Re: Re: Varicella titers +

[Guest guest]

Hi, my son has IgM antibodies to MEasles and mumps, I have found that as we

continue with valtrex, which isn't even for that, but his immune system seems to

get better, those titers are falling, because his owm system will begin to deal

with that, it is very scary, we have these 2 1/2 years post vaccination. If you

do find out any info, please share. Hope this helps, Noel

LINDA A <lsa5885@...> wrote:

Hi all,

Last week a friend of mine, who's also a pediatrician with a child with ASD,

thought it would be a good idea to check my sons Varicella titers. After

reviewing his vaccinations and his history of immune disorders, it was pretty

obvious that his health declined after the MMR and Varicella which was given

along with the HIB.

has persistent low grade fevers, cannot get off antibiotics, and like most

of our kids does well on antivirals.(Valtrex)

She was curious to see what his Varicella titers were.

Well, now we have a problem, as he still has a detectable level of IgM to

Varicella, and a high ,ACIF (IgG). He received his vaccination eight years ago.

He should have cleared the IgM within weeks to a few months.

Last week he was also diagnosed with a IgG deficiency, and after reading about

this, he should never have been given many of his vaccinations, especially

Varicella, OPV and MMR.

What I'm worried about is that he may have Varicella circulating in his CSF

affecting his brain.

Has anyone had a similar issue with their child and does anyone know of a GREAT

infectious disease doctor that treats children on the spectrum ?

Also, I was thinking about Dr. Singh in Utah. Has anyone had any experience with

him? (neuroimmunologist)

Thanks so much,

[Guest guest]

Thanks Noel,

has been on Valtrex for 5+ years, so I know that it keeps to virus at bay,

but hasn't gotten rid of it. Not sure if or how we can? His immune system seems

to be worse now than ever. His IgG in the past has been on the low side of

normal but now it's definitely low, based on his recent labs. I wonder what his

Varicella IgM/IgG would be off the Valtrex ? BTW, my son also has a high measles

IgG titer, but no detectable IgM to measles.

I'll keep you informed when I find more information on this.

Take care,

@...: schneid99@...: Wed, 19 Mar 2008

07:40:38 -0700Subject: Re: Re: Varicella titers +

Hi, my son has IgM antibodies to MEasles and mumps, I have found that as we

continue with valtrex, which isn't even for that, but his immune system seems to

get better, those titers are falling, because his owm system will begin to deal

with that, it is very scary, we have these 2 1/2 years post vaccination. If you

do find out any info, please share. Hope this helps, NoelLINDA A

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's also a

pediatrician with a child with ASD, thought it would be a good idea to check my

sons Varicella titers. After reviewing his vaccinations and his history of

immune disorders, it was pretty obvious that his health declined after the MMR

and Varicella which was given along with the HIB. has persistent low grade

fevers, cannot get off antibiotics, and like most of our kids does well on

antivirals.(Valtrex)She was curious to see what his Varicella titers were. Well,

now we have a problem, as he still has a detectable level of IgM to Varicella,

and a high ,ACIF (IgG). He received his vaccination eight years ago. He should

have cleared the IgM within weeks to a few months.Last week he was also

diagnosed with a IgG deficiency, and after reading about this, he should never

have been given many of his vaccinations, especially Varicella, OPV and MMR.

What I'm worried about is that he may have Varicella circulating in his CSF

affecting his brain. Has anyone had a similar issue with their child and does

anyone know of a GREAT infectious disease doctor that treats children on the

spectrum ? Also, I was thinking about Dr. Singh in Utah. Has anyone had any

experience with him? (neuroimmunologist)Thanks so much, [Non-text portions

of this message have been removed]Sincerely Noel[Non-text portions of this

message have been removed]

[Guest guest]

, Valtrex never brought our titers down. We did see huge gains

with it but no change in titers. We switched to Famvir and didn't

see any change so after a couple months we switched to Zovirax and we

are now seeing the titers move. Maybe you need to switch antivirals.

Cheryl

On Mar 19, 2008, at 8:10 AM, LINDA A wrote:

>

> Thanks Noel,

>

> has been on Valtrex for 5+ years, so I know that it keeps to

> virus at bay, but hasn't gotten rid of it. Not sure if or how we

> can? His immune system seems to be worse now than ever. His IgG in

> the past has been on the low side of normal but now it's definitely

> low, based on his recent labs. I wonder what his Varicella IgM/IgG

> would be off the Valtrex ? BTW, my son also has a high measles IgG

> titer, but no detectable IgM to measles.

>

> I'll keep you informed when I find more information on this.

>

> Take care,

>

>

>

> @...: schneid99@...: Wed, 19

> Mar 2008 07:40:38 -0700Subject: Re: Re: Varicella titers +

>

> Hi, my son has IgM antibodies to MEasles and mumps, I have found

> that as we continue with valtrex, which isn't even for that, but

> his immune system seems to get better, those titers are falling,

> because his owm system will begin to deal with that, it is very

> scary, we have these 2 1/2 years post vaccination. If you do find

> out any info, please share. Hope this helps, NoelLINDA A

> <lsa5885@...> wrote: Hi all,Last week a friend of mine, who's

> also a pediatrician with a child with ASD, thought it would be a

> good idea to check my sons Varicella titers. After reviewing his

> vaccinations and his history of immune disorders, it was pretty

> obvious that his health declined after the MMR and Varicella which

> was given along with the HIB. has persistent low grade fevers,

> cannot get off antibiotics, and like most of our kids does well on

> antivirals.(Valtrex)She was curious to see what his Varicella

> titers were. Well, now we have a problem, as he still has a

> detectable level of IgM to Varicella, and a high ,ACIF (IgG). He

> received his vaccination eight years ago. He should have cleared

> the IgM within weeks to a few months.Last week he was also

> diagnosed with a IgG deficiency, and after reading about this, he

> should never have been given many of his vaccinations, especially

> Varicella, OPV and MMR. What I'm worried about is that he may have

> Varicella circulating in his CSF affecting his brain. Has anyone

> had a similar issue with their child and does anyone know of a

> GREAT infectious disease doctor that treats children on the

> spectrum ? Also, I was thinking about Dr. Singh in Utah. Has anyone

> had any experience with him? (neuroimmunologist)Thanks so much,

>

[Guest guest]

Hi Cheryl,

Good point, were tried Famvir once, and he was a disaster on it. I think it may

have been the lactose in it. Maybe we'll give Zovirax a try. How often is it

dosed and do you know the typical amount given to a 55lb, nine year old?

TIA,

@...: c.lowrance@...: Wed, 19 Mar 2008

08:42:24 -0700Subject: Re: Re: Varicella titers +

, Valtrex never brought our titers down. We did see huge gains with it but

no change in titers. We switched to Famvir and didn't see any change so after a

couple months we switched to Zovirax and we are now seeing the titers move.

Maybe you need to switch antivirals.CherylOn Mar 19, 2008, at 8:10 AM, LINDA A

wrote:>> Thanks Noel,>> has been on Valtrex for 5+ years, so I know that it

keeps to > virus at bay, but hasn't gotten rid of it. Not sure if or how we >

can? His immune system seems to be worse now than ever. His IgG in > the past

has been on the low side of normal but now it's definitely > low, based on his

recent labs. I wonder what his Varicella IgM/IgG > would be off the Valtrex ?

BTW, my son also has a high measles IgG > titer, but no detectable IgM to

measles.>> I'll keep you informed when I find more information on this.>> Take

care,>> >> @...: schneid99@...: Wed,

19 > Mar 2008 07:40:38 -0700Subject: Re: Re: Varicella titers +>> Hi, my

son has IgM antibodies to MEasles and mumps, I have found > that as we continue

with valtrex, which isn't even for that, but > his immune system seems to get

better, those titers are falling, > because his owm system will begin to deal

with that, it is very > scary, we have these 2 1/2 years post vaccination. If

you do find > out any info, please share. Hope this helps, NoelLINDA A >

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's > also a

pediatrician with a child with ASD, thought it would be a > good idea to check

my sons Varicella titers. After reviewing his > vaccinations and his history of

immune disorders, it was pretty > obvious that his health declined after the MMR

and Varicella which > was given along with the HIB. has persistent low grade

fevers, > cannot get off antibiotics, and like most of our kids does well on >

antivirals.(Valtrex)She was curious to see what his Varicella > titers were.

Well, now we have a problem, as he still has a > detectable level of IgM to

Varicella, and a high ,ACIF (IgG). He > received his vaccination eight years

ago. He should have cleared > the IgM within weeks to a few months.Last week he

was also > diagnosed with a IgG deficiency, and after reading about this, he >

should never have been given many of his vaccinations, especially > Varicella,

OPV and MMR. What I'm worried about is that he may have > Varicella circulating

in his CSF affecting his brain. Has anyone > had a similar issue with their

child and does anyone know of a > GREAT infectious disease doctor that treats

children on the > spectrum ? Also, I was thinking about Dr. Singh in Utah. Has

anyone > had any experience with him? (neuroimmunologist)Thanks so much, >

[Guest guest]

Cheryl,

I forgot to ask you what titers were high and was the IgG and IgM high. Our

problem is that the IgM is positive and it should not be?

@...: c.lowrance@...: Wed, 19 Mar 2008

08:42:24 -0700Subject: Re: Re: Varicella titers +

, Valtrex never brought our titers down. We did see huge gains with it but

no change in titers. We switched to Famvir and didn't see any change so after a

couple months we switched to Zovirax and we are now seeing the titers move.

Maybe you need to switch antivirals.CherylOn Mar 19, 2008, at 8:10 AM, LINDA A

wrote:>> Thanks Noel,>> has been on Valtrex for 5+ years, so I know that it

keeps to > virus at bay, but hasn't gotten rid of it. Not sure if or how we >

can? His immune system seems to be worse now than ever. His IgG in > the past

has been on the low side of normal but now it's definitely > low, based on his

recent labs. I wonder what his Varicella IgM/IgG > would be off the Valtrex ?

BTW, my son also has a high measles IgG > titer, but no detectable IgM to

measles.>> I'll keep you informed when I find more information on this.>> Take

care,>> >> @...: schneid99@...: Wed,

19 > Mar 2008 07:40:38 -0700Subject: Re: Re: Varicella titers +>> Hi, my

son has IgM antibodies to MEasles and mumps, I have found > that as we continue

with valtrex, which isn't even for that, but > his immune system seems to get

better, those titers are falling, > because his owm system will begin to deal

with that, it is very > scary, we have these 2 1/2 years post vaccination. If

you do find > out any info, please share. Hope this helps, NoelLINDA A >

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's > also a

pediatrician with a child with ASD, thought it would be a > good idea to check

my sons Varicella titers. After reviewing his > vaccinations and his history of

immune disorders, it was pretty > obvious that his health declined after the MMR

and Varicella which > was given along with the HIB. has persistent low grade

fevers, > cannot get off antibiotics, and like most of our kids does well on >

antivirals.(Valtrex)She was curious to see what his Varicella > titers were.

Well, now we have a problem, as he still has a > detectable level of IgM to

Varicella, and a high ,ACIF (IgG). He > received his vaccination eight years

ago. He should have cleared > the IgM within weeks to a few months.Last week he

was also > diagnosed with a IgG deficiency, and after reading about this, he >

should never have been given many of his vaccinations, especially > Varicella,

OPV and MMR. What I'm worried about is that he may have > Varicella circulating

in his CSF affecting his brain. Has anyone > had a similar issue with their

child and does anyone know of a > GREAT infectious disease doctor that treats

children on the > spectrum ? Also, I was thinking about Dr. Singh in Utah. Has

anyone > had any experience with him? (neuroimmunologist)Thanks so much, >

[Guest guest]

You know, I just looked and it was IgG and IgM was negative. You

might want to also consider adding in IMIG or IVIG. Dr. G prefers

IMIG over IVIG as he feels it has less risk (it goes through an extra

processing step). IgM signifies recent exposure so having high

titers the entire time is obviously not a good thing. Unfortunately,

I don't know enough about this stuff to tell you what it means. Are

you a current patient of Dr. G's? If not, you should probably go to

the next chat and ask him what this means and what to do about it.

Sorry I can't offer better info!

cheryl

On Mar 19, 2008, at 12:20 PM, LINDA A wrote:

>

> Cheryl,

>

> I forgot to ask you what titers were high and was the IgG and IgM

> high. Our problem is that the IgM is positive and it should not be?

>

> @...: c.lowrance@...: Wed, 19 Mar

> 2008 08:42:24 -0700Subject: Re: Re: Varicella titers +

>

> , Valtrex never brought our titers down. We did see huge gains

> with it but no change in titers. We switched to Famvir and didn't

> see any change so after a couple months we switched to Zovirax and

> we are now seeing the titers move. Maybe you need to switch

> antivirals.CherylOn Mar 19, 2008, at 8:10 AM, LINDA A wrote:>>

> Thanks Noel,>> has been on Valtrex for 5+ years, so I know

> that it keeps to > virus at bay, but hasn't gotten rid of it. Not

> sure if or how we > can? His immune system seems to be worse now

> than ever. His IgG in > the past has been on the low side of normal

> but now it's definitely > low, based on his recent labs. I wonder

> what his Varicella IgM/IgG > would be off the Valtrex ? BTW, my son

> also has a high measles IgG > titer, but no detectable IgM to

> measles.>> I'll keep you informed when I find more information on

> this.>> Take care,>> >> @...:

> schneid99@...: Wed, 19 > Mar 2008 07:40:38

> -0700Subject: Re: Re: Varicella titers +>> Hi, my son has

> IgM antibodies to MEasles and mumps, I have found > that as we

> continue with valtrex, which isn't even for that, but > his immune

> system seems to get better, those titers are falling, > because his

> owm system will begin to deal with that, it is very > scary, we

> have these 2 1/2 years post vaccination. If you do find > out any

> info, please share. Hope this helps, NoelLINDA A >

> <lsa5885@...> wrote: Hi all,Last week a friend of mine, who's >

> also a pediatrician with a child with ASD, thought it would be a >

> good idea to check my sons Varicella titers. After reviewing his >

> vaccinations and his history of immune disorders, it was pretty >

> obvious that his health declined after the MMR and Varicella which

> > was given along with the HIB. has persistent low grade

> fevers, > cannot get off antibiotics, and like most of our kids

> does well on > antivirals.(Valtrex)She was curious to see what his

> Varicella > titers were. Well, now we have a problem, as he still

> has a > detectable level of IgM to Varicella, and a high ,ACIF

> (IgG). He > received his vaccination eight years ago. He should

> have cleared > the IgM within weeks to a few months.Last week he

> was also > diagnosed with a IgG deficiency, and after reading about

> this, he > should never have been given many of his vaccinations,

> especially > Varicella, OPV and MMR. What I'm worried about is that

> he may have > Varicella circulating in his CSF affecting his brain.

> Has anyone > had a similar issue with their child and does anyone

> know of a > GREAT infectious disease doctor that treats children on

> the > spectrum ? Also, I was thinking about Dr. Singh in Utah. Has

> anyone > had any experience with him? (neuroimmunologist)Thanks so

> much, >

[Guest guest]

I understand it is different for each child, but is it common for these kids to

be on anti-virals for that long, or more for kids that cannot keep infections

down when off the meds on their own?

Angie

LINDA A <lsa5885@...> wrote:

Thanks Noel,

has been on Valtrex for 5+ years, so I know that it keeps to virus at bay,

but hasn't gotten rid of it. Not sure if or how we can? His immune system seems

to be worse now than ever. His IgG in the past has been on the low side of

normal but now it's definitely low, based on his recent labs. I wonder what his

Varicella IgM/IgG would be off the Valtrex ? BTW, my son also has a high measles

IgG titer, but no detectable IgM to measles.

I'll keep you informed when I find more information on this.

Take care,

@...: schneid99@...: Wed, 19 Mar 2008

07:40:38 -0700Subject: Re: Re: Varicella titers +

Hi, my son has IgM antibodies to MEasles and mumps, I have found that as we

continue with valtrex, which isn't even for that, but his immune system seems to

get better, those titers are falling, because his owm system will begin to deal

with that, it is very scary, we have these 2 1/2 years post vaccination. If you

do find out any info, please share. Hope this helps, NoelLINDA A

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's also a

pediatrician with a child with ASD, thought it would be a good idea to check my

sons Varicella titers. After reviewing his vaccinations and his history of

immune disorders, it was pretty obvious that his health declined after the MMR

and Varicella which was given along with the HIB. has persistent low grade

fevers, cannot get off antibiotics, and like most of our kids does well on

antivirals.(Valtrex)She was curious to see what his Varicella titers were. Well,

now we have a problem, as he still has a detectable level of IgM

to Varicella, and a high ,ACIF (IgG). He received his vaccination eight years

ago. He should have cleared the IgM within weeks to a few months.Last week he

was also diagnosed with a IgG deficiency, and after reading about this, he

should never have been given many of his vaccinations, especially Varicella, OPV

and MMR. What I'm worried about is that he may have Varicella circulating in his

CSF affecting his brain. Has anyone had a similar issue with their child and

does anyone know of a GREAT infectious disease doctor that treats children on

the spectrum ? Also, I was thinking about Dr. Singh in Utah. Has anyone had any

experience with him? (neuroimmunologist)Thanks so much, [Non-text portions

of this message have been removed]Sincerely Noel[Non-text portions of this

message have been removed]

[Guest guest]

It has to be dosed 5 times a day. I know that's a lot! I don't know

the math for how it is dosed but my son is on 300mg/5x a day. He's

about 32 lbs and 4.5 yrs old.

Cheryl

On Mar 19, 2008, at 9:11 AM, LINDA A wrote:

>

> Hi Cheryl,

>

> Good point, were tried Famvir once, and he was a disaster on it. I

> think it may have been the lactose in it. Maybe we'll give Zovirax

> a try. How often is it dosed and do you know the typical amount

> given to a 55lb, nine year old?

>

> TIA,

>

>

> @...: c.lowrance@...: Wed, 19 Mar

> 2008 08:42:24 -0700Subject: Re: Re: Varicella titers +

>

> , Valtrex never brought our titers down. We did see huge gains

> with it but no change in titers. We switched to Famvir and didn't

> see any change so after a couple months we switched to Zovirax and

> we are now seeing the titers move. Maybe you need to switch

> antivirals.CherylOn Mar 19, 2008, at 8:10 AM, LINDA A wrote:>>

> Thanks Noel,>> has been on Valtrex for 5+ years, so I know

> that it keeps to > virus at bay, but hasn't gotten rid of it. Not

> sure if or how we > can? His immune system seems to be worse now

> than ever. His IgG in > the past has been on the low side of normal

> but now it's definitely > low, based on his recent labs. I wonder

> what his Varicella IgM/IgG > would be off the Valtrex ? BTW, my son

> also has a high measles IgG > titer, but no detectable IgM to

> measles.>> I'll keep you informed when I find more information on

> this.>> Take care,>> >> @...:

> schneid99@...: Wed, 19 > Mar 2008 07:40:38

> -0700Subject: Re: Re: Varicella titers +>> Hi, my son has

> IgM antibodies to MEasles and mumps, I have found > that as we

> continue with valtrex, which isn't even for that, but > his immune

> system seems to get better, those titers are falling, > because his

> owm system will begin to deal with that, it is very > scary, we

> have these 2 1/2 years post vaccination. If you do find > out any

> info, please share. Hope this helps, NoelLINDA A >

> <lsa5885@...> wrote: Hi all,Last week a friend of mine, who's >

> also a pediatrician with a child with ASD, thought it would be a >

> good idea to check my sons Varicella titers. After reviewing his >

> vaccinations and his history of immune disorders, it was pretty >

> obvious that his health declined after the MMR and Varicella which

> > was given along with the HIB. has persistent low grade

> fevers, > cannot get off antibiotics, and like most of our kids

> does well on > antivirals.(Valtrex)She was curious to see what his

> Varicella > titers were. Well, now we have a problem, as he still

> has a > detectable level of IgM to Varicella, and a high ,ACIF

> (IgG). He > received his vaccination eight years ago. He should

> have cleared > the IgM within weeks to a few months.Last week he

> was also > diagnosed with a IgG deficiency, and after reading about

> this, he > should never have been given many of his vaccinations,

> especially > Varicella, OPV and MMR. What I'm worried about is that

> he may have > Varicella circulating in his CSF affecting his brain.

> Has anyone > had a similar issue with their child and does anyone

> know of a > GREAT infectious disease doctor that treats children on

> the > spectrum ? Also, I was thinking about Dr. Singh in Utah. Has

> anyone > had any experience with him? (neuroimmunologist)Thanks so

> much, >

[Guest guest]

My son is on the same dose of 300 mg 5 x/day, at ~38 pounds and turning 6

next week.

Kristy

Re: Re: Varicella titers +>> Hi, my son has

> IgM antibodies to MEasles and mumps, I have found > that as we

> continue with valtrex, which isn't even for that, but > his immune

> system seems to get better, those titers are falling, > because his

> owm system will begin to deal with that, it is very > scary, we

> have these 2 1/2 years post vaccination. If you do find > out any

> info, please share. Hope this helps, NoelLINDA A >

> <lsa5885@...> wrote: Hi all,Last week a friend of mine, who's >

> also a pediatrician with a child with ASD, thought it would be a >

> good idea to check my sons Varicella titers. After reviewing his >

> vaccinations and his history of immune disorders, it was pretty >

> obvious that his health declined after the MMR and Varicella which

> > was given along with the HIB. has persistent low grade

> fevers, > cannot get off antibiotics, and like most of our kids

> does well on > antivirals.(Valtrex)She was curious to see what his

> Varicella > titers were. Well, now we have a problem, as he still

> has a > detectable level of IgM to Varicella, and a high ,ACIF

> (IgG). He > received his vaccination eight years ago. He should

> have cleared > the IgM within weeks to a few months.Last week he

> was also > diagnosed with a IgG deficiency, and after reading about

> this, he > should never have been given many of his vaccinations,

> especially > Varicella, OPV and MMR. What I'm worried about is that

> he may have > Varicella circulating in his CSF affecting his brain.

> Has anyone > had a similar issue with their child and does anyone

> know of a > GREAT infectious disease doctor that treats children on

> the > spectrum ? Also, I was thinking about Dr. Singh in Utah. Has

> anyone > had any experience with him? (neuroimmunologist)Thanks so

> much, >

[Guest guest]

Angie: My son's pediatrician told us that since our son has hhv6, he will be on

anti-virals for the rest of his life. HHV6 he informed us never goes away, and

the antivirals are needed to keep his immune system cooled down so the hhv6 is

kept in check. Just sharing what was explained to us.

Rollie

Re: Re: Varicella titers +

Hi, my son has IgM antibodies to MEasles and mumps, I have found that as we

continue with valtrex, which isn't even for that, but his immune system seems to

get better, those titers are falling, because his owm system will begin to deal

with that, it is very scary, we have these 2 1/2 years post vaccination. If you

do find out any info, please share. Hope this helps, NoelLINDA A

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's also a

pediatrician with a child with ASD, thought it would be a good idea to check my

sons Varicella titers. After reviewing his vaccinations and his history of

immune disorders, it was pretty obvious that his health declined after the MMR

and Varicella which was given along with the HIB. has persistent low grade

fevers, cannot get off antibiotics, and like most of our kids does well on

antivirals.(Valtrex)She was curious to see what his Varicella titers were. Well,

now we have a problem, as he still has a detectable level of IgM

to Varicella, and a high ,ACIF (IgG). He received his vaccination eight years

ago. He should have cleared the IgM within weeks to a few months.Last week he

was also diagnosed with a IgG deficiency, and after reading about this, he

should never have been given many of his vaccinations, especially Varicella, OPV

and MMR. What I'm worried about is that he may have Varicella circulating in his

CSF affecting his brain. Has anyone had a similar issue with their child and

does anyone know of a GREAT infectious disease doctor that treats children on

the spectrum ? Also, I was thinking about Dr. Singh in Utah. Has anyone had any

experience with him? (neuroimmunologist)Thanks so much, [Non-text portions

of this message have been removed]Sincerely Noel[Non-text portions of this

message have been removed]

[Guest guest]

, has your son been on antifungals the entire time? I'm asking

because I'm wondering how long the antifungals need to be in place.

If the antivirals go on that long, is the antifungal going that long,

too?

Cheryl

On Mar 19, 2008, at 8:10 AM, LINDA A wrote:

>

> Thanks Noel,

>

> has been on Valtrex for 5+ years, so I know that it keeps to

> virus at bay, but hasn't gotten rid of it. Not sure if or how we

> can? His immune system seems to be worse now than ever. His IgG in

> the past has been on the low side of normal but now it's definitely

> low, based on his recent labs. I wonder what his Varicella IgM/IgG

> would be off the Valtrex ? BTW, my son also has a high measles IgG

> titer, but no detectable IgM to measles.

>

> I'll keep you informed when I find more information on this.

>

> Take care,

>

>

>

> @...: schneid99@...: Wed, 19

> Mar 2008 07:40:38 -0700Subject: Re: Re: Varicella titers +

>

> Hi, my son has IgM antibodies to MEasles and mumps, I have found

> that as we continue with valtrex, which isn't even for that, but

> his immune system seems to get better, those titers are falling,

> because his owm system will begin to deal with that, it is very

> scary, we have these 2 1/2 years post vaccination. If you do find

> out any info, please share. Hope this helps, NoelLINDA A

> <lsa5885@...> wrote: Hi all,Last week a friend of mine, who's

> also a pediatrician with a child with ASD, thought it would be a

> good idea to check my sons Varicella titers. After reviewing his

> vaccinations and his history of immune disorders, it was pretty

> obvious that his health declined after the MMR and Varicella which

> was given along with the HIB. has persistent low grade fevers,

> cannot get off antibiotics, and like most of our kids does well on

> antivirals.(Valtrex)She was curious to see what his Varicella

> titers were. Well, now we have a problem, as he still has a

> detectable level of IgM to Varicella, and a high ,ACIF (IgG). He

> received his vaccination eight years ago. He should have cleared

> the IgM within weeks to a few months.Last week he was also

> diagnosed with a IgG deficiency, and after reading about this, he

> should never have been given many of his vaccinations, especially

> Varicella, OPV and MMR. What I'm worried about is that he may have

> Varicella circulating in his CSF affecting his brain. Has anyone

> had a similar issue with their child and does anyone know of a

> GREAT infectious disease doctor that treats children on the

> spectrum ? Also, I was thinking about Dr. Singh in Utah. Has anyone

> had any experience with him? (neuroimmunologist)Thanks so much,

>

[Guest guest]

Cheryl,

has been off and on antifungals over the past five years. He isn't on one

now because of the interaction between his current antibiotic and Diflucan. I'm

guessing that he'll need to go back on an antifungal after he's off Biaxin for

yet another sinus infection. I really don't know how long he'll need

antifungals. I'm hoping to have these questions answered by the immunologist and

infectious disease doctors next month. I'm looking forward to IVIG so that he

can hopefully stop these medicines.

@...: c.lowrance@...: Thu, 20 Mar 2008

21:12:11 -0700Subject: Re: Re: Varicella titers +

, has your son been on antifungals the entire time? I'm asking because I'm

wondering how long the antifungals need to be in place. If the antivirals go on

that long, is the antifungal going that long, too?CherylOn Mar 19, 2008, at 8:10

AM, LINDA A wrote:>> Thanks Noel,>> has been on Valtrex for 5+ years, so I

know that it keeps to > virus at bay, but hasn't gotten rid of it. Not sure if

or how we > can? His immune system seems to be worse now than ever. His IgG in >

the past has been on the low side of normal but now it's definitely > low, based

on his recent labs. I wonder what his Varicella IgM/IgG > would be off the

Valtrex ? BTW, my son also has a high measles IgG > titer, but no detectable IgM

to measles.>> I'll keep you informed when I find more information on this.>>

Take care,>> >> @...: schneid99@...:

Wed, 19 > Mar 2008 07:40:38 -0700Subject: Re: Re: Varicella titers +>>

Hi, my son has IgM antibodies to MEasles and mumps, I have found > that as we

continue with valtrex, which isn't even for that, but > his immune system seems

to get better, those titers are falling, > because his owm system will begin to

deal with that, it is very > scary, we have these 2 1/2 years post vaccination.

If you do find > out any info, please share. Hope this helps, NoelLINDA A >

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's > also a

pediatrician with a child with ASD, thought it would be a > good idea to check

my sons Varicella titers. After reviewing his > vaccinations and his history of

immune disorders, it was pretty > obvious that his health declined after the MMR

and Varicella which > was given along with the HIB. has persistent low grade

fevers, > cannot get off antibiotics, and like most of our kids does well on >

antivirals.(Valtrex)She was curious to see what his Varicella > titers were.

Well, now we have a problem, as he still has a > detectable level of IgM to

Varicella, and a high ,ACIF (IgG). He > received his vaccination eight years

ago. He should have cleared > the IgM within weeks to a few months.Last week he

was also > diagnosed with a IgG deficiency, and after reading about this, he >

should never have been given many of his vaccinations, especially > Varicella,

OPV and MMR. What I'm worried about is that he may have > Varicella circulating

in his CSF affecting his brain. Has anyone > had a similar issue with their

child and does anyone know of a > GREAT infectious disease doctor that treats

children on the > spectrum ? Also, I was thinking about Dr. Singh in Utah. Has

anyone > had any experience with him? (neuroimmunologist)Thanks so much, >

[Guest guest]

My son's pediatrition said that kids can have hhv6, but did not seem like he

thought that all these kids needed meds for this, I assume it is for kids that

have immune issues. Does your pediatritian deal with kids like this, and is

this what Dr. G.'s philosophy is? Thanks.

Angie

rollipolli222@... wrote:

Angie: My son's pediatrician told us that since our son has hhv6, he

will be on anti-virals for the rest of his life. HHV6 he informed us never goes

away, and the antivirals are needed to keep his immune system cooled down so the

hhv6 is kept in check. Just sharing what was explained to us.

Rollie

Re: Re: Varicella titers +

Hi, my son has IgM antibodies to MEasles and mumps, I have found that as we

continue with valtrex, which isn't even for that, but his immune system seems to

get better, those titers are falling, because his owm system will begin to deal

with that, it is very scary, we have these 2 1/2 years post vaccination. If you

do find out any info, please share. Hope this helps, NoelLINDA A

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's also a

pediatrician with a child with ASD, thought it would be a good idea to check my

sons Varicella titers. After reviewing his vaccinations and his history of

immune disorders, it was pretty obvious that his health declined after the MMR

and Varicella which was given along with the HIB. has persistent low grade

fevers, cannot get off antibiotics, and like most of our kids does well on

antivirals.(Valtrex)She was curious to see what his Varicella titers were. Well,

now we have a problem, as he still has a detectable level of IgM

to Varicella, and a high ,ACIF (IgG). He received his vaccination eight years

ago. He should have cleared the IgM within weeks to a few months.Last week he

was also diagnosed with a IgG deficiency, and after reading about this, he

should never have been given many of his vaccinations, especially Varicella, OPV

and MMR. What I'm worried about is that he may have Varicella circulating in his

CSF affecting his brain. Has anyone had a similar issue with their child and

does anyone know of a GREAT infectious disease doctor that treats children on

the spectrum ? Also, I was thinking about Dr. Singh in Utah. Has anyone had any

experience with him? (neuroimmunologist)Thanks so much, [Non-text portions

of this message have been removed]Sincerely Noel[Non-text portions of this

message have been removed]

[Guest guest]

Hi Angie-

I believe 90% or more of the population has HHV6 by

the age of at latest 5 (if not age 2). So it's true

.... not everyone w/HHV6 would need meds.

There are two variants - HHV6-a and HHV6-b. One

causes roseola, the other is not specifically attached

to a disease but suspected in several ie MS and CFIDS.

They are both (I think) considered possibly connected

to febrile seizures (where a little one's fever rises

rapidly and has seizures at the same time, then

returns to completely normal once the illness passes).

I forget which is which, but HHV6 can infect

lymphocytes and natural killer cells, and modulate

their immune response. Lots of studies on that, and

you may want to read things by Konnie Knox and HHV6 in

Chronic Fatigue Syndrome - Dr G referred to that

research. A CFIDS website is co-cure.org....

There is no accurate test available for HHV6, only

helpful ones. Dr G sees a certain pattern in HHV6

from a combination of CBCs and immune panels, as well

as little abnormalities elsewhere that can be

indicative of chronic infection ... even iron

deficient anemia - which many of our kids have by the

way. Titers can be negative and that can be even more

significant (in an older child perhaps) than a low

level, because then the immune system may not even be

recognizing it, which is what Dr G said early on when

he treated my son... and when my son's titers shot up

to 1:360 after staying at 1:10 (the lowest reading),

there was a big 'leap' at the same time. My youngest

had CFIDS hit last year (when he was 5) and was weak

and tired w/cognitive dysfunction and bizzare symptoms

for several months, then when he ran a sudden high

temp of 106.9, everything started getting better quite

rapidly. I didn't get titers at that time, but he

started out 1:10 then fell off to negative. But he

had also been on antivirals and done well, but didn't

have the titers manifest ... so he got sick again

about 9 months after coming off the antivirals (my

oldest son did not regress). At least he did get

better again w/out help - but we missed a year at a

tender age.

There are other viruses capable of modulating immune

responses too, especially EBV (mono) and CMV

(cytomegalovirus). CMV may be closest to HHV6 in a

few ways. I also think they want to rename the HHV6

variant that does not cause roseola to HHV9 too.

The problem is - without accurate testing, and without

significant markers of disease, average pediatricians

are not going to find it worthwhile to treat what they

are taught is a developmental disorder. The

difference is the paradigm - structure vs ongoing

medical disease process. Read the history of CFIDS

research and you get a good picture of what we're up

against. A couple of books you may be interested in

are Osler's Web and The Virus Within.

HTH-

--- angie huiz <angiehuiz@...> wrote:

> My son's pediatrition said that kids can have hhv6,

> but did not seem like he thought that all these kids

> needed meds for this, I assume it is for kids that

> have immune issues. Does your pediatritian deal

> with kids like this, and is this what Dr. G.'s

> philosophy is? Thanks.

> Angie

>

> rollipolli222@... wrote:

> Angie: My son's pediatrician told us that

> since our son has hhv6, he will be on anti-virals

> for the rest of his life. HHV6 he informed us never

> goes away, and the antivirals are needed to keep his

> immune system cooled down so the hhv6 is kept in

> check. Just sharing what was explained to us.

>

> Rollie

>

> Re: Re: Varicella

> titers +

>

> Hi, my son has IgM antibodies to MEasles and mumps,

> I have found that as we continue with valtrex, which

> isn't even for that, but his immune system seems to

> get better, those titers are falling, because his

> owm system will begin to deal with that, it is very

> scary, we have these 2 1/2 years post vaccination.

> If you do find out any info, please share. Hope this

> helps, NoelLINDA A <lsa5885@...> wrote: Hi

> all,Last week a friend of mine, who's also a

> pediatrician with a child with ASD, thought it would

> be a good idea to check my sons Varicella titers.

> After reviewing his vaccinations and his history of

> immune disorders, it was pretty obvious that his

> health declined after the MMR and Varicella which

> was given along with the HIB. has persistent low

> grade fevers, cannot get off antibiotics, and like

> most of our kids does well on

> antivirals.(Valtrex)She was curious to see what his

> Varicella titers were. Well, now we have a problem,

> as he still has a detectable level of IgM

> to Varicella, and a high ,ACIF (IgG). He received

> his vaccination eight years ago. He should have

> cleared the IgM within weeks to a few months.Last

> week he was also diagnosed with a IgG deficiency,

> and after reading about this, he should never have

> been given many of his vaccinations, especially

> Varicella, OPV and MMR. What I'm worried about is

> that he may have Varicella circulating in his CSF

> affecting his brain. Has anyone had a similar issue

> with their child and does anyone know of a GREAT

> infectious disease doctor that treats children on

> the spectrum ? Also, I was thinking about Dr. Singh

> in Utah. Has anyone had any experience with him?

> (neuroimmunologist)Thanks so much, [Non-text

> portions of this message have been removed]Sincerely

> Noel[Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them

> fast with Search.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

I have read alot on Dr. G's website, but this also is a huge help, thanks for

the information. I will also look at the CFS sites, did not think of doing this

yet or looking at a book, but will do so.

<thecolemans4@...> wrote: Hi Angie-

I believe 90% or more of the population has HHV6 by

the age of at latest 5 (if not age 2). So it's true

.... not everyone w/HHV6 would need meds.

There are two variants - HHV6-a and HHV6-b. One

causes roseola, the other is not specifically attached

to a disease but suspected in several ie MS and CFIDS.

They are both (I think) considered possibly connected

to febrile seizures (where a little one's fever rises

rapidly and has seizures at the same time, then

returns to completely normal once the illness passes).

I forget which is which, but HHV6 can infect

lymphocytes and natural killer cells, and modulate

their immune response. Lots of studies on that, and

you may want to read things by Konnie Knox and HHV6 in

Chronic Fatigue Syndrome - Dr G referred to that

research. A CFIDS website is co-cure.org....

There is no accurate test available for HHV6, only

helpful ones. Dr G sees a certain pattern in HHV6

from a combination of CBCs and immune panels, as well

as little abnormalities elsewhere that can be

indicative of chronic infection ... even iron

deficient anemia - which many of our kids have by the

way. Titers can be negative and that can be even more

significant (in an older child perhaps) than a low

level, because then the immune system may not even be

recognizing it, which is what Dr G said early on when

he treated my son... and when my son's titers shot up

to 1:360 after staying at 1:10 (the lowest reading),

there was a big 'leap' at the same time. My youngest

had CFIDS hit last year (when he was 5) and was weak

and tired w/cognitive dysfunction and bizzare symptoms

for several months, then when he ran a sudden high

temp of 106.9, everything started getting better quite

rapidly. I didn't get titers at that time, but he

started out 1:10 then fell off to negative. But he

had also been on antivirals and done well, but didn't

have the titers manifest ... so he got sick again

about 9 months after coming off the antivirals (my

oldest son did not regress). At least he did get

better again w/out help - but we missed a year at a

tender age.

There are other viruses capable of modulating immune

responses too, especially EBV (mono) and CMV

(cytomegalovirus). CMV may be closest to HHV6 in a

few ways. I also think they want to rename the HHV6

variant that does not cause roseola to HHV9 too.

The problem is - without accurate testing, and without

significant markers of disease, average pediatricians

are not going to find it worthwhile to treat what they

are taught is a developmental disorder. The

difference is the paradigm - structure vs ongoing

medical disease process. Read the history of CFIDS

research and you get a good picture of what we're up

against. A couple of books you may be interested in

are Osler's Web and The Virus Within.

HTH-

--- angie huiz <angiehuiz@...> wrote:

> My son's pediatrition said that kids can have hhv6,

> but did not seem like he thought that all these kids

> needed meds for this, I assume it is for kids that

> have immune issues. Does your pediatritian deal

> with kids like this, and is this what Dr. G.'s

> philosophy is? Thanks.

> Angie

>

> rollipolli222@... wrote:

> Angie: My son's pediatrician told us that

> since our son has hhv6, he will be on anti-virals

> for the rest of his life. HHV6 he informed us never

> goes away, and the antivirals are needed to keep his

> immune system cooled down so the hhv6 is kept in

> check. Just sharing what was explained to us.

>

> Rollie

>

> Re: Re: Varicella

> titers +

>

> Hi, my son has IgM antibodies to MEasles and mumps,

> I have found that as we continue with valtrex, which

> isn't even for that, but his immune system seems to

> get better, those titers are falling, because his

> owm system will begin to deal with that, it is very

> scary, we have these 2 1/2 years post vaccination.

> If you do find out any info, please share. Hope this

> helps, NoelLINDA A <lsa5885@...> wrote: Hi

> all,Last week a friend of mine, who's also a

> pediatrician with a child with ASD, thought it would

> be a good idea to check my sons Varicella titers.

> After reviewing his vaccinations and his history of

> immune disorders, it was pretty obvious that his

> health declined after the MMR and Varicella which

> was given along with the HIB. has persistent low

> grade fevers, cannot get off antibiotics, and like

> most of our kids does well on

> antivirals.(Valtrex)She was curious to see what his

> Varicella titers were. Well, now we have a problem,

> as he still has a detectable level of IgM

> to Varicella, and a high ,ACIF (IgG). He received

> his vaccination eight years ago. He should have

> cleared the IgM within weeks to a few months.Last

> week he was also diagnosed with a IgG deficiency,

> and after reading about this, he should never have

> been given many of his vaccinations, especially

> Varicella, OPV and MMR. What I'm worried about is

> that he may have Varicella circulating in his CSF

> affecting his brain. Has anyone had a similar issue

> with their child and does anyone know of a GREAT

> infectious disease doctor that treats children on

> the spectrum ? Also, I was thinking about Dr. Singh

> in Utah. Has anyone had any experience with him?

> (neuroimmunologist)Thanks so much, [Non-text

> portions of this message have been removed]Sincerely

> Noel[Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

> [Non-text portions of this message have been

> removed]

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them

> fast with Search.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

---------------------------------

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

There's so much talk about HHV 9 it's hard to say what's going to

happen. There's talk of renaming HHV6b to HHV7 and HHV7 becoming HHV

9, then there's the talk about there being a possibility of HHV 9

already being in existence but undiscovered as of yet, yada yada

yada. There's no telling what's going to happen... At this point, I

think everyone is content calling it HHV6b

But along the HHV line, has anyone thought about HHV7? I've been

reading about it recently and wondering, hmmmmmm....

Cheryl

On Mar 24, 2008, at 4:09 PM, wrote:

> Hi Angie-

>

> I believe 90% or more of the population has HHV6 by

> the age of at latest 5 (if not age 2). So it's true

> ... not everyone w/HHV6 would need meds.

>

> There are two variants - HHV6-a and HHV6-b. One

> causes roseola, the other is not specifically attached

> to a disease but suspected in several ie MS and CFIDS.

> They are both (I think) considered possibly connected

> to febrile seizures (where a little one's fever rises

> rapidly and has seizures at the same time, then

> returns to completely normal once the illness passes).

>

> I forget which is which, but HHV6 can infect

> lymphocytes and natural killer cells, and modulate

> their immune response. Lots of studies on that, and

> you may want to read things by Konnie Knox and HHV6 in

> Chronic Fatigue Syndrome - Dr G referred to that

> research. A CFIDS website is co-cure.org....

>

> There is no accurate test available for HHV6, only

> helpful ones. Dr G sees a certain pattern in HHV6

> from a combination of CBCs and immune panels, as well

> as little abnormalities elsewhere that can be

> indicative of chronic infection ... even iron

> deficient anemia - which many of our kids have by the

> way. Titers can be negative and that can be even more

> significant (in an older child perhaps) than a low

> level, because then the immune system may not even be

> recognizing it, which is what Dr G said early on when

> he treated my son... and when my son's titers shot up

> to 1:360 after staying at 1:10 (the lowest reading),

> there was a big 'leap' at the same time. My youngest

> had CFIDS hit last year (when he was 5) and was weak

> and tired w/cognitive dysfunction and bizzare symptoms

> for several months, then when he ran a sudden high

> temp of 106.9, everything started getting better quite

> rapidly. I didn't get titers at that time, but he

> started out 1:10 then fell off to negative. But he

> had also been on antivirals and done well, but didn't

> have the titers manifest ... so he got sick again

> about 9 months after coming off the antivirals (my

> oldest son did not regress). At least he did get

> better again w/out help - but we missed a year at a

> tender age.

>

> There are other viruses capable of modulating immune

> responses too, especially EBV (mono) and CMV

> (cytomegalovirus). CMV may be closest to HHV6 in a

> few ways. I also think they want to rename the HHV6

> variant that does not cause roseola to HHV9 too.

>

> The problem is - without accurate testing, and without

> significant markers of disease, average pediatricians

> are not going to find it worthwhile to treat what they

> are taught is a developmental disorder. The

> difference is the paradigm - structure vs ongoing

> medical disease process. Read the history of CFIDS

> research and you get a good picture of what we're up

> against. A couple of books you may be interested in

> are Osler's Web and The Virus Within.

>

> HTH-

>

>

> --- angie huiz <angiehuiz@...> wrote:

>

> > My son's pediatrition said that kids can have hhv6,

> > but did not seem like he thought that all these kids

> > needed meds for this, I assume it is for kids that

> > have immune issues. Does your pediatritian deal

> > with kids like this, and is this what Dr. G.'s

> > philosophy is? Thanks.

> > Angie

> >

> > rollipolli222@... wrote:

> > Angie: My son's pediatrician told us that

> > since our son has hhv6, he will be on anti-virals

> > for the rest of his life. HHV6 he informed us never

> > goes away, and the antivirals are needed to keep his

> > immune system cooled down so the hhv6 is kept in

> > check. Just sharing what was explained to us.

> >

> > Rollie

> >

> > Re: Re: Varicella

> > titers +

> >

> > Hi, my son has IgM antibodies to MEasles and mumps,

> > I have found that as we continue with valtrex, which

> > isn't even for that, but his immune system seems to

> > get better, those titers are falling, because his

> > owm system will begin to deal with that, it is very

> > scary, we have these 2 1/2 years post vaccination.

> > If you do find out any info, please share. Hope this

> > helps, NoelLINDA A <lsa5885@...> wrote: Hi

> > all,Last week a friend of mine, who's also a

> > pediatrician with a child with ASD, thought it would

> > be a good idea to check my sons Varicella titers.

> > After reviewing his vaccinations and his history of

> > immune disorders, it was pretty obvious that his

> > health declined after the MMR and Varicella which

> > was given along with the HIB. has persistent low

> > grade fevers, cannot get off antibiotics, and like

> > most of our kids does well on

> > antivirals.(Valtrex)She was curious to see what his

> > Varicella titers were. Well, now we have a problem,

> > as he still has a detectable level of IgM

> > to Varicella, and a high ,ACIF (IgG). He received

> > his vaccination eight years ago. He should have

> > cleared the IgM within weeks to a few months.Last

> > week he was also diagnosed with a IgG deficiency,

> > and after reading about this, he should never have

> > been given many of his vaccinations, especially

> > Varicella, OPV and MMR. What I'm worried about is

> > that he may have Varicella circulating in his CSF

> > affecting his brain. Has anyone had a similar issue

> > with their child and does anyone know of a GREAT

> > infectious disease doctor that treats children on

> > the spectrum ? Also, I was thinking about Dr. Singh

> > in Utah. Has anyone had any experience with him?

> > (neuroimmunologist)Thanks so much, [Non-text

> > portions of this message have been removed]Sincerely

> > Noel[Non-text portions of this message have been

> > removed]

> >

> > [Non-text portions of this message have been

> > removed]

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them

> > fast with Search.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now. http://

> mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>