Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Cheryl,Kristy I thought I was living in parallel universe or loosing my mind. It has never happened before. I guess I'll go as Kavita M. lol Kavita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2008 Report Share Posted March 14, 2008 I am new to . Can someone tell me when the SPECT scans are usually done in the treatment timeline? Are they done as an initial baseline and then repeated later? Thanks. Angie --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Angie, Sometimes Dr. Goldberg starts out wanting one right away, sometimes not. I guess it depends on the particular case. If you are traveling from far away, you could do what we did, which was to mention that we¹d be happy to come a day early to get that done since we were making the trip (this was the day before our son¹s initial visit). Caroline From: angie huiz <angiehuiz@...> Reply-< > Date: Fri, 14 Mar 2008 22:03:46 -0700 (PDT) < > Subject: SPECT scans I am new to . Can someone tell me when the SPECT scans are usually done in the treatment timeline? Are they done as an initial baseline and then repeated later? Thanks. Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 As people have already said, it just depends. Some don't get spect scans until much later when dr. G feels he is missing something. Some get them right away and they are usually the more difficult cases - especially the ones that have multiple health issues. We've been seeing Dr. G for a year and a half now and he ordered one for us yet at all. I asked him about it at our initial appointment and he told me then that he generally doesn't do them right off the bat anymore. He waits to see how the treatment goes first. He said he's seen so many of them that he knows what they will look like already and only needs to do them when he feels he needs more info. cheryl On Mar 14, 2008, at 10:03 PM, angie huiz wrote: > I am new to . Can someone tell me when the SPECT scans are > usually done in the treatment timeline? Are they done as an initial > baseline and then repeated later? Thanks. > > Angie > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 My son has been with Dr. G since Oct 2002 and has never had a SPECT scan. - in Mobile, AL __________________________ Reality lies beyond the horizon... Wonderwegian SPECT scans I am new to . Can someone tell me when the SPECT scans are usually done in the treatment timeline? Are they done as an initial baseline and then repeated later? Thanks. Angie --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 I believe he decides that on a case-by-case basis. With my younger son, we needed a neurospect scan because his history was somewhat confusing and some things just didn't fit. In addition, he has a seizure disorder and another neurological disorder called Cyclical Vomiting Syndrome. Dr. G felt he needed a more complete picture of what was going on, so he ordered the neurospect scan on our first visit. My other son is starting with him soon and I really don't expect him to order one for him. HTH, Robyn Wonderwegian & Chile J & C <carriecox@...> wrote: My son has been with Dr. G since Oct 2002 and has never had a SPECT scan. - in Mobile, AL __________________________ Reality lies beyond the horizon... Wonderwegian SPECT scans I am new to . Can someone tell me when the SPECT scans are usually done in the treatment timeline? Are they done as an initial baseline and then repeated later? Thanks. Angie --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Dr. G ordered my son's spect scan only after I asked about it 3 or 4 times. Kristy Re: SPECT scans My son has been with Dr. G since Oct 2002 and has never had a SPECT scan. - in Mobile, AL __________________________ Reality lies beyond the horizon... Wonderwegian SPECT scans I am new to . Can someone tell me when the SPECT scans are usually done in the treatment timeline? Are they done as an initial baseline and then repeated later? Thanks. Angie --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2008 Report Share Posted April 20, 2008 > > Dr. G ordered my son's spect scan only after I asked about it 3 or 4 times. > > Kristy > > Re: SPECT scans > > > My son has been with Dr. G since Oct 2002 and has never had a SPECT scan. > > - in Mobile, AL > > __________________________ > Reality lies beyond the horizon... > Wonderwegian > > SPECT scans > > I am new to . Can someone tell me when the SPECT scans are usually > done in the treatment timeline? Are they done as an initial baseline and > then repeated later? Thanks. > > Angie Does anyone know anything about the risk of the SPECT Scan someone mentioned on the valtrex they would not do this to their child. Carole > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2008 Report Share Posted April 21, 2008 I don't think Dr. G orders it for all patients. With my mild/mod son, we did one right away. I think it was because he had other neuro issues and a very contradictory medical history. With my other Asperger's son, we haven't had one yet. HTH, Robyn chocolatiluv <chocolatiluv@...> wrote: > > Dr. G ordered my son's spect scan only after I asked about it 3 or 4 times. > > Kristy > > Re: SPECT scans > > > My son has been with Dr. G since Oct 2002 and has never had a SPECT scan. > > - in Mobile, AL > > __________________________ > Reality lies beyond the horizon... > Wonderwegian > > SPECT scans > > I am new to . Can someone tell me when the SPECT scans are usually > done in the treatment timeline? Are they done as an initial baseline and > then repeated later? Thanks. > > Angie Does anyone know anything about the risk of the SPECT Scan someone mentioned on the valtrex they would not do this to their child. Carole > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2009 Report Share Posted August 27, 2009 , that is great that your child was helped by HBOT, but sometimes it can be harmful to kids and it doesn't address every medical issue our children may have. For instance, what about viral reactivation? You can really hurt a child. I would not gamble with my child's brain with expensive HBOT. > > and By the way, I treat patients for seizures,and have been funded by CHOC hospital., jr blind and others. My daughter was treated in 1991 for sz and completely recovered. I have been in this field for over 15 years and have never had a child or adult have sz because of HBOT, Rather the reverse, the sz disappear. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2009 Report Share Posted August 27, 2009 What does address every medical issue are children may have? In a message dated 27/08/2009 14:10:32 GMT Daylight Time, jlhank80@... writes: , that is great that your child was helped by HBOT, but sometimes it can be harmful to kids and it doesn't address every medical issue our children may have. For instance, what about viral reactivation? You can really hurt a child. I would not gamble with my child's brain with expensive HBOT. > > and By the way, I treat patients for seizures,and have been funded by CHOC hospital., jr blind and others. My daughter was treated in 1991 for sz and completely recovered. I have been in this field for over 15 years and have never had a child or adult have sz because of HBOT, Rather the reverse, the sz disappear. > > > [Non-text portions of this message have been removed] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 Sorry, I didnt say that right. I know there is no ONE THING that addresses all of our kids issues, but I wanted to express that while I am not doubting that HBOT works for some kids, there are some risks involved, which I wasn't aware of until I talked to some people who sad it gave their kids tics or behavior problems. WE never hear about risks, it get presented as this magic bullet for kids with ASD and it is not. I couldnt afford it or I would have done it in a second 2 years ago! Now I am so glad I am broke :-D - > > > > and By the way, I treat patients for seizures,and have been funded by > CHOC hospital., jr blind and others. My daughter was treated in 1991 for sz > and completely recovered. I have been in this field for over 15 years and > have never had a child or adult have sz because of HBOT, Rather the reverse, > the sz disappear. > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 The SPECT scans on a lot of these kids who've had HBOT are not normal, too, which is a little scary. Too much perfusion! Where I believe that HBOT may have its benefits in other areas, do we really know what it does to a growing, developing brain? All the best, Robyn From: jlhank80 <jlhank80@...> Subject: Re: Spect scans Date: Wednesday, September 16, 2009, 7:20 AM Sorry, I didnt say that right. I know there is no ONE THING that addresses all of our kids issues, but I wanted to express that while I am not doubting that HBOT works for some kids, there are some risks involved, which I wasn't aware of until I talked to some people who sad it gave their kids tics or behavior problems. WE never hear about risks, it get presented as this magic bullet for kids with ASD and it is not. I couldnt afford it or I would have done it in a second 2 years ago! Now I am so glad I am broke :-D - > > > > and By the way, I treat patients for seizures,and have been funded by > CHOC hospital., jr blind and others. My daughter was treated in 1991 for sz > and completely recovered. I have been in this field for over 15 years and > have never had a child or adult have sz because of HBOT, Rather the reverse, > the sz disappear. > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Ok I get what you are saying and personally I have not used HBOT on either of my boy's. But if I was considering it as an option (and I have been there with FFW AIT GFCF Neurofeedback plus about to embark on cogmed and the list and expense goes on) I would be scared about all the talk on hypo and hyper etc. But once I got through that I would want to access any scientific evidence that demonstrates that the hypo and hyper states had not existed before HBOT and so it would be reasonable to attribute these changes to HBOT in the absence of any other rational explanation and so stay well clear of a possibly unregulated and potentially damaging treatment! So please if the studies exist can someone please tell me where to access them because I have asked before. It seems logical to me that the application of any treatment should be as a result of an individualised assessment which may or may not recommend said therapy but as parents we can only form views on evidence and not simply on possibly anecdotal views. The older of my two boy's who saw Dr G last December had a SPECT scan and he had hyper and hypo perfusion present without ever having been near HBOT. In a message dated 16/09/2009 16:58:19 GMT Daylight Time, rngcoggs@... writes: The SPECT scans on a lot of these kids who've had HBOT are not normal, too, which is a little scary. Too much perfusion! Where I believe that HBOT may have its benefits in other areas, do we really know what it does to a growing, developing brain? All the best, Robyn From: jlhank80 <_jlhank80@..._ (mailto:jlhank80@...) > Subject: Re: Spect scans _@..._ (mailto: ) Date: Wednesday, September 16, 2009, 7:20 AM Sorry, I didnt say that right. I know there is no ONE THING that addresses all of our kids issues, but I wanted to express that while I am not doubting that HBOT works for some kids, there are some risks involved, which I wasn't aware of until I talked to some people who sad it gave their kids tics or behavior problems. WE never hear about risks, it get presented as this magic bullet for kids with ASD and it is not. I couldnt afford it or I would have done it in a second 2 years ago! Now I am so glad I am broke :-D - > > > > and By the way, I treat patients for seizures,and have been funded by > CHOC hospital., jr blind and others. My daughter was treated in 1991 for sz > and completely recovered. I have been in this field for over 15 years and > have never had a child or adult have sz because of HBOT, Rather the reverse, > the sz disappear. > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Not that I want to go back and forth about this here...but my bottom line was that there is NO WAY to predict the long term effects and consequences of HBOT. Or excess free radical damage. who knows. Yes some of our kids have hypo and hyperperfusion but HBOT can aggravate that and what do you do about hyperperfusion due to excess O2 exposure? Can you reverse it? I dont know. And if our kids really have immune dysfunction is HBOT going to take care of the ROOT issue? What about viral reactivation (I dont know too much about this, just heard of it..) I am just urging caution, that is all. Just because the DAN people do it, it doesnt make it right. They are learning too. - > > > > > > > > and By the way, I treat patients for seizures,and have been funded by > > > CHOC hospital., jr blind and others. My daughter was treated in 1991 for > sz > > > and completely recovered. I have been in this field for over 15 years > and > > > have never had a child or adult have sz because of HBOT, Rather the > reverse, > > > the sz disappear. > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Would the HBOT take care of the hypoperfusion caused by the viral infections which most of the children with " A " have? I haven't read it would.... JR From: [mailto: ] On Behalf Of Sent: Saturday, September 19, 2009 2:40 PM Subject: Re: Spect scans Not that I want to go back and forth about this here...but my bottom line was that there is NO WAY to predict the long term effects and consequences of HBOT. Or excess free radical damage. who knows. Yes some of our kids have hypo and hyperperfusion but HBOT can aggravate that and what do you do about hyperperfusion due to excess O2 exposure? Can you reverse it? I dont know. And if our kids really have immune dysfunction is HBOT going to take care of the ROOT issue? What about viral reactivation (I dont know too much about this, just heard of it..) I am just urging caution, that is all. Just because the DAN people do it, it doesnt make it right. They are learning too. - > > > > > > > > and By the way, I treat patients for seizures,and have been funded by > > > CHOC hospital., jr blind and others. My daughter was treated in 1991 for > sz > > > and completely recovered. I have been in this field for over 15 years > and > > > have never had a child or adult have sz because of HBOT, Rather the > reverse, > > > the sz disappear. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 One thing that stands out to me is that in CFS, which the hypothesis is based on, has some research showing that there is a problem with oxygen toxicity .... I can't relate what the studies show, but if I remember, Chaney (?) has some research published. I haven't looked into it much since I'm simply not interested in HBOT, but it might be interesting to go back and look at that research and learn how it relates to this particular treatment. ________________________________ From: <jlhank80@...> Sent: Saturday, September 19, 2009 2:39:49 PM Subject: Re: Spect scans Not that I want to go back and forth about this here...but my bottom line was that there is NO WAY to predict the long term effects and consequences of HBOT. Or excess free radical damage. who knows. Yes some of our kids have hypo and hyperperfusion but HBOT can aggravate that and what do you do about hyperperfusion due to excess O2 exposure? Can you reverse it? I dont know. And if our kids really have immune dysfunction is HBOT going to take care of the ROOT issue? What about viral reactivation (I dont know too much about this, just heard of it..) I am just urging caution, that is all. Just because the DAN people do it, it doesnt make it right. They are learning too. - > > > > > > > > and By the way, I treat patients for seizures,and have been funded by > > > CHOC hospital., jr blind and others. My daughter was treated in 1991 for > sz > > > and completely recovered. I have been in this field for over 15 years > and > > > have never had a child or adult have sz because of HBOT, Rather the > reverse, > > > the sz disappear. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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