Re: [SPAM] Tera

[Guest guest]

Tera,

I might b able to get you some direction. I'm going to school right

now working towards my masters in slp and I have a professor that is

dual audiologist/slp. If you can give me some more information, I

might be able to get some info from her as to who to see, what to

look into, etc. I personally don't know anything about why a child

that can hear would have the speech of someone that is hearing

impaired so I would be interested in knowing what she would have to

say, if you don't mind me asking, of course.

Things I would probably need to know: Have you seen an audiologist?

(I'm sure the answer to that is yes) What did they say? Have you

seen an slp and if so, what have they said?

She might be able to tell you what kind of person to see and what

kind of tests to ask for, etc.

Cheryl

On Feb 29, 2008, at 3:41 PM, tera wrote:

> ,

>

> We are looking into OT also. He's going to be evaluated next month

> while he's on track break. It is a hard road. I'm sure everyone has

> their moments where they feel they are at the end of their rope. I

> know I do.

>

> One other thing I'm looking at currently is auditory processing

> issues. My son sounds very similar to a deaf child when he talks.

> I'm wondering if it is because even though his hearing is perfect

> if what or how he's hearing isn't clear in some way.

>

> It is really frustrating because my insurance pays for nothing,

> government services are few, far between and usually unavailable.

> There is a lot of worry and uncertainty in raising a child with

> autism. So many questions and very few actual answers.

>

> :-)Tera

>

> Curtis and Hackler <thehacks@...> wrote:

> Thanks for all of the encouragement. There is NO way

> I'd ever give up on my son... I guess I " m just in a

> valley & had my " moment " and can move on. We are

> looking into OT/Sensory integration. There aren't any

> good OT's close, but if it will help him I will

> drive!! Yes, hope is all we have! I can't express

> the number of prayers that we have prayed for him and

> will continue to do so. I wish the very very best to

> all of you & your children too. This is such an

> interesting/bizarre journey we are on!

>

>

> --- tera <tera999@...> wrote:

>

> > I think it is very important to provide whatever

> > services you can and keep them up. We have been

> > very fortunate that my 4.5 y.o. son is making great

> > progress. But it took 2.5 years of intensive speech

> > therapy before he started to have a good functional

> > grasp of language (it was more than a year before he

> > finally " got " nouns and realized that things had

> > names) and it took over a year of taking him to the

> > toilet every hour on the hour before he finally

> > " got " it and started potty learning. Almost another

> > year after that, we are about 90% of the way

> > day-time potty learned.

> >

> > Progress can be painfully slow. But for me, the

> > one thing that sustains me is hope. I can't give up

> > services for my son because that would be giving up

> > hope and I just couldn't do it. We are fortunate

> > that we are at a point where we are starting to see

> > really good gains but it was a really long road to

> > get here and there have been some really hard

> > moments along the way. And I have to say, hope can

> > be really, really expensive. But what do you do? I

> > know for us, I want to give my son the best chance

> > at the best life he can have. So we hope, we pray,

> > we try new things and we are constantly moving

> > forward and trying not to dwell on the past or get

> > bogged down in the present. There aren't really any

> > great answers. You just do the best you can and hope

> > for the best.

> >

> > {{Hugs}}

> > Tera

> >

> > jennkleiber <jennkleiber@...> wrote:

> > Hi -

> > I hear you and completely understand what you are

> > saying. I often

> > wonder if we are doing the right thing for Bobby as

> > well. Although we

> > have only been working with Dr. G since November, we

> > have seen some

> > nice changes- he is no longer congested, and he

> > responds to his name,

> > AND although some wouldn't appreciate this, he is

> > clearly frustrated

> > with his lack of communication skills and acts out

> > (our last SLP

> > assessment has him in the .03 percentile for

> > communication) which

> > tells me that he is now aware of his surroundings.

> >

> > However, Bobby has been receiving services, P/T,

> > O/T, SpEd, and Speech

> > since he was one, and the progress overall has been

> > soooooooooooo

> > slow! I often wonder if we are tormenting him with

> > services and meds

> > and if they will ever take effect. Bobby will be 4

> > in a few weeks and

> > his language/communication skills are limited to,

> > with signs, 'more'

> > and 'give me'. He is hypotonic with severe oral

> > motor issues which

> > makes eating a challenge and teaching him signs are

> > as easily taught

> > as teaching him how to use words. I too, wonder how

> > much of what he

> > learns doesn't just come with growing up. I am

> > equally as frustrated,

> > believe me!

> >

> > But, I do think that we need to offer our children

> > everything we can

> > and that in time with the constant support, they

> > will 'catch up' and

> > be more like their peers, easier said than

> > understood. I guess, we

> > just need to 'keep at it' and hope that the language

> > will come along

> > with a fun childhood full of positive memories.

> >

> > Jenn

> >

> >

> > >

> > > > Hi, -

> > > >

> > > >

> > > >

> > > > I have two 12-year-old boys who have been with

> > Dr G

> > > > for 3-1/2 years now.

> > > > One of them was very tactile defensive and

> > didn't

> > > > speak until almost 7 years

> > > > old -- but was echolalic in response to some

> > videos.

> > > > Within a few months of

> > > > beginning to see Dr G, this son would tolerate

> > Dr G

> > > > examining him. This was

> > > > HUGE for us, but his language comprehension and

> > > > speech stayed the same -

> > > > using one to three words. As time went on, I

> > also

> > > > was wondering if the

> > > > improvements that I was seeing were due to his

> > > > growing up. Then, when

> > > > trying to describe his 'swiss cheese foundation'

> > > > development to his OT, she

> > > > showed me a developmental pyramid which shows

> > the

> > > > body/brain development

> > > > dependencies. Speech/Language is in the second

> > or

> > > > third level of

> > > > development. What I found is that my son's brain

> > > > may be healthier, but that

> > > > his basic " system " development was, and is,

> > still

> > > > very immature. This makes

> > > > appropriate OT therapy VERY important. As his

> > > > tactile tolerance and

> > > > proprioceptive system improves, so does his

> > desire

> > > > for more socialization

> > > > and communication (tactile and verbal), and thus

> > his

> > > > perception of this

> > > > world and his language. These are steps that

> > most

> > > > kids go through during

> > > > the first couple of years of life. My son

> > didn't.

> > > > He was too busy trying

> > > > to protect himself from the world.

> > > >

> > > >

> > > >

> > > > In a nutshell, after listening to. and following

> > the

> > > > directions of, some

> > > > very prominent doctors/therapists in the field

> > of

> > > > autism for many years, my

> > > > sons have made more improvements since being

> > treated

> > > > by Dr G. I may not see

> > > > any changes for 3-4 months, but then they do/say

> > > > something and I'll realize

> > > > that, especially my one son, couldn't " do that "

> > six

> > > > months previously. It's

> > > > extremely important to go back and 'identify and

> > > > fix' areas of development

> > > > that your child may not have mastered. These

> > areas

> > > > are not always very

> > > > obvious, but therapists, OT and SPL, should be

> > able

> > > > to help ID them - have

> > > > them test back to infancy stages of development,

> > if

> >

> === message truncated ===

>

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[Guest guest]

Hi Cheryl,

My son went through a phase from approx. 1.5 to 3.5 years where he had

chronic ear infections and/or fluid in his ears. He did not score well on

hearing tests during that time, and he had very little language (but he did

respond to music and could sing songs). Once we got his ear infections under

control, his language started coming in, and now he can hear, according to

all the hearing tests he's had recently, yet his speech still resembles

someone who can't hear well because he has auditory processing difficulties.

On another list I'm on, a similar discussion is going on right now, and they

were saying that hearing is mullti-tiered. The ears might be able to hear,

but that doesn't mean the brain processes what is heard correctly (or at

all).

Kristy

Re: [sPAM] Tera

I personally don't know anything about why a child

that can hear would have the speech of someone that is hearing

impaired

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[Guest guest]

But see, I would wonder if it goes beyond auditory processing.

Auditory processing usually means they are hearing all the sounds,

just not processing them correctly so it's being heard and shouldn't

effect speech but rather language. So I would wonder if there are

some connection issues (poor choice of words but I haven't taken my

audiology classes yet!) that would cause sound deletion.

My son has auditory processing issues so I'm more than familiar with

auditory processing. While I do agree that processing issues are a

concern, this seems to me to be bigger than processing. When you see

an audiologist, many of them won't even bother to test processing if

they know you have an autism dx because they know it's pretty much a

given. Auditory processing issues rarely cause the brain to not

register the sound at all. The brain should register it, it just

doesn't process the sound as it should. For instance, if you heard 3

notes playing on the piano. You would hear all three notes, just not

necessarily in the order it was actually playing. That's why you can

ask a child " who are you " and get " I'm 4 years old " or " I'm fine "

as the answer. Subtle differences in sound are difficult to process

even when it's perfectly clear. Auditory processing affects *how*

sound is heard, not *if* it's heard - if that makes sense. So

auditory issues are not a a deletion of the sound but an inability to

process it in various settings. If the ear hears it, the brain hears

it, it just can't put it all together.

At least that's my understanding of auditory processing. I probably

didn't say any of it very well as it's 11pm and I'm tired! Here's a

link that can better say it:

http://www.tsbvi.edu/Outreach/seehear/spring00/centralauditory.htm

cheryl

On Feb 29, 2008, at 9:39 PM, Kristy Nardini wrote:

> Hi Cheryl,

>

> My son went through a phase from approx. 1.5 to 3.5 years where he had

> chronic ear infections and/or fluid in his ears. He did not score

> well on

> hearing tests during that time, and he had very little language

> (but he did

> respond to music and could sing songs). Once we got his ear

> infections under

> control, his language started coming in, and now he can hear,

> according to

> all the hearing tests he's had recently, yet his speech still

> resembles

> someone who can't hear well because he has auditory processing

> difficulties.

> On another list I'm on, a similar discussion is going on right now,

> and they

> were saying that hearing is mullti-tiered. The ears might be able

> to hear,

> but that doesn't mean the brain processes what is heard correctly

> (or at

> all).

>

> Kristy

>

> Re: [sPAM] Tera

>

> I personally don't know anything about why a child

> that can hear would have the speech of someone that is hearing

> impaired

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[Guest guest]

Guys

I would be very cautious about targeting hearing

difficulties. When my son was three and we were just

started climbing the learning curve a audiologist ran

tests and told my wife " This child isn't autistic just

hearing impaired! " Although it was just what she

wanted to hear it set us back at least another year

and set a stage for denial that last several years

In reality the hearing diagnosis was bi-lateral

hearing loss over X htz in each ear. This was

confirmed through the brain stem test at Miami

Children's hospital. Then $4,000 in hearing aids. ALL

FOR NOTHING. Actually it created huge behavioral

problems.

The Audio grams suggested a consistent and measurable

hearing deficiency for several years and we wore the

aids ufor several years and every time he was in a

loud environment he would lash out at some one - other

student teacher - At home in a quiet environment he

was fine.

The school insisted -Aggressively - he wear them even

when I pointed out every time he walked into the lunch

room or recess - got on a bus I would be called to

come get him because he would just melt down. They

never nade the connection, Hearing aids you could hear

from across the room while the were in, An FM system -

Teacher wired to his aids - that would litterally

scream in his ears. Then they would call me and say he

was a behavioral issue. Nuts.

Mega phones in his ears did not help his comprehension

nor his speech. When we finally started seeing his

viral tiers drop his audio grams started to progress

closer to normal - slowly but definitively

correcting.. He always would sing quietly repeat

whispers in a silent setting he just was very

sensitive to loud sounds and settings. With hearing

aids in his ears it was just killing him!

Now at every IEP the audiologist still comes to the

meeting insistent that he needs aids, His teacher

disagrees as does his behaviorists.

If there is no dysfunction in the inner ear - a very

easy test - do not chase it further. The audio sensory

training is the better direction to go.

What amazes me is the med community endless need to

ignore the fact that these children are sick! need

treatment and can and are getting well. We would have

been better off if I never walked into the local

autism support system. They are very convincing and

very wrong!

--- Cheryl Lowrance <c.lowrance@...> wrote:

> But see, I would wonder if it goes beyond auditory

> processing.

> Auditory processing usually means they are hearing

> all the sounds,

> just not processing them correctly so it's being

> heard and shouldn't

> effect speech but rather language. So I would

> wonder if there are

> some connection issues (poor choice of words but I

> haven't taken my

> audiology classes yet!) that would cause sound

> deletion.

>

> My son has auditory processing issues so I'm more

> than familiar with

> auditory processing. While I do agree that

> processing issues are a

> concern, this seems to me to be bigger than

> processing. When you see

> an audiologist, many of them won't even bother to

> test processing if

> they know you have an autism dx because they know

> it's pretty much a

> given. Auditory processing issues rarely cause the

> brain to not

> register the sound at all. The brain should

> register it, it just

> doesn't process the sound as it should. For

> instance, if you heard 3

> notes playing on the piano. You would hear all

> three notes, just not

> necessarily in the order it was actually playing.

> That's why you can

> ask a child " who are you " and get " I'm 4 years

> old " or " I'm fine "

> as the answer. Subtle differences in sound are

> difficult to process

> even when it's perfectly clear. Auditory processing

> affects *how*

> sound is heard, not *if* it's heard - if that makes

> sense. So

> auditory issues are not a a deletion of the sound

> but an inability to

> process it in various settings. If the ear hears

> it, the brain hears

> it, it just can't put it all together.

>

> At least that's my understanding of auditory

> processing. I probably

> didn't say any of it very well as it's 11pm and I'm

> tired! Here's a

> link that can better say it:

>

>

http://www.tsbvi.edu/Outreach/seehear/spring00/centralauditory.htm

>

> cheryl

>

> On Feb 29, 2008, at 9:39 PM, Kristy Nardini wrote:

>

> > Hi Cheryl,

> >

> > My son went through a phase from approx. 1.5 to

> 3.5 years where he had

> > chronic ear infections and/or fluid in his ears.

> He did not score

> > well on

> > hearing tests during that time, and he had very

> little language

> > (but he did

> > respond to music and could sing songs). Once we

> got his ear

> > infections under

> > control, his language started coming in, and now

> he can hear,

> > according to

> > all the hearing tests he's had recently, yet his

> speech still

> > resembles

> > someone who can't hear well because he has

> auditory processing

> > difficulties.

> > On another list I'm on, a similar discussion is

> going on right now,

> > and they

> > were saying that hearing is mullti-tiered. The

> ears might be able

> > to hear,

> > but that doesn't mean the brain processes what is

> heard correctly

> > (or at

> > all).

> >

> > Kristy

> >

> > Re: [sPAM] Tera

> >

> > I personally don't know anything about why a child

> > that can hear would have the speech of someone

> that is hearing

> > impaired

> > Recent Activity

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> >

> > to share and learn.

> >

> > Biz Resources

> > Y! Small Business

> >

> > Articles, tools,

> >

> > forms, and more.

> > .

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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