Test Results - Very Confused

[Guest guest]

I just received a copy of Noah's results from the tests Dr. Goldberg

ordered. I hate to admit this, but I was hoping for more issues than

what the tests indicate to me (how terrible is that). I guess I'm just

afraid that Noah may not be a good candidate.

Here are the abnormal results:

Lymphs - high

Neutrophils - low

Eosinophil - low

Cholesterol - 236 (HDLs in normal range, triglycerides and LDL

high/this from a kid who eats lean meats, veggies and fruit and is slim-

-we do have a strong family history of cholesterol issues though. His

brother who is very skinny has high cholesterol as well, but his HDLs

are high too, so the total is offset).

HHV-6 1:40, with negative being less than 1:20 and the equivocal range

being 1:20 to 1:80. There was a note under these tests results that

said the following: 4-fold rises in titer are suggestive of either

recent, primary or reactivated infection. The presence of elevated

titers to HHV-6 in the absence o fresponses to HAV, HBV, CMV and EBV

are associated with high specificity. (the tests mentioned in the last

sentence Noah was negative to all)

I would appreciate any insight, so I can be as prepared as possible on

Wednesday. I've done some research online, but it's hard to get some of

these clarified.

Thanks!

Robyn

[Guest guest]

Hey Robyn

Don't be too concerned. Most people do not have

significant findings. If they did, then this would

not be soooo difficult to define as a medical

disorder! And in some cases, lab results will tank

after meds are started - suggesting that they are

actually a more accurate picture. That's not so

common either.

HHV6 was practically negative in both my kids - 1:10.

They were both viral kids. My oldest was absolutely

an HHV6 kid ... I saw a real brightening change (yet

again) the first time (after 2 yrs of antivirals) that

his HHV6 titers shot up (like only to 1:360 if I

remember but I think that a couple of studies suggest

that that is the level of an active infection. Anyway

- he was so bright when this happened, and Dr G said

it was probably the immune system finally recognizing

it and beginning to suppress it on it's own. Negative

titers can also be hiding (CMV can do that I think)

and sometimes flush out on antivirals. There are

other viral markers in labs you haven't mentioned.

You want the eosiniphils to be below 1.5% to be in a

range that suggests food allergies aren't too bad

(ideally under 1%). That's great if they're that low.

Any higher than 1.5% and you will have to tighten

down on the diet.

I know exactly what you mean about wanting to see

something significant so that you can have something

to see to treat. That's not a bad way to feel - I

think most of us feel exactly that way. We want to

have something to take to our local docs and say

" See? " . But these labs are mostly screening, and

mostly will show a subtle pattern. There isn't a lab

marker to prove at this time.

You didn't mention immunoglobulins, or immune panels

with Natural Killer cell percentages ... those two can

sometimes have significant findings as well, although

it is less often to have them. But a few kids DO have

some specific immune deficiencies that can be found in

these and it's important to test immunoglobulins.

HTH-

--- Robyn <rngcoggs@...> wrote:

> I just received a copy of Noah's results from the

> tests Dr. Goldberg

> ordered. I hate to admit this, but I was hoping for

> more issues than

> what the tests indicate to me (how terrible is

> that). I guess I'm just

> afraid that Noah may not be a good candidate.

>

> Here are the abnormal results:

>

> Lymphs - high

> Neutrophils - low

> Eosinophil - low

> Cholesterol - 236 (HDLs in normal range,

> triglycerides and LDL

> high/this from a kid who eats lean meats, veggies

> and fruit and is slim-

> -we do have a strong family history of cholesterol

> issues though. His

> brother who is very skinny has high cholesterol as

> well, but his HDLs

> are high too, so the total is offset).

>

> HHV-6 1:40, with negative being less than 1:20 and

> the equivocal range

> being 1:20 to 1:80. There was a note under these

> tests results that

> said the following: 4-fold rises in titer are

> suggestive of either

> recent, primary or reactivated infection. The

> presence of elevated

> titers to HHV-6 in the absence o fresponses to HAV,

> HBV, CMV and EBV

> are associated with high specificity. (the tests

> mentioned in the last

> sentence Noah was negative to all)

>

> I would appreciate any insight, so I can be as

> prepared as possible on

> Wednesday. I've done some research online, but it's

> hard to get some of

> these clarified.

>

> Thanks!

>

> Robyn

>

>

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

and Others:

I'd love to hear more about your children and how they have changed while on

antivirals. My son is a new patient; he began seeing Dr. G a week before

Christmas. Hearing other people's stories is very helpful to me right now.

Thanks,

Re: Test Results - Very Confused

Hey Robyn

Don't be too concerned. Most people do not have

significant findings. If they did, then this would

not be soooo difficult to define as a medical

disorder! And in some cases, lab results will tank

after meds are started - suggesting that they are

actually a more accurate picture. That's not so

common either.

HHV6 was practically negative in both my kids - 1:10.

They were both viral kids. My oldest was absolutely

an HHV6 kid ... I saw a real brightening change (yet

again) the first time (after 2 yrs of antivirals) that

his HHV6 titers shot up (like only to 1:360 if I

remember but I think that a couple of studies suggest

that that is the level of an active infection. Anyway

- he was so bright when this happened, and Dr G said

it was probably the immune system finally recognizing

it and beginning to suppress it on it's own. Negative

titers can also be hiding (CMV can do that I think)

and sometimes flush out on antivirals. There are

other viral markers in labs you haven't mentioned.

You want the eosiniphils to be below 1.5% to be in a

range that suggests food allergies aren't too bad

(ideally under 1%). That's great if they're that low.

Any higher than 1.5% and you will have to tighten

down on the diet.

I know exactly what you mean about wanting to see

something significant so that you can have something

to see to treat. That's not a bad way to feel - I

think most of us feel exactly that way. We want to

have something to take to our local docs and say

" See? " . But these labs are mostly screening, and

mostly will show a subtle pattern. There isn't a lab

marker to prove at this time.

You didn't mention immunoglobulins, or immune panels

with Natural Killer cell percentages ... those two can

sometimes have significant findings as well, although

it is less often to have them. But a few kids DO have

some specific immune deficiencies that can be found in

these and it's important to test immunoglobulins.

HTH-

--- Robyn <rngcoggs@...> wrote:

> I just received a copy of Noah's results from the

> tests Dr. Goldberg

> ordered. I hate to admit this, but I was hoping for

> more issues than

> what the tests indicate to me (how terrible is

> that). I guess I'm just

> afraid that Noah may not be a good candidate.

>

> Here are the abnormal results:

>

> Lymphs - high

> Neutrophils - low

> Eosinophil - low

> Cholesterol - 236 (HDLs in normal range,

> triglycerides and LDL

> high/this from a kid who eats lean meats, veggies

> and fruit and is slim-

> -we do have a strong family history of cholesterol

> issues though. His

> brother who is very skinny has high cholesterol as

> well, but his HDLs

> are high too, so the total is offset).

>

> HHV-6 1:40, with negative being less than 1:20 and

> the equivocal range

> being 1:20 to 1:80. There was a note under these

> tests results that

> said the following: 4-fold rises in titer are

> suggestive of either

> recent, primary or reactivated infection. The

> presence of elevated

> titers to HHV-6 in the absence o fresponses to HAV,

> HBV, CMV and EBV

> are associated with high specificity. (the tests

> mentioned in the last

> sentence Noah was negative to all)

>

> I would appreciate any insight, so I can be as

> prepared as possible on

> Wednesday. I've done some research online, but it's

> hard to get some of

> these clarified.

>

> Thanks!

>

> Robyn

>

>

>

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Thanks, , for the post. It really helps to get a veteran's perspective.

Eosoniphils were " 0, " which surprised me. Dr. G had mentioned them because they

were noted as being in Noah's digestive tract during an endo/colonoscopy in

September. Regarding immunoglobulins and NK cells, everything was frustratingly

normal. I really expected to see something there due to my immunoglobulin

problems. I'm hoping Dr. G might find something subtle there.

Thanks again.

Robyn

<thecolemans4@...> wrote:

Hey Robyn

Don't be too concerned. Most people do not have

significant findings. If they did, then this would

not be soooo difficult to define as a medical

disorder! And in some cases, lab results will tank

after meds are started - suggesting that they are

actually a more accurate picture. That's not so

common either.

HHV6 was practically negative in both my kids - 1:10.

They were both viral kids. My oldest was absolutely

an HHV6 kid ... I saw a real brightening change (yet

again) the first time (after 2 yrs of antivirals) that

his HHV6 titers shot up (like only to 1:360 if I

remember but I think that a couple of studies suggest

that that is the level of an active infection. Anyway

- he was so bright when this happened, and Dr G said

it was probably the immune system finally recognizing

it and beginning to suppress it on it's own. Negative

titers can also be hiding (CMV can do that I think)

and sometimes flush out on antivirals. There are

other viral markers in labs you haven't mentioned.

You want the eosiniphils to be below 1.5% to be in a

range that suggests food allergies aren't too bad

(ideally under 1%). That's great if they're that low.

Any higher than 1.5% and you will have to tighten

down on the diet.

I know exactly what you mean about wanting to see

something significant so that you can have something

to see to treat. That's not a bad way to feel - I

think most of us feel exactly that way. We want to

have something to take to our local docs and say

" See? " . But these labs are mostly screening, and

mostly will show a subtle pattern. There isn't a lab

marker to prove at this time.

You didn't mention immunoglobulins, or immune panels

with Natural Killer cell percentages ... those two can

sometimes have significant findings as well, although

it is less often to have them. But a few kids DO have

some specific immune deficiencies that can be found in

these and it's important to test immunoglobulins.

HTH-

--- Robyn <rngcoggs@...> wrote:

> I just received a copy of Noah's results from the

> tests Dr. Goldberg

> ordered. I hate to admit this, but I was hoping for

> more issues than

> what the tests indicate to me (how terrible is

> that). I guess I'm just

> afraid that Noah may not be a good candidate.

>

> Here are the abnormal results:

>

> Lymphs - high

> Neutrophils - low

> Eosinophil - low

> Cholesterol - 236 (HDLs in normal range,

> triglycerides and LDL

> high/this from a kid who eats lean meats, veggies

> and fruit and is slim-

> -we do have a strong family history of cholesterol

> issues though. His

> brother who is very skinny has high cholesterol as

> well, but his HDLs

> are high too, so the total is offset).

>

> HHV-6 1:40, with negative being less than 1:20 and

> the equivocal range

> being 1:20 to 1:80. There was a note under these

> tests results that

> said the following: 4-fold rises in titer are

> suggestive of either

> recent, primary or reactivated infection. The

> presence of elevated

> titers to HHV-6 in the absence o fresponses to HAV,

> HBV, CMV and EBV

> are associated with high specificity. (the tests

> mentioned in the last

> sentence Noah was negative to all)

>

> I would appreciate any insight, so I can be as

> prepared as possible on

> Wednesday. I've done some research online, but it's

> hard to get some of

> these clarified.

>

> Thanks!

>

> Robyn

>

>

>

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Hi ,

I was very scared to put my son on an antiviral, but I had heard before our

first appointment that Dr. G would probably prescribe one.

We started with Dr. G when my son was 3.5. Several weeks before starting

with Dr. G, my son started drooling. A lot. I was wondering what the heck?!

The dentist had no ideas. I now believe it was viral encephalitis 'taking

over'.

Soon after we started the Valtrex, my son sat on the couch with my husband

for several minutes, reading books. Amazing to us.

Prior to Valtrex, he walked not just on his toes, but on the tops of his

toes (toes curled under his foot). He has DFOs, but I believe the Valtrex

was as helpful as the DFOs.

His titers for HHV-6 have been as high as 10,240:1, but they have come down

considerably with antivirals (and gamastan).

All the 'drugs' Dr. G prescribes freak me out, but I have seen my son become

able to attend a regular kindergarten classroom, sit through church, play

regular soccer, learn to swim, TALK, stay healthy for months at a time

(rather than stay sick for months at a time), tolerate foods we had to

remove from his diet, etc.

Kristy

Re: Test Results - Very Confused

and Others:

I'd love to hear more about your children and how they have changed while

on antivirals. My son is a new patient; he began seeing Dr. G a week before

Christmas. Hearing other people's stories is very helpful to me right now.

Thanks,

Re: Test Results - Very Confused

Hey Robyn

Don't be too concerned. Most people do not have

significant findings. If they did, then this would

not be soooo difficult to define as a medical

disorder! And in some cases, lab results will tank

after meds are started - suggesting that they are

actually a more accurate picture. That's not so

common either.

HHV6 was practically negative in both my kids - 1:10.

They were both viral kids. My oldest was absolutely

an HHV6 kid ... I saw a real brightening change (yet

again) the first time (after 2 yrs of antivirals) that

his HHV6 titers shot up (like only to 1:360 if I

remember but I think that a couple of studies suggest

that that is the level of an active infection. Anyway

- he was so bright when this happened, and Dr G said

it was probably the immune system finally recognizing

it and beginning to suppress it on it's own. Negative

titers can also be hiding (CMV can do that I think)

and sometimes flush out on antivirals. There are

other viral markers in labs you haven't mentioned.

You want the eosiniphils to be below 1.5% to be in a

range that suggests food allergies aren't too bad

(ideally under 1%). That's great if they're that low.

Any higher than 1.5% and you will have to tighten

down on the diet.

I know exactly what you mean about wanting to see

something significant so that you can have something

to see to treat. That's not a bad way to feel - I

think most of us feel exactly that way. We want to

have something to take to our local docs and say

" See? " . But these labs are mostly screening, and

mostly will show a subtle pattern. There isn't a lab

marker to prove at this time.

You didn't mention immunoglobulins, or immune panels

with Natural Killer cell percentages ... those two can

sometimes have significant findings as well, although

it is less often to have them. But a few kids DO have

some specific immune deficiencies that can be found in

these and it's important to test immunoglobulins.

HTH-

--- Robyn <rngcoggs@...> wrote:

> I just received a copy of Noah's results from the

> tests Dr. Goldberg

> ordered. I hate to admit this, but I was hoping for

> more issues than

> what the tests indicate to me (how terrible is

> that). I guess I'm just

> afraid that Noah may not be a good candidate.

>

> Here are the abnormal results:

>

> Lymphs - high

> Neutrophils - low

> Eosinophil - low

> Cholesterol - 236 (HDLs in normal range,

> triglycerides and LDL

> high/this from a kid who eats lean meats, veggies

> and fruit and is slim-

> -we do have a strong family history of cholesterol

> issues though. His

> brother who is very skinny has high cholesterol as

> well, but his HDLs

> are high too, so the total is offset).

>

> HHV-6 1:40, with negative being less than 1:20 and

> the equivocal range

> being 1:20 to 1:80. There was a note under these

> tests results that

> said the following: 4-fold rises in titer are

> suggestive of either

> recent, primary or reactivated infection. The

> presence of elevated

> titers to HHV-6 in the absence o fresponses to HAV,

> HBV, CMV and EBV

> are associated with high specificity. (the tests

> mentioned in the last

> sentence Noah was negative to all)

>

> I would appreciate any insight, so I can be as

> prepared as possible on

> Wednesday. I've done some research online, but it's

> hard to get some of

> these clarified.

>

> Thanks!

>

> Robyn

>

>

>

__________________________________________________________

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

We had about same blood results with HHV6, 1:40. Not high

Cholesterol. Not really cath that much attention. But doctore thought

HHV6 was high, and we had Vltrex. It was immideately that alex

started respond to us when we call him first time. His process time

also improve quite a lot.

Jin

>

> > I just received a copy of Noah's results from the

> > tests Dr. Goldberg

> > ordered. I hate to admit this, but I was hoping for

> > more issues than

> > what the tests indicate to me (how terrible is

> > that). I guess I'm just

> > afraid that Noah may not be a good candidate.

> >

> > Here are the abnormal results:

> >

> > Lymphs - high

> > Neutrophils - low

> > Eosinophil - low

> > Cholesterol - 236 (HDLs in normal range,

> > triglycerides and LDL

> > high/this from a kid who eats lean meats, veggies

> > and fruit and is slim-

> > -we do have a strong family history of cholesterol

> > issues though. His

> > brother who is very skinny has high cholesterol as

> > well, but his HDLs

> > are high too, so the total is offset).

> >

> > HHV-6 1:40, with negative being less than 1:20 and

> > the equivocal range

> > being 1:20 to 1:80. There was a note under these

> > tests results that

> > said the following: 4-fold rises in titer are

> > suggestive of either

> > recent, primary or reactivated infection. The

> > presence of elevated

> > titers to HHV-6 in the absence o fresponses to HAV,

> > HBV, CMV and EBV

> > are associated with high specificity. (the tests

> > mentioned in the last

> > sentence Noah was negative to all)

> >

> > I would appreciate any insight, so I can be as

> > prepared as possible on

> > Wednesday. I've done some research online, but it's

> > hard to get some of

> > these clarified.

> >

> > Thanks!

> >

> > Robyn

> >

> >

> >

>

> __________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

[Guest guest]

Thanks for the info. I personally believe my son is viral and I was hoping to

have an " aha " moment with the blood work. I'm sure Dr. G will have some insight

for us on Wednesday. Thanks, everyone, for your supportive posts.

Robyn

jinyang061629 <yanglou@...> wrote:

We had about same blood results with HHV6, 1:40. Not high

Cholesterol. Not really cath that much attention. But doctore thought

HHV6 was high, and we had Vltrex. It was immideately that alex

started respond to us when we call him first time. His process time

also improve quite a lot.

Jin

>

> > I just received a copy of Noah's results from the

> > tests Dr. Goldberg

> > ordered. I hate to admit this, but I was hoping for

> > more issues than

> > what the tests indicate to me (how terrible is

> > that). I guess I'm just

> > afraid that Noah may not be a good candidate.

> >

> > Here are the abnormal results:

> >

> > Lymphs - high

> > Neutrophils - low

> > Eosinophil - low

> > Cholesterol - 236 (HDLs in normal range,

> > triglycerides and LDL

> > high/this from a kid who eats lean meats, veggies

> > and fruit and is slim-

> > -we do have a strong family history of cholesterol

> > issues though. His

> > brother who is very skinny has high cholesterol as

> > well, but his HDLs

> > are high too, so the total is offset).

> >

> > HHV-6 1:40, with negative being less than 1:20 and

> > the equivocal range

> > being 1:20 to 1:80. There was a note under these

> > tests results that

> > said the following: 4-fold rises in titer are

> > suggestive of either

> > recent, primary or reactivated infection. The

> > presence of elevated

> > titers to HHV-6 in the absence o fresponses to HAV,

> > HBV, CMV and EBV

> > are associated with high specificity. (the tests

> > mentioned in the last

> > sentence Noah was negative to all)

> >

> > I would appreciate any insight, so I can be as

> > prepared as possible on

> > Wednesday. I've done some research online, but it's

> > hard to get some of

> > these clarified.

> >

> > Thanks!

> >

> > Robyn

> >

> >

> >

>

> __________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>