Hi Barbara,The docs who are truly informed are in a dilemma because their own medical boards frown on the very protocols that work. The ILADS board is made up of docs selected for their LACK of involvement in alternative protocols (to eliminate bias,

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Hi Barbara,The docs who are truly informed are in a dilemma because their own medical boards frown on the very protocols that work. The ILADS board is made up of docs selected for their LACK of involvement in alternative protocols (to eliminate bias, i guess, but this also eliminates knowledge). Many LLMDs are hounded out of the profession, and some particularly heroic docs are forced by medical boards to hire watch-dog doc assistants to safeguard their compliance with ridiculous AMA guide-lines that don't work, or give up practicing medicine altogether. Others have been driven deep into debt by costly legal expenses fighting to defend their good methods against a medical bureaucracy that's decades behind.I really feel for knowledgeable docs, constrained and powerless to advance the field of Lyme-fighting. I know of one who obliquely hinted to a woman with Lyme (who had two kids with it also) that a Rife machine would be the wisest investment for her family. He could have lost his medical license just saying that! What a brave, caring man!I don't think doctors are bad people: they're just in a legal/political bind where they're not all that much use to some of us. I'd love to be able to rely on a doctor (actually, gave them 40 years to get it right) but since I've come to rely on myself and other questing Lymies, i've begun to finally get well.Better late than never!Be well,Léna lena,i have to say, after all the abx i have been on, knowing what i know today, would never have gone that route either. not only did it really not help me, but actually caused more damage, as you explained, in the gut etc. i do understand the feeling of desperation of wanting to do what the dr suggests. with my llmd, they acknowledged that the abx may not cure me and i had to sign a form acknowledging that. so, did they really know the slim chance of no cure, and suggest the abx route as 'business' for them. i sometimes wonder. when, after 18 mo. we both decided it was not working, and i had found info about rifing, i asked him. i had no idea which to get, but he knew right off, the doug coil. so again, did he know abx wouldn't work? he was very familiar with the coil. i know many llmd want to help, but i now, do wonder, if they know abx won't work. are we just 'business' to them, just like the regular drs? i have seen so much more improvement with people on this site from alternative methods over conventional abx. there are many to choose from, and wish i had this info first, before the abx. i think i would be much farther ahead right now if i had known the alternatives first. just my personal observation.barbara Believe me, I was there, and had no LLMD, no caretaker, I was looking at the end of me and had to somehow (and i don't know now how I even did it) be my own caregiver. I was in horrible pain, could barely turn over in bed, or even sign my own name; brain-fog in the extreme, waking in the morning trying to think of how I could end things without hurting those I loved. Depression was intense: wished for death all the time, even though I figured it was brain-chemistry causing these thoughts. The thing that saved me from even considering abx was my horrible past experience with my gut. it simply wasn't an option and S & C, Rifing, and serious attention to detox was. Lithium orotate and the TCM An Shen Bu Xin Wan got my brain/will to live back. Coffee enemas, got the toxins out of my brain, along with French green clay, K-Mag KG, and chlorella binding metals, so i could begin to think better. These things and slow ramping up of protocols I learned in groups slowly got me from circling the drain to 90% back. I'm not saying not to do abx. I'm just saying it's not a permanent fix (and sometimes, in extremity, short-term is what's needed) You may have to deal with the sequelae of encysted pathogens later on and that's not pretty. I've seen many who were fooled into thinking abx had cured them and the discovery that abx hadn't done this was devastating later, especially after they'd by then compromised their gut, which, after all, is the major part of the immune system. It's a hard bargain. Be well,Léna i hear you, buuuut... when you can't think you can do almost nothing- including the research needed to get permanently better. Ideally, we would have full-time caretakers doing all our research for us, and care for us and measure our dosages and take care of life but i didn't have that. i AM that person to 5 little ones. I had to get clear before I could even begin getting better. also it was worth it to feel better because i was suicidal, thinking it would never end. It saved my life by making me feel better enough to keep on fighting.just another perspective -sarah To: Lyme_and_Rife From: drumroll@... Date: Tue, 17 Jan 2012 11:06:19 -0600Subject: Re: OT: Thoughts on Flagyl? My only concern about abx is that happy reports of their use are in the past tense,('was', 'gave me my life back', 'was totally worth it.) Yes, abx 'did' help many people, but I've witnessed so many Lymies limping into these groups after the bugs that were encysted by abx have finally come out of hiding with a vengeance, that I pray never to have to use abx, for anything, ever again. These critters can hide from 6 to 20 years, and when they come out, rather than the one that went into cyst, it can now be 5! (My lyme-mycoplasma was treated with abx over 30 years ago and the results were 1.5 years of hell in my gut. never again.) If you have a truly knowledgeable LLMD who knows how to pulse these drugs, maybe, but there aren't many of them from what I've witnessed. Be well,Léna flagyl was a miracle drug for me. I was on iv abx for 6 mos and added oral flagyl for the last 2 months. It gave me back my brain.it changed my taste- food tasted different, but it was totally worth it! avoid all alcohol- including mouthwash, etc while using it, or you will get very sick. YMMV-sarahlange To: Lyme_and_Rife From: malindabross@... Date: Tue, 17 Jan 2012 12:37:13 +0000Subject: OT: Thoughts on Flagyl? Hello everyone! It has been ages since I have been on this forum. I hope everyone is doing well. Life has been pretty hectic this past year....four new grandchildren =) .....including a baby that my son and dil adopted born with multiple medical issues, including no arms, club-foot, g-tube feedings.... So we have been busy.... But life is good and we are enjoying it. My son with lyme since 2001, reinfected in 2002, and again this past summer is doing well. He was treated with two months of antibiotics in 2001 and 2002. However, other than that, he was treatly only naturally with the guidance of our ND. Then this summer to treat his new reinfection we went to an LLMD. He has been on doxycycline since July and ceftin since about October. We never thought we would do long-term antibiotics, but he muscle-tests positive for both antibiotics with both the ND and the DC. And he is doing great. However, we both fear the day he goes off the antibiotics. =/ We've been around this community long enough to know what can happen after the abx, which is why we have chosen in the past to not do them. But now the LLMD wants to start Flagyl. I know others have used this, but I forget what the general feeling of it has been. Recommended or not? It has been quite easy in the past to do the abx even though we didn't want to because he muscle-tested for it. We are not sure what to do if he does not test for the Flagyl and yet the LLMD recommends it. That is where I am hoping you guys can help. I'd like to hear thoughts and opinions on Flagyl. Blessings to all, Malinda