i hear you, buuuut... when you can't think you can do almost nothing- including the research needed to get permanently better. Ideally, we would have full-time caretakers doing all our research for us, and care for us and measure our dosages and tak

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i hear you, buuuut... when you can't think you can do almost nothing- including the research needed to get permanently better. Ideally, we would have full-time caretakers doing all our research for us, and care for us and measure our dosages and take care of life but i didn't have that. i AM that person to 5 little ones. I had to get clear before I could even begin getting better.also it was worth it to feel better because i was suicidal, thinking it would never end. It saved my life by making me feel better enough to keep on fighting.just another perspective -sarah To: Lyme_and_Rife From: drumroll@...Date: Tue, 17 Jan 2012 11:06:19 -0600Subject: Re: OT: Thoughts on Flagyl?

My only concern about abx is that happy reports of their use are in the past tense,('was', 'gave me my life back', 'was totally worth it.) Yes, abx 'did' help many people, but I've witnessed so many Lymies limping into these groups after the bugs that were encysted by abx have finally come out of hiding with a vengeance, that I pray never to have to use abx, for anything, ever again. These critters can hide from 6 to 20 years, and when they come out, rather than the one that went into cyst, it can now be 5! (My lyme-mycoplasma was treated with abx over 30 years ago and the results were 1.5 years of hell in my gut. never again.) If you have a truly knowledgeable LLMD who knows how to pulse these drugs, maybe, but there aren't many of them from what I've witnessed.Be well,Léna flagyl was a miracle drug for me. I was on iv abx for 6 mos and added oral flagyl for the last 2 months. It gave me back my brain.it changed my taste- food tasted different, but it was totally worth it! avoid all alcohol- including mouthwash, etc while using it, or you will get very sick.YMMV-sarahlange To: Lyme_and_Rife From: malindabross@...Date: Tue, 17 Jan 2012 12:37:13 +0000Subject: OT: Thoughts on Flagyl? Hello everyone! It has been ages since I have been on this forum. I hope everyone is doing well. Life has been pretty hectic this past year....four new grandchildren =) .....including a baby that my son and dil adopted born with multiple medical issues, including no arms, club-foot, g-tube feedings.... So we have been busy.... But life is good and we are enjoying it. My son with lyme since 2001, reinfected in 2002, and again this past summer is doing well. He was treated with two months of antibiotics in 2001 and 2002. However, other than that, he was treatly only naturally with the guidance of our ND. Then this summer to treat his new reinfection we went to an LLMD. He has been on doxycycline since July and ceftin since about October. We never thought we would do long-term antibiotics, but he muscle-tests positive for both antibiotics with both the ND and the DC. And he is doing great. However, we both fear the day he goes off the antibiotics. =/ We've been around this community long enough to know what can happen after the abx, which is why we have chosen in the past to not do them. But now the LLMD wants to start Flagyl. I know others have used this, but I forget what the general feeling of it has been. Recommended or not? It has been quite easy in the past to do the abx even though we didn't want to because he muscle-tested for it. We are not sure what to do if he does not test for the Flagyl and yet the LLMD recommends it. That is where I am hoping you guys can help. I'd like to hear thoughts and opinions on Flagyl. Blessings to all, Malinda