Re: a new member of nids

[Guest guest]

15 minutes of ABA per hour is not very much (certainly not ideal for a

preschooler) I would want more personally.

We are a military (AF) family and we move a lot. We do see differences in

different regions of the country as far as services go. The district we are

in now is trying very hard with our son. It is not perfect but they are

cooperative and want what is best for him. We have been in other states and

have

seen much worse for sure. And truthfully, from year to year, it is the

teacher that really makes a difference. Our first year here was rough, because

the teacher just didn't have the talent or the " wanna " . But since then we have

been happy. My son is 13 now. Every year I hold my breath to see if we are

going to get a good one! LOL

In terms of ABA services, my friend has had pretty good luck in NJ. I also

have a friend with a recovered child in Wisconsin who received ABA through

the state. I understand their funding is limited now though, so the program

may be also. Are you a member of an Autism support group? Sometimes the best

leads come from other parents. There might even be something better that is

local.

-S

**************Create a Home Theater Like the Pros. Watch the video on AOL

Home.

(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\

000000001)

[Guest guest]

Hi. My son was disgnosed in November. We are going to the Ny clinic in

April for our first appt. We live in Chicago and our EI service was terrible.

No ABA and only 3hours speech, 2 hours ot and 1 hour dt a week. I am willing to

move to a different state or even Quebec Canada( my husband and family are from

there) in order to get better benefits for my son. Does anyone have any areas

that they feel there child is well served on their road to recovery?

Also my son is starting a pre-k program through our school district . 5 hours

a day 5x a week. ABA therapy 15 minutes of every hour along with floor time and

sensory breaks. Is this enough?

Anyone have input on Tomatis listening therapy? Any succcess stories? help

I wouldn't wash off the dye. Takes too much time and is too much

trouble.

Save your energy for the things that really make a difference. As their

immune systems get better they no longer react to this kind of thing.

Marcia

[Guest guest]

I do not know about other state, but lived in Michigan and do not recall them

offering any seperate ABA therapy sponsered by the state, and do not know what

they do in the schools with ABA. I am from Wisconsin and live here now. There

is a state funded program for ABA therapy for about 35 hours per week, for a

child that qualifies. However, there has been a HUGE problem here with the wait

list with the increase in ASD kids, and I think it is now up to 2 years just to

get in, and then when your kid is up, he has to be re-assessed and still

qualify.

They have to first meet disability requirements, this may be hard to do with a

" high functioning " child and a not so well versed social worker that does the

assessment. This was the case with my son, as we tried about 1 1/2 years ago

and he was rejected, I guess this was unusual, but the soc worker from a

different disability department, said these kind of kids were getting cut out of

the program due to demand and the long waits. This is what one person told me,

and she seemed knowledgeable, but also said at age 6 they can reaply and appear

more behind their peers and then may qualify. She said asperger kids used to

qualify with social issues, but this is not the case any longer.

There is growing political pressure for the state to eliminate the wait list

altogether, but this is in the ? state gov now as a bill, and has not been

passed yet- it would be done by having insurance companies be mandated to

partially cover these kids, along with the state to stop any waiting list. The

politicians are fighting about this issue.

If this happens, I personally wonder if there would be enough companies to

provide therapists for the huge influx of kids. You can find your own and then

have them work through the companies also I guess. We did some ABA and had a

few great therapists, but then some that were not good and were, in our opinion

a waste of my son's time.

If you move to WI and want the waiver, a parent told me you have to wait also

to apply until you establish residency here also for ? a year? , not sure on

that one. My son is now just 6 and we will not reapply, as it did not seem to

" work " for him and he caught onto the therapy and would not do it just to be

funny and ? We also needed a more backdoor approach and are doing RDI, and then

he does not realize it is " therapy " . It focuses more on social nuancies than

doing things through toy play. My son does not like toys or to play with them

at all, and it was a big fight in ABA to have him do this. We do RDI and do

more work and projects that he does and seems to enjoy, and real life things-

like learning about science, etc. We see someone in Chicago for this as a

consultant for RDI.

If you want a soc worker name who can give you more info on the state paid

waiver for ABA, I can locate it for you, let me know. Hope this helps, about a

moving issue as well.

Angie

jessica nove <jesnove5@...> wrote:

Hi. My son was disgnosed in November. We are going to the Ny

clinic in April for our first appt. We live in Chicago and our EI service was

terrible. No ABA and only 3hours speech, 2 hours ot and 1 hour dt a week. I am

willing to move to a different state or even Quebec Canada( my husband and

family are from there) in order to get better benefits for my son. Does anyone

have any areas that they feel there child is well served on their road to

recovery?

Also my son is starting a pre-k program through our school district . 5 hours a

day 5x a week. ABA therapy 15 minutes of every hour along with floor time and

sensory breaks. Is this enough?

Anyone have input on Tomatis listening therapy? Any succcess stories? help

I wouldn't wash off the dye. Takes too much time and is too much trouble.

Save your energy for the things that really make a difference. As their

immune systems get better they no longer react to this kind of thing.

Marcia

[Guest guest]

,

How affected is your son? I am live just outside of chicago. I heard

the best place so far is Wiscosin.

My son never had ABA. But he was high functioning, and we had learn

everthing at first grade. I am not sure if ABA would have helped him

in his case anyway.

Jin

>

> Hi. My son was disgnosed in November. We are going to the Ny

clinic in April for our first appt. We live in Chicago and our EI

service was terrible. No ABA and only 3hours speech, 2 hours ot and

1 hour dt a week. I am willing to move to a different state or even

Quebec Canada( my husband and family are from there) in order to get

better benefits for my son. Does anyone have any areas that they

feel there child is well served on their road to recovery?

> Also my son is starting a pre-k program through our school

district . 5 hours a day 5x a week. ABA therapy 15 minutes of every

hour along with floor time and sensory breaks. Is this enough?

> Anyone have input on Tomatis listening therapy? Any succcess

stories? help

>

>

> I wouldn't wash off the dye. Takes too much time and is

too much trouble.

> Save your energy for the things that really make a difference. As

their

> immune systems get better they no longer react to this kind of

thing.

>

> Marcia

>

>

[Guest guest]

My son is consiedered Hi-functioning. He gets very pre-occupied with his train.

He does talk but only to request milk, juice, cookies. Most of the time he will

repeat questions I ask him. He is very affectionate. Jumps on my back, gives

me kisses, kisses his little borther and daddy. Socially he likes to be around

other children and people. He has sensory issues particularly to his baby

brother crying and high pitched music. This only became obvious once the baby

was born in August. I know of a Rdi therapist in the area that I have already

spoken with. I wonder if RDi in combination with a listening therapy would be

the right route?

He has about 150 cards that he can name ex. ball, eagle, clown, etc. i just

don't know how to take it to the next level on my own or which therapy would be

the most appropriate?ng061629 <yanglou@...> wrote:

,

How affected is your son? I am live just outside of chicago. I heard

the best place so far is Wiscosin.

My son never had ABA. But he was high functioning, and we had learn

everthing at first grade. I am not sure if ABA would have helped him

in his case anyway.

Jin

>

> Hi. My son was disgnosed in November. We are going to the Ny

clinic in April for our first appt. We live in Chicago and our EI

service was terrible. No ABA and only 3hours speech, 2 hours ot and

1 hour dt a week. I am willing to move to a different state or even

Quebec Canada( my husband and family are from there) in order to get

better benefits for my son. Does anyone have any areas that they

feel there child is well served on their road to recovery?

> Also my son is starting a pre-k program through our school

district . 5 hours a day 5x a week. ABA therapy 15 minutes of every

hour along with floor time and sensory breaks. Is this enough?

> Anyone have input on Tomatis listening therapy? Any succcess

stories? help

>

>

> I wouldn't wash off the dye. Takes too much time and is

too much trouble.

> Save your energy for the things that really make a difference. As

their

> immune systems get better they no longer react to this kind of

thing.

>

> Marcia

>

>

[Guest guest]

Your son sounds alot like . He high functioning, pretty social,

always happy and affectionate. He presented with echolalia, which

became severe in an unprepared and under-resourced kindergarten class

in the 2006-2007 school year. He would ask for things he wanted, but

any attempt at conversation or questioning from us or others would

only elicit a repeat of what was said to him.

We started seeing a private SLP last August, who developed an

echolalia program for him, which we began in September. It's worked

wonders. He now barely echos, and is really beginning to use

pragmatic and social language. The program is a series of 15

questions (factual, identification and interaction). We initially

made picture cards for the answers, and drilled him on those first,

to be sure that he knew what each picture was. We then began asking

the questions with the picture card showing. Once he was consistent

with that, we did not automatically show the card. Once he mastered

the questions, we came up with a new set. We did this daily, and he

was pretty much past the echoing and into emerging functional

language by the end of the year. We still run one set of questions,

just as a maintenance kind of thing.

The other thing we were working on was teaching the " I don't know "

response, but this hasn't stuck as well. However, now if he doesn't

know the answer, he uses a made up word, but it's better than echoing!

I can give you more detail - let me know.

Alaine

> >

> > Hi. My son was disgnosed in November. We are going to the Ny

> clinic in April for our first appt. We live in Chicago and our EI

> service was terrible. No ABA and only 3hours speech, 2 hours ot and

> 1 hour dt a week. I am willing to move to a different state or even

> Quebec Canada( my husband and family are from there) in order to

get

> better benefits for my son. Does anyone have any areas that they

> feel there child is well served on their road to recovery?

> > Also my son is starting a pre-k program through our school

> district . 5 hours a day 5x a week. ABA therapy 15 minutes of every

> hour along with floor time and sensory breaks. Is this enough?

> > Anyone have input on Tomatis listening therapy? Any succcess

> stories? help

> >

> >

> > I wouldn't wash off the dye. Takes too much time and is

> too much trouble.

> > Save your energy for the things that really make a difference. As

> their

> > immune systems get better they no longer react to this kind of

> thing.

> >

> > Marcia

> >

> >

[Guest guest]

Alaine,

I'm also new and have the same problem with my son repeting words. What you

saying about your work with your son really great. I would love to hear more

about your ideas

Congratulations on good work!

Thanks

Natalia

Regards

Natalia Ibbott

[Guest guest]

Natalia,

We've got a GREAT local speech therapist who has put these programs

together. She's now given me a " what " program and a " why " program.

While does ask and answer some " what " questions, he's just

starting to answer " why " questions. If you want to email me

directly, I can attach the data sheets with the questions.

It's so nice to see progress!! How old is your son? is 6 & 1/2,

with communication currently presenting at around 3 & 1/2

Alaine

>

> Alaine,

> I'm also new and have the same problem with my son repeting

words. What you saying about your work with your son really great.

I would love to hear more about your ideas

> Congratulations on good work!

> Thanks

> Natalia

>

>

> Regards

>

> Natalia Ibbott

>

>

>

[Guest guest]

Hi, Alaine.

We also have an issue with echolia. I would be interested in the technique and

seeing the questions. He's doing great on " what " but " why " is a problem.

Thanks!

Robyn

alaine0617 <alaineandpaul@...> wrote:

Natalia,

We've got a GREAT local speech therapist who has put these programs

together. She's now given me a " what " program and a " why " program.

While does ask and answer some " what " questions, he's just

starting to answer " why " questions. If you want to email me

directly, I can attach the data sheets with the questions.

It's so nice to see progress!! How old is your son? is 6 & 1/2,

with communication currently presenting at around 3 & 1/2

Alaine

>

> Alaine,

> I'm also new and have the same problem with my son repeting

words. What you saying about your work with your son really great.

I would love to hear more about your ideas

> Congratulations on good work!

> Thanks

> Natalia

>

>

> Regards

>

> Natalia Ibbott

>

>

>

[Guest guest]

Are all you folks complaining of echolailia patients of Dr. G? Sorry, but I

have been out of the loop for a while and am not familiar with all the new

folks. My son's echolailia disappeared completely and very quickly once we

started the antiviral. All the " wh " questions came soon after that. It

makes me a firm believer that all the therapies in the world are not going

to help when the problem is physiological. We have seen this time and time

again with new meds and changing them.

There is never an easy fix, however, if the child is sick, they are not

going to respond to therapies until they are getting healthy. That is the

WHY! of the " A " word!

Lori

_____

From: [mailto: ] On Behalf Of

alaine0617

Sent: Thursday, April 03, 2008 12:19 PM

Subject: Re: a new member of nids

Natalia,

We've got a GREAT local speech therapist who has put these programs

together. She's now given me a " what " program and a " why " program.

While does ask and answer some " what " questions, he's just

starting to answer " why " questions. If you want to email me

directly, I can attach the data sheets with the questions.

It's so nice to see progress!! How old is your son? is 6 & 1/2,

with communication currently presenting at around 3 & 1/2

Alaine

>

> Alaine,

> I'm also new and have the same problem with my son repeting

words. What you saying about your work with your son really great.

I would love to hear more about your ideas

> Congratulations on good work!

> Thanks

> Natalia

>

>

> Regards

>

> Natalia Ibbott

>

>

>