Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi Cheryl - I'll try to give some input, but don't know if any will hit on the right topic. First, Diflucan... are you using a dye-free one? Possibly having it compounded at Friendly Hills? This was a big one w/my son. When he gets less reactive, he may not be as sensitive ... but I had no choice but to use Friendly Hills for a long time there. And without using insurance, it was much cheaper at the time - that was before generic became available. I'm sure you're washing off the blue dye, so I wouldn't suspect much on Valtrex. That one, I'd give time. And even if die-off has passed, that doesn't mean something isn't still stirred up and setting him off, but if it's a direct result of the Valtrex, it'll pass. My biggest suspicion, based on your son's behavior, is that he may be eating something he is highly reactive to, something that didn't seem to be a problem in the first month, but has steadily and continuously set him off. My first guess is that there is a favorite food of his that is high in soy lecithen, or soy protein of another kind, like hydrolyzed soy protein. I would look at his pupils in a bright light, and if they do not constrict down to a tiny point, I would search through his diet seeking every source of lecithen (except eggs - they're high in lecithen but it's very different) and eliminate it IMMEDIATELY. And then you need to allow an entire week (usually 5 days but give a couple of extra) and see if his hostility doesn't cut in half. If this is the problem, in my experience there will still be remaining behavioral habit residue from the internalized anger during this period of wild anger, but it will begin to be much easier to handle, the outbursts will be much shorter. Then you rebuild the emotional control and reward the improvements until they are gone. Soy is the single biggest cause of aggression in my household EVER. Pink dye (even the tiniest tint in the generic I get) is 2nd. Peanut butter is next. Chocolate syrup is a little further down on that list. But if there's any strep involved, forget everything I said. SSRIs never brought about a complete lack of control like I thought a couple of times they were .... it ALWAYS turned out that lecithen had leaked into his diet and I overlooked it, because it takes well over a week for the problem to build up, and by that time, I had already expected the food to be fine. And it does not increase eosiniphils or anything to show up in the labs as a food reaction. I sure hope it helps. Keep us updated, and hang in there. You WILL get rid of the problem, and in the meantime, hold your fingers in front of your eyes, frame his head in them, and squeeze while imagine pinching the little head off for a bit of sick humor relief . Tones down my " mad " a little - just had to use that one yesterday. HTH- --- Cheryl Lowrance <c.lowrance@...> wrote: > to change your ssri? My son has been having issues > with focus and > attention, aggression and compliance ever since we > changed back to > Valtrex and tried to up his zoloft. We went back > down on the zoloft > but he still has the same issues, just not as bad. > He completely > ignores us at times now, is kicking, biting, > spitting and eloping > from tasks at school. He doesn't attend to anything > hardly anymore. > Is it time to change? Maybe it's time to change > antifungals? We've > only been on diflucan for probably about 4 months. > I told Dr. G all > of this last month and he felt we might still be > going through some > die off from the switch back to Valtrex but it's > definitely not that > since it's been 2 months now. > > Just frustrated. He's having a difficult time at > school and getting > into a lot more trouble at home. We have our > appointment with Dr. G > on Monday so that should be good but I was hoping > for some input. > > Cheryl > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 My son has been like Cheryl's since he had a bad " flu " at the end of Feb. that last 10 days, then Dr. G put him on Biaxin. We've had a lot of regression since. Dr. G has not wanted to adjust anything, except he did switch him from Zovirax back to Valtrex about a month ago. No die off, but not a lot of improvement, either ;-( Kristy Re: How did you know it was time... Hi Cheryl - I'll try to give some input, but don't know if any will hit on the right topic. First, Diflucan... are you using a dye-free one? Possibly having it compounded at Friendly Hills? This was a big one w/my son. When he gets less reactive, he may not be as sensitive ... but I had no choice but to use Friendly Hills for a long time there. And without using insurance, it was much cheaper at the time - that was before generic became available. I'm sure you're washing off the blue dye, so I wouldn't suspect much on Valtrex. That one, I'd give time. And even if die-off has passed, that doesn't mean something isn't still stirred up and setting him off, but if it's a direct result of the Valtrex, it'll pass. My biggest suspicion, based on your son's behavior, is that he may be eating something he is highly reactive to, something that didn't seem to be a problem in the first month, but has steadily and continuously set him off. My first guess is that there is a favorite food of his that is high in soy lecithen, or soy protein of another kind, like hydrolyzed soy protein. I would look at his pupils in a bright light, and if they do not constrict down to a tiny point, I would search through his diet seeking every source of lecithen (except eggs - they're high in lecithen but it's very different) and eliminate it IMMEDIATELY. And then you need to allow an entire week (usually 5 days but give a couple of extra) and see if his hostility doesn't cut in half. If this is the problem, in my experience there will still be remaining behavioral habit residue from the internalized anger during this period of wild anger, but it will begin to be much easier to handle, the outbursts will be much shorter. Then you rebuild the emotional control and reward the improvements until they are gone. Soy is the single biggest cause of aggression in my household EVER. Pink dye (even the tiniest tint in the generic I get) is 2nd. Peanut butter is next. Chocolate syrup is a little further down on that list. But if there's any strep involved, forget everything I said. SSRIs never brought about a complete lack of control like I thought a couple of times they were ... it ALWAYS turned out that lecithen had leaked into his diet and I overlooked it, because it takes well over a week for the problem to build up, and by that time, I had already expected the food to be fine. And it does not increase eosiniphils or anything to show up in the labs as a food reaction. I sure hope it helps. Keep us updated, and hang in there. You WILL get rid of the problem, and in the meantime, hold your fingers in front of your eyes, frame his head in them, and squeeze while imagine pinching the little head off for a bit of sick humor relief . Tones down my " mad " a little - just had to use that one yesterday. HTH- --- Cheryl Lowrance <c.lowrance@...> wrote: > to change your ssri? My son has been having issues > with focus and > attention, aggression and compliance ever since we > changed back to > Valtrex and tried to up his zoloft. We went back > down on the zoloft > but he still has the same issues, just not as bad. > He completely > ignores us at times now, is kicking, biting, > spitting and eloping > from tasks at school. He doesn't attend to anything > hardly anymore. > Is it time to change? Maybe it's time to change > antifungals? We've > only been on diflucan for probably about 4 months. > I told Dr. G all > of this last month and he felt we might still be > going through some > die off from the switch back to Valtrex but it's > definitely not that > since it's been 2 months now. > > Just frustrated. He's having a difficult time at > school and getting > into a lot more trouble at home. We have our > appointment with Dr. G > on Monday so that should be good but I was hoping > for some input. > > Cheryl > > __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 I would ask Dr. G if his viral titers are going up on Valtrex. If so, it might be better to switch anti-virals. Dr. G usually waits to see what the titers are doing before he will switch, though. How did you know it was time... to change your ssri? My son has been having issues with focus and attention, aggression and compliance ever since we changed back to Valtrex and tried to up his zoloft. We went back down on the zoloft but he still has the same issues, just not as bad. He completely ignores us at times now, is kicking, biting, spitting and eloping from tasks at school. He doesn't attend to anything hardly anymore. Is it time to change? Maybe it's time to change antifungals? We've only been on diflucan for probably about 4 months. I told Dr. G all of this last month and he felt we might still be going through some die off from the switch back to Valtrex but it's definitely not that since it's been 2 months now. Just frustrated. He's having a difficult time at school and getting into a lot more trouble at home. We have our appointment with Dr. G on Monday so that should be good but I was hoping for some input. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 The switch was *because* of titers going up. Cheryl On May 3, 2008, at 12:10 PM, Ellen wrote: > I would ask Dr. G if his viral titers are going up on Valtrex. If > so, it might be better to switch anti-virals. Dr. G usually waits > to see what the titers are doing before he will switch, though. > > How did you know it was time... > > to change your ssri? My son has been having issues with focus and > attention, aggression and compliance ever since we changed back to > Valtrex and tried to up his zoloft. We went back down on the zoloft > but he still has the same issues, just not as bad. He completely > ignores us at times now, is kicking, biting, spitting and eloping > from tasks at school. He doesn't attend to anything hardly anymore. > Is it time to change? Maybe it's time to change antifungals? We've > only been on diflucan for probably about 4 months. I told Dr. G all > of this last month and he felt we might still be going through some > die off from the switch back to Valtrex but it's definitely not that > since it's been 2 months now. > > Just frustrated. He's having a difficult time at school and getting > into a lot more trouble at home. We have our appointment with Dr. G > on Monday so that should be good but I was hoping for some input. > > Cheryl > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Seems we're in the same boat.... Cheryl On May 3, 2008, at 9:59 AM, Kristy Nardini wrote: > My son has been like Cheryl's since he had a bad " flu " at the end > of Feb. > that last 10 days, then Dr. G put him on Biaxin. We've had a lot of > regression since. Dr. G has not wanted to adjust anything, except > he did > switch him from Zovirax back to Valtrex about a month ago. No die > off, but > not a lot of improvement, either ;-( > > Kristy > > Re: How did you know it was time... > > Hi Cheryl - > > I'll try to give some input, but don't know if any > will hit on the right topic. > > First, Diflucan... are you using a dye-free one? > Possibly having it compounded at Friendly Hills? This > was a big one w/my son. When he gets less reactive, > he may not be as sensitive ... but I had no choice but > to use Friendly Hills for a long time there. And > without using insurance, it was much cheaper at the > time - that was before generic became available. > > I'm sure you're washing off the blue dye, so I > wouldn't suspect much on Valtrex. That one, I'd give > time. And even if die-off has passed, that doesn't > mean something isn't still stirred up and setting him > off, but if it's a direct result of the Valtrex, it'll > pass. > > My biggest suspicion, based on your son's behavior, is > that he may be eating something he is highly reactive > to, something that didn't seem to be a problem in the > first month, but has steadily and continuously set him > off. My first guess is that there is a favorite food > of his that is high in soy lecithen, or soy protein of > another kind, like hydrolyzed soy protein. I would > look at his pupils in a bright light, and if they do > not constrict down to a tiny point, I would search > through his diet seeking every source of lecithen > (except eggs - they're high in lecithen but it's very > different) and eliminate it IMMEDIATELY. And then you > need to allow an entire week (usually 5 days but give > a couple of extra) and see if his hostility doesn't > cut in half. If this is the problem, in my experience > there will still be remaining behavioral habit residue > from the internalized anger during this period of wild > anger, but it will begin to be much easier to handle, > the outbursts will be much shorter. Then you rebuild > the emotional control and reward the improvements > until they are gone. > > Soy is the single biggest cause of aggression in my > household EVER. Pink dye (even the tiniest tint in the > generic I get) is 2nd. Peanut butter is next. > Chocolate syrup is a little further down on that list. > But if there's any strep involved, forget everything > I said. SSRIs never brought about a complete lack > of control like I thought a couple of times they were > ... it ALWAYS turned out that lecithen had leaked into > his diet and I overlooked it, because it takes well > over a week for the problem to build up, and by that > time, I had already expected the food to be fine. And > it does not increase eosiniphils or anything to show > up in the labs as a food reaction. > > I sure hope it helps. > Keep us updated, and hang in there. You WILL get rid > of the problem, and in the meantime, hold your fingers > in front of your eyes, frame his head in them, and > squeeze while imagine pinching the little head off for > a bit of sick humor relief . Tones down my " mad " a > little - just had to use that one yesterday. > > HTH- > > > --- Cheryl Lowrance <c.lowrance@...> wrote: > > > to change your ssri? My son has been having issues > > with focus and > > attention, aggression and compliance ever since we > > changed back to > > Valtrex and tried to up his zoloft. We went back > > down on the zoloft > > but he still has the same issues, just not as bad. > > He completely > > ignores us at times now, is kicking, biting, > > spitting and eloping > > from tasks at school. He doesn't attend to anything > > hardly anymore. > > Is it time to change? Maybe it's time to change > > antifungals? We've > > only been on diflucan for probably about 4 months. > > I told Dr. G all > > of this last month and he felt we might still be > > going through some > > die off from the switch back to Valtrex but it's > > definitely not that > > since it's been 2 months now. > > > > Just frustrated. He's having a difficult time at > > school and getting > > into a lot more trouble at home. We have our > > appointment with Dr. G > > on Monday so that should be good but I was hoping > > for some input. > > > > Cheryl > > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Comments within: On May 3, 2008, at 9:33 AM, wrote: > > First, Diflucan... are you using a dye-free one? > We use pills. > > I'm sure you're washing off the blue dye > yup > > My biggest suspicion, based on your son's behavior, is > that he may be eating something he is highly reactive > to, something that didn't seem to be a problem in the > first month, > No change in diet in years. Seriously, he's eating the exact same things he's been eating for the last 2 years. Aside from that, he has *never* shown a physical reaction to food. I've tried every diet out there practically and every time, I just end up going back to the same foods. We just sent in a diet to Dr. G, too. No changes there except he wanted me to change multivits. He's never responded + or - to any diet changes. Every once in a while I think " well maybe it's this... " and I remove it for a month or two and nothing. I wish he did respond to food because it would certainly make things easier for me! > Pink dye (even the tiniest tint in the > generic I get) is 2nd. > He doesn't respond to dye, either. Maybe I'll switch to the white pill just to see. > > I sure hope it helps. > I wish it did. Dr. G has been talking about wanting to change his ssri so that's why I'm wondering if it might *need* to be changed. > > Keep us updated, and hang in there. You WILL get rid > of the problem, and in the meantime, hold your fingers > in front of your eyes, frame his head in them, and > squeeze while imagine pinching the little head off for > a bit of sick humor relief . Tones down my " mad " a > little - just had to use that one yesterday. > You and me both!!!!! cheryl > > > HTH- > > > --- Cheryl Lowrance <c.lowrance@...> wrote: > > > to change your ssri? My son has been having issues > > with focus and > > attention, aggression and compliance ever since we > > changed back to > > Valtrex and tried to up his zoloft. We went back > > down on the zoloft > > but he still has the same issues, just not as bad. > > He completely > > ignores us at times now, is kicking, biting, > > spitting and eloping > > from tasks at school. He doesn't attend to anything > > hardly anymore. > > Is it time to change? Maybe it's time to change > > antifungals? We've > > only been on diflucan for probably about 4 months. > > I told Dr. G all > > of this last month and he felt we might still be > > going through some > > die off from the switch back to Valtrex but it's > > definitely not that > > since it's been 2 months now. > > > > Just frustrated. He's having a difficult time at > > school and getting > > into a lot more trouble at home. We have our > > appointment with Dr. G > > on Monday so that should be good but I was hoping > > for some input. > > > > Cheryl > > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http:// > mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hi Cheryl, I do think its the SSRI. Sometimes it may be too much of a good thing. Think about at what dose you had the best results for . Perhaps might consider with Dr G to drop it down even further or switching. Did any behaviors change with the change of anti-fungal ie. Nizoral to Diflucan, if so it could be the anti-fungal. Just my thoughts. Kavita Re: How did you know it was time... > > Hi Cheryl - > > I'll try to give some input, but don't know if any > will hit on the right topic. > > First, Diflucan... are you using a dye-free one? > Possibly having it compounded at Friendly Hills? This > was a big one w/my son. When he gets less reactive, > he may not be as sensitive ... but I had no choice but > to use Friendly Hills for a long time there. And > without using insurance, it was much cheaper at the > time - that was before generic became available. > > I'm sure you're washing off the blue dye, so I > wouldn't suspect much on Valtrex. That one, I'd give > time. And even if die-off has passed, that doesn't > mean something isn't still stirred up and setting him > off, but if it's a direct result of the Valtrex, it'll > pass. > > My biggest suspicion, based on your son's behavior, is > that he may be eating something he is highly reactive > to, something that didn't seem to be a problem in the > first month, but has steadily and continuously set him > off. My first guess is that there is a favorite food > of his that is high in soy lecithen, or soy protein of > another kind, like hydrolyzed soy protein. I would > look at his pupils in a bright light, and if they do > not constrict down to a tiny point, I would search > through his diet seeking every source of lecithen > (except eggs - they're high in lecithen but it's very > different) and eliminate it IMMEDIATELY. And then you > need to allow an entire week (usually 5 days but give > a couple of extra) and see if his hostility doesn't > cut in half. If this is the problem, in my experience > there will still be remaining behavioral habit residue > from the internalized anger during this period of wild > anger, but it will begin to be much easier to handle, > the outbursts will be much shorter. Then you rebuild > the emotional control and reward the improvements > until they are gone. > > Soy is the single biggest cause of aggression in my > household EVER. Pink dye (even the tiniest tint in the > generic I get) is 2nd. Peanut butter is next. > Chocolate syrup is a little further down on that list. > But if there's any strep involved, forget everything > I said. SSRIs never brought about a complete lack > of control like I thought a couple of times they were > ... it ALWAYS turned out that lecithen had leaked into > his diet and I overlooked it, because it takes well > over a week for the problem to build up, and by that > time, I had already expected the food to be fine. And > it does not increase eosiniphils or anything to show > up in the labs as a food reaction. > > I sure hope it helps. > Keep us updated, and hang in there. You WILL get rid > of the problem, and in the meantime, hold your fingers > in front of your eyes, frame his head in them, and > squeeze while imagine pinching the little head off for > a bit of sick humor relief . Tones down my " mad " a > little - just had to use that one yesterday. > > HTH- > > > --- Cheryl Lowrance <c.lowranceca (DOT) rr.com> wrote: > > > to change your ssri? My son has been having issues > > with focus and > > attention, aggression and compliance ever since we > > changed back to > > Valtrex and tried to up his zoloft. We went back > > down on the zoloft > > but he still has the same issues, just not as bad. > > He completely > > ignores us at times now, is kicking, biting, > > spitting and eloping > > from tasks at school. He doesn't attend to anything > > hardly anymore. > > Is it time to change? Maybe it's time to change > > antifungals? We've > > only been on diflucan for probably about 4 months. > > I told Dr. G all > > of this last month and he felt we might still be > > going through some > > die off from the switch back to Valtrex but it's > > definitely not that > > since it's been 2 months now. > > > > Just frustrated. He's having a difficult time at > > school and getting > > into a lot more trouble at home. We have our > > appointment with Dr. G > > on Monday so that should be good but I was hoping > > for some input. > > > > Cheryl > > > > > > ____________ _________ _________ _________ _________ _________ _ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > > Quote Link to comment Share on other sites More sharing options...
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