Re: Re: Refusing to eat/Gaylen

[Guest guest]

In a message dated 1/25/2008 5:09:35 P.M. Central Standard Time,

donnaaron@... writes:

<<is Periactin a prescription medicine or is it OTC? Is it

something that pediatricians prescribe/recommend to help with food

sensitivities? Will Dr. G prescribe it?>>

It is a prescription drug usually prescribed by pediatric gastro doctors.

It has been around for many years and has a good safety record so I would

think it is worth asking Dr. G if he will give it a try. It made such a quick

difference for my son that I posted about it on several autism lists. I got

replies from two adults on the spectrum that said they took it as teens as well

for their difficulty gaining weight.

Gaylen

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Hey Jenn

If it's not sensory (or can't tell), but more of an

unwillingness to even taste, it could be similar to my

issues growing up ... when I was having significant

bouts of OCD (I had a few episodes of PANDAS and had

OCD on and off many years), I get food aversions and

won't eat. Even the last episode I had that is just

now gowing away triggered an unwillingness to eat ...

I had been free of OCD for so many years by this time

that it was real interesting to observe it as it

happened (when I wasn't freaking out that is) and how

some of the things I had struggled w/kept coming back

.... one of them was a wierd 'fear' of food. I know it

was OCD, because I would feed the very food culprit

that I refused to eat to my kids, so I knew whatever

belief/excuse I had created wasn't real if I'd feed

that evil poison to them. lol

HTH-

--- jennkleiber <jennkleiber@...> wrote:

> Hi-

> We too are very curious about the Periactin. We

> have stuggled with

> Bobby's lack of eating for what seems like forever.

> Our greatest

> issues is that he won't even try things. If he

> tried them and spit

> them out, then we'd know we were dealing with a

> texture/taste

> sensitivity, but he won't even put the food in his

> mouth.

> I have tried doing some of the stimulation therapy,

> but we haven't

> seen any changes. His diet is so limited- everything

> soy based- corn

> flakes, banana, yogurt, pudding and sometimes he'll

> eat pizza or

> french toast, but it's a constant battle. Does

> anyone have

> any 'tricks' or strategies to get kids to try foods?

> Bobby get

> Speech/feeding and OT everyday, and nothing is

> seeming to help.

> Thanks in advance for you help.

> Jenn

>

> > >

> > > The absolutely best thing we found to address

> eating problems due

> to

> > oral

> > > sensitivities was regular trigeminal/cranial

> stimulation. This

> is

> > extremely

> > > helpful at dampening all types of other sensory

> sensitivities as

> > well. It can

> > > be done by anyone and should be done three or

> more times a day

> > regularly

> > > until the child's over-sensitivities are

> regulated. To do this,

> > you provide a

> > > very light, tickling finger touch all over the

> face, head and

> neck

> > for a full

> > > minute, followed by a deep, finger pressure over

> the same areas

> for

> > another

> > > minute. Most sensitive kids cannot tolerate

> even a few seconds

> of

> > the light

> > > touch at first so build up slowly by doing a

> quick light touch

> > followed by

> > > longer deep pressure and expand the length of

> time for the light

> > touch very

> > > gradually.

> > >

> > > The other miracle thing I've found for those

> refusing to eat is

> the

> > allergy

> > > drug Periactin. This is typically used for

> allergies affecting

> the

> > > gastro-intestinal tract. Interestingly, it

> works with seratonin

> > instead of histamine.

> > > I wish a doctor had recommended it when my son

> was 3 and had

> first

> > started

> > > his eating problems. It would have saved over

> ten years of the

> > enormous

> > > grief we went through trying to get the kid to

> eat.

> > > Gaylen

> > >

> > >

> > >

> > > **************Start the year off right. Easy

> ways to stay in

> shape.

> >

> > > http://body.aol.com/fitness/winter-exercise?

> NCID=aolcmp00300000002489

> > >

> > >

> > > [Non-text portions of this message have been

> removed]

> > >

> >

>

>

>

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[Guest guest]

In a message dated 1/28/2008 8:37:53 P.M. Central Standard Time,

jennkleiber@... writes:

<<Our greatest issues is that he won't even try things. If he tried them and

spit

them out, then we'd know we were dealing with a texture/taste

sensitivity, but he won't even put the food in his mouth.

I have tried doing some of the stimulation therapy, but we haven't

seen any changes. >>

This was the case with my son from about age 3 until around 6-7. It was

extremely hard and frustrating. It took almost a year of constantly putting

new

foods in front of him for him to finally get the courage up to try a bite of

a rye cracker. We were able to ease in some new tastes by gradually adding

them to the ones he was used to. For example, at one point, he would only

eat cheerios. We gradually added sweet potatos to them one dot at a time, very

slowly building up until we were basically making sweet potato sandwiches

out of cheerios and then eased more more until many months later, he would eat

sweet potatos by themselves. Then, we slowly added other things in. This

was our life four about four years until one day, six months into the

trigeminal/cranial stimulation, he suddenly tried five new foods in one day.

About a

year later, he'd try new foods if we asked him to. At age 16, he's still a

bit picky about the types of foods he wants. He still doesn't like much spice

or strong tastes (like vanilla flavoring) but will tolerate a little bit.

Gaylen

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489