Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Bomnnie, I can't believe they still smoke in school. Is it allowed or do the students just disobey rules?? When I was in High school there was still a smoking area but I thought that was long since over. If the one on one wants to follow her to the bathroom, then couldn't she stop the smokers??? I am sorry for all the " crap " you are going through. I hope it gets better. Foley Mom to 5, ( CHARGE in heaven) and Jillian 2 1/2 cHaRGE Why not? > I am so very tired and just need to vent. I want to know why cant I just be > a regular mother and enjoy my oldest daughters last year in high school. Why > can't I tell people about my Patty and have them actually listen. Why can't > those at school work with me. Why do I have to deal with idiots sometimes > who try to act as if I am the one causing problems? Why do some make life a > living hell? > Last year was awful and I didn't think could get worse. There are > specialists in our district who try to tell me about my daughter when they > have never experienced a child who is deaf/blind let alone CHARGE Syndrome. > Then they get on these picky issues that can just drive you crazy. For > example, when Patty entered high school she was excited to be able to chew > gum, like other kids do. Can you believe her one-on-one actually wouldn't > let her. Well, we had to have words over this. Darn it, words over whether > or not she can chew gum. I mean what is that? > Now, the newest one, Patty came home upset that her one-on-one doesn't > want Patty to use the bathroom that is far away from one of her classes but > to use the one that is close. That is the smokers bathroom. The school has > tried almost everything short of 24 hour security to stop the smoking but it > continues. To make a long story short, this woman was demanding Patty use > that one. Of course the determined person Patty is, she refused. When she > left the class room she went to my mothers class to complain. My mother sent > her to the guidance councilor. Can you believe the one on one followed her, > even into the bathroom. Patty is 16 and can use the facilities by herself, > and could for years. She also tried to tell Patty she couldn't go during > class but before or after. This is ridiculous. I finally got Patty to go > more than 1 to 2 times a day! She wasn't happy that Patty was going to the > bathroom mostly during this English class. Well, darn it, the class is right > after lunch. That is when she has to go. Isn't it rediculous? > After that the aide and a SED teacher had a " meeting " with Patty to > discuss what happened and what they could do about it. How stupid is all > this? Of course I wrote a letter to the teacher. I also said that with one > kidney they can't deny her the use of facilities. I also had to remind them > that one of the specialists (from outside the district-for the Blind) said > that sometimes there is such an information over load that Patty may need to > dismiss herself, or go to the bathroom, to really regroup. > How come I have to come home and discuss with my daughter for hours, (she > couldn't get off the subject) about her rights to use the bathroom of her > choice like all the other kids? How come I have to deal with s--- like this > when there are so many more important things? I think these people like > control, especially like to control her. They need to get over it. I am so > tired of idiocy. > They keep drawing the line and darn it, I'll fight for my child. Which > stinks. I see so many other parents out there who aren't willing to listen, > work together and make life hard for educators. Why do I have to deal with > such, forgive me, crap? > Here we go again, another beautiful year. They just don't understand and > they just don't try. > > > > Bonnie, Patty CHARGE 16, Kris 18, and wife to > > > > > > " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July > 20-22, 2001. Information will be available first in CHARGE Accounts, the > CHARGE Syndrome Foundation's newsletter. " > > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2000 Report Share Posted October 25, 2000 Bomnnie, I can't believe they still smoke in school. Is it allowed or do the students just disobey rules?? When I was in High school there was still a smoking area but I thought that was long since over. If the one on one wants to follow her to the bathroom, then couldn't she stop the smokers??? I am sorry for all the " crap " you are going through. I hope it gets better. Foley Mom to 5, ( CHARGE in heaven) and Jillian 2 1/2 cHaRGE Why not? > I am so very tired and just need to vent. I want to know why cant I just be > a regular mother and enjoy my oldest daughters last year in high school. Why > can't I tell people about my Patty and have them actually listen. Why can't > those at school work with me. Why do I have to deal with idiots sometimes > who try to act as if I am the one causing problems? Why do some make life a > living hell? > Last year was awful and I didn't think could get worse. There are > specialists in our district who try to tell me about my daughter when they > have never experienced a child who is deaf/blind let alone CHARGE Syndrome. > Then they get on these picky issues that can just drive you crazy. For > example, when Patty entered high school she was excited to be able to chew > gum, like other kids do. Can you believe her one-on-one actually wouldn't > let her. Well, we had to have words over this. Darn it, words over whether > or not she can chew gum. I mean what is that? > Now, the newest one, Patty came home upset that her one-on-one doesn't > want Patty to use the bathroom that is far away from one of her classes but > to use the one that is close. That is the smokers bathroom. The school has > tried almost everything short of 24 hour security to stop the smoking but it > continues. To make a long story short, this woman was demanding Patty use > that one. Of course the determined person Patty is, she refused. When she > left the class room she went to my mothers class to complain. My mother sent > her to the guidance councilor. Can you believe the one on one followed her, > even into the bathroom. Patty is 16 and can use the facilities by herself, > and could for years. She also tried to tell Patty she couldn't go during > class but before or after. This is ridiculous. I finally got Patty to go > more than 1 to 2 times a day! She wasn't happy that Patty was going to the > bathroom mostly during this English class. Well, darn it, the class is right > after lunch. That is when she has to go. Isn't it rediculous? > After that the aide and a SED teacher had a " meeting " with Patty to > discuss what happened and what they could do about it. How stupid is all > this? Of course I wrote a letter to the teacher. I also said that with one > kidney they can't deny her the use of facilities. I also had to remind them > that one of the specialists (from outside the district-for the Blind) said > that sometimes there is such an information over load that Patty may need to > dismiss herself, or go to the bathroom, to really regroup. > How come I have to come home and discuss with my daughter for hours, (she > couldn't get off the subject) about her rights to use the bathroom of her > choice like all the other kids? How come I have to deal with s--- like this > when there are so many more important things? I think these people like > control, especially like to control her. They need to get over it. I am so > tired of idiocy. > They keep drawing the line and darn it, I'll fight for my child. Which > stinks. I see so many other parents out there who aren't willing to listen, > work together and make life hard for educators. Why do I have to deal with > such, forgive me, crap? > Here we go again, another beautiful year. They just don't understand and > they just don't try. > > > > Bonnie, Patty CHARGE 16, Kris 18, and wife to > > > > > > " 5th CHARGE Syndrome International Conference, Indianapolis, Indiana, July > 20-22, 2001. Information will be available first in CHARGE Accounts, the > CHARGE Syndrome Foundation's newsletter. " > > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2000 Report Share Posted October 26, 2000 In a message dated 10/24/2000 3:04:32 PM Central Daylight Time, Turk22082@... writes: << I am so very tired and just need to vent. I want to know why cant I just be a regular mother and enjoy my oldest daughters last year in high school. Why can't I tell people about my Patty and have them actually listen. Why can't those at school work with me. Why do I have to deal with idiots sometimes who try to act as if I am the one causing problems? Why do some make life a living hell? >> Bonnie, I think I have asked each of the questions before. Well, not the one about your daughter's last year of school, but I would like to be able to enjoy my son's first year of high school. It is a sickening that they are being so picky. I don't have the answers. I too get very frustrated when the educators want to make the little things such HUGE issues, and they want to make the HUGE issues go away and not even address them. I just wanted you to know that I am here and understand what you are going through. Let me know if there is anything you think I can help with. Sheryl Mom to Mitch 14 and 14 CHARGE Quote Link to comment Share on other sites More sharing options...
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