RE: Short -term prednisone treatment

[Guest guest]

,

I have a friend (who is a doctor) and she has used it with some

of her patients and has seen some very dramatic results as well.

She is a rhematologist so the AS patients she has treated had

other issues requiring prednisone (in other words, this wasn't

just done for the sake of trying prednisone. However the affect

on AS was dramatic).

On Mar 22, 2006, at 4:40 AM, lrfschr wrote:

> How does Dr. G or feel about short-term prednisone treatment?

> I have a friend whose 4 year old ASD daughter just finished a 10-day

> course due to bacterial pneumonial infection (along with an

> antibiotic). She has had an unbelievable and dramatic response in

> her ASD symptoms and her language has been dramatically improved.

> (I realzie it may not stick, but, nonetheless). Lots of other

> people have noticed and are asking what the deal is. I also know

> another child really well who was diagnosed with ASD at 18 months,

> he also had GI problems at time of presentation which were treated

> by a local GI and in the course of this treatment, had a prednisone

> round at age 18 months, 24 months, and 2.4 months, these were

> typical dose for GI problems and short term. He recovered from

> his " ASD " within months from this. He is now 4, completely typical

> attends regular pre-school on his own, no aides, no more therapy.

> It makes me really wonder about whether prednisone is effective for

> a certain sub-group of kids and I understand why it is probably not

> a good thing long-term but what about short-term rounds to see if

> there is a response? Is this something Dr. G. just will not

> consider, I was curious because I would really like to have my son

> under his care and I have wondered about this particular issue.

> Thanks for any input....

>

>

>

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent

> Coalition.

>

>

[Guest guest]

,

Dr. Goldberg mentions steroid use a little bit in this article on his

website (link below).

http://www.neuroimmunedr.com/Articles/Autism___PDD/Immune_Connection/immune_

connection.html

In a nutshell, I have never heard of Dr. Goldberg using Prednisone for

and would be surprised if he did because I don't think he would find it an

acceptable risk.

Caroline

[Guest guest]

I posed some questions on other boards as well and I have gotten lots of

off-line responses similar to this, it really is interesting..

Re: Short -term prednisone treatment

,

I have a friend (who is a doctor) and she has used it with some

of her patients and has seen some very dramatic results as well.

She is a rhematologist so the AS patients she has treated had

other issues requiring prednisone (in other words, this wasn't

just done for the sake of trying prednisone. However the affect

on AS was dramatic).

On Mar 22, 2006, at 4:40 AM, lrfschr wrote:

> How does Dr. G or feel about short-term prednisone treatment?

> I have a friend whose 4 year old ASD daughter just finished a 10-day

> course due to bacterial pneumonial infection (along with an

> antibiotic). She has had an unbelievable and dramatic response in

> her ASD symptoms and her language has been dramatically improved.

> (I realzie it may not stick, but, nonetheless). Lots of other

> people have noticed and are asking what the deal is. I also know

> another child really well who was diagnosed with ASD at 18 months,

> he also had GI problems at time of presentation which were treated

> by a local GI and in the course of this treatment, had a prednisone

> round at age 18 months, 24 months, and 2.4 months, these were

> typical dose for GI problems and short term. He recovered from

> his " ASD " within months from this. He is now 4, completely typical

> attends regular pre-school on his own, no aides, no more therapy.

> It makes me really wonder about whether prednisone is effective for

> a certain sub-group of kids and I understand why it is probably not

> a good thing long-term but what about short-term rounds to see if

> there is a response? Is this something Dr. G. just will not

> consider, I was curious because I would really like to have my son

> under his care and I have wondered about this particular issue.

> Thanks for any input....

>

>

>

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent

> Coalition.

>

>

[Guest guest]

prednisone is a steroid. Why would you want to give

a steroid to a patient with immune regulation problems?

My cat has IBS. The reg. vet has him on Prednisone.

The vet-acupunturist has told us to wean him off as

it will do more harm than good. I'm trying to remember

the details in addition to the details from a conversation

I had with Dr Goldberg on this.

Something about long term effects on cells ....

doris

>

> > How does Dr. G or feel about short-term prednisone treatment?

> > I have a friend whose 4 year old ASD daughter just finished a 10-day

> > course due to bacterial pneumonial infection (along with an

> > antibiotic). She has had an unbelievable and dramatic response in

> > her ASD symptoms and her language has been dramatically improved.

> > (I realzie it may not stick, but, nonetheless). Lots of other

> > people have noticed and are asking what the deal is. I also know

> > another child really well who was diagnosed with ASD at 18 months,

> > he also had GI problems at time of presentation which were treated

> > by a local GI and in the course of this treatment, had a prednisone

> > round at age 18 months, 24 months, and 2.4 months, these were

> > typical dose for GI problems and short term. He recovered from

> > his " ASD " within months from this. He is now 4, completely typical

> > attends regular pre-school on his own, no aides, no more therapy.

> > It makes me really wonder about whether prednisone is effective for

> > a certain sub-group of kids and I understand why it is probably not

> > a good thing long-term but what about short-term rounds to see if

> > there is a response? Is this something Dr. G. just will not

> > consider, I was curious because I would really like to have my son

> > under his care and I have wondered about this particular issue.

> > Thanks for any input....

> >

> >

> >

> >

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

> > Coalition.

> >

> >

[Guest guest]

,

I know prednisone can be a frightening drug. My non-AS

child was on very high dosages for 2 years so I'm very familiar

with all the negative side effects. However, I think for AS

it's used in a more relatively " safe " manner. I believe it's

short term bursts and the levels are lower. I could always

check with my friend to find out how she has dosed it

(when using if for AS... not that she typically does this...

I imagine it's not FDA approved for AS... Although what

actually is!).

On Mar 22, 2006, at 2:12 PM, K. Fischer wrote:

> I posed some questions on other boards as well and I have gotten lots

> of

> off-line responses similar to this, it really is interesting..

>

> Re: Short -term prednisone treatment

>

> ,

>

> I have a friend (who is a doctor) and she has used it with some

> of her patients and has seen some very dramatic results as well.

> She is a rhematologist so the AS patients she has treated had

> other issues requiring prednisone (in other words, this wasn't

> just done for the sake of trying prednisone. However the affect

> on AS was dramatic).

>

>

>

>

>

>

> On Mar 22, 2006, at 4:40 AM, lrfschr wrote:

>

>> How does Dr. G or feel about short-term prednisone treatment?

>> I have a friend whose 4 year old ASD daughter just finished a 10-day

>> course due to bacterial pneumonial infection (along with an

>> antibiotic). She has had an unbelievable and dramatic response in

>> her ASD symptoms and her language has been dramatically improved.

>> (I realzie it may not stick, but, nonetheless). Lots of other

>> people have noticed and are asking what the deal is. I also know

>> another child really well who was diagnosed with ASD at 18 months,

>> he also had GI problems at time of presentation which were treated

>> by a local GI and in the course of this treatment, had a prednisone

>> round at age 18 months, 24 months, and 2.4 months, these were

>> typical dose for GI problems and short term. He recovered from

>> his " ASD " within months from this. He is now 4, completely typical

>> attends regular pre-school on his own, no aides, no more therapy.

>> It makes me really wonder about whether prednisone is effective for

>> a certain sub-group of kids and I understand why it is probably not

>> a good thing long-term but what about short-term rounds to see if

>> there is a response? Is this something Dr. G. just will not

>> consider, I was curious because I would really like to have my son

>> under his care and I have wondered about this particular issue.

>> Thanks for any input....

>>

>>

>>

>>

>>

>>

>>

>>

>> Responsibility for the content of this message lies strictly with

>> the original author(s), and is not necessarily endorsed by or the

>> opinion of the Research Institute and/or the Parent

>> Coalition.

>>

>>

[Guest guest]

I " m in regular contact with researchers and doctors at JHU and KKI.

Neither institute is using prednisone as a treatment for autism.

I'm going to have to go back thru my records to look for why

prednisone and steroids are not appropriate for children diagnosed

with ASD due to immune regulation issues.

Kathy//Mrs G- any of you have related articles saved off?

doris

> >

> > > How does Dr. G or feel about short-term prednisone treatment?

> > > I have a friend whose 4 year old ASD daughter just finished a 10-day

> > > course due to bacterial pneumonial infection (along with an

> > > antibiotic). She has had an unbelievable and dramatic response in

> > > her ASD symptoms and her language has been dramatically improved.

> > > (I realzie it may not stick, but, nonetheless). Lots of other

> > > people have noticed and are asking what the deal is. I also know

> > > another child really well who was diagnosed with ASD at 18 months,

> > > he also had GI problems at time of presentation which were treated

> > > by a local GI and in the course of this treatment, had a prednisone

> > > round at age 18 months, 24 months, and 2.4 months, these were

> > > typical dose for GI problems and short term. He recovered from

> > > his " ASD " within months from this. He is now 4, completely typical

> > > attends regular pre-school on his own, no aides, no more therapy.

> > > It makes me really wonder about whether prednisone is effective for

> > > a certain sub-group of kids and I understand why it is probably not

> > > a good thing long-term but what about short-term rounds to see if

> > > there is a response? Is this something Dr. G. just will not

> > > consider, I was curious because I would really like to have my son

> > > under his care and I have wondered about this particular issue.

> > > Thanks for any input....

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly with

> > > the original author(s), and is not necessarily endorsed by or the

> > > opinion of the Research Institute and/or the Parent

> > > Coalition.

> > >

> > >

[Guest guest]

dern!

beat me to it again.

This is what I get for not viewing the postings on

first .... instead wait for the digest to appear..

great minds think alike!

doris

>

> ,

>

> Here's a link to an article you might be interested to read by

> Binstock (a Researcher in Developmental and Behavioral Neuroanatomy)

> entitled

>

> " Prednisone for Autism-Spectrum Children Beneficial or Injurious?

>

> a consideration of subgroups "

>

> http://members.jorsm.com/~binstock/steroid.htm

>

> Caroline

>