Re: Re:Total IgG deficiency

[Guest guest]

Hi ,

I have no experience with what you're going through, except from what I've

learned with my twins and food intolerances, and what an offending food can

do to the immune system and creating excess mucous in the body, which then

leads to the need for lots of antibiotics...

You've probably investigated diet extensively, but just in case, have you

tried a total elimination diet, just to see how he responds? When my baby

girl was an infant/toddler she was very sick and it turned out to be an

intolerance to corn. To find this out, we put her on a strict lamb and rice

diet, and within a couple of days she was already showing much improvement.

We reintroduced a new food every 3-4 weeks (it took her 3.5 weeks to show

intolerance to some), so we went about this very seriously and very slowly.

Food allergy testing DID NOT reveal the foods she did not tolerate. We found

out only by doing the elimination diet (I found help from " The Complete

Guide To Food Allergies and Intolerance " , and also from her pediatrician and

an allergist). Please note the doctors were helpful for us only once I

suggested to them that intolerances, not allergies, may be the problem (and

it was another mom who had BTDT with her daughter that guided me).

I hope you are able to find answers for your son.

All the best,

Kristy

Re:Total IgG deficiency

Hi all,

Well, after all these years on the protocol, we finally found out

that our son has a total IgG deficiency.

has recurrent sinus infections and unexplained fevers whenever he's

off an antibiotic for more than two days. This has been a constant for many

years but due to his complicated history, no one looked into it. ( although

I tried to get many physicians at our children's hospital to listen!!!! )

Last week he was worked up for his growth hormone deficiency and acidosis,

so my husband added the total IgG and IgA to the lab order. His IgA is o.k.

but total IgG is very low as is his Globulin level.

Those of you who have children with this problem please email me regarding

treatments.

Funny, we were about to set up IVIG treatment for PANDAS, I think the

bigger picture is unfolding!

I'm so glad that we've been on the protocol for so long, as I think

this is what saved him.

Without the antibiotics, antivirals and antifungals, his immune system

would never have been able to fight off infections and viruses.

Thanks so much and take care,

[Guest guest]

Why didn't Dr. G pick this up? I know he pulled an immune panel

with all the Ig's for us at the end of last summer. Do you know if

this is something that can change significantly? Is it something we

should be checking periodically?

I ask this because my son is the same way. He must be on

antibiotics, too, in order to not get bronchitis.

Cheryl

On Mar 10, 2008, at 1:48 PM, LINDA A wrote:

>

> Hi all,

>

> Well, after all these years on the protocol, we finally found

> out that our son has a total IgG deficiency.

>

> has recurrent sinus infections and unexplained fevers whenever

> he's off an antibiotic for more than two days. This has been a

> constant for many years but due to his complicated history, no one

> looked into it. ( although I tried to get many physicians at our

> children's hospital to listen!!!! )

>

> Last week he was worked up for his growth hormone deficiency and

> acidosis, so my husband added the total IgG and IgA to the lab

> order. His IgA is o.k. but total IgG is very low as is his Globulin

> level.

>

> Those of you who have children with this problem please email me

> regarding treatments.

>

> Funny, we were about to set up IVIG treatment for PANDAS, I think

> the bigger picture is unfolding!

>

> I'm so glad that we've been on the protocol for so long, as I

> think this is what saved him.

>

> Without the antibiotics, antivirals and antifungals, his immune

> system would never have been able to fight off infections and viruses.

>

> Thanks so much and take care,

>

>

>

>

>

[Guest guest]

I'm curious too if the original labs that Dr G did

showed the deficiency. I also wonder if he would have

done anything different anyway - I kind of doubt it.

I know sometimes our kids will have quite low IgG (and

others) and yet after time on the protocol, the IgG

increases. My boys had a couple of low subclasses -

those came up on the protocol - all IgG numbers

improved a bunch. But they didn't have an overall

deficiency.

He did monitor our IgG levels at least yearly.

I know another kid who has constant chronic infections

(ie strep, mycoplasma, sinus, bronchitis, etc etc) and

just had his immune workup (thru local ped, not Dr G)

and everything came back " great " . I'll bet Dr G

wouldn't agree. They didn't check natural killer

cells - I'd bet they're low - although 2% is still

*technically* within 'normal limits'.

We'll be interested - keep us updated!

--- Cheryl Lowrance <c.lowrance@...> wrote:

> Why didn't Dr. G pick this up? I know he pulled

> an immune panel

> with all the Ig's for us at the end of last summer.

> Do you know if

> this is something that can change significantly? Is

> it something we

> should be checking periodically?

>

> I ask this because my son is the same way. He must

> be on

> antibiotics, too, in order to not get bronchitis.

>

> Cheryl

>

> On Mar 10, 2008, at 1:48 PM, LINDA A wrote:

>

> >

> > Hi all,

> >

> > Well, after all these years on the protocol,

> we finally found

> > out that our son has a total IgG deficiency.

> >

> > has recurrent sinus infections and

> unexplained fevers whenever

> > he's off an antibiotic for more than two days.

> This has been a

> > constant for many years but due to his complicated

> history, no one

> > looked into it. ( although I tried to get many

> physicians at our

> > children's hospital to listen!!!! )

> >

> > Last week he was worked up for his growth hormone

> deficiency and

> > acidosis, so my husband added the total IgG and

> IgA to the lab

> > order. His IgA is o.k. but total IgG is very low

> as is his Globulin

> > level.

> >

> > Those of you who have children with this problem

> please email me

> > regarding treatments.

> >

> > Funny, we were about to set up IVIG treatment for

> PANDAS, I think

> > the bigger picture is unfolding!

> >

> > I'm so glad that we've been on the protocol

> for so long, as I

> > think this is what saved him.

> >

> > Without the antibiotics, antivirals and

> antifungals, his immune

> > system would never have been able to fight off

> infections and viruses.

> >

> > Thanks so much and take care,

> >

> >

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

Hi Cheryl and ,

When started the protocol, Dr. G wasn't taking new patients, so my

husband (a physician) got in touch with Dr. Bruce (Dr. G's staff wouldn't let

him talk to Dr. G ??), anyway, Dr. Bruce went over the protocol and we've been

doing it ourselves with the help of many different doctors over the years.

is complicated due to his Chiari 1 Malformation as well.

I'll pull his original immune panel tonight and let you know what it says. I

seem to remember that his NK cell count was low and his MMR titers were very

high, but can't remember what else was wrong.

It's funny when you have an Ah-ha moment like I did today, it all makes sense to

me now, he's had MRSA meningitis, but he also had neurosurgery, so who knows,

he's had sepsis ( unknown species of bacillis) and like I said chronic sinus

infections, ear infections, viral infections, and who knows what else??

It's a wonder he's doing so well otherwise, I'll write later tonight. Thanks for

getting back to me so soon.

Take care,

@...: c.lowrance@...: Mon, 10 Mar 2008

15:07:38 -0700Subject: Re: Re:Total IgG deficiency

Why didn't Dr. G pick this up? I know he pulled an immune panel with all the

Ig's for us at the end of last summer. Do you know if this is something that can

change significantly? Is it something we should be checking periodically?I ask

this because my son is the same way. He must be on antibiotics, too, in order to

not get bronchitis.CherylOn Mar 10, 2008, at 1:48 PM, LINDA A wrote:>> Hi all,>>

Well, after all these years on the protocol, we finally found > out that

our son has a total IgG deficiency.>> has recurrent sinus infections and

unexplained fevers whenever > he's off an antibiotic for more than two days.

This has been a > constant for many years but due to his complicated history, no

one > looked into it. ( although I tried to get many physicians at our >

children's hospital to listen!!!! )>> Last week he was worked up for his growth

hormone deficiency and > acidosis, so my husband added the total IgG and IgA to

the lab > order. His IgA is o.k. but total IgG is very low as is his Globulin >

level.>> Those of you who have children with this problem please email me >

regarding treatments.>> Funny, we were about to set up IVIG treatment for

PANDAS, I think > the bigger picture is unfolding!>> I'm so glad that we've been

on the protocol for so long, as I > think this is what saved him.>> Without

the antibiotics, antivirals and antifungals, his immune > system would never

have been able to fight off infections and viruses.>> Thanks so much and take

care,>> >>>