RE: [SPAM] encouragment, please

[Guest guest]

Hi, -

I have two 12-year-old boys who have been with Dr G for 3-1/2 years now.

One of them was very tactile defensive and didn't speak until almost 7 years

old -- but was echolalic in response to some videos. Within a few months of

beginning to see Dr G, this son would tolerate Dr G examining him. This was

HUGE for us, but his language comprehension and speech stayed the same -

using one to three words. As time went on, I also was wondering if the

improvements that I was seeing were due to his growing up. Then, when

trying to describe his 'swiss cheese foundation' development to his OT, she

showed me a developmental pyramid which shows the body/brain development

dependencies. Speech/Language is in the second or third level of

development. What I found is that my son's brain may be healthier, but that

his basic " system " development was, and is, still very immature. This makes

appropriate OT therapy VERY important. As his tactile tolerance and

proprioceptive system improves, so does his desire for more socialization

and communication (tactile and verbal), and thus his perception of this

world and his language. These are steps that most kids go through during

the first couple of years of life. My son didn't. He was too busy trying

to protect himself from the world.

In a nutshell, after listening to. and following the directions of, some

very prominent doctors/therapists in the field of autism for many years, my

sons have made more improvements since being treated by Dr G. I may not see

any changes for 3-4 months, but then they do/say something and I'll realize

that, especially my one son, couldn't " do that " six months previously. It's

extremely important to go back and 'identify and fix' areas of development

that your child may not have mastered. These areas are not always very

obvious, but therapists, OT and SPL, should be able to help ID them - have

them test back to infancy stages of development, if you haven't already.

The other thing that I have found is that my boys had developed

behaviors/procedures which helped them succeed before. They need to unlearn

or change these to move forward. These 'habits', if you will, are very

comfortable to them and, like most habits can be difficult to give up

/change. You need to provide the direction and guidance because the kids

don't see any reason to change.

Hope this helps.

Patti

_____

From: [mailto: ] On Behalf Of Curtis

and Hackler

Sent: Wednesday, February 27, 2008 5:57 AM

Subject: [sPAM] encouragment, please

Hello-

We have been with Dr G for almost 2 years. Things are

going SO slowly and still no speech in our son he will

be 5 in May. Remind me that we are doing the right

thing and that he will eventually come around. We're

just in one of those valleys right now and my husband

is about ready to give up. There is no doubt he has

made some gains, but we sometimes wonder if it's just

because he's growing up.

Thanks

--- Wonderwegian & Chile J & C <carriecoxcomcast (DOT)

<mailto:carriecox%40comcast.net> net>

wrote:

> Doris,

>

> Every time I take my son to the local pediatrician

> she asks when Dr. Goldberg will be publishing

> studies/have peer reviewed studies/ etc. She sees

> the improvements in my oldest and knows a cure will

> be found one day. I think she wants to believe

> but wants to see the proof in writing in a medical

> journal or something.

>

> - in Mobile, AL

>

>

>

> __________________________

> Reality lies beyond the horizon...

> Wonderwegian

>

> CBS 5 Investigates: Woman Promises Autism

> Cure?

> Date: Tue, 26 Feb 2008 08:30:42 -0500

> From: AutismLink <listserv@autismlink <mailto:listserv%40autismlink.com>

..com>

> sjsmithcablespeed (DOT) <mailto:sjsmith%40cablespeed.com> com

>

> **CBS 5 Investigates: Woman Promises Autism

> Cure?**

>

> Source: KPIX TV, San Francisco

>

>

http://cbs5. <http://cbs5.com/investigates/MAPS.autism.cure.2.662695.html>

com/investigates/MAPS.autism.cure.2.662695.html

> (CBS 5) There are thousands of children in the Bay

> Area diagnosed

> with autism, and parents are desperate for help.

> Families are looking

> at all kinds of treatments. But a CBS 5

> investigation uncovers an

> autism treatment being promised as a cure.

>

> It's being pitched at seminars across the country,

> several of which

> CBS 5 Investigates attended with an undercover

> camera. At a seminar

> in Orange County, we heart that promise.

>

> " We are taking about fixing the brain, fixing the

> brain forever, " the

> program's inventor, Claudie Gordon-Pomares told

> parents. She said she

> can repair the brain through sensory stimulation

> called " Monitored

> Multi-cortical Activities for Additional Pathways

> and Synapses, " or

> MAPS.

>

> " Of course it works, because it's been proven "

> Gordon-Pomares said.

> " Doesn't matter the age, doesn't matter how long

> parents have tried

> something. "

>

> Who is Gordon-Pomares? Her Canadian center, the

> Brain Repair

> Institute, has been featured on local news. Her

> website shows amazing

> before and after results, and parents who like it.

>

> Gordon-Pomares says it's a miracle cure for the

> brain she's spreading

> all across North America. Reaching parents

> including and Holly

> Wetz, whose 5-year-old son was diagnosed

> with a type of

> autism.

>

> " Trying to decide what to do, what would be the

> best thing to do, was

> really overwhelming, " Holly Wetz said. The family

> had already tried

> many treatments. " We took him off wheat, we took

> him off milk, " she

> said, which failed to help.

>

> Although it cost $5,000 for just six months, the

> Wetz's decided to

> give MAPS a try.

>

> " When you're a parent with an autistic child and

> tried everything,

> you know, you're like, 'Wow! We're going to miss

> our opportunity, we

> better do it,' " Wetz said.

>

> But one year later, Wetz said " You know we weren't

> getting anything.

> We kept getting promises. "

>

> So CBS 5 Investigates went to ask Gordon-Pomares,

> who insisted the

> treatment works.

>

> " I believe the brain can fix itself, " she told CBS

> 5.

>

> And why does she say that? " Any brain dysfunction,

> any mental

> disorder is fundamentally a serotonin and a

> dopamine issue, "

> Gordon-Pomares said. " So it can be a child with

> Down's Syndrome who

> has a low level of serotonin. It's not really a

> specific diagnosis

> more the dysfunction going to the function. "

>

> " That is what sometimes is termed psychobabble, "

> said Dr. Bryna

> Siegel, director of the Autism Clinic at UCSF.

> Siegel is a world

> renowned expert on autism who reviewed the MAPS

> program for CBS 5

> Investigates.

>

> " She's just using concepts that on the surface

> sound like she knows

> what is going on, " Siegel said.

>

> Siegel was also shown undercover video of the

> seminar recorded by CBS

> 5 Investigates.

>

> " I think I would feel absolutely comfortable

> saying that there is no

> way that this is a cure for any case of autism, "

> Siegel said.

>

> CBS 5 asked Gordon-Pomares why top experts have

> said her program is

> not good.

>

> " Well there are quite a few who say it's good, "

> she said. Experts

> Gordon-Pomares said, like pioneering brain

> researcher and UC Berkeley

> professor Mark Rosenzweig. " He said, there's no

> problem, I will put my

> name behind MAPS and demonstrate it, the validity

> of it, to the

> world. "

>

> So CBS 5 Investigates went to ask Rosenzwig about

> the MAPS program.

>

> " Now when you say MAPS, what is MAPS? " Rosenzwig

> responded. He said

> he has never validated Gordon-Pomares' work as she

> claims. " In order

> to do that I would have to know about it and look

> into it carefully

> and I haven't done that, so I don't put my name

> behind her work. "

>

> " Are they taking advantage? " CBS 5 asked Dr.

> Siegel.

>

> " Absolutely, it's totally exploiting a very very

> vulnerable

> population, " Siegel said.

>

> Gordon-Pomares responded to Siegel's statement by

> saying: " No, I

> don't believe a parent who's fighting the world to

> save their child

> is vulnerable. "

>

> So is Gordon-Pomares really doing anybody any

> harm?

=== message truncated ===

__________________________________________________________

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[Guest guest]

Excellent point! Jerri

---- Original Message ----

From: psweetman5@...

Subject: RE: [sPAM] encouragment, please

Date: Wed, 27 Feb 2008 12:12:11 -0800

>Hi, -

>

>

>

>I have two 12-year-old boys who have been with Dr G for 3-1/2 years

>now.

>One of them was very tactile defensive and didn't speak until almost

>7 years

>old -- but was echolalic in response to some videos. Within a few

>months of

>beginning to see Dr G, this son would tolerate Dr G examining him.

>This was

>HUGE for us, but his language comprehension and speech stayed the

>same -

>using one to three words. As time went on, I also was wondering if

>the

>improvements that I was seeing were due to his growing up. Then,

>when

>trying to describe his 'swiss cheese foundation' development to his

>OT, she

>showed me a developmental pyramid which shows the body/brain

>development

>dependencies. Speech/Language is in the second or third level of

>development. What I found is that my son's brain may be healthier,

>but that

>his basic " system " development was, and is, still very immature.

>This makes

>appropriate OT therapy VERY important. As his tactile tolerance and

>proprioceptive system improves, so does his desire for more

>socialization

>and communication (tactile and verbal), and thus his perception of

>this

>world and his language. These are steps that most kids go through

>during

>the first couple of years of life. My son didn't. He was too busy

>trying

>to protect himself from the world.

>

>

>

>In a nutshell, after listening to. and following the directions of,

>some

>very prominent doctors/therapists in the field of autism for many

>years, my

>sons have made more improvements since being treated by Dr G. I may

>not see

>any changes for 3-4 months, but then they do/say something and I'll

>realize

>that, especially my one son, couldn't " do that " six months

>previously. It's

>extremely important to go back and 'identify and fix' areas of

>development

>that your child may not have mastered. These areas are not always

>very

>obvious, but therapists, OT and SPL, should be able to help ID them -

>have

>them test back to infancy stages of development, if you haven't

>already.

>The other thing that I have found is that my boys had developed

>behaviors/procedures which helped them succeed before. They need to

>unlearn

>or change these to move forward. These 'habits', if you will, are

>very

>comfortable to them and, like most habits can be difficult to give up

>/change. You need to provide the direction and guidance because the

>kids

>don't see any reason to change.

>

>

>

>Hope this helps.

>

>Patti

>

>

>

> _____

>

>From: [mailto: ] On Behalf Of

>Curtis

>and Hackler

>Sent: Wednesday, February 27, 2008 5:57 AM

>

>Subject: [sPAM] encouragment, please

>

>

>

>Hello-

>

>We have been with Dr G for almost 2 years. Things are

>going SO slowly and still no speech in our son he will

>be 5 in May. Remind me that we are doing the right

>thing and that he will eventually come around. We're

>just in one of those valleys right now and my husband

>is about ready to give up. There is no doubt he has

>made some gains, but we sometimes wonder if it's just

>because he's growing up.

>

>Thanks

>

>--- Wonderwegian & Chile J & C <carriecoxcomcast (DOT)

><mailto:carriecox%40comcast.net> net>

>wrote:

>

>> Doris,

>>

>> Every time I take my son to the local pediatrician

>> she asks when Dr. Goldberg will be publishing

>> studies/have peer reviewed studies/ etc. She sees

>> the improvements in my oldest and knows a cure will

>> be found one day. I think she wants to believe

>> but wants to see the proof in writing in a medical

>> journal or something.

>>

>> - in Mobile, AL

>>

>>

>>

>> __________________________

>> Reality lies beyond the horizon...

>> Wonderwegian

>>

>> CBS 5 Investigates: Woman Promises Autism

>> Cure?

>> Date: Tue, 26 Feb 2008 08:30:42 -0500

>> From: AutismLink <listserv@autismlink

><mailto:listserv%40autismlink.com>

>.com>

>> sjsmithcablespeed (DOT) <mailto:sjsmith%40cablespeed.com> com

>>

>> **CBS 5 Investigates: Woman Promises Autism

>> Cure?**

>>

>> Source: KPIX TV, San Francisco

>>

>>

>http://cbs5.

><http://cbs5.com/investigates/MAPS.autism.cure.2.662695.html>

>com/investigates/MAPS.autism.cure.2.662695.html

>> (CBS 5) There are thousands of children in the Bay

>> Area diagnosed

>> with autism, and parents are desperate for help.

>> Families are looking

>> at all kinds of treatments. But a CBS 5

>> investigation uncovers an

>> autism treatment being promised as a cure.

>>

>> It's being pitched at seminars across the country,

>> several of which

>> CBS 5 Investigates attended with an undercover

>> camera. At a seminar

>> in Orange County, we heart that promise.

>>

>> " We are taking about fixing the brain, fixing the

>> brain forever, " the

>> program's inventor, Claudie Gordon-Pomares told

>> parents. She said she

>> can repair the brain through sensory stimulation

>> called " Monitored

>> Multi-cortical Activities for Additional Pathways

>> and Synapses, " or

>> MAPS.

>>

>> " Of course it works, because it's been proven "

>> Gordon-Pomares said.

>> " Doesn't matter the age, doesn't matter how long

>> parents have tried

>> something. "

>>

>> Who is Gordon-Pomares? Her Canadian center, the

>> Brain Repair

>> Institute, has been featured on local news. Her

>> website shows amazing

>> before and after results, and parents who like it.

>>

>> Gordon-Pomares says it's a miracle cure for the

>> brain she's spreading

>> all across North America. Reaching parents

>> including and Holly

>> Wetz, whose 5-year-old son was diagnosed

>> with a type of

>> autism.

>>

>> " Trying to decide what to do, what would be the

>> best thing to do, was

>> really overwhelming, " Holly Wetz said. The family

>> had already tried

>> many treatments. " We took him off wheat, we took

>> him off milk, " she

>> said, which failed to help.

>>

>> Although it cost $5,000 for just six months, the

>> Wetz's decided to

>> give MAPS a try.

>>

>> " When you're a parent with an autistic child and

>> tried everything,

>> you know, you're like, 'Wow! We're going to miss

>> our opportunity, we

>> better do it,' " Wetz said.

>>

>> But one year later, Wetz said " You know we weren't

>> getting anything.

>> We kept getting promises. "

>>

>> So CBS 5 Investigates went to ask Gordon-Pomares,

>> who insisted the

>> treatment works.

>>

>> " I believe the brain can fix itself, " she told CBS

>> 5.

>>

>> And why does she say that? " Any brain dysfunction,

>> any mental

>> disorder is fundamentally a serotonin and a

>> dopamine issue, "

>> Gordon-Pomares said. " So it can be a child with

>> Down's Syndrome who

>> has a low level of serotonin. It's not really a

>> specific diagnosis

>> more the dysfunction going to the function. "

>>

>> " That is what sometimes is termed psychobabble, "

>> said Dr. Bryna

>> Siegel, director of the Autism Clinic at UCSF.

>> Siegel is a world

>> renowned expert on autism who reviewed the MAPS

>> program for CBS 5

>> Investigates.

>>

>> " She's just using concepts that on the surface

>> sound like she knows

>> what is going on, " Siegel said.

>>

>> Siegel was also shown undercover video of the

>> seminar recorded by CBS

>> 5 Investigates.

>>

>> " I think I would feel absolutely comfortable

>> saying that there is no

>> way that this is a cure for any case of autism, "

>> Siegel said.

>>

>> CBS 5 asked Gordon-Pomares why top experts have

>> said her program is

>> not good.

>>

>> " Well there are quite a few who say it's good, "

>> she said. Experts

>> Gordon-Pomares said, like pioneering brain

>> researcher and UC Berkeley

>> professor Mark Rosenzweig. " He said, there's no

>> problem, I will put my

>> name behind MAPS and demonstrate it, the validity

>> of it, to the

>> world. "

>>

>> So CBS 5 Investigates went to ask Rosenzwig about

>> the MAPS program.

>>

>> " Now when you say MAPS, what is MAPS? " Rosenzwig

>> responded. He said

>> he has never validated Gordon-Pomares' work as she

>> claims. " In order

>> to do that I would have to know about it and look

>> into it carefully

>> and I haven't done that, so I don't put my name

>> behind her work. "

>>

>> " Are they taking advantage? " CBS 5 asked Dr.

>> Siegel.

>>

>> " Absolutely, it's totally exploiting a very very

>> vulnerable

>> population, " Siegel said.

>>

>> Gordon-Pomares responded to Siegel's statement by

>> saying: " No, I

>> don't believe a parent who's fighting the world to

>> save their child

>> is vulnerable. "

>>

>> So is Gordon-Pomares really doing anybody any

>> harm?

>=== message truncated ===

>

>__________________________________________________________

>Looking for last minute shopping deals?

>Find them fast with Search. http://tools.

><http://tools.search./newsearch/category.php?category=shoppi

>ng>

>search./newsearch/category.php?category=shopping

>

>

>

>

>

>

[Guest guest]

I agree. Dr. G said as much to us at our first visit. We will probably have to

" revisit " those stages of development to see gains in language, social

interaction, etc. The difference being that he is now learning with a healthier,

more functioning brain.

Robyn

Jerri & Nick Gann <njgann@...> wrote:

Excellent point! Jerri

---- Original Message ----

From: psweetman5@...

Subject: RE: [sPAM] encouragment, please

Date: Wed, 27 Feb 2008 12:12:11 -0800

>Hi, -

>

>

>

>I have two 12-year-old boys who have been with Dr G for 3-1/2 years

>now.

>One of them was very tactile defensive and didn't speak until almost

>7 years

>old -- but was echolalic in response to some videos. Within a few

>months of

>beginning to see Dr G, this son would tolerate Dr G examining him.

>This was

>HUGE for us, but his language comprehension and speech stayed the

>same -

>using one to three words. As time went on, I also was wondering if

>the

>improvements that I was seeing were due to his growing up. Then,

>when

>trying to describe his 'swiss cheese foundation' development to his

>OT, she

>showed me a developmental pyramid which shows the body/brain

>development

>dependencies. Speech/Language is in the second or third level of

>development. What I found is that my son's brain may be healthier,

>but that

>his basic " system " development was, and is, still very immature.

>This makes

>appropriate OT therapy VERY important. As his tactile tolerance and

>proprioceptive system improves, so does his desire for more

>socialization

>and communication (tactile and verbal), and thus his perception of

>this

>world and his language. These are steps that most kids go through

>during

>the first couple of years of life. My son didn't. He was too busy

>trying

>to protect himself from the world.

>

>

>

>In a nutshell, after listening to. and following the directions of,

>some

>very prominent doctors/therapists in the field of autism for many

>years, my

>sons have made more improvements since being treated by Dr G. I may

>not see

>any changes for 3-4 months, but then they do/say something and I'll

>realize

>that, especially my one son, couldn't " do that " six months

>previously. It's

>extremely important to go back and 'identify and fix' areas of

>development

>that your child may not have mastered. These areas are not always

>very

>obvious, but therapists, OT and SPL, should be able to help ID them -

>have

>them test back to infancy stages of development, if you haven't

>already.

>The other thing that I have found is that my boys had developed

>behaviors/procedures which helped them succeed before. They need to

>unlearn

>or change these to move forward. These 'habits', if you will, are

>very

>comfortable to them and, like most habits can be difficult to give up

>/change. You need to provide the direction and guidance because the

>kids

>don't see any reason to change.

>

>

>

>Hope this helps.

>

>Patti

>

>

>

> _____

>

>From: [mailto: ] On Behalf Of

>Curtis

>and Hackler

>Sent: Wednesday, February 27, 2008 5:57 AM

>

>Subject: [sPAM] encouragment, please

>

>

>

>Hello-

>

>We have been with Dr G for almost 2 years. Things are

>going SO slowly and still no speech in our son he will

>be 5 in May. Remind me that we are doing the right

>thing and that he will eventually come around. We're

>just in one of those valleys right now and my husband

>is about ready to give up. There is no doubt he has

>made some gains, but we sometimes wonder if it's just

>because he's growing up.

>

>Thanks

>

>--- Wonderwegian & Chile J & C <carriecoxcomcast (DOT)

><mailto:carriecox%40comcast.net> net>

>wrote:

>

>> Doris,

>>

>> Every time I take my son to the local pediatrician

>> she asks when Dr. Goldberg will be publishing

>> studies/have peer reviewed studies/ etc. She sees

>> the improvements in my oldest and knows a cure will

>> be found one day. I think she wants to believe

>> but wants to see the proof in writing in a medical

>> journal or something.

>>

>> - in Mobile, AL

>>

>>

>>

>> __________________________

>> Reality lies beyond the horizon...

>> Wonderwegian

>>

>> CBS 5 Investigates: Woman Promises Autism

>> Cure?

>> Date: Tue, 26 Feb 2008 08:30:42 -0500

>> From: AutismLink <listserv@autismlink

><mailto:listserv%40autismlink.com>

>.com>

>> sjsmithcablespeed (DOT) <mailto:sjsmith%40cablespeed.com> com

>>

>> **CBS 5 Investigates: Woman Promises Autism

>> Cure?**

>>

>> Source: KPIX TV, San Francisco

>>

>>

>http://cbs5.

><http://cbs5.com/investigates/MAPS.autism.cure.2.662695.html>

>com/investigates/MAPS.autism.cure.2.662695.html

>> (CBS 5) There are thousands of children in the Bay

>> Area diagnosed

>> with autism, and parents are desperate for help.

>> Families are looking

>> at all kinds of treatments. But a CBS 5

>> investigation uncovers an

>> autism treatment being promised as a cure.

>>

>> It's being pitched at seminars across the country,

>> several of which

>> CBS 5 Investigates attended with an undercover

>> camera. At a seminar

>> in Orange County, we heart that promise.

>>

>> " We are taking about fixing the brain, fixing the

>> brain forever, " the

>> program's inventor, Claudie Gordon-Pomares told

>> parents. She said she

>> can repair the brain through sensory stimulation

>> called " Monitored

>> Multi-cortical Activities for Additional Pathways

>> and Synapses, " or

>> MAPS.

>>

>> " Of course it works, because it's been proven "

>> Gordon-Pomares said.

>> " Doesn't matter the age, doesn't matter how long

>> parents have tried

>> something. "

>>

>> Who is Gordon-Pomares? Her Canadian center, the

>> Brain Repair

>> Institute, has been featured on local news. Her

>> website shows amazing

>> before and after results, and parents who like it.

>>

>> Gordon-Pomares says it's a miracle cure for the

>> brain she's spreading

>> all across North America. Reaching parents

>> including and Holly

>> Wetz, whose 5-year-old son was diagnosed

>> with a type of

>> autism.

>>

>> " Trying to decide what to do, what would be the

>> best thing to do, was

>> really overwhelming, " Holly Wetz said. The family

>> had already tried

>> many treatments. " We took him off wheat, we took

>> him off milk, " she

>> said, which failed to help.

>>

>> Although it cost $5,000 for just six months, the

>> Wetz's decided to

>> give MAPS a try.

>>

>> " When you're a parent with an autistic child and

>> tried everything,

>> you know, you're like, 'Wow! We're going to miss

>> our opportunity, we

>> better do it,' " Wetz said.

>>

>> But one year later, Wetz said " You know we weren't

>> getting anything.

>> We kept getting promises. "

>>

>> So CBS 5 Investigates went to ask Gordon-Pomares,

>> who insisted the

>> treatment works.

>>

>> " I believe the brain can fix itself, " she told CBS

>> 5.

>>

>> And why does she say that? " Any brain dysfunction,

>> any mental

>> disorder is fundamentally a serotonin and a

>> dopamine issue, "

>> Gordon-Pomares said. " So it can be a child with

>> Down's Syndrome who

>> has a low level of serotonin. It's not really a

>> specific diagnosis

>> more the dysfunction going to the function. "

>>

>> " That is what sometimes is termed psychobabble, "

>> said Dr. Bryna

>> Siegel, director of the Autism Clinic at UCSF.

>> Siegel is a world

>> renowned expert on autism who reviewed the MAPS

>> program for CBS 5

>> Investigates.

>>

>> " She's just using concepts that on the surface

>> sound like she knows

>> what is going on, " Siegel said.

>>

>> Siegel was also shown undercover video of the

>> seminar recorded by CBS

>> 5 Investigates.

>>

>> " I think I would feel absolutely comfortable

>> saying that there is no

>> way that this is a cure for any case of autism, "

>> Siegel said.

>>

>> CBS 5 asked Gordon-Pomares why top experts have

>> said her program is

>> not good.

>>

>> " Well there are quite a few who say it's good, "

>> she said. Experts

>> Gordon-Pomares said, like pioneering brain

>> researcher and UC Berkeley

>> professor Mark Rosenzweig. " He said, there's no

>> problem, I will put my

>> name behind MAPS and demonstrate it, the validity

>> of it, to the

>> world. "

>>

>> So CBS 5 Investigates went to ask Rosenzwig about

>> the MAPS program.

>>

>> " Now when you say MAPS, what is MAPS? " Rosenzwig

>> responded. He said

>> he has never validated Gordon-Pomares' work as she

>> claims. " In order

>> to do that I would have to know about it and look

>> into it carefully

>> and I haven't done that, so I don't put my name

>> behind her work. "

>>

>> " Are they taking advantage? " CBS 5 asked Dr.

>> Siegel.

>>

>> " Absolutely, it's totally exploiting a very very

>> vulnerable

>> population, " Siegel said.

>>

>> Gordon-Pomares responded to Siegel's statement by

>> saying: " No, I

>> don't believe a parent who's fighting the world to

>> save their child

>> is vulnerable. "

>>

>> So is Gordon-Pomares really doing anybody any

>> harm?

>=== message truncated ===

>

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[Guest guest]

Patti-

Thank you for sharing! That is good information that

you received from your OT & helps me to understand

things a bit better. My son goes to a Speech

Pathologist but only recieves OT at school, which

isn't much. We don't have any good OT's in my town,

but I could travel an hour to take him... may be a

good idea. His speech path is just waiting for the

words to come, she's gone back and feels like covered

all the basics with him, so perhaps he does have some

other issues to address that OT would address.

Great information & always great to hear about others

progress... it gives hope!!

Thanks & the very best to you & your sons!!

--- PATRICIA SWEETMAN <psweetman5@...> wrote:

> Hi, -

>

>

>

> I have two 12-year-old boys who have been with Dr G

> for 3-1/2 years now.

> One of them was very tactile defensive and didn't

> speak until almost 7 years

> old -- but was echolalic in response to some videos.

> Within a few months of

> beginning to see Dr G, this son would tolerate Dr G

> examining him. This was

> HUGE for us, but his language comprehension and

> speech stayed the same -

> using one to three words. As time went on, I also

> was wondering if the

> improvements that I was seeing were due to his

> growing up. Then, when

> trying to describe his 'swiss cheese foundation'

> development to his OT, she

> showed me a developmental pyramid which shows the

> body/brain development

> dependencies. Speech/Language is in the second or

> third level of

> development. What I found is that my son's brain

> may be healthier, but that

> his basic " system " development was, and is, still

> very immature. This makes

> appropriate OT therapy VERY important. As his

> tactile tolerance and

> proprioceptive system improves, so does his desire

> for more socialization

> and communication (tactile and verbal), and thus his

> perception of this

> world and his language. These are steps that most

> kids go through during

> the first couple of years of life. My son didn't.

> He was too busy trying

> to protect himself from the world.

>

>

>

> In a nutshell, after listening to. and following the

> directions of, some

> very prominent doctors/therapists in the field of

> autism for many years, my

> sons have made more improvements since being treated

> by Dr G. I may not see

> any changes for 3-4 months, but then they do/say

> something and I'll realize

> that, especially my one son, couldn't " do that " six

> months previously. It's

> extremely important to go back and 'identify and

> fix' areas of development

> that your child may not have mastered. These areas

> are not always very

> obvious, but therapists, OT and SPL, should be able

> to help ID them - have

> them test back to infancy stages of development, if

> you haven't already.

> The other thing that I have found is that my boys

> had developed

> behaviors/procedures which helped them succeed

> before. They need to unlearn

> or change these to move forward. These 'habits', if

> you will, are very

> comfortable to them and, like most habits can be

> difficult to give up

> /change. You need to provide the direction and

> guidance because the kids

> don't see any reason to change.

>

>

>

> Hope this helps.

>

> Patti

>

>

>

> _____

>

> From:

> [mailto: ] On Behalf Of Curtis

> and Hackler

> Sent: Wednesday, February 27, 2008 5:57 AM

>

> Subject: [sPAM] encouragment, please

>

>

>

> Hello-

>

> We have been with Dr G for almost 2 years. Things

> are

> going SO slowly and still no speech in our son he

> will

> be 5 in May. Remind me that we are doing the right

> thing and that he will eventually come around. We're

> just in one of those valleys right now and my

> husband

> is about ready to give up. There is no doubt he has

> made some gains, but we sometimes wonder if it's

> just

> because he's growing up.

>

> Thanks

>

> --- Wonderwegian & Chile J & C <carriecoxcomcast (DOT)

> <mailto:carriecox%40comcast.net> net>

> wrote:

>

> > Doris,

> >

> > Every time I take my son to the local pediatrician

> > she asks when Dr. Goldberg will be publishing

> > studies/have peer reviewed studies/ etc. She sees

> > the improvements in my oldest and knows a cure

> will

> > be found one day. I think she wants to believe

>

> > but wants to see the proof in writing in a medical

> > journal or something.

> >

> > - in Mobile, AL

> >

> >

> >

> > __________________________

> > Reality lies beyond the horizon...

> > Wonderwegian

> >

> > CBS 5 Investigates: Woman Promises Autism

> > Cure?

> > Date: Tue, 26 Feb 2008 08:30:42 -0500

> > From: AutismLink <listserv@autismlink

> <mailto:listserv%40autismlink.com>

> .com>

> > sjsmithcablespeed (DOT)

> <mailto:sjsmith%40cablespeed.com> com

> >

> > **CBS 5 Investigates: Woman Promises Autism

> > Cure?**

> >

> > Source: KPIX TV, San Francisco

> >

> >

> http://cbs5.

>

<http://cbs5.com/investigates/MAPS.autism.cure.2.662695.html>

> com/investigates/MAPS.autism.cure.2.662695.html

> > (CBS 5) There are thousands of children in the Bay

> > Area diagnosed

> > with autism, and parents are desperate for help.

> > Families are looking

> > at all kinds of treatments. But a CBS 5

> > investigation uncovers an

> > autism treatment being promised as a cure.

> >

> > It's being pitched at seminars across the country,

> > several of which

> > CBS 5 Investigates attended with an undercover

> > camera. At a seminar

> > in Orange County, we heart that promise.

> >

> > " We are taking about fixing the brain, fixing the

> > brain forever, " the

> > program's inventor, Claudie Gordon-Pomares told

> > parents. She said she

> > can repair the brain through sensory stimulation

> > called " Monitored

> > Multi-cortical Activities for Additional Pathways

> > and Synapses, " or

> > MAPS.

> >

>

=== message truncated ===

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