Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I started my child on a rotation diet when she was four. After about a year of that I went to strict GFCF, which was basically no grains, and low sugar no artificial anything. I did not find until she was almost eleven. I think the strict diet and removing household allergens made the difference between her having words and not. Once she had the medications on board she began speaking in sentences and now at 16 has not had speech therapy in over two years. I recommend strict adherence to the diet here in the NNY Clinic with exceptions for Birthday Parties, but let's face it, sometimes that is not always possible and you have to do the best you can. Kathy NNY Autism Center Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I think there is the pragmatic view versus the ideal. You are absolutely correct in thinking overdosing on anything can result in more problems whether gluten is present or not. I have always used a mixture of flours; rice, tapioca, amaranth, sorghum, bean flours so as not to create more issues. At this point in my baking I can substitute whatever combination of flours are handy and as long as I remember to add the xanthum gum I can get a good result. My daughter was underweight until she was about thirteen but now is fine. Bette Hageman, the Gluten Free Gourmet, was what I relied on in the beginning and I still go back to her for special recipes. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Has anyone removed all grains from their child's diet? I was checking into some information from a chicago physician. He suggested that even kids that are gfcf may not be doing good enough. He said remove all grains from the diet, and that is where you will see your child do much, much better. This includes removing potatoes (that is tough stuff!!!!) So, have any of you tried this? We were gfcf for some time before doing nids, then we hung onto the following words " you can give him white bread " and we added that back in plus some others (no whole wheat as we were told) but to me, he was much clearer on gfcf, even better then with present day ssri's just antivirals and gfcf. SO, parents, have any of you done this? No grains whatsoever (and no potatoes)? Is there any other veg you can fry up like a french fry but it is not a potatoe ? (in olive oil ofcourse?) My guy is not a vegtable person at all! Definitely fruit, but absolutely no veggies (except ofcourse potatoes!!!) Cat (thanks everyone !!) --------------------------------- Relax. virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 No potatoes at all? Sweet potatoes might be OK. Ever had sweet potato fries? yummy! Good luck with this. Diet changes are so hard on the kids (us too!) April diet question: removing all grains > Has anyone removed all grains from their child's diet? I was checking into some information from a chicago physician. He suggested that even kids that are gfcf may not be doing good enough. He said remove all grains from the diet, and that is where you will see your child do much, much better. This includes removing potatoes (that is tough stuff!!!!) > > So, have any of you tried this? We were gfcf for some time before doing nids, then we hung onto the following words " you can give him white bread " and we added that back in plus some others (no whole wheat as we were told) but to me, he was much clearer on gfcf, even better then with present day ssri's just antivirals and gfcf. > > SO, parents, have any of you done this? No grains whatsoever (and no potatoes)? > > Is there any other veg you can fry up like a french fry but it is not a potatoe ? (in olive oil ofcourse?) My guy is not a vegtable person at all! Definitely fruit, but absolutely no veggies (except ofcourse potatoes!!!) > > Cat (thanks everyone !!) > > > --------------------------------- > Relax. virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Sounds like the Specific Carbohydrate Diet (SCD). I believe it eliminates all grains (including certain starchy foods like potato), but, I think it allows for sweet potato. Anyone following a grain-free diet might want to take a look at SCD recipes. Also, you may be able to find some with Google. On Mar 9, 2006, at 11:43 AM, April Jagnow wrote: > No potatoes at all? Sweet potatoes might be OK. Ever had sweet potato > fries? yummy! > > Good luck with this. Diet changes are so hard on the kids (us too!) > > April > > diet question: removing all grains > > >> Has anyone removed all grains from their child's diet? I was checking >> into > some information from a chicago physician. He suggested that even kids > that > are gfcf may not be doing good enough. He said remove all grains from > the > diet, and that is where you will see your child do much, much better. > This > includes removing potatoes (that is tough stuff!!!!) >> >> So, have any of you tried this? We were gfcf for some time before >> doing > nids, then we hung onto the following words " you can give him white > bread " > and we added that back in plus some others (no whole wheat as we were > told) > but to me, he was much clearer on gfcf, even better then with present > day > ssri's just antivirals and gfcf. >> >> SO, parents, have any of you done this? No grains whatsoever (and no > potatoes)? >> >> Is there any other veg you can fry up like a french fry but it is >> not a > potatoe ? (in olive oil ofcourse?) My guy is not a vegtable person at > all! > Definitely fruit, but absolutely no veggies (except ofcourse > potatoes!!!) >> >> Cat (thanks everyone !!) >> >> >> --------------------------------- >> Relax. virus scanning helps detect nasty viruses! >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 We tried broiling rutabega cut into french-fry type pieces last week and it was wonderful. I just cut them into fries, tossed them in olive oil and salt and broiled them, turning every 5 minutes for 15 minutes. My husband and I really liked them but my son didn't. He doesn't like potatos cooked this way either though but rather prefers the frozen already-prepared fries. Turnip fries might also be good if cooked this way but you'd want to only use the small turnips and cook them longer so they're not as tart. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Hi Cat - I've removed grains myself but not on my kids, and during the two weeks that I succeeded, I did feel better and have more energy. I KNOW if my kids get too much bread or other carbs, they get wild and uncontrollable. If you do try to fry sweet potatoes as french fries, you could also try baking them in fry-shape with coconut oil and a touch of margarine, just turning them gently, not too much or they get mushy. I do that in an iron skillet. The olive oil smokes, so I don't like to use it for that. Another thing... you could try making your own lard from pork fat - not that I've succeeded in finding organic pigs. I haven't tried it myself, but lard is a more stable fat to cook at higher temps. You can't buy the stuff at the grocery store, though, 'cause it has been hydrogenated. I would say that is more responsible for harm than the actual fat itself. Beef tallow could also be used if homemade. I have tried neither but will be trying some lard for just specific types of cooking (things that need shortening or cook at high heat). If a child is super-reactive to gluten, you could look into a book called Nourishing Traditions that suggests soaking grains in an acidic solution (usually 2T whey or yogurt with a cup of water but you can use vinegar or lemon juice) for 12-24 hours prior to using to break down the phytic acid present in all our grains that can block the ability to digest it. It used to be the way grains were prepared prior to quick-rise yeast. Oats are particularly high in phytic acid, which could be why kids can be just as reactive to them even though they're lower in gluten, and when I tried soaking my son's oats, I do believe I saw improvement in both behavior and energy levels. Only problem... he stopped eating them because he was also going thru a very hyper-sensitive taste/smell period, and didn't like the change in texture and the slightly sour taste... but I personally liked them better. Anyway, I'm very interested in a lot of things discussed in the book, and have become a much better cook trying some of the recipes, but I could not tell you yet if it is a particular solution to gastro problems. It is, however, very educational and interesting, and quite worth the read. It's also detailed about preparing foods in a manner that reduces the destruction of the enzymes that help digest the food, and encourages expanding the diet with traditional foods from multiple cultures and old preparation styles. It has helped me overcome some eating issues I have (a fear of food and concern about toxicity) and truly given me a wealth of things I look forward to trying. I also try to focus on healthy choices and balance, and faithly take my probiotics. Anyway, Dr G has always suggested stricly limiting the grains, and using them only for the purpose of getting protein in our kids (like if they just must have bread to have a protein-laden sandwich.) Hope your efforts pay off without too much stress. Isn't it amazing how much stress a basic necessity can cause? Best of luck- --- catherine quinn <quinn.cat1968@...> wrote: > Has anyone removed all grains from their child's > diet? I was checking into some information from a > chicago physician. He suggested that even kids that > are gfcf may not be doing good enough. He said > remove all grains from the diet, and that is where > you will see your child do much, much better. This > includes removing potatoes (that is tough stuff!!!!) > > > So, have any of you tried this? We were gfcf for > some time before doing nids, then we hung onto the > following words " you can give him white bread " and > we added that back in plus some others (no whole > wheat as we were told) but to me, he was much > clearer on gfcf, even better then with present day > ssri's just antivirals and gfcf. > > SO, parents, have any of you done this? No grains > whatsoever (and no potatoes)? > > Is there any other veg you can fry up like a > french fry but it is not a potatoe ? (in olive oil > ofcourse?) My guy is not a vegtable person at all! > Definitely fruit, but absolutely no veggies (except > ofcourse potatoes!!!) > > Cat (thanks everyone !!) > > > --------------------------------- > Relax. virus scanning helps detect nasty > viruses! > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Ok Becky, I just have to know how you turn beans and squash into cake. My son has several vegetarian friends who don't typically go for junk food but I think even they would draw the line at bean squash cake. Then again, I'm adventurous, so recipe please... Gaylen PS My son used to have the bloated belly and scary stools you mentioned as well. He didn't go grainless but we did significantly limit sugars and carbos for a few years. That, and treating pathogenic bacteria and yeast really helped. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Cat, My son has been on the SCD diet for 3 months now. No grains, potatoes corn. it wasn't a huge jump for us, since my son's diet was already pretty limited. We just had to eliminate the above-grains, potatoes and corn. Oh, and all added sugar except honey. The point is to eliminate all sugars that are not monosaccharides . Other sugars require more digestion, so our inured guts are unable to fully assimilate all these undigested carbs. The carbs end up hanging out undigested and fueling the growth of yeast/bacteria and causing more inflammation/malabsorption. Hence the vicious cycle. Many will say you can't do SCD since it relies heavily on nuts(allergenic) and allows dairy- not true. We do it just fine with no nuts or dairy and eat much healthier than we ever did before. I use beans, eggs, and squash for much of my baking. Granted, it's not gourmet but my 5 year old thinks it's cake and that's all that counts! Benefits-- it's a hard diet to adjust to (more like a way of life!), so if i didn't know it was helping, I would have given up. However, within 3 weeks, my son's pregnant looking belly was for the first time flat. His outie belly button became an innie. His stools, which followed a pattern of - one normal poo , followed a few hours later by loose, gassy, light colored poos. (every other day) Now he goes every day, once, a dark brown formed poop with no gas. And-- (this was the biggie for me!!) his mild eczema, which he has had since BIRTH, despite all sorts of dietary contortions and comparing eosinophils and trying all sorts of creams, lotions, antihistamines, etc... IS GONE. This took a couple months to heal completely. More proof-- J. has a bad cough right now, so I gave him sugar/color/garbage laden cough syrup the last 2 nights, and he now has, guess what-- eczema!!! Anyhow, check out www.breakingtheviciouscycle.com and www.pecanbread.com There's also a pecanbread mailgroup you can sign up for. There's tons of recipes out there, even a few SCD cookbooks. I've learned that squash is my friend (we do squash french fries, BTW) It's worth a try. You really have to learn how to cook, buy a food processor, and get creative. We all eat tons more vegetables and my son is much less picky now and doesn't crave sweets like a madman anymore. Good luck, Becky diet question: removing all grains > Has anyone removed all grains from their child's diet? I was checking into > some information from a chicago physician. He suggested that even kids > that are gfcf may not be doing good enough. He said remove all grains from > the diet, and that is where you will see your child do much, much better. > This includes removing potatoes (that is tough stuff!!!!) > > So, have any of you tried this? We were gfcf for some time before doing > nids, then we hung onto the following words " you can give him white bread " > and we added that back in plus some others (no whole wheat as we were > told) but to me, he was much clearer on gfcf, even better then with > present day ssri's just antivirals and gfcf. > > SO, parents, have any of you done this? No grains whatsoever (and no > potatoes)? > > Is there any other veg you can fry up like a french fry but it is not a > potatoe ? (in olive oil ofcourse?) My guy is not a vegtable person at all! > Definitely fruit, but absolutely no veggies (except ofcourse potatoes!!!) > > Cat (thanks everyone !!) > > > --------------------------------- > Relax. virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Kathy...will you please elaborate on what you did in removing household allergans!? This is an area where I think I need to focus some effort. Thanks > > I started my child on a rotation diet when she was four. After about a year > of that I went to strict GFCF, which was basically no grains, and low sugar no > artificial anything. I did not find until she was almost eleven. I > think the strict diet and removing household allergens made the difference > between her having words and not. Once she had the medications on board she began > speaking in sentences and now at 16 has not had speech therapy in over two > years. I recommend strict adherence to the diet here in the NNY Clinic with > exceptions for Birthday Parties, but let's face it, sometimes that is not always > possible and you have to do the best you can. Kathy NNY Autism Center > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Dear , I can't really give you everything in a post as I don't have the time. If you go to our web site there might be something on it. All of our patients get it in their handbooks when they come to clinic. I am in the process of writing up a pamphlet that addresses just that. In lieu of that I would suggest Dr. Doris Rapp's Is this you Child?. It is an old book but the information in it is still very good. Kathy Quote Link to comment Share on other sites More sharing options...
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