Guest guest Posted July 23, 2012 Report Share Posted July 23, 2012 National Birth Defect Registry was founded by Betty and Mike Mekdeci, parents whose " son was born with birth defects in 1975. " (1-2) Alice Shabecoff and Philip Shabecoff are co-authors of an important book, " POISONED FOR PROFIT: How Toxins Are Making Our Children Chronically Ill (3). Alice and Betty are launching a project whose preliminary data will reflect overlaps (if any) among children with one of the ASDs and children with a mild or severe birth defect. Here is their project announcement, and it is attached in doc format for lists that allow attachments. This post may be forwarded hither & yon. // Help Identify Environmental Triggers Research by /National Birth Defect Registry/ Birth Defects Research for Children was founded 30 years ago by a mother whose son was born with limb defects and no one could (or would) tell her and her husband what the cause might have been.She eventually worked with a team of seven prominent scientists to develop a registry for parents to fill out about their child's disabilities, their prenatal health and family history, and exposures during pregnancy. The registry now has over 3,000 cases.With enough cases in the registry, patterns emerge showing an association between a childhood chronic illness and environmental exposures. Although autism is not thought of as a birth defect, in some cases children with ASDs also have physical birth defects or minor physical anomalies. Important findings about both autism and birth defects can arise if we understand better the possible connection between these disorders and their possible causes. That's why I'm writing to ask families with children with autism to participate in the registry.We ask you to respond whether or not your child has only autism or also shows indications of a birth defect. Clink on this link, https://www.birthdefects.org/registry/ to find the registry and frequently asked questions about it, and a slide presentation that shows how the registry works.If you are comfortable with entering data about your child, click on the red check mark in the middle of the page and just follow the instructions from there. Alice Shabecoff, co-author /Poisoned for Profit/ http://www.poisonedforprofit.net/ July 23, 2012 1. https://www.birthdefects.org/ 2. https://www.birthdefects.org/story/ 3. http://www.poisonedforprofit.net/ Quote Link to comment Share on other sites More sharing options...
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