Fwd: Feds Fail Autism Community, Demonstration, 7/10, Wash. DC

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Date: Tue, Jul 3, 2012 at 12:46 PM

Subject: Feds Fail Autism Community, Demonstration, 7/10, Wash. DC

To: " Joyce M. Davila "

*The Feds are Failing the Autism Community*

More Info

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Demonstration

at IACC, July 10, Wash. DC

The IACC is failing the autism community.

Join us in protest on July 10th!!

On Tuesday, July 10th at 9am, the Interagency Autism Coordinating

Committee will be holding the first meeting of the newly empaneled members.

The Autism community will be showing up to let them know they have

completely failed in their responsibilities.

In 2006, Congress passed the Combating Autism Act, giving the federal

government almost a billion dollars to find ways to prevent and treat

autism. The head of NIMH, Insel, was appointed to lead the IACC in

coordinating that effort. Six years and almost a billion dollars later,

Insel has not only failed to produce even one medical intervention or

recommendation to prevent or treat autism, the autism rate has DOUBLED on

his watch. Tens of thousands of reports of improvements and recoveries via

biomedical intervention have been ignored and gone uninvestigated. He broke

federal committee rules and strip vaccine research out of the autism

research agenda. Every year the complaints of Insel's malfeasance have

become louder and louder in the autism community. His abuse of his position

came to fruition this past April when he announced the new members of the

IACC. The authentic autism community that is seeking to bring an end to the

autism epidemic had nominated well respected researchers, doctors and

advocates with impressive histories and large followings, however Insel

ignored every one of the nominations, and instead seated a panel consisting

of purely political appointees, *four of whom publicly state that they do

not believe that autism should be prevented or medically treated*. That was

when we reached our breaking point.

A coalition of advocacy groups representing tens of thousands of

families held a press conference and demanded that Insel be fired, that the

current mockery of a an IACC panel be disbanded, and that HHS Secretary

Kathleen Sibelius meet with leaders of the coalition to chart a path

forward to actually address the autism epidemic. The only response that we

received was what amounts to a form letter signed by NIH chief Francis

, that was clearly written by a staffer, and that did not address

any of the points made to Secretary Sibelius.

We have had enough. Join us for a demonstration of our contempt for

the health atrocity that is being waged on a generation of children, which

is now fully enabled by the Department of Health and Human Services.

July 10th, 9:00am

L'Enfant Plaza Hotel

408 L'Enfant Plaza, SW Washington , DC 20024

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Map and Directions

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We will be telling the new committee that we believe that the IACC

is a farce and a fraud during their public comments portion of the meeting

mid day, followed by a demonstration in front of the Department of Health

and Human Services in the afternoon.

We strongly encourage you to give your own public comments. The

procedure is as follows:

Notification of intent to present oral comments: July 3th by 5:00 p.m.

Eastern

Submission of written/electronic statement for oral comments: July 5th by

5:00 p.m. Eastern Submission of written comments: July 5th by 5:00 p.m.

Eastern

Send notifications to: Ms. Lina

Office of Autism Research Coordination

National Institute of Mental Health, NIH 6001

Executive Boulevard, NSC Room 6182S

Rockville, land 20892-9669

Phone:

E-mail: IACCPublicInquiries@...

Details on the IACC meeting can be found here:

http://iacc.hhs.gov/events/2012/full-committee-mtg-announcement-july10.shtml

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Bring your signs, your children and your righteous anger. More details

coming soon.

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--

Joyce M. Davila

Mamá de Verónica Marie (12 años), Puerto Rico

Especialista en Deficiencias del Desarrollo e Intervención Temprana

Presidenta Alianza de Autismo de PR www.alianzaautismo.org

Dueña www.ChicosEspeciales.com <http://www.chicosespeciales.com/>

Facebook Alianza Autismo PR (group) y Chicosespeciales.com (group)