

> >>>> or

> >>>> inflammatory bowel disease was greater in

> children with LR (24% vs 0

> >>>> p=0.001). Fourteen percent of the total group

> had food allergies

> > (LR

> >>>> 24%

> >>>> vs noLR 11% p=0.2). Family history of

> autoimmune disease was

> > present

> >>>> in

> >>>> 34% of children with ASD. Rheumatoid

> arthritis was higher in those

> >>>> with

> >>>> LR (30% vs 11% p=0.03) with no differences in

> the frequency of other

> >>>> autoimmune disorders. Of the 8 children with

> family history of

> >>>> autoimmune disease and LR, 6(75%) also had

> history of chronic d!

>

=== message truncated ===

__________________________________________________

[Guest guest]

Thanks ! I do appreciate your input. My son won't eat any other

" nuts " anyway. The only thing I occasionally used for baking was almond

milk, but I haven't in a long time. Now I use soy milk. Almond milk was a

better for baking though.

Argie

GI problems/family history of

> Autoimmune disease

> >>>>

> >>>> Gastrointestinal Problems and Family History

> of Autoimmune

> > Disease Are

> >>>> More Common in Children with Autistic

> Spectrum Disorder with

> >>>> Language

> >>>> Regression Than Those Without Regression

> >>>>

> >>>> Valicenti-McDermott, McVicar,

> Herbert Cohen, Isabelle

> >>>> Rapin, Barry Wershil, Shlomo Shinnar. Kennedy

> Center, AECOM, Bronx,

> >>>> NY;

> >>>> Pediatrics/CHAM, AECOM, Bronx, NY; Neurology,

> AECOM, Bronx, NY.

> >>>>

> >>>> BACKGROUND: Gastrointestinal problems(GI),

> including an autoimmune

> >>>> colitis, occurred at higher frequency in

> children with Autistic

> >>>> Spectrum

> >>>> Disorder(ASD), but there is no comparative

> data between children

> >>>> with

> >>>> and without history of language

> regression(LR).

> >>>> OBJECTIVE: To compare the clinical

> characteristics, frequency of GI

> >>>> symptoms, and its relationship to family

> history of autoimmune

> >>>> disorders

> >>>> in children with ASD with or without a

> history of LR.

> >>>> DESIGN/METHODS: Cross sectional study with

> structured interview

> > in 100

> >>>> children with ASD. Interview included:

> Childhood Autism Rating

> >>>> Scale(CARS), GI Questionnaire, and Familial

> Autoimmune

> >>>> Questionnaire.

> >>>> Language regression was defined as the

> parental report of loss of

> >>>> any

> >>>> words.

> >>>> RESULTS: Of the 100, 25 had history of LR and

> 82 were male. Mean

> > age

> >>>> was

> >>>> 9.6 y. Children with LR had a higher CARS

> than those without LR

> > (39.3

> >>>> vs

> >>>> 36.3, p=0.03) Only 40% of children with LR

> were toilet trained

> >>>> compared

> >>>> to 72% non-LR (p=0.03). Overall, 68% had one

> or more GI complaint.

> >>>> Children with LR have more GI problems (84%

> vs 61% p=0.04),

> > especially

> >>>> chronic diarrhea (40 % vs 12% p=0.006) and

> increased number of bowel

> >>>> movements (1.9 1 vs 1.3 1 p=0.03). Family

> history of celiac

> > disease

> >>>> or

> >>>> inflammatory bowel disease was greater in

> children with LR (24% vs 0

> >>>> p=0.001). Fourteen percent of the total group

> had food allergies

> > (LR

> >>>> 24%

> >>>> vs noLR 11% p=0.2). Family history of

> autoimmune disease was

> > present

> >>>> in

> >>>> 34% of children with ASD. Rheumatoid

> arthritis was higher in those

> >>>> with

> >>>> LR (30% vs 11% p=0.03) with no differences in

> the frequency of other

> >>>> autoimmune disorders. Of the 8 children with

> family history of

> >>>> autoimmune disease and LR, 6(75%) also had

> history of chronic d!

>

=== message truncated ===

__________________________________________________