Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Hello Holly, I am so overwhelmed by all that I have just read in your email letter! You've actually met my neice, and seen my Great-Neice, Rose! It's just more than I can beleive! I've called my parents and my sisters and brothers to tell them. Please, know we are so happy over all this and Rose will always be loved and cared for. We are all planning ways to care from afar or visit and care when the time will be okay for and Dan. Thanks again! God Bless you and God Bless your Cody and family. HOLLY JOHNSON wrote: > Hi Everyone > Just by fate last Fri Oct 20th, we were at UofM hosp in Ann Arbor for an > ENT check up for our son Cody & the nurse wanted to share our name with > the parents of a new CHARGE baby in NICU-- of course I offered to meet > with them & had the honor of meeting Rose's mom that day-Rose's > dad was with her in the NICU unit- I was able to welcome them into our > " family " and congratulate them on the birth of their beautiful > daughter. I gave a brochure & encouraged her to contact our > foundation, especially for the binder w/all the medical information (I > wish this would have been around for me 6 years ago) & of course I > shared our story & introduced our son Cody ( who was actually behaving, > considering we were in the Dr's Exam room & he hates ear & nose > exams).Anyway- welcome to Rose & her family-- I hope I was able to offer > some support & comfort during these early days, which I know can be so > hard some times.I hope to meet with & her family again, I > understand her parents live in Bay City & I live in Saginaw & if Gram & > Gramp(or any family member) happen to read this-- please contact me & we > can get together. > Congrat's again- > Holly- mom of Cody-6 year CHARGEr & wife of Vic > > > " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July > 20-22, 2001. Information will be available first in CHARGE Accounts, the > CHARGE Syndrome Foundation's newsletter. " > > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org Quote Link to comment Share on other sites More sharing options...
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