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Re: Bruising, dark spots

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Have you spoken to Dr. G about it? If you have, I would bring it up

again and be more detailed. He may think it's nothing but if you

tell him you really think it needs to be investigated, he may do it

just to make you feel better. I truly believe he doesn't want you

scared or worried. In the past, when I've been concerned about

something and I pressed the issue, he obliged.

Cheryl

On May 4, 2008, at 5:29 PM, Jerri & Nick Gann wrote:

> I'm kind of panicking here. I just looked at my 11 year old son

> (patient of Dr G)and he has lots of spots on his body that look like

> bruises but they are darker brown like a lighter liver spot. He still

> has this one bruise from when he got a puncture wound at age five, it

> forms little hard dark purple things that come out every now and

> then, it has never totally healed. He also has some little bruise

> like spots on the top of his ankle, that almost look like a clot. I

> keep thinking something is not right with his blood. I have taken him

> to a dermatologist in the past, for the one bump that has never gone

> away and they said it was nothing serious. Other dr.'s have said the

> same thing. Of course they are not seeing what I'm seeing now. With

> the labs we get from Dr G. every 8 weeks, surely if something more

> sinister were going on, it would show up? I so fear some awful

> disease for my son. I'm sure you can all relate. His allergies are

> driving him nuts here, he's constantly clearing the back of his

> throat but he is not congested. He has restless leg syndrome now too.

> In all other areas he is doing great. Believe it or not, he is much

> healthier than he has ever been. We are almost done with school and

> he has not caught anything that has made him really sick like in the

> past this whole school year. One time half the class was out. Anyway,

> I would appreciate any help here. I don't really know where to turn

> or what to do. Thanks, Jerri

>

>

>

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My son had some spots like this for a few days that were on his chest, back and

stomach. They did look like bruises and had a very small red dot inside of

them, that faded first and then the spots faded like a normal bruise would have.

They were about or less than the size of a pencil eraser. There were not a lot

of them. At this time, My yougest and I had a cold as well. I wondered if my

son had a viral thing going on and could not respond normally, he was really

crabby also with this and had more aggression.

In Jan. he had his 6 yr check with the regualar ped. and he happened at this

time to have petechiae on his very upper chest and neck, no bruises but just the

very needle point red dots. I told the MD about earlier and then he later

looked and these and said they were probably viral and from an overactive immune

system, and found himself aggreeing with my by defult! He said to come back if

they did not resolve or got worse. We did not have to follow up.

I personally think these are from my son's over active immune system, as it

seems to fit his clinical picture. We are new to and are going to have our

appt this summer, so it will be interesting the thought on this.

It is a good idea to ask Dr. G. I think as well. I did not see a derm. MD for

this, I figured it was more a hematology / immune issue. Not sure if this

sounds alot like your son, but this is just my experience with this.

Angie

Cheryl Lowrance <c.lowrance@...> wrote:

Have you spoken to Dr. G about it? If you have, I would bring it up

again and be more detailed. He may think it's nothing but if you

tell him you really think it needs to be investigated, he may do it

just to make you feel better. I truly believe he doesn't want you

scared or worried. In the past, when I've been concerned about

something and I pressed the issue, he obliged.

Cheryl

On May 4, 2008, at 5:29 PM, Jerri & Nick Gann wrote:

> I'm kind of panicking here. I just looked at my 11 year old son

> (patient of Dr G)and he has lots of spots on his body that look like

> bruises but they are darker brown like a lighter liver spot. He still

> has this one bruise from when he got a puncture wound at age five, it

> forms little hard dark purple things that come out every now and

> then, it has never totally healed. He also has some little bruise

> like spots on the top of his ankle, that almost look like a clot. I

> keep thinking something is not right with his blood. I have taken him

> to a dermatologist in the past, for the one bump that has never gone

> away and they said it was nothing serious. Other dr.'s have said the

> same thing. Of course they are not seeing what I'm seeing now. With

> the labs we get from Dr G. every 8 weeks, surely if something more

> sinister were going on, it would show up? I so fear some awful

> disease for my son. I'm sure you can all relate. His allergies are

> driving him nuts here, he's constantly clearing the back of his

> throat but he is not congested. He has restless leg syndrome now too.

> In all other areas he is doing great. Believe it or not, he is much

> healthier than he has ever been. We are almost done with school and

> he has not caught anything that has made him really sick like in the

> past this whole school year. One time half the class was out. Anyway,

> I would appreciate any help here. I don't really know where to turn

> or what to do. Thanks, Jerri

>

>

>

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Hey Jerri-

With the throat clearing, I wonder if he's had his ASO

titers checked recently? If they are very high,

sometimes *I think* that can cause a lot of platelet

activation (not necessarily increase the numbers), and

with that, you'd get easier bruising and odd marks,

etc. I've had marks checked too, and I've also sworn

I was getting clots, and I know my blood clots

differently when my ASO is high. But I don't think

I'm at risk of stroke or major clot disorders because

of it ... that's a different sort of problem. While I

know you can read horror stories about platelet

activation, the kind we would have with PANDAS (and

maybe other TH1 over-activation??) are NOT of the

nature that would put you at the kind of risk as other

platelet issues. For one, there's not an increase in

their numbers ... which is when it becomes a risk. I

also think it's a common finding in CFIDS. I'll bet

that if you had his sed rate checked while these are

going on, it would be very low like 0,1,or 2. Again,

not a dangerous thing...just a marker.

Soooo.... it is MOST likely one of those *wierd*

eccentric things we get stuck fretting over that no

regular doctor ever is concerned about, because it is

not known to be dangerous. Oh - and I forgot - I get

a big increase in restless leg when my ASO is high

too, as well as with yeast.

What I'd do is take a picture of it and email it to Dr

G just for your peace of mind. If he is concerned,

he'd do more tests.

I hope that helps. I know it's scary. Don't go

reading about it - because I already scared myself to

death over it and a -friendly doctor explained it

to me a while back what is different but I just can't

remember the details.

--- Jerri & Nick Gann <njgann@...> wrote:

> I'm kind of panicking here. I just looked at my 11

> year old son

> (patient of Dr G)and he has lots of spots on his

> body that look like

> bruises but they are darker brown like a lighter

> liver spot. He still

> has this one bruise from when he got a puncture

> wound at age five, it

> forms little hard dark purple things that come out

> every now and

> then, it has never totally healed. He also has some

> little bruise

> like spots on the top of his ankle, that almost look

> like a clot. I

> keep thinking something is not right with his blood.

> I have taken him

> to a dermatologist in the past, for the one bump

> that has never gone

> away and they said it was nothing serious. Other

> dr.'s have said the

> same thing. Of course they are not seeing what I'm

> seeing now. With

> the labs we get from Dr G. every 8 weeks, surely if

> something more

> sinister were going on, it would show up? I so fear

> some awful

> disease for my son. I'm sure you can all relate. His

> allergies are

> driving him nuts here, he's constantly clearing the

> back of his

> throat but he is not congested. He has restless leg

> syndrome now too.

> In all other areas he is doing great. Believe it or

> not, he is much

> healthier than he has ever been. We are almost done

> with school and

> he has not caught anything that has made him really

> sick like in the

> past this whole school year. One time half the class

> was out. Anyway,

> I would appreciate any help here. I don't really

> know where to turn

> or what to do. Thanks, Jerri

>

>

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Jerri,

I second ¹s idea of sending Dr. G a photo. I recently e-mailed him a

photo of a severe rash my son had, and I think it was helpful to him.

One thing, though. It turned out that his staff can only print things out

it black and white, so you might want to use the regular mail to send him an

actual photo. I don¹t think he ever saw the actual photo I sent... just the

black and white printout.

Caroline

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Thanks everyone for your responses. Cheryl, I just had my phone

consult with Dr G. So my next one is a month off but I will sure tell

him all about. It seems something always happens after my phone

consult when I tell him things are going well. I'm almost afraid to

ever say things are going well because then something seems to happen

to scare the hell out of me soon after. Taking a picture and mailing

it to him, is a good idea, . His ASO titers are finally in

range and he is still on Eryped. He's been on it for so long now. I

guess I just have to wait until my next phone consult because any

other dr. probably won't help much. Thanks for all the reassuring

emails in the meantime. Jerri

---- Original Message ----

From: sfglover@...

Subject: Re: Bruising, dark spots

Date: Mon, 05 May 2008 10:37:28 -0400

>Jerri,

>

>I second ¹s idea of sending Dr. G a photo. I recently

>e-mailed him a

>photo of a severe rash my son had, and I think it was helpful to him.

>

>One thing, though. It turned out that his staff can only print

>things out

>it black and white, so you might want to use the regular mail to send

>him an

>actual photo. I don¹t think he ever saw the actual photo I sent...

>just the

>black and white printout.

>

>Caroline

>

>

>

>

>

>

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Thanks Angie

---- Original Message ----

From: angiehuiz@...

Subject: Re: Bruising, dark spots

Date: Sun, 4 May 2008 18:10:26 -0700 (PDT)

>My son had some spots like this for a few days that were on his

>chest, back and stomach. They did look like bruises and had a very

>small red dot inside of them, that faded first and then the spots

>faded like a normal bruise would have. They were about or less than

>the size of a pencil eraser. There were not a lot of them. At this

>time, My yougest and I had a cold as well. I wondered if my son had

>a viral thing going on and could not respond normally, he was really

>crabby also with this and had more aggression.

> In Jan. he had his 6 yr check with the regualar ped. and he

>happened at this time to have petechiae on his very upper chest and

>neck, no bruises but just the very needle point red dots. I told the

>MD about earlier and then he later looked and these and said

>they were probably viral and from an overactive immune system, and

>found himself aggreeing with my by defult! He said to come back if

>they did not resolve or got worse. We did not have to follow up.

> I personally think these are from my son's over active immune

>system, as it seems to fit his clinical picture. We are new to

>and are going to have our appt this summer, so it will be interesting

>the thought on this.

> It is a good idea to ask Dr. G. I think as well. I did not see a

>derm. MD for this, I figured it was more a hematology / immune issue.

> Not sure if this sounds alot like your son, but this is just my

>experience with this.

> Angie

>

>Cheryl Lowrance <c.lowrance@...> wrote:

> Have you spoken to Dr. G about it? If you have, I would

>bring it up

>again and be more detailed. He may think it's nothing but if you

>tell him you really think it needs to be investigated, he may do it

>just to make you feel better. I truly believe he doesn't want you

>scared or worried. In the past, when I've been concerned about

>something and I pressed the issue, he obliged.

>

>Cheryl

>

>On May 4, 2008, at 5:29 PM, Jerri & Nick Gann wrote:

>

>> I'm kind of panicking here. I just looked at my 11 year old son

>> (patient of Dr G)and he has lots of spots on his body that look

>like

>> bruises but they are darker brown like a lighter liver spot. He

>still

>> has this one bruise from when he got a puncture wound at age five,

>it

>> forms little hard dark purple things that come out every now and

>> then, it has never totally healed. He also has some little bruise

>> like spots on the top of his ankle, that almost look like a clot. I

>> keep thinking something is not right with his blood. I have taken

>him

>> to a dermatologist in the past, for the one bump that has never

>gone

>> away and they said it was nothing serious. Other dr.'s have said

>the

>> same thing. Of course they are not seeing what I'm seeing now. With

>> the labs we get from Dr G. every 8 weeks, surely if something more

>> sinister were going on, it would show up? I so fear some awful

>> disease for my son. I'm sure you can all relate. His allergies are

>> driving him nuts here, he's constantly clearing the back of his

>> throat but he is not congested. He has restless leg syndrome now

>too.

>> In all other areas he is doing great. Believe it or not, he is much

>> healthier than he has ever been. We are almost done with school and

>> he has not caught anything that has made him really sick like in

>the

>> past this whole school year. One time half the class was out.

>Anyway,

>> I would appreciate any help here. I don't really know where to turn

>> or what to do. Thanks, Jerri

>>

>>

>>

>

>

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