Re: Abnormal EEG with spikes?? CAROLINE & OTHERS

[Guest guest]

Caroline,

That was very helpful! I have not seen Dr Goldberg yet but am

gathering documents to submit and get an appointment. We have seena

ped neurologist at UCLA and she did not push meds or anything. She

said if the situation was dire she would be pushing. She said it's

up to us. The meds we discussed were: depakote, lamictal, and

keppra. She wanted to go with lamictal. I just found out lamictal is

a sulphur producing drug and I feel my son is sensitive to this

(epsom salt baths produce eczema flare ups!). So that is a red flag.

I emailed Dr Goldberg's office yesturday and he said through

(?) that he would not recommend putting my son on an anti convulsant

unless he had an actual seizure activity. He also recommended I

order a copy of a CD through a place he did a presentation awhile

back. I called and left a message for them to get back to me next

week (they are in MS). So the anti convulsant issue was left up to

us. The ped neurologist said she would definitely be pushing us for

meds if his EEG was much more " dire " than what it was. She just

plain left it up to us...which seems like a blessing but is not

because all I do is worry I am making the wrong choice.

I guess the best thing I can do is get my paper work in to Dr

Goldberg, do some testing, see if he is a candidate (which I

think he is. Based on my profile I really think he is!), and go from

there.

If anyone has anything to add, please do! Caroline thanks so much. I

wish you well.

Kristie

mommy to Aidan 2.10