Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 I heard it also . Supposedly he was Dx with MS 10 years ago. His symptoms sound an AWFUL lot like lyme... I was also Dx with MS for years... until a positive western Blot.... makes one wonder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Hi I heard the same thing, we need to find his e-mail and send him 1000 e-mails about lyme connie, mi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 Just heard on the news that Montel has been diagnosed with MS but he added, " I don't know how long I've had it because I've been misdiagnosed for years. " Interesting! I wonder if he has been tested for Lyme? Ann (TX) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 i was thinking the same thing about montell - i wonder - his symptoms sound an awful lot like mine - but i am sure he had a test for the MS? roe [Lyme-aid] Re: Montel Just heard on the news that Montel has been diagnosed with MS but he added, " I don't know how long I've had it because I've been misdiagnosed for years. " Interesting! I wonder if he has been tested for Lyme? Ann (TX) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 1999 Report Share Posted August 23, 1999 I also was Dx with MS and had a positive western Blot. I hate to wish Lyme on anyone but it could be helpful to the cause if it was Lyme instead of MS. Meg >From: Dabret22@... > >I heard it also . Supposedly he was Dx with MS 10 years ago. >His symptoms sound an AWFUL lot like lyme... > >I was also Dx with MS for years... until a positive western Blot.... >makes one wonder > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 Hi Roe, Far as I know, there is no reliable test for MS, it is similar to Lyme disease that way, when I had the MRI I had on my brain done, the report said " lesions similar to those found in MS or Lyme disease. I think MS is a clinical dx too. Can't help but wonder why Montel is just announcing this 10 years after his dx, ratings down maybe? Sorry, I am just in a lousy, skeptical mood today. Hugs, Marta NJ Re: [ ] Re: Montel i was thinking the same thing about montell - i wonder - his symptoms sound an awful lot like mine - but i am sure he had a test for the MS? roe [ ] Re: Montel Just heard on the news that Montel has been diagnosed with MS but he added, " I don't know how long I've had it because I've been misdiagnosed for years. " Interesting! I wonder if he has been tested for Lyme? Ann (TX) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 as far as ratings Marta - you may be right - he did something similar concerning breast surgery he had while in the service to gain ratings. I thought there was a spinal tap test or something for ms. oh well if its lyme boy will that help our cause - i have hoped someone famous would get it!! but they would probably be treated with as much iv as they want! roe J & M McCoy wrote: > Hi Roe, Far as I know, there is no reliable test for MS, it is > similar to Lyme disease that way, when I had the MRI I had on my brain > done, the report said " lesions similar to those found in MS or Lyme > disease. I think MS is a clinical dx too. Can't help but wonder why > Montel is just announcing this 10 years after his dx, ratings down > maybe? Sorry, I am just in a lousy, skeptical mood today.Hugs,Marta > NJ > > Re: [ ] Re: Montel > i was thinking the same thing about montell - i wonder - > his symptoms sound an awful lot like mine - but i am sure he > had a test for the MS?roe > > [ ] Re: Montel > Just heard on the news that Montel has been > diagnosed with MS but he added, " I don't know how > long I've had it because I've been misdiagnosed > for years. " Interesting! I wonder if he has > been tested for Lyme? Ann (TX) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 " Can't help but wonder why Montel is just announcing this 10 years after his dx, ratings down maybe? Sorry, I am just in a lousy, skeptical mood today. " ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Hi FYI I heard Montel on the news last night he said he was " misdiagnosed " for 10 years! Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 Hi Roe, You could be right about the spinal tap, I remember something now about bands, the word starts with an OGL.....can't recall the rest. If Poor Montel feels half as crappy as I do today, I sure do feel sorry for him, ratings trick or not. Hugs, Marta -- as far as ratings Marta - you may be right - he did something similar concerning breast surgery he had while in the service to gain ratings. I thought there was a spinal tap test or something for ms. oh well if its lyme boy will that help our cause - i have hoped someone famous would get it!! but they would probably be treated with as much iv as they want! roe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 A lot of celebs do this. I think they wait until they cannot hide it anymore. (i.e. outward symptoms start to manifest) --- JVSPL@... wrote: > From: JVSPL@... > > > " Can't help but wonder why Montel is just announcing > this 10 years after his > dx, ratings down maybe? Sorry, I am just in a > lousy, skeptical mood today. " > === Have a Great Day! Rev. Liz Kelso ICQ# 18531920 **Powered by Jesus** __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 In a message dated 8/24/99 2:38:20 PM Eastern Daylight Time, busy91@... writes: << A lot of celebs do this. I think they wait until they cannot hide it anymore. (i.e. outward symptoms start to manifest) >> I heard on the news he justs got the diagnose of MS in March. He looked very tired!! I felt bad for him being that there is no treatment for MS. I know a friend who has it and it could be very debilating. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 Hi, I read in tonight's Philadelphia Daily News that he was only recently diagnosed but has suffered minor neurological problems like tingling sensations for ten years, in the last six months he has begun to experience pain. He also said he came forward because he felt his celebrity name may help others become aware of MS and he has started a foundation for MS hoping to find a cure in 5 years. Mea Culpa, my apologies to Mr. Montel . Maybe if researchers discover that it is a bacterial infection causing MS we will all be helped. Hope so, Marta NJ >From: JVSPL@... > > > " Can't help but wonder why Montel is just announcing this 10 years after his >dx, ratings down maybe? Sorry, I am just in a lousy, skeptical mood today. " >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ >Hi >FYI >I heard Montel on the news last night he said he was " misdiagnosed " for 10 >years! >Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 --Well I think I will try sending in my story. I hope that I get it written so that it is understandable. May need some help having someone proof read after I get it written. Thanks Bev Sandy - In , Beverly Almo <tnbarbsmom@y...> wrote: > Here is the address to send story ideas to Montel > : > > The Montel Show > 433 West 53rd Street > New York, NY 10019 > > > > ____________________________________________________ > Sell on Auctions – no fees. Bid on great items. > http://auctions./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 In a message dated 07/06/2005 11:58:22 PM Central Daylight Time, irishdrought2003@... writes: Doesn't he have an online site that we could write our story? > --Well I think I will try sending in my story. > I hope that I get it written so that it is understandable. > > May need some help having someone proof read after I get it written. > > Thanks Bev > Sandy > > > > - In , Beverly Almo <tnbarbsmom@y...> wrote: > >Here is the address to send story ideas to Montel > >: > > > >The Montel Show > >433 West 53rd Street > >New York, NY 10019 You cannot do a kindness too soon,for you never know how soon it will be too late..... Ralph Waldo Emerson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2005 Report Share Posted July 7, 2005 good for you.....Sandy...it can't hurt [ ] Re: Montel > --Well I think I will try sending in my story. > I hope that I get it written so that it is understandable. > > May need some help having someone proof read after I get it written. > > Thanks Bev > Sandy > > > > - In , Beverly Almo <tnbarbsmom@y...> wrote: >> Here is the address to send story ideas to Montel >> : >> >> The Montel Show >> 433 West 53rd Street >> New York, NY 10019 >> >> >> >> ____________________________________________________ >> Sell on Auctions - no fees. Bid on great items. >> http://auctions./ > > > > > Questions and/or comments can be directed to the list owner at > -Owner > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 I don't think he will help us. He has stated on national tv as well as a woman who came on his show (don't remember her name) that they believe most people with Lyme actually have MS. I guess it is worth a try I am just stating what he said; and don't hold much hope for him helping us. Cyntha Landon in Idaho Myesha 9, Celeste 9, almost 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 Doris asked; Marcia - did you ever send Montel your son's success story? Doris I never wrote Montel. Although many others like Bush, Oprah, Rosie, Bill and Melinda Gates, Doug Flutie, Travolta, Dan Marino and many others. I can't remember all of them. The only one who sent money was the Flutie foundation. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 MARCIE - i too have gone online with the Montel support group, and sent a message about him trying LDN!! as stated, i have never heard anything from the group or Montel, himself!! i too, was hoping we'd hear something from him about its use, and his success with LDN!! marshirisGet a sneak peek of the all-new AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 Previous postings from people who have tried contacting him about it suggest he's in the pay of one of the CRAB fiends (sorry, manufacturers) and not interested in LDN. susanearly wrote: > We see Montel looking and seeming to feel so well, I am wondering if he > is using LDL. Has anyone heard anything? > > My sister passed away in 1982 at the age of 43 after 7 years of being > diagnosed with Fulminating MS. It was horrible for her. On a feeding > tube in her stomach for 3 yrs before her death and had lost her > motility and vision very early on. I wish we had had this to try back > then. We did remove the mercury fillings but it had no effect, and we > tried other things too. > I found this site after searching auto-immune diseases for my own > issues...inflammation every where, mostly blown off and unanswered by > poor medical care because I am on a Humana Medicare HMO. See the movie > SICKO and you will know what I am talking about. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 , I believe that Montel uses Copaxone, as far a traditional meds go. I have read that he has done/does other alternative treatments. I've just never heard what those treatments are. I have heard him talk about a very healthy diet and exercise. I don't know what category of MS he has, but my guess is Benign or Relapsing/Remitting. He does talk about being in pain, so who knows??? He appears to be doing very well. Many of us have written to him about LDN, but I have never gotten a response. Marcie susanearly <susanearly@...> wrote: We see Montel looking and seeming to feel so well, I am wondering if he is using LDL. Has anyone heard anything?My sister passed away in 1982 at the age of 43 after 7 years of being diagnosed with Fulminating MS. It was horrible for her. On a feeding tube in her stomach for 3 yrs before her death and had lost her motility and vision very early on. I wish we had had this to try back then. We did remove the mercury fillings but it had no effect, and we tried other things too.I found this site after searching auto-immune diseases for my own issues...inflammation every where, mostly blown off and unanswered by poor medical care because I am on a Humana Medicare HMO. See the movie SICKO and you will know what I am talking about. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 Montel is certainly secretive about his MS treatments. I wrote a letter to him and mentioned my EAP treatments. Thought the EAP might help get a response. He has not responded. He either is doing an off-the-wall treatment and or has a benign case of RRMS. Terri Garr is taking Copaxone and will no be filmed walking. Lander (Squiggy) is taking Avonex (I think?) Don't know when his last job was. Lander is also taking medical marijuana as well is Montel. > We see Montel looking and seeming to feel so well, I am wondering if he > is using LDL. Has anyone heard anything? > > My sister passed away in 1982 at the age of 43 after 7 years of being > diagnosed with Fulminating MS. It was horrible for her. On a feeding > tube in her stomach for 3 yrs before her death and had lost her > motility and vision very early on. I wish we had had this to try back > then. We did remove the mercury fillings but it had no effect, and we > tried other things too. > I found this site after searching auto-immune diseases for my own > issues...inflammation every where, mostly blown off and unanswered by > poor medical care because I am on a Humana Medicare HMO. See the movie > SICKO and you will know what I am talking about. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 Hi What is Fulminating MS - I tried to Google it but could not get into any of the medical articles about it.......? Kelli From: susanearly [mailto:susanearly@...] Sent: Friday, 17 August 2007 1:31 AM low dose naltrexone Subject: [low dose naltrexone] Montel We see Montel looking and seeming to feel so well, I am wondering if he is using LDL. Has anyone heard anything? My sister passed away in 1982 at the age of 43 after 7 years of being diagnosed with Fulminating MS. It was horrible for her. On a feeding tube in her stomach for 3 yrs before her death and had lost her motility and vision very early on. I wish we had had this to try back then. We did remove the mercury fillings but it had no effect, and we tried other things too. I found this site after searching auto-immune diseases for my own issues...inflammation every where, mostly blown off and unanswered by poor medical care because I am on a Humana Medicare HMO. See the movie SICKO and you will know what I am talking about. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Thanks group, for the responses. And the additional information about other Stars. I did not know Teri Garr had MS. Every time I ever saw Annette Funicello though, my heart would ache for her. I have not seen her on TV in a long time now. It is so amazing how MS can hit people so differently in so many ways and from very mild symptoms to severe. Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 Fulminating MS means rapidly deteriorating M S. Her Dr. called it that right from the beginning. I don't know how he was able to determine that, but from her initial diagnosis to her death was only 7 years. When was 36 she got a bad headache, after 3 days she went to a vision center in the mall, thinking maybe she needed glasses. The Dr there saw something that alarmed him and sent her straight to the hospital. He thought she may possibly have an aneurysm. After 2 weeks in the hospital and a process of ruling out this or that, the Neurologist told her it was Fulminating MS. prior to this event, the only symptoms that could have been a clue were she would get a lot of pain in her knees after stooping as in washing the floor, and if she had as much as one alcoholic drink she experienced numbness in her lips. We don't know for sure if those things were related but you hear that you may have MS long before symptoms show up enough to diagnose. From her diagnosis, things did go down hill rather fast. Slurring speech, loosing her balance, loss of bladder control, lose of vision and difficulty swallowing to the point of the feeding tube which was put in in her 4th year. All through that, my sister never lost her sense of humor and her spark. She was always known to have a bubbly up-beat personality. Everyone adored her. She was so brave and only cared how her kids and her family were coping with this so she always put up a good front. The funniest thing she did was when she was hospitalized that first time, she of coarse was told no smoking! A Dr. was passing her room one day and she yelled out to him... " Hey...I'll give you a B.J. for a cigarette! " The nurses were hysterical. They loved her and would try to come around her as much as they could for a dose of her humor and sunshine. > > Hi > > > > What is Fulminating MS - I tried to Google it but could not get into any of > the medical articles about it.......? > > > > Kelli > > > > _____ > > From: susanearly [mailto:susanearly@...] > Sent: Friday, 17 August 2007 1:31 AM > low dose naltrexone > Subject: [low dose naltrexone] Montel > > > > We see Montel looking and seeming to feel so well, I am wondering if he > is using LDL. Has anyone heard anything? > > My sister passed away in 1982 at the age of 43 after 7 years of being > diagnosed with Fulminating MS. It was horrible for her. On a feeding > tube in her stomach for 3 yrs before her death and had lost her > motility and vision very early on. I wish we had had this to try back > then. We did remove the mercury fillings but it had no effect, and we > tried other things too. > I found this site after searching auto-immune diseases for my own > issues...inflammation every where, mostly blown off and unanswered by > poor medical care because I am on a Humana Medicare HMO. See the movie > SICKO and you will know what I am talking about. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2007 Report Share Posted August 18, 2007 HI SUSAN,TO my knowledge montel smokes marijuana,he is also taking an interferon he doesn't say which one in his book.His book is called CLIMBING HIGHER. [low dose naltrexone] Montel We see Montel looking and seeming to feel so well, I am wondering if he is using LDL. Has anyone heard anything?My sister passed away in 1982 at the age of 43 after 7 years of being diagnosed with Fulminating MS. It was horrible for her. On a feeding tube in her stomach for 3 yrs before her death and had lost her motility and vision very early on. I wish we had had this to try back then. We did remove the mercury fillings but it had no effect, and we tried other things too.I found this site after searching auto-immune diseases for my own issues...inflammati on every where, mostly blown off and unanswered by poor medical care because I am on a Humana Medicare HMO. See the movie SICKO and you will know what I am talking about. Luggage? GPS? Comic books? Check out fitting gifts for grads at Search. Quote Link to comment Share on other sites More sharing options...
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