Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Hi there, I have been monitoring this group for some time, reading some wonderful information submitted, and haven't yet felt a need to contribute as someone has always covered my point. On the subject of auditory problems, I must tell you all that a program called EnListen (Progress Center in Dothan, AL) changed my daughters life, as well as of course Dr. Goldberg. Ally's hearing was tested as OK and for 4 years, she could only speak a few words. I was told about this program by another mom and proceded to have them test Ally. Yes, Ally could hear but she wasn't hearing normally. Ally was bone conducting sound instead of air conducting as she should, so sounds to her were like talking under water. This prevented her from not only being able to speak the words but also process what was being said. Long story short, after 1 intensive, Ally began looking at me as if for the first time she was understanding me and began to talk, picking up on things at a rapid pace. This program " retrains " their hearing....restoring air conduction over bone conduction. Ally's main problem area happened to be those middle range frequencies where voices usually fall. We still have a " ways to go " but are certainly climbing the hill instead of just looking at it. RCE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Who did you go to that found out that she had a problem with bone conducting? Thanks. Beverly On Mar 3, 2008, at 12:23 PM, Robin Eiland wrote: > Hi there, > I have been monitoring this group for some time, reading some > wonderful information submitted, and haven't yet felt a need to > contribute as someone has always covered my point. On the subject > of auditory problems, I must tell you all that a program called > EnListen (Progress Center in Dothan, AL) changed my daughters life, > as well as of course Dr. Goldberg. Ally's hearing was tested as OK > and for 4 years, she could only speak a few words. I was told about > this program by another mom and proceded to have them test Ally. > Yes, Ally could hear but she wasn't hearing normally. Ally was bone > conducting sound instead of air conducting as she should, so sounds > to her were like talking under water. This prevented her from not > only being able to speak the words but also process what was being > said. Long story short, after 1 intensive, Ally began looking at me > as if for the first time she was understanding me and began to > talk, picking up on things at a rapid pace. This program " retrains " > their hearing....restoring air conduction over bone conduction. > Ally's main problem area happened to be those middle range > frequencies where voices usually fall. We still have a " ways to go " > but are certainly climbing the hill instead of just looking at it. > > RCE > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Can you tell me how this EnListen program is different from Tomatis? Did this program help your daughter regain speech she once had? Or did she not have speech until starting this program? My son was a terrific speaker before losing his speech at four. I'm wondering what, if anything, could help supplement Dr. Goldberg's therapy. He just babbles now. Thanks!!!! Re: Auditory Issues Who did you go to that found out that she had a problem with bone conducting? Thanks. Beverly On Mar 3, 2008, at 12:23 PM, Robin Eiland wrote: > Hi there, > I have been monitoring this group for some time, reading some > wonderful information submitted, and haven't yet felt a need to > contribute as someone has always covered my point. On the subject > of auditory problems, I must tell you all that a program called > EnListen (Progress Center in Dothan, AL) changed my daughters life, > as well as of course Dr. Goldberg. Ally's hearing was tested as OK > and for 4 years, she could only speak a few words. I was told about > this program by another mom and proceded to have them test Ally. > Yes, Ally could hear but she wasn't hearing normally. Ally was bone > conducting sound instead of air conducting as she should, so sounds > to her were like talking under water. This prevented her from not > only being able to speak the words but also process what was being > said. Long story short, after 1 intensive, Ally began looking at me > as if for the first time she was understanding me and began to > talk, picking up on things at a rapid pace. This program " retrains " > their hearing....restoring air conduction over bone conduction. > Ally's main problem area happened to be those middle range > frequencies where voices usually fall. We still have a " ways to go " > but are certainly climbing the hill instead of just looking at it. > > RCE > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 He lost speech at 4? Gosh that's late.... Is Enlisten similar to AIT? We tried that when our son was little but he wouldn't wear headphones. I'd like to try again (he's 8, non- verbal). He does try and speak but all the sounds come out wrong (very few consonants- but he can intonate words correctly) On 4 Mar 2008, at 00:50, Robins wrote: > Can you tell me how this EnListen program is different from Tomatis? > > Did this program help your daughter regain speech she once had? Or > did she not have speech until starting this program? > > My son was a terrific speaker before losing his speech at four. I'm > wondering what, if anything, could help supplement Dr. Goldberg's > therapy. He just babbles now. > > Thanks!!!! > > Re: Auditory Issues > > Who did you go to that found out that she had a problem with bone > conducting? Thanks. > > Beverly > > On Mar 3, 2008, at 12:23 PM, Robin Eiland wrote: > > > Hi there, > > I have been monitoring this group for some time, reading some > > wonderful information submitted, and haven't yet felt a need to > > contribute as someone has always covered my point. On the subject > > of auditory problems, I must tell you all that a program called > > EnListen (Progress Center in Dothan, AL) changed my daughters life, > > as well as of course Dr. Goldberg. Ally's hearing was tested as OK > > and for 4 years, she could only speak a few words. I was told about > > this program by another mom and proceded to have them test Ally. > > Yes, Ally could hear but she wasn't hearing normally. Ally was bone > > conducting sound instead of air conducting as she should, so sounds > > to her were like talking under water. This prevented her from not > > only being able to speak the words but also process what was being > > said. Long story short, after 1 intensive, Ally began looking at me > > as if for the first time she was understanding me and began to > > talk, picking up on things at a rapid pace. This program " retrains " > > their hearing....restoring air conduction over bone conduction. > > Ally's main problem area happened to be those middle range > > frequencies where voices usually fall. We still have a " ways to go " > > but are certainly climbing the hill instead of just looking at it. > > > > RCE > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 I will try to answer all the questions at one time. I actually took Ally to Dothan, AL and she was tested there at the Progress Center by Angie Marshall. And yes, the thought went through my mind that ,of course, Ally was going to be found to have a problem and be recommended to start the program. But talking to Angie and having her explain everything eased most of my suspicions. I know that this sounds hard to believe but 5 days into her first 12 day intensive, I could see a difference in my little girl and it has only gotten better. As for how it is different from the Tomatis method.....Dr. Tomatis is certainly the grandfather of all good listening programs after researching why opera singers were losing their hearing some 40 years ago. However with today's technology, the Tomatis method is considered respectfully as " old school " . Now, please don't confuse EnListen with a previously popular program called AIT(a decibel-based program aimed at exercising the stapedius muscle in the middle ear) which was found to be bad ,even harmful to children. The EnListen program is the only program with selectivity and spacial orientation, it is a frequency-based program. Selectivity is the ability to determine where sounds are coming from and spacial orientation is the ability to pick sounds high and low such as the words BASE and PACE....if there is bone conduction over air, differentiating the pitches is difficult if not impossible. Sound is stronger through bone which offers no filtration of that sound like air conduction would allowing it to then be processed by the brain. It is a retraining of how they listen. If bone conduction is stronger than air conduction they can have sound-sensitivity issues, they may not be aware of their own body (EnListen helps potty training tremedously), and may not even respond to their name being called because of not only the interference of other sounds that they can't filter out, but because they don't know what direction it is coming from. Ally did have emerging, clear speech until 15 months of age at which time she regressed severely---no speech.....was about to be given some communication device by a speech pathologist prior to this program, Ally was 4. I encourage you to contact Angie Marshall at the Progress Center at 1-334-596-0476. She is so easy to talk to and is dedicated to the program as she also has an autistic child who has benefited from EnListen. You can also check out more by visiting the following web sites: www.progresscenter.us ; www.soundlistening.com ; or email Angie directly at progress@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Hi Robin, I wanted to know whether the therapy is done on-site or at home and what is the duration of the therapy. Do they train the parents to work on the procedure ? Also, is the goal of the therapy to normalize listening without the earphones eventually and is the change supposed to be a life long effect ? It is very encouraging that you have got very good results. My son has a lot of sound sensitivity (sometimes gets very bothered with even with soft sounds - something we may not hear right-a-way). He would often cover his hears. He has words and has capability to talk but doesn't show much interest in talking. When he talks, we would speak very softly and very fast as if talking in chunks. Regards, Amit Robin Eiland <reiland@...> wrote: I will try to answer all the questions at one time. I actually took Ally to Dothan, AL and she was tested there at the Progress Center by Angie Marshall. And yes, the thought went through my mind that ,of course, Ally was going to be found to have a problem and be recommended to start the program. But talking to Angie and having her explain everything eased most of my suspicions. I know that this sounds hard to believe but 5 days into her first 12 day intensive, I could see a difference in my little girl and it has only gotten better. As for how it is different from the Tomatis method.....Dr. Tomatis is certainly the grandfather of all good listening programs after researching why opera singers were losing their hearing some 40 years ago. However with today's technology, the Tomatis method is considered respectfully as " old school " . Now, please don't confuse EnListen with a previously popular program called AIT(a decibel-based program aimed at exercising the stapedius muscle in the middle ear) which was found to be bad ,even harmful to children. The EnListen program is the only program with selectivity and spacial orientation, it is a frequency-based program. Selectivity is the ability to determine where sounds are coming from and spacial orientation is the ability to pick sounds high and low such as the words BASE and PACE....if there is bone conduction over air, differentiating the pitches is difficult if not impossible. Sound is stronger through bone which offers no filtration of that sound like air conduction would allowing it to then be processed by the brain. It is a retraining of how they listen. If bone conduction is stronger than air conduction they can have sound-sensitivity issues, they may not be aware of their own body (EnListen helps potty training tremedously), and may not even respond to their name being called because of not only the interference of other sounds that they can't filter out, but because they don't know what direction it is coming from. Ally did have emerging, clear speech until 15 months of age at which time she regressed severely---no speech.....was about to be given some communication device by a speech pathologist prior to this program, Ally was 4. I encourage you to contact Angie Marshall at the Progress Center at 1-334-596-0476. She is so easy to talk to and is dedicated to the program as she also has an autistic child who has benefited from EnListen. You can also check out more by visiting the following web sites: www.progresscenter.us ; www.soundlistening.com ; or email Angie directly at progress@.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Hi , Has your son had an MRI and an EEG to look at his brain yet? Losing speech at four years old is rare. I wondre what else is going on??? @...: nezumi@...: Tue, 4 Mar 2008 07:37:43 +0000Subject: Re: Auditory Issues He lost speech at 4? Gosh that's late....Is Enlisten similar to AIT? We tried that when our son was little but he wouldn't wear headphones. I'd like to try again (he's 8, non- verbal). He does try and speak but all the sounds come out wrong (very few consonants- but he can intonate words correctly)On 4 Mar 2008, at 00:50, Robins wrote:> Can you tell me how this EnListen program is different from Tomatis?>> Did this program help your daughter regain speech she once had? Or > did she not have speech until starting this program?>> My son was a terrific speaker before losing his speech at four. I'm > wondering what, if anything, could help supplement Dr. Goldberg's > therapy. He just babbles now.>> Thanks!!!!> > Re: Auditory Issues>> Who did you go to that found out that she had a problem with bone> conducting? Thanks.>> Beverly>> On Mar 3, 2008, at 12:23 PM, Robin Eiland wrote:>> > Hi there,> > I have been monitoring this group for some time, reading some> > wonderful information submitted, and haven't yet felt a need to> > contribute as someone has always covered my point. On the subject> > of auditory problems, I must tell you all that a program called> > EnListen (Progress Center in Dothan, AL) changed my daughters life,> > as well as of course Dr. Goldberg. Ally's hearing was tested as OK> > and for 4 years, she could only speak a few words. I was told about> > this program by another mom and proceded to have them test Ally.> > Yes, Ally could hear but she wasn't hearing normally. Ally was bone> > conducting sound instead of air conducting as she should, so sounds> > to her were like talking under water. This prevented her from not> > only being able to speak the words but also process what was being> > said. Long story short, after 1 intensive, Ally began looking at me> > as if for the first time she was understanding me and began to> > talk, picking up on things at a rapid pace. This program " retrains " > > their hearing....restoring air conduction over bone conduction.> > Ally's main problem area happened to be those middle range> > frequencies where voices usually fall. We still have a " ways to go " > > but are certainly climbing the hill instead of just looking at it.> >> > RCE> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 My son had a 1T MRI, 3T MRI, 1 hr EEG, 3 day EEG, lumbar puncture (done too late to find any infection), and tons of blood work at multiple hospitals. These tests were done at the children's hospital in Dallas, children's hospital in Washington DC, town University, and locally in Oklahoma. He was a normally functioning, extremely verbal and imaginative child up until his 4 year vaccinations. It has been a year of absolute hell on earth. Dr. Goldberg is the only one who has found anything unusual in his blood. My son clearly has some immune issues. I hope that we can get him back. I miss his sweet voice. We are lucky that he is very, very affectionate and bright eyed. Believe it or not, I've run across three other families with late onset like this. One went down hill after vaccinations and two had illnesses--flu type illness and one had strep, I think. My son seems the worst off of the four because of his total lack of speech. But one family has their son almost back to normal. Ten years have passed since his onset. This gives me hope. Re: Auditory Issues>> Who did you go to that found out that she had a problem with bone> conducting? Thanks.>> Beverly>> On Mar 3, 2008, at 12:23 PM, Robin Eiland wrote:>> > Hi there,> > I have been monitoring this group for some time, reading some> > wonderful information submitted, and haven't yet felt a need to> > contribute as someone has always covered my point. On the subject> > of auditory problems, I must tell you all that a program called> > EnListen (Progress Center in Dothan, AL) changed my daughters life,> > as well as of course Dr. Goldberg. Ally's hearing was tested as OK> > and for 4 years, she could only speak a few words. I was told about> > this program by another mom and proceded to have them test Ally.> > Yes, Ally could hear but she wasn't hearing normally. Ally was bone> > conducting sound instead of air conducting as she should, so sounds> > to her were like talking under water. This prevented her from not> > only being able to speak the words but also process what was being> > said. Long story short, after 1 intensive, Ally began looking at me> > as if for the first time she was understanding me and began to> > talk, picking up on things at a rapid pace. This program " retrains " > > their hearing....restoring air conduction over bone conduction.> > Ally's main problem area happened to be those middle range> > frequencies where voices usually fall. We still have a " ways to go " > > but are certainly climbing the hill instead of just looking at it.> >> > RCE> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Is it diagnosed as " Childhood Disintegrative Disorder " ---typically that's the diagnosis after 3 years of age. On 3/8/08, Robins <susan.robins@...> wrote: > > My son had a 1T MRI, 3T MRI, 1 hr EEG, 3 day EEG, lumbar puncture (done > too late to find any infection), and tons of blood work at multiple > hospitals. These tests were done at the children's hospital in Dallas, > children's hospital in Washington DC, town University, and locally in > Oklahoma. He was a normally functioning, extremely verbal and imaginative > child up until his 4 year vaccinations. It has been a year of absolute hell > on earth. Dr. Goldberg is the only one who has found anything unusual in his > blood. My son clearly has some immune issues. I hope that we can get him > back. I miss his sweet voice. We are lucky that he is very, very > affectionate and bright eyed. Believe it or not, I've run across three other > families with late onset like this. One went down hill after vaccinations > and two had illnesses--flu type illness and one had strep, I think. My son > seems the worst off of the four because of his total lack of speech. But one > family has their son almost back to normal. Ten years have passed since his > onset. This gives me hope. > > Re: Auditory Issues>> > Who did you go to that found out that she had a problem with bone> > conducting? Thanks.>> Beverly>> On Mar 3, 2008, at 12:23 PM, Robin Eiland > wrote:>> > Hi there,> > I have been monitoring this group for some time, > reading some> > wonderful information submitted, and haven't yet felt a need > to> > contribute as someone has always covered my point. On the subject> > > of auditory problems, I must tell you all that a program called> > EnListen > (Progress Center in Dothan, AL) changed my daughters life,> > as well as of > course Dr. Goldberg. Ally's hearing was tested as OK> > and for 4 years, she > could only speak a few words. I was told about> > this program by another > mom and proceded to have them test Ally.> > Yes, Ally could hear but she > wasn't hearing normally. Ally was bone> > conducting sound instead of air > conducting as she should, so sounds> > to her were like talking under water. > This prevented her from not> > only being able to speak the words but also > process what was being> > said. Long story short, after 1 intensive, Ally > began looking at me> > as if for the first time she was understanding me and > began to> > talk, picking up on things at a rapid pace. This program > " retrains " > > their hearing....restoring air conduction over bone > conduction.> > Ally's main problem area happened to be those middle range> > > frequencies where voices usually fall. We still have a " ways to go " > > but > are certainly climbing the hill instead of just looking at it.> >> > RCE> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Hi--sounds like your son might have Landau Kleffner syndrome if he lost speech at age 4. My son has this condition. Your son would need a sleeping EEG to determine if there is spike and wave activity in the left temporal lobe. Does he have any seizures? There aren't a lot of places that test for this though--where do you live? Beverly On Mar 8, 2008, at 1:23 PM, Robins wrote: > My son had a 1T MRI, 3T MRI, 1 hr EEG, 3 day EEG, lumbar puncture > (done too late to find any infection), and tons of blood work at > multiple hospitals. These tests were done at the children's > hospital in Dallas, children's hospital in Washington DC, > town University, and locally in Oklahoma. He was a normally > functioning, extremely verbal and imaginative child up until his 4 > year vaccinations. It has been a year of absolute hell on earth. > Dr. Goldberg is the only one who has found anything unusual in his > blood. My son clearly has some immune issues. I hope that we can > get him back. I miss his sweet voice. We are lucky that he is very, > very affectionate and bright eyed. Believe it or not, I've run > across three other families with late onset like this. One went > down hill after vaccinations and two had illnesses--flu type > illness and one had strep, I think. My son seems the worst off of > the four because of his total lack of speech. But one family has > their son almost back to normal. Ten years have passed since his > onset. This gives me hope. > > Re: Auditory Issues>> Who did you go to > that found out that she had a problem with bone> conducting? > Thanks.>> Beverly>> On Mar 3, 2008, at 12:23 PM, Robin Eiland > wrote:>> > Hi there,> > I have been monitoring this group for some > time, reading some> > wonderful information submitted, and haven't > yet felt a need to> > contribute as someone has always covered my > point. On the subject> > of auditory problems, I must tell you all > that a program called> > EnListen (Progress Center in Dothan, AL) > changed my daughters life,> > as well as of course Dr. Goldberg. > Ally's hearing was tested as OK> > and for 4 years, she could only > speak a few words. I was told about> > this program by another mom > and proceded to have them test Ally.> > Yes, Ally could hear but > she wasn't hearing normally. Ally was bone> > conducting sound > instead of air conducting as she should, so sounds> > to her were > like talking under water. This prevented her from not> > only being > able to speak the words but also process what was being> > said. > Long story short, after 1 intensive, Ally began looking at me> > as > if for the first time she was understanding me and began to> > > talk, picking up on things at a rapid pace. This program > " retrains " > > their hearing....restoring air conduction over bone > conduction.> > Ally's main problem area happened to be those middle > range> > frequencies where voices usually fall. We still have a > " ways to go " > > but are certainly climbing the hill instead of just > looking at it.> >> > RCE> >> > [Non-text portions of this message > have been removed]> >> >> >>> [Non-text portions of this message > have been removed]>> [Non-text portions of this message have been > removed]>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 I will try to answer all the questions at one time. I actually took Ally to Dothan, AL and she was tested there at the Progress Center by Angie Marshall. And yes, the thought went through my mind that ,of course, Ally was going to be found to have a problem and be recommended to start the program. But talking to Angie and having her explain everything eased most of my suspicions. I know that this sounds hard to believe but 5 days into her first 12 day intensive, I could see a difference in my little girl and it has only gotten better. As for how it is different from the Tomatis method.....Dr. Tomatis is certainly the grandfather of all good listening programs after researching why opera singers were losing their hearing some 40 years ago. However with today's technology, the Tomatis method is considered respectfully as " old school " . Now, please don't confuse EnListen with a previously popular program called AIT(a decibel-based program aimed at exercising the stapedius muscle in the middle ear) which was found to be bad ,even harmful to children. The EnListen program is the only program with selectivity and spacial orientation, it is a frequency-based program. Selectivity is the ability to determine where sounds are coming from and spacial orientation is the ability to pick sounds high and low such as the words BASE and PACE....if there is bone conduction over air, differentiating the pitches is difficult if not impossible. Sound is stronger through bone which offers no filtration of that sound like air conduction would allowing it to then be processed by the brain. It is a retraining of how they listen. If bone conduction is stronger than air conduction they can have sound-sensitivity issues, they may not be aware of their own body (EnListen helps potty training tremedously), and may not even respond to their name being called because of not only the interference of other sounds that they can't filter out, but because they don't know what direction it is coming from. Ally did have emerging, clear speech until 15 months of age at which time she regressed severely---no speech.....was about to be given some communication device by a speech pathologist prior to this program, Ally was 4. I encourage you to contact Angie Marshall at the Progress Center at 1-334-596-0476. She is so easy to talk to and is dedicated to the program as she also has an autistic child who has benefited from EnListen. You can also check out more by visiting the following web sites: www.progresscenter.us ; www.soundlistening.com ; or email Angie directly at progress@.... The intensives are done at home...they prefer to test the child to get a baseline on them and periodically retest to monitor progress, but Angie told me that it is possible to do the program long distance without testing. They are able to do this by your feedback on specific questions about your child. I know several moms with children that did not tolerate being tested, at least initially, and have had great results. It is usually 12-15 day intensive with 2 hours of listening time which can be done while they are sleeping (that is the only way we were able to do it). There are 6 intensives about 2 months apart, so it takes a year to complete. It is life long, as long as there is sound to be heard, there is a continuous feedback to the middle ear....it is like learning to speak a foreign language, if you go to that country and are around others constantly using that language, you begin to become more and more fluent in speaking it. There is the option to continue on a " maintenance plan " to " fine tune " certain frequency areas. It is definitely my opinion that this is the best program out there. I have wasted a lot of money on a lot of treatments but this one was worth every penny. RCE Quote Link to comment Share on other sites More sharing options...
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