Tonsils

[Guest guest]

we had ear tubes put in back in June and saber's behavior and verbal ability improved (poor kid had chronic ear infections since he was 3 months old, birth family refused surgery, foster mom didn't want to make the decision) poor thing was in chronic pain. if the surgery is going to eliminate the pain and suffering do it <buddy_monica@...> wrote: I am thinking that this may be part of his problem with school. He is pretty restless and i am thinking that maybe it is because he isn't resting well enough at night.

Tonya Hettler UA <txuaearthlink (DOT) net> wrote: We had to have our son’s removed at age 5. They got so large he started choking on food. He handled the pain better than I did. He would refuse all pain medication but we would force him to take it at night so he could rest. I must say the tonsillectomy made a huge difference in him. His speech improved and he gained 15 pounds in 3 months. Saddest part is I didn’t realize how sick he was before. Tonya From: [mailto: ] On Behalf Of monicaSent: Tuesday, September 04, 2007 11:19 AM Subject: ( ) Tonsils Hi everyone. I was wondering if anyone has had their Aspie's tonsilstaken out? How did they react to the pain etc.? My 8 year old DS havsHUGE tonsils and i am thinking of getting them taken out. He snorespretty loud and breathes a lot harder lately. He does have troublesleeping so i am hoping that maybe if we get his tonsilis out he willsleep better.

Thanks,

oneSearch: Finally, mobile search that gives answers, not web links.

[Guest guest]

Hello! I'm Melinda. I had to jump in here. I'm nervous because I have

to have mine out soon! LOL! I'm really not looking forward to it. But

I have ended up in the hospital because mine had gotten abcessed. I

can't seem to shake the sore throat. I see a doctor tomorrow to set up

a surgery date.

Hugs!

Melinda

[Guest guest]

Our 10 yo, hfa, just had his out the other week. His pain tolerance was very high and he did not complain at all, even when we could see it hurt him to swallow. They asked him how his throat felt using a picture/number chart and he always said the same number (feels fine.) We had them give him his pain meds even if he didn't complain. A few days later, it kicked in and he was in pain. We had to keep up on the pain meds, even if he said it didn't hurt. It seemed like he would be fine and then in an instant, he would suddenly crash in pain and be screaming - there was no in between. A few times, I had trouble getting him to take his meds because his throat hurt too badly, he said. You know that conversation! Me: Here, take your pain med. Him: No! My throat hurts too much to swallow! Me: But this will make it stop hurting. Him: No! It hurts too much to swallow. and on and on and on... But it actually went really well, considering, as long as we got his meds in before he went too long without.

RoxannaAutism Happens

( ) Tonsils

Hi everyone. I was wondering if anyone has had their Aspie's tonsilstaken out? How did they react to the pain etc.? My 8 year old DS havsHUGE tonsils and i am thinking of getting them taken out. He snorespretty loud and breathes a lot harder lately. He does have troublesleeping so i am hoping that maybe if we get his tonsilis out he willsleep better. Thanks,

[Guest guest]

My son is now recovered. One of the best things I did for his immune system

was to have his tonsils out. But know when they say it is a ten day recoup,

it really is.

Marcia Hinds

[Guest guest]

Hi!

As a parent with a child newly diagnosed with , thanks for

posting this. Hearing that some studies showed a 100% cure rate from

tonsillectomy, I was seriously hoping to skip right to that for my

daughter. I'm not so eager now, if something else has a chance of

working!

Thanks!

[Guest guest]

Hi

I totally agree that T & A is not a 100% cure rate. It's a very personal and big

decision to put your child through surgery. Many parents are happier to give

their children daily medication to manage this disorder as an alternative. For

us, administering any medication on such a regular basis was not an option we

were comfortable with and SO FAR Emma has been fever free (T & A March 2008).

Obviously it is too soon to know whether it is a permanent 'cure' or a temporary

one.

With regards to posting on this board POST T & A, I have read many messages from

parents 'signing off' after 1 year of being fever free. The ones where the

fevers then do return usually come back to report on this, which is very

informative and I really feel for these families who thought they had a cure and

then the fevers rear their ugly head again. HOWEVER I am also sure that the

families who have 'signed off' do so for good unless the fevers return so we

don't hear from the ones who have been fever free for good.

It remains that T & A is a cure or a break-for-years for a large percentage. And

it also remains that surgery has to be well thought-through and not just done as

a first option. It took us a good year from when we first thought of having a

T & A performed to actually having it done. Prednisone worked well for us and we

even had success with singulair but we hated the amount of pharmaceutica our

toddler was ingesting so to us the surgery was the right thing to do.

Best regards

Inga

[Guest guest]

Hi

I totally agree that T & A is not a 100% cure rate. It's a very personal and big

decision to put your child through surgery. Many parents are happier to give

their children daily medication to manage this disorder as an alternative. For

us, administering any medication on such a regular basis was not an option we

were comfortable with and SO FAR Emma has been fever free (T & A March 2008).

Obviously it is too soon to know whether it is a permanent 'cure' or a temporary

one.

With regards to posting on this board POST T & A, I have read many messages from

parents 'signing off' after 1 year of being fever free. The ones where the

fevers then do return usually come back to report on this, which is very

informative and I really feel for these families who thought they had a cure and

then the fevers rear their ugly head again. HOWEVER I am also sure that the

families who have 'signed off' do so for good unless the fevers return so we

don't hear from the ones who have been fever free for good.

It remains that T & A is a cure or a break-for-years for a large percentage. And

it also remains that surgery has to be well thought-through and not just done as

a first option. It took us a good year from when we first thought of having a

T & A performed to actually having it done. Prednisone worked well for us and we

even had success with singulair but we hated the amount of pharmaceutica our

toddler was ingesting so to us the surgery was the right thing to do.

Best regards

Inga

[Guest guest]

My 20 year old daughter, , who has suffered on average, 5 fever attacks a

year all her life. 10 years attending great ormond st childrens hospital in

London England. Various treatments, none of which have worked. Has just had her

tonsils removed 29 december 2008. In and out of hospital within the same day.

Sore throat for 2 weeks. Now almost completely healed.

Will have to see what difference this will make on her fever frequency.

Strangely enough though, she had 3 attacks July, August, September 2008. But

nothing since!

Best Wishes

Lee 50... Had Pfapa. Tonsils removed age 7. freqency slowed for 10 years. Then

came back every 7 weeks from age 17 to 23. Finally cured with long term

antibiotic treatment.

father to 20

and Darren 18 ... fevers till age 13, stopped on their own for 5 years.

Recenty had 2 attacks, October and December 2008.

[Guest guest]

Thinking a bit about T & A not working for some people, I thought this

might be interesting to share.

I had terrible tonsils my entire life. Finally at the age of thirty,

I had them removed.

One year later, I regrew a partial tonsil on the left side.

I wonder if that's what might happen in some of the cases where the

fevers return? It's certainly possible to regrow tonsil tissue

post-tonsillectomy.