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Re: Re: Help with communication... PECS?

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At five (he's now 7) my son's speech was limited to single words. Now he speaks

in complete sentences but still has to be prompted. Regarding PECS, they worked

for us in the beginning (at 3-5 years of age), but I had to insist at one point

we drop them because he would use them in place of speech. I believe the trick

with PECS is to know when to stop using it--when it becomes a replacement for

verbal communication instead of an enhancement. If your son is really

frustrated, PECS is probably a good option, as long as it's paired with speech.

I've seen some aides in SDC that will accept a PECS sentence strip in place of a

verbal exchange. In the beginning that's OK, as long as the therapist/aide is

verbalizing the request back to him and he's responding. After a while my son

would " read " the sentence strip he created. When he mastered this, we removed

the book. The IEP team didn't want to remove the PECS book, but we knew Noah

could verbalize and I felt that PECS was

becoming a crutch. We took it away and he began to verbalize more. One day,

though, he found his old PECS book and started giving me icons instead of

verbalizing. Needless to say, I found a better hiding place, LOL.

PECS can be a great tool for jump starting reciprocal communication. You may

want to start by asking your team how they would implement PECS and how and

under what circumstances they would phase it out.

I hope that helps. This is just my experience with PECS, and I definitely can

see Dr. G's point. That's why it's so important craft specific goals for the use

of PECS, so that it doesn't become your son's primary means of communication.

The ultimate goal for using PECS should be verbal exchange.

All the best,

Robyn

Curtis and Hackler <thehacks@...> wrote:

My son is almost to turn 5 & is still non-verbal. He

makes sounds, but has no speech. I am very stressed

about it & Dr G says not to do anything " extra " just

speech therapy and talking to him. While I respect

him completely, I am also feeling very worried about

him not talking. School speech paths recommend PECS,

picture exchange system, and say that it enhances

speech instead of preventing it. Part of me wants to

give it a try, but I don't want to do anything to set

him back or make him have to " unlearn " . Anybody had a

similar experience or any thoughts/advice? I'm really

worried about his speech! He is showing cognitive

improvement, just nothing verbal.

Thanks!

--- Argie Olivo <golivo@...> wrote:

> Hi Alaine,

>

> We started using Kyodophylus twice a day, cut out

> brown rice & brown

> sugar all at the same time and my son's

> " reflux/gagging " stopped

> completely.

>

> I hope this helps.

>

>

> On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

>

> > Hi all,

> >

> > I see alot of postings about probiotics. Can you

> give my some

> > practical info - how do they interact/enhance the

> rest of the

> > protocol; what affects (positive or negative) have

> you seen once

> > you're

> > using them?

> >

> > I have noticed that, if 's on an antibiotic

> (amoxicillin), he

> > seems

> > more sharp and engaged. Don't know if others have

> noticed this or

> > not -

> > he's recovering from a sinus infection, so he's

> taking it now; he also

> > had an infected finger a couple of months ago, and

> we saw the same

> > affect then.

> >

> > Thanks! Alaine

> >

> >

> >

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

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My son's special preschool class tried to do PECS with him. They did a PECS

schedule chart to help ease transitions. He didn't care for it and never went

to get pictures to communicate. He'd just go to the object/place he wanted-

even if it was running out the door to do so. He started asking (saying a

simple word or such) for what he wanted about a year later.

I don't see how PECS would hurt, unless it is drilled into him (i.e. not letting

him have a drink until he gets/points to the proper picture.)

But if the PECS are just there, on a board or something, I think it might help

since the kids tend to be visual learners.

My son is now 9 years old but his expressive language is about a 3-4 year old

level. He will say simple phrases or sentences and you can see the wheels

turning in his brain trying to get things out.

The only language he had until he was about 5-6 years old were scripted movie

lines and songs. And a few simple words like " mommy " and " water " and " cookie " .

It's slow going, but there is hope.

- in Mobile, AL

__________________________

Reality lies beyond the horizon...

Wonderwegian

Re: Help with communication... PECS?

My son is almost to turn 5 & is still non-verbal. He

makes sounds, but has no speech. I am very stressed

about it & Dr G says not to do anything " extra " just

speech therapy and talking to him. While I respect

him completely, I am also feeling very worried about

him not talking. School speech paths recommend PECS,

picture exchange system, and say that it enhances

speech instead of preventing it. Part of me wants to

give it a try, but I don't want to do anything to set

him back or make him have to " unlearn " . Anybody had a

similar experience or any thoughts/advice? I'm really

worried about his speech! He is showing cognitive

improvement, just nothing verbal.

Thanks!

--- Argie Olivo <golivo@...> wrote:

> Hi Alaine,

>

> We started using Kyodophylus twice a day, cut out

> brown rice & brown

> sugar all at the same time and my son's

> " reflux/gagging " stopped

> completely.

>

> I hope this helps.

>

>

> On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

>

> > Hi all,

> >

> > I see alot of postings about probiotics. Can you

> give my some

> > practical info - how do they interact/enhance the

> rest of the

> > protocol; what affects (positive or negative) have

> you seen once

> > you're

> > using them?

> >

> > I have noticed that, if 's on an antibiotic

> (amoxicillin), he

> > seems

> > more sharp and engaged. Don't know if others have

> noticed this or

> > not -

> > he's recovering from a sinus infection, so he's

> taking it now; he also

> > had an infected finger a couple of months ago, and

> we saw the same

> > affect then.

> >

> > Thanks! Alaine

> >

> >

> >

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

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Hi ,

As a speech-language pathologist, please realize that doing " speech therapy "

can mean using strategies such as PECS, sign language, voice output systems,

oral motor activities, computer based training like Fast ForWord, etc...I

don't know Dr. G. but most of the doctors that I work with and who refer to

me assume I am going to figure out which of the speech-language techniques I

know will be appropriate for the kids I am working with...

As important as " speech " is, what's even more important is " language, "

" communication, " and " interaction. " There are many ways that we all do these

things---through speech, writing, electronics, pictures, gestures,etc. It's

important to try to keep all of these modalities going with our kids

so, that's my 2 cents---

Ann

On Tue, Mar 18, 2008 at 12:10 PM, Curtis and Hackler <

thehacks@...> wrote:

> My son is almost to turn 5 & is still non-verbal. He

> makes sounds, but has no speech. I am very stressed

> about it & Dr G says not to do anything " extra " just

> speech therapy and talking to him. While I respect

> him completely, I am also feeling very worried about

> him not talking. School speech paths recommend PECS,

> picture exchange system, and say that it enhances

> speech instead of preventing it. Part of me wants to

> give it a try, but I don't want to do anything to set

> him back or make him have to " unlearn " . Anybody had a

> similar experience or any thoughts/advice? I'm really

> worried about his speech! He is showing cognitive

> improvement, just nothing verbal.

> Thanks!

>

> --- Argie Olivo <golivo@... <golivo%40cox.net>> wrote:

>

> > Hi Alaine,

> >

> > We started using Kyodophylus twice a day, cut out

> > brown rice & brown

> > sugar all at the same time and my son's

> > " reflux/gagging " stopped

> > completely.

> >

> > I hope this helps.

> >

> >

> > On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

> >

> > > Hi all,

> > >

> > > I see alot of postings about probiotics. Can you

> > give my some

> > > practical info - how do they interact/enhance the

> > rest of the

> > > protocol; what affects (positive or negative) have

> > you seen once

> > > you're

> > > using them?

> > >

> > > I have noticed that, if 's on an antibiotic

> > (amoxicillin), he

> > > seems

> > > more sharp and engaged. Don't know if others have

> > noticed this or

> > > not -

> > > he's recovering from a sinus infection, so he's

> > taking it now; he also

> > > had an infected finger a couple of months ago, and

> > we saw the same

> > > affect then.

> > >

> > > Thanks! Alaine

> > >

> > >

> > >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________________

> Looking for last minute shopping deals?

> Find them fast with Search.

> http://tools.search./newsearch/category.php?category=shopping

>

>

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Guest guest

you are absolutely right Cheryl--thanks for your post!

Ann

On Tue, Mar 18, 2008 at 4:19 PM, Cheryl Lowrance <c.lowrance@...>

wrote:

> I think PECS is awesome. You need to give him a way to communicate

> and I can tell you that my son used pictures for a while and they

> really do help with speech. It's not guaranteed but I definitely

> don't think it hurts. I don't think this is something that Dr. G

> would be opposed to anyway as it is a part of many speech therapy

> programs. It can really help to build up confidence and motivation.

> When you give them a means to communicate, you give them the desire

> to communicate more.

>

> cheryl

>

>

> On Mar 18, 2008, at 10:10 AM, Curtis and Hackler wrote:

>

> > My son is almost to turn 5 & is still non-verbal. He

> > makes sounds, but has no speech. I am very stressed

> > about it & Dr G says not to do anything " extra " just

> > speech therapy and talking to him. While I respect

> > him completely, I am also feeling very worried about

> > him not talking. School speech paths recommend PECS,

> > picture exchange system, and say that it enhances

> > speech instead of preventing it. Part of me wants to

> > give it a try, but I don't want to do anything to set

> > him back or make him have to " unlearn " . Anybody had a

> > similar experience or any thoughts/advice? I'm really

> > worried about his speech! He is showing cognitive

> > improvement, just nothing verbal.

> > Thanks!

> >

> > --- Argie Olivo <golivo@... <golivo%40cox.net>> wrote:

> >

> > > Hi Alaine,

> > >

> > > We started using Kyodophylus twice a day, cut out

> > > brown rice & brown

> > > sugar all at the same time and my son's

> > > " reflux/gagging " stopped

> > > completely.

> > >

> > > I hope this helps.

> > >

> > >

> > > On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

> > >

> > > > Hi all,

> > > >

> > > > I see alot of postings about probiotics. Can you

> > > give my some

> > > > practical info - how do they interact/enhance the

> > > rest of the

> > > > protocol; what affects (positive or negative) have

> > > you seen once

> > > > you're

> > > > using them?

> > > >

> > > > I have noticed that, if 's on an antibiotic

> > > (amoxicillin), he

> > > > seems

> > > > more sharp and engaged. Don't know if others have

> > > noticed this or

> > > > not -

> > > > he's recovering from a sinus infection, so he's

> > > taking it now; he also

> > > > had an infected finger a couple of months ago, and

> > > we saw the same

> > > > affect then.

> > > >

> > > > Thanks! Alaine

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> > __________________________________________________________

> > Looking for last minute shopping deals?

> > Find them fast with Search. http://tools.search./

> > newsearch/category.php?category=shopping

> >

> >

>

>

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By the time my son was ready to give up PECS, he was building sentences on a

velcro strip using his PECS. He used a small binder that contained all of his

symbols divided into categories (such as " food, " " play, " etc.) and a fold out

sentence strip where he could affix the pictures. We had one of these books for

home and one for school. I agree with Cheryl that it encourages speech if done

correctly. Plus it gives them more self confidence in social interactions when

they have more of a chance of successfully communicating their wants and needs.

We stopped using PECS when Noah was verbally requesting even when the book

wasn't around. Any opportunity you can give him to communicate--whether that's

using PECS or a computer keyboard--is great and should help him acquire

language.

Good luck,

Robyn

Curtis and Hackler <thehacks@...> wrote:

Cheryl-

Would you mind telling me a bit more about your

experience with using PECS? How was it introduced to

your son, did he carry a little " travel size " book

with him everywhere or was it mainly used at home &

school? Did he speak before using PECS and when/how

did you know when to stop the PECS?

Sorry for all the questions, I just want to know from

someone who has actually used it, not just read about

it. I'm kind of tired of all the experts in the world

who don't live this life! :-)

THanks-

--- Cheryl Lowrance <c.lowrance@...> wrote:

> I think PECS is awesome. You need to give him a way

> to communicate

> and I can tell you that my son used pictures for a

> while and they

> really do help with speech. It's not guaranteed but

> I definitely

> don't think it hurts. I don't think this is

> something that Dr. G

> would be opposed to anyway as it is a part of many

> speech therapy

> programs. It can really help to build up confidence

> and motivation.

> When you give them a means to communicate, you give

> them the desire

> to communicate more.

>

> cheryl

>

> On Mar 18, 2008, at 10:10 AM, Curtis and

> Hackler wrote:

>

> > My son is almost to turn 5 & is still non-verbal.

> He

> > makes sounds, but has no speech. I am very

> stressed

> > about it & Dr G says not to do anything " extra "

> just

> > speech therapy and talking to him. While I respect

> > him completely, I am also feeling very worried

> about

> > him not talking. School speech paths recommend

> PECS,

> > picture exchange system, and say that it enhances

> > speech instead of preventing it. Part of me wants

> to

> > give it a try, but I don't want to do anything to

> set

> > him back or make him have to " unlearn " . Anybody

> had a

> > similar experience or any thoughts/advice? I'm

> really

> > worried about his speech! He is showing cognitive

> > improvement, just nothing verbal.

> > Thanks!

> >

> > --- Argie Olivo <golivo@...> wrote:

> >

> > > Hi Alaine,

> > >

> > > We started using Kyodophylus twice a day, cut

> out

> > > brown rice & brown

> > > sugar all at the same time and my son's

> > > " reflux/gagging " stopped

> > > completely.

> > >

> > > I hope this helps.

> > >

> > >

> > > On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

> > >

> > > > Hi all,

> > > >

> > > > I see alot of postings about probiotics. Can

> you

> > > give my some

> > > > practical info - how do they interact/enhance

> the

> > > rest of the

> > > > protocol; what affects (positive or negative)

> have

> > > you seen once

> > > > you're

> > > > using them?

> > > >

> > > > I have noticed that, if 's on an

> antibiotic

> > > (amoxicillin), he

> > > > seems

> > > > more sharp and engaged. Don't know if others

> have

> > > noticed this or

> > > > not -

> > > > he's recovering from a sinus infection, so

> he's

> > > taking it now; he also

> > > > had an infected finger a couple of months ago,

> and

> > > we saw the same

> > > > affect then.

> > > >

> > > > Thanks! Alaine

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

>

__________________________________________________________

> > Looking for last minute shopping deals?

> > Find them fast with Search.

> http://tools.search./

> > newsearch/category.php?category=shopping

> >

> >

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

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We never moved beyond picture scheduling and pictures for basic

things. When we started the protocol speech took off and there

really wasn't a need for it. You'll know when you don't need it

anymore as you'll be relying on it less and less. So we never got to

full blown PECS.

My friend's son uses the whole system and it's been a life saver for

them. It really helped to bring language and calm behaviors due to

frustration. She does have the full book and uses a mini book when

out and about. One of the biggest things it helped with in her son

is the fact that he is soooooo rigid. He would throw a fit if she

said one thing and had to make a change on where they were going. So

she was able to PECS any changes and he understood. He didn't always

like it but he did understand! :) He slowly gained speech and now

he doesn't need it as much. She used it for *everything*. What he

ate, what he drank, tv shows, bath time, etc. It really helped to

connect the pictures with the words.

For us, we really just use it now for picture scheduling on tough

days in ABA. And we don't even use pictures anymore, we just draw it

out. 3 activities and then his reward. So we'll draw out (for

instance) letters in one box for writing, candyland for a turn taking

activity, and a book for reading and recall and then the last box

we'll draw whatever he wants to do (like a sword for sword

fighting). On the tough days it works well but it's definitely not

perfect! :)

Cheryl

On Mar 18, 2008, at 3:42 PM, Curtis and Hackler wrote:

> Cheryl-

> Would you mind telling me a bit more about your

> experience with using PECS? How was it introduced to

> your son, did he carry a little " travel size " book

> with him everywhere or was it mainly used at home &

> school? Did he speak before using PECS and when/how

> did you know when to stop the PECS?

>

> Sorry for all the questions, I just want to know from

> someone who has actually used it, not just read about

> it. I'm kind of tired of all the experts in the world

> who don't live this life! :-)

>

> THanks-

> --- Cheryl Lowrance <c.lowrance@...> wrote:

>

> > I think PECS is awesome. You need to give him a way

> > to communicate

> > and I can tell you that my son used pictures for a

> > while and they

> > really do help with speech. It's not guaranteed but

> > I definitely

> > don't think it hurts. I don't think this is

> > something that Dr. G

> > would be opposed to anyway as it is a part of many

> > speech therapy

> > programs. It can really help to build up confidence

> > and motivation.

> > When you give them a means to communicate, you give

> > them the desire

> > to communicate more.

> >

> > cheryl

> >

> > On Mar 18, 2008, at 10:10 AM, Curtis and

> > Hackler wrote:

> >

> > > My son is almost to turn 5 & is still non-verbal.

> > He

> > > makes sounds, but has no speech. I am very

> > stressed

> > > about it & Dr G says not to do anything " extra "

> > just

> > > speech therapy and talking to him. While I respect

> > > him completely, I am also feeling very worried

> > about

> > > him not talking. School speech paths recommend

> > PECS,

> > > picture exchange system, and say that it enhances

> > > speech instead of preventing it. Part of me wants

> > to

> > > give it a try, but I don't want to do anything to

> > set

> > > him back or make him have to " unlearn " . Anybody

> > had a

> > > similar experience or any thoughts/advice? I'm

> > really

> > > worried about his speech! He is showing cognitive

> > > improvement, just nothing verbal.

> > > Thanks!

> > >

> > > --- Argie Olivo <golivo@...> wrote:

> > >

> > > > Hi Alaine,

> > > >

> > > > We started using Kyodophylus twice a day, cut

> > out

> > > > brown rice & brown

> > > > sugar all at the same time and my son's

> > > > " reflux/gagging " stopped

> > > > completely.

> > > >

> > > > I hope this helps.

> > > >

> > > >

> > > > On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

> > > >

> > > > > Hi all,

> > > > >

> > > > > I see alot of postings about probiotics. Can

> > you

> > > > give my some

> > > > > practical info - how do they interact/enhance

> > the

> > > > rest of the

> > > > > protocol; what affects (positive or negative)

> > have

> > > > you seen once

> > > > > you're

> > > > > using them?

> > > > >

> > > > > I have noticed that, if 's on an

> > antibiotic

> > > > (amoxicillin), he

> > > > > seems

> > > > > more sharp and engaged. Don't know if others

> > have

> > > > noticed this or

> > > > > not -

> > > > > he's recovering from a sinus infection, so

> > he's

> > > > taking it now; he also

> > > > > had an infected finger a couple of months ago,

> > and

> > > > we saw the same

> > > > > affect then.

> > > > >

> > > > > Thanks! Alaine

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> >

> __________________________________________________________

> > > Looking for last minute shopping deals?

> > > Find them fast with Search.

> > http://tools.search./

> > > newsearch/category.php?category=shopping

> > >

> > >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now. http://

> mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

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I do agree. I was reluctant to embrace alternate

communication systems in fear that they would replace

the speech we were striving for. _ It was a big

mistake - In retrospect any tools that help marry

concepts with eventual words is a great asset. The

Primary problem with my son (Now nine and recently

verbal) was audio-sensory issues.. He was able to

learn written words first and slowly incorporated

those words into his conceptual understanding. When

the verbal came he already had the written and

conceptual understanding of the images married to the

written words. It came very fast on the protocol.

The bottom line is the neurological connection to

language was the transition from audio-hearing

translation issues to verbalization. All of our

learning was visual so do embrace the visual tools in

conjunction with written words, Teach him how to read

while you prompt speech. Connor could read long before

he would talk without prompting.

As the health issues come under control the verbal

growth will be based on his ability to grasp concepts.

Four grade has been great.

--- Cheryl Lowrance <c.lowrance@...> wrote:

> We never moved beyond picture scheduling and

> pictures for basic

> things. When we started the protocol speech

> took off and there

> really wasn't a need for it. You'll know when you

> don't need it

> anymore as you'll be relying on it less and less.

> So we never got to

> full blown PECS.

>

> My friend's son uses the whole system and it's been

> a life saver for

> them. It really helped to bring language and calm

> behaviors due to

> frustration. She does have the full book and uses a

> mini book when

> out and about. One of the biggest things it helped

> with in her son

> is the fact that he is soooooo rigid. He would

> throw a fit if she

> said one thing and had to make a change on where

> they were going. So

> she was able to PECS any changes and he understood.

> He didn't always

> like it but he did understand! :) He slowly gained

> speech and now

> he doesn't need it as much. She used it for

> *everything*. What he

> ate, what he drank, tv shows, bath time, etc. It

> really helped to

> connect the pictures with the words.

>

> For us, we really just use it now for picture

> scheduling on tough

> days in ABA. And we don't even use pictures

> anymore, we just draw it

> out. 3 activities and then his reward. So we'll

> draw out (for

> instance) letters in one box for writing, candyland

> for a turn taking

> activity, and a book for reading and recall and then

> the last box

> we'll draw whatever he wants to do (like a sword for

> sword

> fighting). On the tough days it works well but it's

> definitely not

> perfect! :)

>

> Cheryl

>

>

>

> On Mar 18, 2008, at 3:42 PM, Curtis and

> Hackler wrote:

>

> > Cheryl-

> > Would you mind telling me a bit more about your

> > experience with using PECS? How was it introduced

> to

> > your son, did he carry a little " travel size " book

> > with him everywhere or was it mainly used at home

> &

> > school? Did he speak before using PECS and

> when/how

> > did you know when to stop the PECS?

> >

> > Sorry for all the questions, I just want to know

> from

> > someone who has actually used it, not just read

> about

> > it. I'm kind of tired of all the experts in the

> world

> > who don't live this life! :-)

> >

> > THanks-

> > --- Cheryl Lowrance <c.lowrance@...> wrote:

> >

> > > I think PECS is awesome. You need to give him a

> way

> > > to communicate

> > > and I can tell you that my son used pictures for

> a

> > > while and they

> > > really do help with speech. It's not guaranteed

> but

> > > I definitely

> > > don't think it hurts. I don't think this is

> > > something that Dr. G

> > > would be opposed to anyway as it is a part of

> many

> > > speech therapy

> > > programs. It can really help to build up

> confidence

> > > and motivation.

> > > When you give them a means to communicate, you

> give

> > > them the desire

> > > to communicate more.

> > >

> > > cheryl

> > >

> > > On Mar 18, 2008, at 10:10 AM, Curtis and

> > > Hackler wrote:

> > >

> > > > My son is almost to turn 5 & is still

> non-verbal.

> > > He

> > > > makes sounds, but has no speech. I am very

> > > stressed

> > > > about it & Dr G says not to do anything

> " extra "

> > > just

> > > > speech therapy and talking to him. While I

> respect

> > > > him completely, I am also feeling very worried

> > > about

> > > > him not talking. School speech paths recommend

> > > PECS,

> > > > picture exchange system, and say that it

> enhances

> > > > speech instead of preventing it. Part of me

> wants

> > > to

> > > > give it a try, but I don't want to do anything

> to

> > > set

> > > > him back or make him have to " unlearn " .

> Anybody

> > > had a

> > > > similar experience or any thoughts/advice? I'm

> > > really

> > > > worried about his speech! He is showing

> cognitive

> > > > improvement, just nothing verbal.

> > > > Thanks!

> > > >

> > > > --- Argie Olivo <golivo@...> wrote:

> > > >

> > > > > Hi Alaine,

> > > > >

> > > > > We started using Kyodophylus twice a day,

> cut

> > > out

> > > > > brown rice & brown

> > > > > sugar all at the same time and my son's

> > > > > " reflux/gagging " stopped

> > > > > completely.

> > > > >

> > > > > I hope this helps.

> > > > >

> > > > >

> > > > > On Mar 15, 2008, at 12:44 PM, alaine0617

> wrote:

> > > > >

> > > > > > Hi all,

> > > > > >

> > > > > > I see alot of postings about probiotics.

> Can

> > > you

> > > > > give my some

> > > > > > practical info - how do they

> interact/enhance

> > > the

> > > > > rest of the

> > > > > > protocol; what affects (positive or

> negative)

> > > have

> > > > > you seen once

> > > > > > you're

> > > > > > using them?

> > > > > >

> > > > > > I have noticed that, if 's on an

> > > antibiotic

> > > > > (amoxicillin), he

> > > > > > seems

> > > > > > more sharp and engaged. Don't know if

> others

> > > have

> > > > > noticed this or

> > > > > > not -

> > > > > > he's recovering from a sinus infection, so

> > > he's

> > > > > taking it now; he also

> > > > > > had an infected finger a couple of months

> ago,

> > > and

> > > > > we saw the same

> > > > > > affect then.

> > > > > >

> > > > > > Thanks! Alaine

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > > [Non-text portions of this message have been

> > > > > removed]

> > > > >

> > > > >

> > > >

>

=== message truncated ===

________________________________________________________________________________\

____

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Guest guest

Can someone tell me why children who have the ability to use pecs are not taught

sign language? I can not figure out for the life of me why the school does not

want to go this route with my daughter when she is clearly capable of learning

the language. Instead they want to use the PECS. I can't see them being

practical because who wants to carry them around and she is limited by the cards

that we have with us. Sheri

Cheryl Lowrance <c.lowrance@...> wrote: We never moved beyond

picture scheduling and pictures for basic

things. When we started the protocol speech took off and there

really wasn't a need for it. You'll know when you don't need it

anymore as you'll be relying on it less and less. So we never got to

full blown PECS.

My friend's son uses the whole system and it's been a life saver for

them. It really helped to bring language and calm behaviors due to

frustration. She does have the full book and uses a mini book when

out and about. One of the biggest things it helped with in her son

is the fact that he is soooooo rigid. He would throw a fit if she

said one thing and had to make a change on where they were going. So

she was able to PECS any changes and he understood. He didn't always

like it but he did understand! :) He slowly gained speech and now

he doesn't need it as much. She used it for *everything*. What he

ate, what he drank, tv shows, bath time, etc. It really helped to

connect the pictures with the words.

For us, we really just use it now for picture scheduling on tough

days in ABA. And we don't even use pictures anymore, we just draw it

out. 3 activities and then his reward. So we'll draw out (for

instance) letters in one box for writing, candyland for a turn taking

activity, and a book for reading and recall and then the last box

we'll draw whatever he wants to do (like a sword for sword

fighting). On the tough days it works well but it's definitely not

perfect! :)

Cheryl

On Mar 18, 2008, at 3:42 PM, Curtis and Hackler wrote:

> Cheryl-

> Would you mind telling me a bit more about your

> experience with using PECS? How was it introduced to

> your son, did he carry a little " travel size " book

> with him everywhere or was it mainly used at home &

> school? Did he speak before using PECS and when/how

> did you know when to stop the PECS?

>

> Sorry for all the questions, I just want to know from

> someone who has actually used it, not just read about

> it. I'm kind of tired of all the experts in the world

> who don't live this life! :-)

>

> THanks-

> --- Cheryl Lowrance <c.lowrance@...> wrote:

>

> > I think PECS is awesome. You need to give him a way

> > to communicate

> > and I can tell you that my son used pictures for a

> > while and they

> > really do help with speech. It's not guaranteed but

> > I definitely

> > don't think it hurts. I don't think this is

> > something that Dr. G

> > would be opposed to anyway as it is a part of many

> > speech therapy

> > programs. It can really help to build up confidence

> > and motivation.

> > When you give them a means to communicate, you give

> > them the desire

> > to communicate more.

> >

> > cheryl

> >

> > On Mar 18, 2008, at 10:10 AM, Curtis and

> > Hackler wrote:

> >

> > > My son is almost to turn 5 & is still non-verbal.

> > He

> > > makes sounds, but has no speech. I am very

> > stressed

> > > about it & Dr G says not to do anything " extra "

> > just

> > > speech therapy and talking to him. While I respect

> > > him completely, I am also feeling very worried

> > about

> > > him not talking. School speech paths recommend

> > PECS,

> > > picture exchange system, and say that it enhances

> > > speech instead of preventing it. Part of me wants

> > to

> > > give it a try, but I don't want to do anything to

> > set

> > > him back or make him have to " unlearn " . Anybody

> > had a

> > > similar experience or any thoughts/advice? I'm

> > really

> > > worried about his speech! He is showing cognitive

> > > improvement, just nothing verbal.

> > > Thanks!

> > >

> > > --- Argie Olivo <golivo@...> wrote:

> > >

> > > > Hi Alaine,

> > > >

> > > > We started using Kyodophylus twice a day, cut

> > out

> > > > brown rice & brown

> > > > sugar all at the same time and my son's

> > > > " reflux/gagging " stopped

> > > > completely.

> > > >

> > > > I hope this helps.

> > > >

> > > >

> > > > On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

> > > >

> > > > > Hi all,

> > > > >

> > > > > I see alot of postings about probiotics. Can

> > you

> > > > give my some

> > > > > practical info - how do they interact/enhance

> > the

> > > > rest of the

> > > > > protocol; what affects (positive or negative)

> > have

> > > > you seen once

> > > > > you're

> > > > > using them?

> > > > >

> > > > > I have noticed that, if 's on an

> > antibiotic

> > > > (amoxicillin), he

> > > > > seems

> > > > > more sharp and engaged. Don't know if others

> > have

> > > > noticed this or

> > > > > not -

> > > > > he's recovering from a sinus infection, so

> > he's

> > > > taking it now; he also

> > > > > had an infected finger a couple of months ago,

> > and

> > > > we saw the same

> > > > > affect then.

> > > > >

> > > > > Thanks! Alaine

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> >

> __________________________________________________________

> > > Looking for last minute shopping deals?

> > > Find them fast with Search.

> > http://tools.search./

> > > newsearch/category.php?category=shopping

> > >

> > >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now. http://

> mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

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Guest guest

In addition, research supports the fact that speech develops on top of the

communication (and concepts). There is NOT any research that shows

alternative or augmentative communication strategies and systems impedes the

development of speech.

ann

On 3/18/08, Bill klimas <klimas_bill@...> wrote:

>

> I do agree. I was reluctant to embrace alternate

> communication systems in fear that they would replace

> the speech we were striving for. _ It was a big

> mistake - In retrospect any tools that help marry

> concepts with eventual words is a great asset. The

> Primary problem with my son (Now nine and recently

> verbal) was audio-sensory issues.. He was able to

> learn written words first and slowly incorporated

> those words into his conceptual understanding. When

> the verbal came he already had the written and

> conceptual understanding of the images married to the

> written words. It came very fast on the protocol.

>

> The bottom line is the neurological connection to

> language was the transition from audio-hearing

> translation issues to verbalization. All of our

> learning was visual so do embrace the visual tools in

> conjunction with written words, Teach him how to read

> while you prompt speech. Connor could read long before

> he would talk without prompting.

>

> As the health issues come under control the verbal

> growth will be based on his ability to grasp concepts.

>

> Four grade has been great.

>

> --- Cheryl Lowrance <c.lowrance@... <c.lowrance%40ca.rr.com>> wrote:

>

> > We never moved beyond picture scheduling and

> > pictures for basic

> > things. When we started the protocol speech

> > took off and there

> > really wasn't a need for it. You'll know when you

> > don't need it

> > anymore as you'll be relying on it less and less.

> > So we never got to

> > full blown PECS.

> >

> > My friend's son uses the whole system and it's been

> > a life saver for

> > them. It really helped to bring language and calm

> > behaviors due to

> > frustration. She does have the full book and uses a

> > mini book when

> > out and about. One of the biggest things it helped

> > with in her son

> > is the fact that he is soooooo rigid. He would

> > throw a fit if she

> > said one thing and had to make a change on where

> > they were going. So

> > she was able to PECS any changes and he understood.

> > He didn't always

> > like it but he did understand! :) He slowly gained

> > speech and now

> > he doesn't need it as much. She used it for

> > *everything*. What he

> > ate, what he drank, tv shows, bath time, etc. It

> > really helped to

> > connect the pictures with the words.

> >

> > For us, we really just use it now for picture

> > scheduling on tough

> > days in ABA. And we don't even use pictures

> > anymore, we just draw it

> > out. 3 activities and then his reward. So we'll

> > draw out (for

> > instance) letters in one box for writing, candyland

> > for a turn taking

> > activity, and a book for reading and recall and then

> > the last box

> > we'll draw whatever he wants to do (like a sword for

> > sword

> > fighting). On the tough days it works well but it's

> > definitely not

> > perfect! :)

> >

> > Cheryl

> >

> >

> >

> > On Mar 18, 2008, at 3:42 PM, Curtis and

> > Hackler wrote:

> >

> > > Cheryl-

> > > Would you mind telling me a bit more about your

> > > experience with using PECS? How was it introduced

> > to

> > > your son, did he carry a little " travel size " book

> > > with him everywhere or was it mainly used at home

> > &

> > > school? Did he speak before using PECS and

> > when/how

> > > did you know when to stop the PECS?

> > >

> > > Sorry for all the questions, I just want to know

> > from

> > > someone who has actually used it, not just read

> > about

> > > it. I'm kind of tired of all the experts in the

> > world

> > > who don't live this life! :-)

> > >

> > > THanks-

> > > --- Cheryl Lowrance <c.lowrance@... <c.lowrance%40ca.rr.com>>

> wrote:

> > >

> > > > I think PECS is awesome. You need to give him a

> > way

> > > > to communicate

> > > > and I can tell you that my son used pictures for

> > a

> > > > while and they

> > > > really do help with speech. It's not guaranteed

> > but

> > > > I definitely

> > > > don't think it hurts. I don't think this is

> > > > something that Dr. G

> > > > would be opposed to anyway as it is a part of

> > many

> > > > speech therapy

> > > > programs. It can really help to build up

> > confidence

> > > > and motivation.

> > > > When you give them a means to communicate, you

> > give

> > > > them the desire

> > > > to communicate more.

> > > >

> > > > cheryl

> > > >

> > > > On Mar 18, 2008, at 10:10 AM, Curtis and

> > > > Hackler wrote:

> > > >

> > > > > My son is almost to turn 5 & is still

> > non-verbal.

> > > > He

> > > > > makes sounds, but has no speech. I am very

> > > > stressed

> > > > > about it & Dr G says not to do anything

> > " extra "

> > > > just

> > > > > speech therapy and talking to him. While I

> > respect

> > > > > him completely, I am also feeling very worried

> > > > about

> > > > > him not talking. School speech paths recommend

> > > > PECS,

> > > > > picture exchange system, and say that it

> > enhances

> > > > > speech instead of preventing it. Part of me

> > wants

> > > > to

> > > > > give it a try, but I don't want to do anything

> > to

> > > > set

> > > > > him back or make him have to " unlearn " .

> > Anybody

> > > > had a

> > > > > similar experience or any thoughts/advice? I'm

> > > > really

> > > > > worried about his speech! He is showing

> > cognitive

> > > > > improvement, just nothing verbal.

> > > > > Thanks!

> > > > >

> > > > > --- Argie Olivo <golivo@... <golivo%40cox.net>> wrote:

> > > > >

> > > > > > Hi Alaine,

> > > > > >

> > > > > > We started using Kyodophylus twice a day,

> > cut

> > > > out

> > > > > > brown rice & brown

> > > > > > sugar all at the same time and my son's

> > > > > > " reflux/gagging " stopped

> > > > > > completely.

> > > > > >

> > > > > > I hope this helps.

> > > > > >

> > > > > >

> > > > > > On Mar 15, 2008, at 12:44 PM, alaine0617

> > wrote:

> > > > > >

> > > > > > > Hi all,

> > > > > > >

> > > > > > > I see alot of postings about probiotics.

> > Can

> > > > you

> > > > > > give my some

> > > > > > > practical info - how do they

> > interact/enhance

> > > > the

> > > > > > rest of the

> > > > > > > protocol; what affects (positive or

> > negative)

> > > > have

> > > > > > you seen once

> > > > > > > you're

> > > > > > > using them?

> > > > > > >

> > > > > > > I have noticed that, if 's on an

> > > > antibiotic

> > > > > > (amoxicillin), he

> > > > > > > seems

> > > > > > > more sharp and engaged. Don't know if

> > others

> > > > have

> > > > > > noticed this or

> > > > > > > not -

> > > > > > > he's recovering from a sinus infection, so

> > > > he's

> > > > > > taking it now; he also

> > > > > > > had an infected finger a couple of months

> > ago,

> > > > and

> > > > > > we saw the same

> > > > > > > affect then.

> > > > > > >

> > > > > > > Thanks! Alaine

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > [Non-text portions of this message have been

> > > > > > removed]

> > > > > >

> > > > > >

> > > > >

> >

> === message truncated ===

>

> __________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

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Share on other sites

Guest guest

This sounds odd to me because usually sign *is* a part of an SLP

program, if the child is able and willing. And it's used in *many*

schools starting in preschool. Heck, it's used on Blues Clues!

cheryl

On Mar 18, 2008, at 8:07 PM, Sheri wrote:

> Can someone tell me why children who have the ability to use pecs

> are not taught sign language? I can not figure out for the life of

> me why the school does not want to go this route with my daughter

> when she is clearly capable of learning the language. Instead they

> want to use the PECS. I can't see them being practical because who

> wants to carry them around and she is limited by the cards that we

> have with us. Sheri

>

> Cheryl Lowrance <c.lowrance@...> wrote: We never moved beyond

> picture scheduling and pictures for basic

> things. When we started the protocol speech took off and there

> really wasn't a need for it. You'll know when you don't need it

> anymore as you'll be relying on it less and less. So we never got to

> full blown PECS.

>

> My friend's son uses the whole system and it's been a life saver for

> them. It really helped to bring language and calm behaviors due to

> frustration. She does have the full book and uses a mini book when

> out and about. One of the biggest things it helped with in her son

> is the fact that he is soooooo rigid. He would throw a fit if she

> said one thing and had to make a change on where they were going. So

> she was able to PECS any changes and he understood. He didn't always

> like it but he did understand! :) He slowly gained speech and now

> he doesn't need it as much. She used it for *everything*. What he

> ate, what he drank, tv shows, bath time, etc. It really helped to

> connect the pictures with the words.

>

> For us, we really just use it now for picture scheduling on tough

> days in ABA. And we don't even use pictures anymore, we just draw it

> out. 3 activities and then his reward. So we'll draw out (for

> instance) letters in one box for writing, candyland for a turn taking

> activity, and a book for reading and recall and then the last box

> we'll draw whatever he wants to do (like a sword for sword

> fighting). On the tough days it works well but it's definitely not

> perfect! :)

>

> Cheryl

>

> On Mar 18, 2008, at 3:42 PM, Curtis and Hackler wrote:

>

> > Cheryl-

> > Would you mind telling me a bit more about your

> > experience with using PECS? How was it introduced to

> > your son, did he carry a little " travel size " book

> > with him everywhere or was it mainly used at home &

> > school? Did he speak before using PECS and when/how

> > did you know when to stop the PECS?

> >

> > Sorry for all the questions, I just want to know from

> > someone who has actually used it, not just read about

> > it. I'm kind of tired of all the experts in the world

> > who don't live this life! :-)

> >

> > THanks-

> > --- Cheryl Lowrance <c.lowrance@...> wrote:

> >

> > > I think PECS is awesome. You need to give him a way

> > > to communicate

> > > and I can tell you that my son used pictures for a

> > > while and they

> > > really do help with speech. It's not guaranteed but

> > > I definitely

> > > don't think it hurts. I don't think this is

> > > something that Dr. G

> > > would be opposed to anyway as it is a part of many

> > > speech therapy

> > > programs. It can really help to build up confidence

> > > and motivation.

> > > When you give them a means to communicate, you give

> > > them the desire

> > > to communicate more.

> > >

> > > cheryl

> > >

> > > On Mar 18, 2008, at 10:10 AM, Curtis and

> > > Hackler wrote:

> > >

> > > > My son is almost to turn 5 & is still non-verbal.

> > > He

> > > > makes sounds, but has no speech. I am very

> > > stressed

> > > > about it & Dr G says not to do anything " extra "

> > > just

> > > > speech therapy and talking to him. While I respect

> > > > him completely, I am also feeling very worried

> > > about

> > > > him not talking. School speech paths recommend

> > > PECS,

> > > > picture exchange system, and say that it enhances

> > > > speech instead of preventing it. Part of me wants

> > > to

> > > > give it a try, but I don't want to do anything to

> > > set

> > > > him back or make him have to " unlearn " . Anybody

> > > had a

> > > > similar experience or any thoughts/advice? I'm

> > > really

> > > > worried about his speech! He is showing cognitive

> > > > improvement, just nothing verbal.

> > > > Thanks!

> > > >

> > > > --- Argie Olivo <golivo@...> wrote:

> > > >

> > > > > Hi Alaine,

> > > > >

> > > > > We started using Kyodophylus twice a day, cut

> > > out

> > > > > brown rice & brown

> > > > > sugar all at the same time and my son's

> > > > > " reflux/gagging " stopped

> > > > > completely.

> > > > >

> > > > > I hope this helps.

> > > > >

> > > > >

> > > > > On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

> > > > >

> > > > > > Hi all,

> > > > > >

> > > > > > I see alot of postings about probiotics. Can

> > > you

> > > > > give my some

> > > > > > practical info - how do they interact/enhance

> > > the

> > > > > rest of the

> > > > > > protocol; what affects (positive or negative)

> > > have

> > > > > you seen once

> > > > > > you're

> > > > > > using them?

> > > > > >

> > > > > > I have noticed that, if 's on an

> > > antibiotic

> > > > > (amoxicillin), he

> > > > > > seems

> > > > > > more sharp and engaged. Don't know if others

> > > have

> > > > > noticed this or

> > > > > > not -

> > > > > > he's recovering from a sinus infection, so

> > > he's

> > > > > taking it now; he also

> > > > > > had an infected finger a couple of months ago,

> > > and

> > > > > we saw the same

> > > > > > affect then.

> > > > > >

> > > > > > Thanks! Alaine

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > > [Non-text portions of this message have been

> > > > > removed]

> > > > >

> > > > >

> > > >

> > > >

> > >

> > __________________________________________________________

> > > > Looking for last minute shopping deals?

> > > > Find them fast with Search.

> > > http://tools.search./

> > > > newsearch/category.php?category=shopping

> > > >

> > > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

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I was reading through all the replies today and I have to say, I

don't think not using PECS or sign is what Dr. G meant by only doing

speech therapy and talking to him. Obviously I can't speak for him

but I have to believe that he meant he didn't want you to go try HBOT

or DMG or Carnosine and such to try to get speech. These are things

done in the DAN protocol and he doesn't agree with them and I think

that's probably more along the line of what he meant by that comment.

cheryl

On Mar 18, 2008, at 10:10 AM, Curtis and Hackler wrote:

> My son is almost to turn 5 & is still non-verbal. He

> makes sounds, but has no speech. I am very stressed

> about it & Dr G says not to do anything " extra " just

> speech therapy and talking to him. While I respect

> him completely, I am also feeling very worried about

> him not talking. School speech paths recommend PECS,

> picture exchange system, and say that it enhances

> speech instead of preventing it. Part of me wants to

> give it a try, but I don't want to do anything to set

> him back or make him have to " unlearn " . Anybody had a

> similar experience or any thoughts/advice? I'm really

> worried about his speech! He is showing cognitive

> improvement, just nothing verbal.

> Thanks!

>

> --- Argie Olivo <golivo@...> wrote:

>

> > Hi Alaine,

> >

> > We started using Kyodophylus twice a day, cut out

> > brown rice & brown

> > sugar all at the same time and my son's

> > " reflux/gagging " stopped

> > completely.

> >

> > I hope this helps.

> >

> >

> > On Mar 15, 2008, at 12:44 PM, alaine0617 wrote:

> >

> > > Hi all,

> > >

> > > I see alot of postings about probiotics. Can you

> > give my some

> > > practical info - how do they interact/enhance the

> > rest of the

> > > protocol; what affects (positive or negative) have

> > you seen once

> > > you're

> > > using them?

> > >

> > > I have noticed that, if 's on an antibiotic

> > (amoxicillin), he

> > > seems

> > > more sharp and engaged. Don't know if others have

> > noticed this or

> > > not -

> > > he's recovering from a sinus infection, so he's

> > taking it now; he also

> > > had an infected finger a couple of months ago, and

> > we saw the same

> > > affect then.

> > >

> > > Thanks! Alaine

> > >

> > >

> > >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

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