RE: Re: cerebral folate deficiency in low-functioning autism: milk-free diet downregulates folate receptor autoimmunity

[Guest guest]

Hello,

Whom is Dr. Quadro???

lidia Marandola

From: csb-autism-rx [mailto:csb-autism-rx ]

On Behalf Of W

Sent: January-27-11 10:22 PM

To: csb-autism-rx

Subject: Re: cerebral folate deficiency in low-functioning

autism: milk-free diet downregulates folate receptor autoimmunity

How did leucovorin help his other ASD symptoms?

>

> Interesting. My son was tested for both Folate blocking and Folate binding

autoantibodies by Dr. Quadros' group. he tested positive for binding

autoantibodies. We started Leucovorin at 50mg/day. We eventually reduced the

dosage to 25mg per day because of stomach upset. he is doing fine on 25 mg

per day and his vision has improved to 20/30 and his binocular vision has

improved to the point that any deficiency is negligable. The eye doctor said

he could barely detect any problems with binocular vision.

>

>

>

>

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14:34:00

[Guest guest]

Yes thanks.

But what kind of genetic tests are available for this????

My son was tested for both Folate blocking and Folate binding

> autoantibodies by Dr. Quadros' group. he tested positive for binding

> autoantibodies.

Would you be able to share as I would like to present to my doctors here???

lidia Marandola

From: csb-autism-rx [mailto:csb-autism-rx ]

On Behalf Of starsrocket

Sent: January-30-11 12:26 PM

To: csb-autism-rx

Subject: Re: cerebral folate deficiency in low-functioning

autism: milk-free diet downregulates folate receptor autoimmunity

He is a molecular biochemist at SUNY in NY.

http://www.downstate.edu/biochemistry/quadros.html

> >

> > Interesting. My son was tested for both Folate blocking and Folate

binding

> autoantibodies by Dr. Quadros' group. he tested positive for binding

> autoantibodies. We started Leucovorin at 50mg/day. We eventually reduced

the

> dosage to 25mg per day because of stomach upset. he is doing fine on 25 mg

> per day and his vision has improved to 20/30 and his binocular vision has

> improved to the point that any deficiency is negligable. The eye doctor

said

> he could barely detect any problems with binocular vision.

> >

> >

> >

> >

>

>

>

> No virus found in this incoming message.

> Checked by AVG - www.avg.com

> Version: 9.0.872 / Virus Database: 271.1.1/3396 - Release Date: 01/27/11

> 14:34:00

>

>

>

>

[Guest guest]

Can I be part of this study too. How do i get this done???

lidia Marandola

From: csb-autism-rx [mailto:csb-autism-rx ]

On Behalf Of starsrocket

Sent: January-31-11 7:22 AM

To: csb-autism-rx

Subject: Re: cerebral folate deficiency in low-functioning

autism: milk-free diet downregulates folate receptor autoimmunity

Hi Lidia,

I don't know much more. Dr. Frye ordered a blood draw and sent it to them.

As i understand it, the test is not commercially avaialable. This is an area

the Dr. Quadros is working in. They specifically tested for folate binding

and folate blocking auto-antibodies. I did have to pay a $100

" tax-deductable donation " to cover the cost of testing. You can look up some

of his research online. I would also be happy to scan the test results later

and email to you...

> > >

> > > Interesting. My son was tested for both Folate blocking and Folate

> binding

> > autoantibodies by Dr. Quadros' group. he tested positive for binding

> > autoantibodies. We started Leucovorin at 50mg/day. We eventually reduced

> the

> > dosage to 25mg per day because of stomach upset. he is doing fine on 25

mg

> > per day and his vision has improved to 20/30 and his binocular vision

has

> > improved to the point that any deficiency is negligable. The eye doctor

> said

> > he could barely detect any problems with binocular vision.

> > >

> > >

> > >

> > >

> >

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - www.avg.com

> > Version: 9.0.872 / Virus Database: 271.1.1/3396 - Release Date: 01/27/11

> > 14:34:00

> >

> >

> >

> >