RE: Re: Abnormal EEG with spikes?? CAROLINE

[Guest guest]

, what were your son's symptoms? Would a

neurospect show if there was a problem or would an mri

be necessary? Barb

--- LINDA ANAGNOSTAKOS <lsa5885@...> wrote:

> Hi Kristie,

>

> Has your son had an MRI of his brain ?

>

> My son had neuro. symptoms but was misdiagnosed for

> four years before we

> insisted on an MRI and he was finally correctly

> diagnosed with a severe

> Chiari 1 Malformation.

>

> He needed emergency neurosurgery to decompress his

> brain and give it the

> room it needed to expand in his skull. Our

> neurosurgeon said that this is

> often missed and these kids suffer tramatic brain

> injuries due to the

> failure to diagnose early on.

>

> It is his opinion that all children who present with

> developmental delays

> receive an EEG as well as an MRI to rule out

> underlying medical conditions

> that present like autism.

>

> Take good care,

>

>

>

>

> >From: " aaron2kristie " <aaron2kristie@...>

> >Reply-

> >

> >Subject: Re: Abnormal EEG with spikes??

> CAROLINE

> >Date: Fri, 07 Apr 2006 04:28:10 -0000

> >

> >

> >

> >

> >I guess what I am trying to ask you and others is:

> >

> >do you think it wise to start my son on an anti

> convulsant and then go

> >

> >the route? Or wait for an appointment for the

> protocol? To

> >

> >be clear my son had an abnormal EEG but has not (to

> my knowledge) had

> >

> >a seizure. He may have had an atonic (I think--drop

> seizure; lost

> >

> >consciousness for a few moments as an infant)

> seizure but that is all

> >

> >thus far.

> >

> >

> >

> >Kristie

> >

> >mommy to Aidan 2.10 today

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >Responsibility for the content of this message lies

> strictly with

> >

> >the original author(s), and is not necessarily

> endorsed by or the

> >

> >opinion of the Research Institute and/or the

> Parent Coalition.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ! GROUPS LINKS

> >

> >

> >

> >

> > Visit your group " " on the web.

> >

> >