Guest guest Posted April 11, 2003 Report Share Posted April 11, 2003 We have an appt. May 15, with Dr. Goldberg. I'll let everyone know how it goes. nids? Have any of you heard of nids(neuro immune dysfunction syndromes) or Dr. Goldberg. He has a research institute that has had some success with autistic children by boosting their immune systems with anti-virals, diet etc. Just wondering if anyone can vouch for them. thanks!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 > Have any of you heard of nids(neuro immune dysfunction syndromes) or > Dr. Goldberg. He has a research institute that has had some > success with autistic children by boosting their immune systems with > anti-virals, diet etc. Here is my site section http://www.danasview.net/parent3.htm#nids >> Just wondering if anyone can vouch for them. He is very much against chelation, so if that is a path you want to consider, he would not be a good choice. His protocol basically assumes that all autism is caused by a viral source. If your child has a viral source, his protocol will probably be very effective. However, if your child has no viral source, then you probably won't see much difference. His protocol, so far as I know it, includes anti-virals and SSRI medication. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 You are quite right about the Goldberg protocol. We saw him for about 8 or 9 months. For children who have viral issues, I have heard that some people are happy with him. He put our son on antivirals and it was not good. I'll be happy to correspond with you personally if you want more info. Alison > > Have any of you heard of nids(neuro immune dysfunction syndromes) or > > Dr. Goldberg. He has a research institute that has had some > > success with autistic children by boosting their immune systems with > > anti-virals, diet etc. > > > Here is my site section > > http://www.danasview.net/parent3.htm#nids > > > >> Just wondering if anyone can vouch for them. > > > He is very much against chelation, so if that is a path you want to > consider, he would not be a good choice. > > His protocol basically assumes that all autism is caused by a viral > source. If your child has a viral source, his protocol will probably > be very effective. However, if your child has no viral source, then > you probably won't see much difference. > > His protocol, so far as I know it, includes anti-virals and SSRI > medication. > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hi All I am E -Mailing you from New Zealand and have been on this sight for some 5 years . Could some of you E-Mail me with the services that are available for ASD Children in USA eg.........Speech thearpy ,O/T, biomedical doctors bills and medications , vitamins etc......, ABA per day at School and at pre school ,RDI is available I believe . What does the USA Goverment pay for your ASD children . And how young do they start behaviour programs . I know it can vary ......please some feed back would be wonderful Virginia Kristy Nardini <krnardini@...> wrote: Hi, An earlier post got me to wondering about my son's twin sister (he is a patient of Dr. G). They turn 6 tomorrow. She often complains of being too hot or too cold (but has no fever and no other outward signs of illness) and her tummy or chest hurting (if she eats or uses the restroom, she stops complaining, and the chest pain is often first thing in the morning, so I'm wondering if it's reflux - she had it severely as an infant). She also has a fairly new whitish 'streak' on her upper left arm, where her olive pigment has faded, about 5 inches long. Any ideas? I recently read about a pigment change on the back related to yeast, but the article mentioned specifically the lower back. We applied for new medical insurance at the beginning of March, and a glitch means the app is still being reviewed, so the agent advised me against talking to her doctor about any of this for the time being. She is otherwise very healthy and strong, albeit very petite (they were micropreemies, and she had significant health issues related to her lungs and gut during their first 3 years, but her issues were resolved by age 4). She eats well and has a great disposition. Thanks, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 It really depends on the state and from there it depends on the region of the state. Some states provide great services and some don't provide hardly anything. In CA we have Regional Centers that provide services for developmental disabilities. It can start as early as birth (CP, Preemies, Down's, etc) but for things like ASD, it usually starts when you get referred by your pediatrician or you self refer. We started at about 2.5 yrs. old and we had Group therapy, ST, OT and child development. My son had something like 12 hours per week of therapies up until he was 3 and then the responsibilites were shared by the school district and the RC. RC provides respite and ABA and the school provides OT (we also get AIT through our OT) and ST. RC also provides other services, too - like aides for daycare, diapers, etc). *But* how much your RC provides also depends on which RC you belong to. They are divided up by regions and they are not created equally. Each RC is it's own independent entity so they all have different rules. Where one might provide a lot of hours it could be like pulling teeth to get minimum hours from another. In CA we also have AB88 which is a law that states that insurance companies must provide services for autistic children that they would normally provide for someone with another disorder/condition - they must treat autism equally. It's nice in theory but there are still a lot of fights depending on the insurance company. You also have to *qualify* for RC services after age three for it to continue. Sometimes that can be hard, especially if you have a high functioning child. Usually something like Aspergers won't qualify you. But overall, I think CA is among the top states for services. Cheryl On Apr 3, 2008, at 2:49 PM, Virginia wrote: > Hi All I am E -Mailing you from New Zealand and have been on this > sight for some 5 years . Could some of you E-Mail me with the > services that are available for ASD Children in USA > eg.........Speech thearpy ,O/T, biomedical doctors bills and > medications , vitamins etc......, ABA per day at School and at pre > school ,RDI is available I believe . What does the USA Goverment > pay for your ASD children . And how young do they start behaviour > programs . I know it can vary ......please some feed back would be > wonderful > Virginia > > Kristy Nardini <krnardini@...> wrote: > Hi, > > An earlier post got me to wondering about my son's twin sister (he > is a > patient of Dr. G). They turn 6 tomorrow. She often complains of > being too > hot or too cold (but has no fever and no other outward signs of > illness) and > her tummy or chest hurting (if she eats or uses the restroom, she > stops > complaining, and the chest pain is often first thing in the > morning, so I'm > wondering if it's reflux - she had it severely as an infant). She > also has a > fairly new whitish 'streak' on her upper left arm, where her olive > pigment > has faded, about 5 inches long. > > Any ideas? I recently read about a pigment change on the back > related to > yeast, but the article mentioned specifically the lower back. > > We applied for new medical insurance at the beginning of March, and > a glitch > means the app is still being reviewed, so the agent advised me against > talking to her doctor about any of this for the time being. > > She is otherwise very healthy and strong, albeit very petite (they > were > micropreemies, and she had significant health issues related to her > lungs > and gut during their first 3 years, but her issues were resolved by > age 4). > She eats well and has a great disposition. > > Thanks, > > Kristy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hi Cheryl , thankyou for your E-Mail ......I forgot to ask re the teacher aids how much time etc......for a ASD Child and how long can you get ABA for your child till what age ? We have to pay for every thing in NZ ..... teacher aids my son is 16 yrs old and gets 11 hrs a week paid for by our Goverment and we pay 13 hours a week . To keep the child learning ......no ABA in Schools or RDI therpists trained as techer aids EK......................We are about 20 yrs behind . There is a group about to take the Goverment to task re ABA , Biomedical , Teacher aids etc...... Thankyou Virginia ......down under V Cheryl Lowrance <c.lowrance@...> wrote: It really depends on the state and from there it depends on the region of the state. Some states provide great services and some don't provide hardly anything. In CA we have Regional Centers that provide services for developmental disabilities. It can start as early as birth (CP, Preemies, Down's, etc) but for things like ASD, it usually starts when you get referred by your pediatrician or you self refer. We started at about 2.5 yrs. old and we had Group therapy, ST, OT and child development. My son had something like 12 hours per week of therapies up until he was 3 and then the responsibilites were shared by the school district and the RC. RC provides respite and ABA and the school provides OT (we also get AIT through our OT) and ST. RC also provides other services, too - like aides for daycare, diapers, etc). *But* how much your RC provides also depends on which RC you belong to. They are divided up by regions and they are not created equally. Each RC is it's own independent entity so they all have different rules. Where one might provide a lot of hours it could be like pulling teeth to get minimum hours from another. In CA we also have AB88 which is a law that states that insurance companies must provide services for autistic children that they would normally provide for someone with another disorder/condition - they must treat autism equally. It's nice in theory but there are still a lot of fights depending on the insurance company. You also have to *qualify* for RC services after age three for it to continue. Sometimes that can be hard, especially if you have a high functioning child. Usually something like Aspergers won't qualify you. But overall, I think CA is among the top states for services. Cheryl On Apr 3, 2008, at 2:49 PM, Virginia wrote: > Hi All I am E -Mailing you from New Zealand and have been on this > sight for some 5 years . Could some of you E-Mail me with the > services that are available for ASD Children in USA > eg.........Speech thearpy ,O/T, biomedical doctors bills and > medications , vitamins etc......, ABA per day at School and at pre > school ,RDI is available I believe . What does the USA Goverment > pay for your ASD children . And how young do they start behaviour > programs . I know it can vary ......please some feed back would be > wonderful > Virginia > > Kristy Nardini <krnardini@...> wrote: > Hi, > > An earlier post got me to wondering about my son's twin sister (he > is a > patient of Dr. G). They turn 6 tomorrow. She often complains of > being too > hot or too cold (but has no fever and no other outward signs of > illness) and > her tummy or chest hurting (if she eats or uses the restroom, she > stops > complaining, and the chest pain is often first thing in the > morning, so I'm > wondering if it's reflux - she had it severely as an infant). She > also has a > fairly new whitish 'streak' on her upper left arm, where her olive > pigment > has faded, about 5 inches long. > > Any ideas? I recently read about a pigment change on the back > related to > yeast, but the article mentioned specifically the lower back. > > We applied for new medical insurance at the beginning of March, and > a glitch > means the app is still being reviewed, so the agent advised me against > talking to her doctor about any of this for the time being. > > She is otherwise very healthy and strong, albeit very petite (they > were > micropreemies, and she had significant health issues related to her > lungs > and gut during their first 3 years, but her issues were resolved by > age 4). > She eats well and has a great disposition. > > Thanks, > > Kristy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 You get an aide for as long as you need an aide but you must qualify for an aide. And you can also have different types of aides. You might qualify for a resource specialist, a 1:1 full time, a 1:1 part time, etc. So there is no set amount of time for any aide, it just depends on what you qualify for (by the school's standards, not necessarily your own). ABA you can get indefinitely depending on need. But it also depends on the company that is contracted or the school district if you are getting it through them. Some companies/school districts will cut off services if they feel it's gone on long enough and is pointless, etc. As far as biomedical treatments, it isn't funded by the government at all. It all depends on your insurance as to how much is covered. Some doctors take insurance, many don't. When they don't take insurance you have to submit a superbill to your insurance to get reimbursed and that also depends on your policy. The only time anything is funded by the government is if the child has government insurance like Medicaid. And then, coverage is rather limited and many docs don't take it. cheryl On Apr 3, 2008, at 7:26 PM, Virginia wrote: > Hi Cheryl , thankyou for your E-Mail ......I forgot to ask re the > teacher aids how much time etc......for a ASD Child and how long > can you get ABA for your child till what age ? > We have to pay for every thing in NZ ..... teacher aids my son is > 16 yrs old and gets 11 hrs a week paid for by our Goverment and we > pay 13 hours a week . To keep the child learning ......no ABA in > Schools or RDI therpists trained as techer aids > EK......................We are about 20 yrs behind . > There is a group about to take the Goverment to task re ABA , > Biomedical , Teacher aids etc...... > Thankyou Virginia ......down under > > V > > Cheryl Lowrance <c.lowrance@...> wrote: > It really depends on the state and from there it depends on the > region of the state. Some states provide great services and some > don't provide hardly anything. In CA we have Regional Centers that > provide services for developmental disabilities. It can start as > early as birth (CP, Preemies, Down's, etc) but for things like ASD, > it usually starts when you get referred by your pediatrician or you > self refer. We started at about 2.5 yrs. old and we had Group > therapy, ST, OT and child development. My son had something like 12 > hours per week of therapies up until he was 3 and then the > responsibilites were shared by the school district and the RC. RC > provides respite and ABA and the school provides OT (we also get AIT > through our OT) and ST. RC also provides other services, too - like > aides for daycare, diapers, etc). *But* how much your RC provides > also depends on which RC you belong to. They are divided up by > regions and they are not created equally. Each RC is it's own > independent entity so they all have different rules. Where one might > provide a lot of hours it could be like pulling teeth to get minimum > hours from another. In CA we also have AB88 which is a law that > states that insurance companies must provide services for autistic > children that they would normally provide for someone with another > disorder/condition - they must treat autism equally. It's nice in > theory but there are still a lot of fights depending on the insurance > company. You also have to *qualify* for RC services after age three > for it to continue. Sometimes that can be hard, especially if you > have a high functioning child. Usually something like Aspergers > won't qualify you. But overall, I think CA is among the top states > for services. > > Cheryl > > On Apr 3, 2008, at 2:49 PM, Virginia wrote: > > > Hi All I am E -Mailing you from New Zealand and have been on this > > sight for some 5 years . Could some of you E-Mail me with the > > services that are available for ASD Children in USA > > eg.........Speech thearpy ,O/T, biomedical doctors bills and > > medications , vitamins etc......, ABA per day at School and at pre > > school ,RDI is available I believe . What does the USA Goverment > > pay for your ASD children . And how young do they start behaviour > > programs . I know it can vary ......please some feed back would be > > wonderful > > Virginia > > > > Kristy Nardini <krnardini@...> wrote: > > Hi, > > > > An earlier post got me to wondering about my son's twin sister (he > > is a > > patient of Dr. G). They turn 6 tomorrow. She often complains of > > being too > > hot or too cold (but has no fever and no other outward signs of > > illness) and > > her tummy or chest hurting (if she eats or uses the restroom, she > > stops > > complaining, and the chest pain is often first thing in the > > morning, so I'm > > wondering if it's reflux - she had it severely as an infant). She > > also has a > > fairly new whitish 'streak' on her upper left arm, where her olive > > pigment > > has faded, about 5 inches long. > > > > Any ideas? I recently read about a pigment change on the back > > related to > > yeast, but the article mentioned specifically the lower back. > > > > We applied for new medical insurance at the beginning of March, and > > a glitch > > means the app is still being reviewed, so the agent advised me > against > > talking to her doctor about any of this for the time being. > > > > She is otherwise very healthy and strong, albeit very petite (they > > were > > micropreemies, and she had significant health issues related to her > > lungs > > and gut during their first 3 years, but her issues were resolved by > > age 4). > > She eats well and has a great disposition. > > > > Thanks, > > > > Kristy > > > > Quote Link to comment Share on other sites More sharing options...
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