Re: growth

[Guest guest]

Sheryl,

Hi. Jen K here again. i am still catching up but noticed that you are having

tested more than once for bone age? Emma's growth has fallen below

her usual below 3% growth curve and we are waiting for her repeat blood work

from the lab? I asked her endocrinologist about repeating her bone age test

and he said that it only has to be done once and that we already know from

that xray that the growth is delayed. her previous GH has come back normal

althougth she does have some thyroid abnormalities. We have not done the

extended GH test as the initial simple serum GH was normal. I can't recall

right now how delayed her bone growth was but it was only about 18 months as

i remember. She had it done at 4 years of age. She is totally tube fed but

recieves adequate calories so that should not be an issue(?).

Do you or anyone else out there feel i should be looking into this more?

Should she have her bone age done again? Of all the tests we do to our kids

that is probally one of the easiest ones!

thank you,

Jen K

wife to mike and mom to our two chargers emma almost 7 and diane 5

[Guest guest]

Hi Jen,

Jack tested low for IGF1 but his GH test showed that his GH is within normal

levels. However, as his growth is very slow(well below 3rd centile) he is

going to start a trial course of GH shots to see if it makes a difference.

His bone age is also delayed and has only been tested once. I don't think

they have any plans to repeat the x-ray.

(Lesley in England's son) has GH shots and is nor GH deficient but it

has made a big difference to his growth.(I'v got this right Lesley???)

We are just fortunate that Jack has a wonderful endocrinologist and

consultant paed. who are willing to do all they can for Jack and are happy to

prescribe the shots as I know they are very expensive!!

Elaine mum to Elise (8yrs) & Jack (3yrs) CHaRGE

Dumfries,Scotland