Re: News on Minocycline?

[Guest guest]

I would be interested in hearing your experience if you start this drug. My 7

year old has migraines and was treated with a five day trial of prednisone for

brain inflammation. It stopped the cluster migraines, but he still gets one or

two per month. Your son will probably experience some puffiness and weight gain,

but this should reverse when he's off the drug. I was actually surprised by how

much weight my son gained in such a short time; however, he was on Depakote for

seizures and that contributed to the weight gain.

Good luck,

Robyn

rollipolli222@... wrote:

Have any of you heard any of the results for using minocycline in

regressive autism? I am very interested in this, as my son has inflamation in

the frontal lobe region, and he has suffered from onset with severe ongoing

migranes. If any one knows any infor I would be grateful.

After what seems like a zillion different meds to treat chronic migranes, his

pediatrician has put him on 5 day trial of prednisone. If it cools down the

headaches, he is willing to look at other meds that could treat the inflamation,

minocycline was one I have been watching.

Thanks,

Rollie

[Guest guest]

BTW, how old is yoru son? I read that minocycline shouldn't be used in children

under the age of 8, except for the case of inhalation anthrax.

Robyn

Robyn & Greg Coggins <rngcoggs@...> wrote:

I would be interested in hearing your experience if you start this

drug. My 7 year old has migraines and was treated with a five day trial of

prednisone for brain inflammation. It stopped the cluster migraines, but he

still gets one or two per month. Your son will probably experience some

puffiness and weight gain, but this should reverse when he's off the drug. I was

actually surprised by how much weight my son gained in such a short time;

however, he was on Depakote for seizures and that contributed to the weight

gain.

Good luck,

Robyn

rollipolli222@... wrote:

Have any of you heard any of the results for using minocycline in regressive

autism? I am very interested in this, as my son has inflamation in the frontal

lobe region, and he has suffered from onset with severe ongoing migranes. If any

one knows any infor I would be grateful.

After what seems like a zillion different meds to treat chronic migranes, his

pediatrician has put him on 5 day trial of prednisone. If it cools down the

headaches, he is willing to look at other meds that could treat the inflamation,

minocycline was one I have been watching.

Thanks,

Rollie

[Guest guest]

Hi Rollie -

I haven't heard the most recent results ... I know one

study had a negative response in some areas, which I

found dissappointing, but had experienced some

negatives while trying to treat PANDAS (just some mild

increase in symptoms, no benefits).

I assume you have tried strict low allergy diet for

the migraines? Has a doctor monitored eosiniphils to

see if your child is very allergic? Dr Goldberg told

me that the high majority of migraines are food

allergy ...

Another hope is anti-virals?

HTH-

--- rollipolli222@... wrote:

> Have any of you heard any of the results for using

> minocycline in regressive autism? I am very

> interested in this, as my son has inflamation in the

> frontal lobe region, and he has suffered from onset

> with severe ongoing migranes. If any one knows any

> infor I would be grateful.

>

> After what seems like a zillion different meds to

> treat chronic migranes, his pediatrician has put him

> on 5 day trial of prednisone. If it cools down the

> headaches, he is willing to look at other meds that

> could treat the inflamation, minocycline was one I

> have been watching.

>

> Thanks,

>

> Rollie

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Based upon what his headache experience has been, ongoing since onset, we are

looking at the area of brain inflamation in the frontal lobes, which is where he

reports pain, and the spect scan shows limited blood flow.

He's been on an a dfwf diet for years, that helps with tics and clarity in

thoughts, but?everything looks to be a blood flow issue. I suspect the kids with

regresssive autism, onset after normal development probably like my son suffer

too from similar issues.

Rollie

Re: News on Minocycline?

Hi Rollie -

I haven't heard the most recent results ... I know one

study had a negative response in some areas, which I

found dissappointing, but had experienced some

negatives while trying to treat PANDAS (just some mild

increase in symptoms, no benefits).

I assume you have tried strict low allergy diet for

the migraines? Has a doctor monitored eosiniphils to

see if your child is very allergic? Dr Goldberg told

me that the high majority of migraines are food

allergy ...

Another hope is anti-virals?

HTH-

--- rollipolli222@... wrote:

> Have any of you heard any of the results for using

> minocycline in regressive autism? I am very

> interested in this, as my son has inflamation in the

> frontal lobe region, and he has suffered from onset

> with severe ongoing migranes. If any one knows any

> infor I would be grateful.

>

> After what seems like a zillion different meds to

> treat chronic migranes, his pediatrician has put him

> on 5 day trial of prednisone. If it cools down the

> headaches, he is willing to look at other meds that

> could treat the inflamation, minocycline was one I

> have been watching.

>

> Thanks,

>

> Rollie

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ