Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 I have met personally with the doctor who published the first study on HBOT and autism. He continues to have great success with HBOT. He is a MD/PhD & has been on staff at UCLA since the 60s I believe. His before and after spect scans of kids with autism are very impressive. Why is it that HBOT goes against ? - Doris and Steve <sjsmith@...> wrote: you know - it distresses me to see this type of 'treatment' being promoted. There's bit of a chat going on in one other group about 'oxidative stress' on the brain and this treatment. I know parents have contacted Montel reps and have been told 'to present the evidence'. Marcia - did you ever send Montel your son's success story? doris Kenitz will be featured on the Montel Show Monday, 1, 2006 on the subject of Hyperbaric Oxygen Therapy which many people with autism are using with success. She is also the Keynote speaker at the 2006 USAAA International Conference, August 9-12, Park City, Utah. Kenitz, Keynote Speaker Degreed in psychology, Kenitz is the Executive Director of the International Hyperbarics Association, a non-profit organization that promotes Hyperbaric Therapy through education and research. Kenitz knows firsthand the heartbreak and struggles of having a child with a disability. Her youngest daughter, Grace, was diagnosed with a very rare mitochondrial disorder that kept her in the hospital virtually for the first three years of her life. Grace more recently has been diagnosed on the autism spectrum. did not accept the recommendation to cease life-prolonging measures. And because of that, Grace progressed to feed herself, recover from blindness, and at almost 7-years old, walk for the first time on January 20, 2006. has interviewed for the Montel show and has a book and movie forthcoming. Click here to read more about who was interviewed by Teri Small on AutismOne Radio in March, 2006. Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute and/or the Parent Coalition. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 initial success with HBOT, but what is it doing to the brain? Is it creating a situation for alzheimers or dementia later in life? What medical tests were done beforehand to say 'yes, this condition needs this treatment'. Was bloodflow to the brain decreased? Did a spect scan show this? Since the Dr ref'd below is on staff at UCLA I'm sure he's aware of the work done at the UCLA- Nuclear Medicine section with the Neurospect scan. I'm monitoring a few discussions on other forums relating to HBOT. a question posed: If a child has 'oxidative stress' then how could HBOT be helpful? Wouldn't it add to that stress? I know Dr G mentioned HBOT in the DVD from Mississippi. doris > you know - it distresses me to see this type of 'treatment' being promoted. > There's bit of a chat going on in one other group about > 'oxidative stress' on the brain and this treatment. > > I know parents have contacted Montel reps and have been told > 'to present the evidence'. > > Marcia - did you ever send Montel your son's success story? > > doris > > > > > > > Kenitz will be featured on the Montel Show Monday, 1, 2006 on the subject of Hyperbaric Oxygen Therapy which many people with autism are using with success. She is also the Keynote speaker at the 2006 USAAA International Conference, August 9-12, Park City, Utah. > > Kenitz, Keynote Speaker > Degreed in psychology, Kenitz is the Executive Director of the International Hyperbarics Association, a non-profit organization that promotes Hyperbaric Therapy through education and research. Kenitz knows firsthand the heartbreak and struggles of having a child with a disability. Her youngest daughter, Grace, was diagnosed with a very rare mitochondrial disorder that kept her in the hospital virtually for the first three years of her life. Grace more recently has been diagnosed on the autism spectrum. did not accept the recommendation to cease life-prolonging measures. And because of that, Grace progressed to feed herself, recover from blindness, and at almost 7-years old, walk for the first time on January 20, 2006. has interviewed for the Montel show and has a book and movie forthcoming. Click here to read more about who was interviewed by Teri Small on AutismOne Radio in March, 2006. > > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute and/or the Parent Coalition. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 If I'm not mistaken, kids with present with hyperperfusion in the frontal regions and hypoperfusion in the temporal regions. At least this was true for my son per his spect scan --- so increasing blood flow in his frontal region would not help at all and might even create more problems. I know that before finding Dr. G. we did a trial of a typical ADD stimulant med - which increases blood flow to the frontal region. It was a horrible experience that culminated after 9 days in a petit mal seizure brought on by a stressful event. Also, wouldn't HBOT just be a bandaid that treats a symptom, rather than addressing the presumed immune dysfunction condition creating the abnormal blood flow in the first place? My son improved drastically overall once his immune system status improved (first, just by identifying and removing foods her was allergic to) and even before we started the additional meds (SSRIs and such). Sandy Rob or Sunseri wrote: > What is the reason for the concern below? Have such side effects been > found? The only question I know the answer to is the bloodflow one. > The kids with autism had decreased blood flow to the frontal lobe > prior to hbot, and normal flow after. This was shown on spect scans. > Is there reason to believe hbot causes alzheimers? I have never heard > that. I know that this particular doctor does not like high O2 & uses > levels just barely higher than regular air (25% O2). > > I would like to e-mail him your questions. Can you give me more > background on where your concerns come from so I can ask him? > > - > > drsmit6 <sjsmith@...> wrote: > initial success with HBOT, but what is it doing to the brain? > Is it creating a situation for alzheimers or dementia later in life? > What medical tests were done beforehand to say 'yes, this condition > needs this treatment'. Was bloodflow to the brain decreased? > Did a spect scan show this? Since the Dr ref'd below is on staff > at UCLA I'm sure he's aware of the work done at the UCLA- Nuclear > Medicine section with the Neurospect scan. > > I'm monitoring a few discussions on other forums relating to HBOT. > a question posed: If a child has 'oxidative stress' then how could HBOT > be helpful? Wouldn't it add to that stress? > > I know Dr G mentioned HBOT in the DVD from Mississippi. > > doris > > > > > > > you know - it distresses me to see this type of 'treatment' being > promoted. > > There's bit of a chat going on in one other group about > > 'oxidative stress' on the brain and this treatment. > > > > I know parents have contacted Montel reps and have been told > > 'to present the evidence'. > > > > Marcia - did you ever send Montel your son's success story? > > > > doris > > > > > > > > > > > > > > Kenitz will be featured on the Montel Show Monday, 1, 2006 > on the subject of Hyperbaric Oxygen Therapy which many people with > autism are using with success. She is also the Keynote speaker at the > 2006 USAAA International Conference, August 9-12, Park City, Utah. > > > > Kenitz, Keynote Speaker > > Degreed in psychology, Kenitz is the Executive Director of > the International Hyperbarics Association, a non-profit organization > that promotes Hyperbaric Therapy through education and research. > Kenitz knows firsthand the heartbreak and struggles of having > a child with a disability. Her youngest daughter, Grace, was > diagnosed with a very rare mitochondrial disorder that kept her in the > hospital virtually for the first three years of her life. Grace more > recently has been diagnosed on the autism spectrum. did not > accept the recommendation to cease life-prolonging measures. And > because of that, Grace progressed to feed herself, recover from > blindness, and at almost 7-years old, walk for the first time on > January 20, 2006. has interviewed for the Montel > show and has a book and movie forthcoming. Click here to read more > about who was interviewed by Teri Small on AutismOne Radio in > March, 2006. > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute and/or the Parent Coalition. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 Well, I may very well have messed up my brain topography, so don't quote me on what I said regarding the frontal lobe! I'll rephrase it and say the blood flow was normalized after HBOT. Dr. Heuser started out with HBOT (and published a study on HBOT and autism), which caught the attention of other doctors who treat autism. Other doctors then asked him if he was interested in getting more involved with the treatment of autism, to which he said he most definately was. This was only a few years ago. He is also an expert on autoimmune encephalopathy which is not too different a concept from the concept. He and those who are HBOT believers use HBOT after the healing has begun (ie: the immune system has been restored). The families that I know personally who have benefitted from HBOT credit it as what restored their child's cognitive ability to normal after the autism itself was halted by another means. He told me he would not waste my money having my son do HBOT right now as my son is still very much under the control or autism. - SandyD <sandy@...> wrote: If I'm not mistaken, kids with present with hyperperfusion in the frontal regions and hypoperfusion in the temporal regions. At least this was true for my son per his spect scan --- so increasing blood flow in his frontal region would not help at all and might even create more problems. I know that before finding Dr. G. we did a trial of a typical ADD stimulant med - which increases blood flow to the frontal region. It was a horrible experience that culminated after 9 days in a petit mal seizure brought on by a stressful event. Also, wouldn't HBOT just be a bandaid that treats a symptom, rather than addressing the presumed immune dysfunction condition creating the abnormal blood flow in the first place? My son improved drastically overall once his immune system status improved (first, just by identifying and removing foods her was allergic to) and even before we started the additional meds (SSRIs and such). Sandy Rob or Sunseri wrote: > What is the reason for the concern below? Have such side effects been > found? The only question I know the answer to is the bloodflow one. > The kids with autism had decreased blood flow to the frontal lobe > prior to hbot, and normal flow after. This was shown on spect scans. > Is there reason to believe hbot causes alzheimers? I have never heard > that. I know that this particular doctor does not like high O2 & uses > levels just barely higher than regular air (25% O2). > > I would like to e-mail him your questions. Can you give me more > background on where your concerns come from so I can ask him? > > - > > drsmit6 <sjsmith@...> wrote: > initial success with HBOT, but what is it doing to the brain? > Is it creating a situation for alzheimers or dementia later in life? > What medical tests were done beforehand to say 'yes, this condition > needs this treatment'. Was bloodflow to the brain decreased? > Did a spect scan show this? Since the Dr ref'd below is on staff > at UCLA I'm sure he's aware of the work done at the UCLA- Nuclear > Medicine section with the Neurospect scan. > > I'm monitoring a few discussions on other forums relating to HBOT. > a question posed: If a child has 'oxidative stress' then how could HBOT > be helpful? Wouldn't it add to that stress? > > I know Dr G mentioned HBOT in the DVD from Mississippi. > > doris > > > > > > > you know - it distresses me to see this type of 'treatment' being > promoted. > > There's bit of a chat going on in one other group about > > 'oxidative stress' on the brain and this treatment. > > > > I know parents have contacted Montel reps and have been told > > 'to present the evidence'. > > > > Marcia - did you ever send Montel your son's success story? > > > > doris > > > > > > > > > > > > > > Kenitz will be featured on the Montel Show Monday, 1, 2006 > on the subject of Hyperbaric Oxygen Therapy which many people with > autism are using with success. She is also the Keynote speaker at the > 2006 USAAA International Conference, August 9-12, Park City, Utah. > > > > Kenitz, Keynote Speaker > > Degreed in psychology, Kenitz is the Executive Director of > the International Hyperbarics Association, a non-profit organization > that promotes Hyperbaric Therapy through education and research. > Kenitz knows firsthand the heartbreak and struggles of having > a child with a disability. Her youngest daughter, Grace, was > diagnosed with a very rare mitochondrial disorder that kept her in the > hospital virtually for the first three years of her life. Grace more > recently has been diagnosed on the autism spectrum. did not > accept the recommendation to cease life-prolonging measures. And > because of that, Grace progressed to feed herself, recover from > blindness, and at almost 7-years old, walk for the first time on > January 20, 2006. has interviewed for the Montel > show and has a book and movie forthcoming. Click here to read more > about who was interviewed by Teri Small on AutismOne Radio in > March, 2006. > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author(s), and is not necessarily endorsed by or the > > opinion of the Research Institute and/or the Parent Coalition. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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