Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Hello- We have been with Dr G for almost 2 years. Things are going SO slowly and still no speech in our son he will be 5 in May. Remind me that we are doing the right thing and that he will eventually come around. We're just in one of those valleys right now and my husband is about ready to give up. There is no doubt he has made some gains, but we sometimes wonder if it's just because he's growing up. Thanks --- Wonderwegian & Chile J & C <carriecox@...> wrote: > Doris, > > Every time I take my son to the local pediatrician > she asks when Dr. Goldberg will be publishing > studies/have peer reviewed studies/ etc. She sees > the improvements in my oldest and knows a cure will > be found one day. I think she wants to believe > but wants to see the proof in writing in a medical > journal or something. > > - in Mobile, AL > > > > __________________________ > Reality lies beyond the horizon... > Wonderwegian > > CBS 5 Investigates: Woman Promises Autism > Cure? > Date: Tue, 26 Feb 2008 08:30:42 -0500 > From: AutismLink <listserv@...> > sjsmith@... > > **CBS 5 Investigates: Woman Promises Autism > Cure?** > > Source: KPIX TV, San Francisco > > http://cbs5.com/investigates/MAPS.autism.cure.2.662695.html > (CBS 5) There are thousands of children in the Bay > Area diagnosed > with autism, and parents are desperate for help. > Families are looking > at all kinds of treatments. But a CBS 5 > investigation uncovers an > autism treatment being promised as a cure. > > It's being pitched at seminars across the country, > several of which > CBS 5 Investigates attended with an undercover > camera. At a seminar > in Orange County, we heart that promise. > > " We are taking about fixing the brain, fixing the > brain forever, " the > program's inventor, Claudie Gordon-Pomares told > parents. She said she > can repair the brain through sensory stimulation > called " Monitored > Multi-cortical Activities for Additional Pathways > and Synapses, " or > MAPS. > > " Of course it works, because it's been proven " > Gordon-Pomares said. > " Doesn't matter the age, doesn't matter how long > parents have tried > something. " > > Who is Gordon-Pomares? Her Canadian center, the > Brain Repair > Institute, has been featured on local news. Her > website shows amazing > before and after results, and parents who like it. > > Gordon-Pomares says it's a miracle cure for the > brain she's spreading > all across North America. Reaching parents > including and Holly > Wetz, whose 5-year-old son was diagnosed > with a type of > autism. > > " Trying to decide what to do, what would be the > best thing to do, was > really overwhelming, " Holly Wetz said. The family > had already tried > many treatments. " We took him off wheat, we took > him off milk, " she > said, which failed to help. > > Although it cost $5,000 for just six months, the > Wetz's decided to > give MAPS a try. > > " When you're a parent with an autistic child and > tried everything, > you know, you're like, 'Wow! We're going to miss > our opportunity, we > better do it,' " Wetz said. > > But one year later, Wetz said " You know we weren't > getting anything. > We kept getting promises. " > > So CBS 5 Investigates went to ask Gordon-Pomares, > who insisted the > treatment works. > > " I believe the brain can fix itself, " she told CBS > 5. > > And why does she say that? " Any brain dysfunction, > any mental > disorder is fundamentally a serotonin and a > dopamine issue, " > Gordon-Pomares said. " So it can be a child with > Down's Syndrome who > has a low level of serotonin. It's not really a > specific diagnosis > more the dysfunction going to the function. " > > " That is what sometimes is termed psychobabble, " > said Dr. Bryna > Siegel, director of the Autism Clinic at UCSF. > Siegel is a world > renowned expert on autism who reviewed the MAPS > program for CBS 5 > Investigates. > > " She's just using concepts that on the surface > sound like she knows > what is going on, " Siegel said. > > Siegel was also shown undercover video of the > seminar recorded by CBS > 5 Investigates. > > " I think I would feel absolutely comfortable > saying that there is no > way that this is a cure for any case of autism, " > Siegel said. > > CBS 5 asked Gordon-Pomares why top experts have > said her program is > not good. > > " Well there are quite a few who say it's good, " > she said. Experts > Gordon-Pomares said, like pioneering brain > researcher and UC Berkeley > professor Mark Rosenzweig. " He said, there's no > problem, I will put my > name behind MAPS and demonstrate it, the validity > of it, to the > world. " > > So CBS 5 Investigates went to ask Rosenzwig about > the MAPS program. > > " Now when you say MAPS, what is MAPS? " Rosenzwig > responded. He said > he has never validated Gordon-Pomares' work as she > claims. " In order > to do that I would have to know about it and look > into it carefully > and I haven't done that, so I don't put my name > behind her work. " > > " Are they taking advantage? " CBS 5 asked Dr. > Siegel. > > " Absolutely, it's totally exploiting a very very > vulnerable > population, " Siegel said. > > Gordon-Pomares responded to Siegel's statement by > saying: " No, I > don't believe a parent who's fighting the world to > save their child > is vulnerable. " > > So is Gordon-Pomares really doing anybody any > harm? === message truncated === ________________________________________________________________________________\ ____ Looking for last minute shopping deals? 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