Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 A follow up question- which doctors are doing similar things and of what type? Would these other techniques then be in place of RDI? I am always curious about therapies out there and would be intersted in researching this. We did some ABA and my son was bored with it, and we have a hard time still with his very poor play skills. Is your opinion of Dr. Gutstein based on his personality, or also in regards to his therapy / philosophy program? Thanks for any info. Angie Doris and Steve <sjsmith@...> wrote: personally, I would stop doing RDI. I attended a 3 day talk/workshop by Dr Gutstein and found him to be rude, intolerable of new ideas and boring. His ideas are good but there are many other Drs doing similar techniques who are more knowledgeable. What is significant progress? how has this been measured? before and after? Doesn't Compart do chelation and color therapy? To be more informed on what is, I would buy the Mississippi DVD from the office. I would also look at the articles posted on the 2 websites: www.nids.net www.neuroimmunedr.com I would locate the article on SPECT scans done by Dr Mena and Dr Goldberg. I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. d Doris, Thank you for your information. I'm currently with Dr. Compart in Columbia and Dr. Gutstein for RDI. We have seen significant progress. I think I need to learn more about . What is the best way to do that? Best, Dawn --- Doris and Steve <sjsmith@... <mailto:sjsmith%40cablespeed.com>> wrote: > > <sigh> , Sharryl, Aimee, Edwin and I could > only hope! > > All of us are working with a variety of physicians > who remain 'open' to > the idea. > Dr Compart in Columbia told a mother once that she > would recommend patients > to Dr Goldberg but she herself didn't know that much > about the immune > system to > treat children. We use a pediatrician in Severna > Park who monitors > and helps us with prescriptions and blood sucks. > I continue to exchange thoughts and ideas with Dr > Zimmerman as his crew > is doing a great job in the research arena. > We're all slowly passing around the Mississippi > dvd to physicians to > show them what Dr Goldberg is doing. > I *understand* that Dr G has talked with Dr > Zimmerman and Dr Layton > (allergist > in Towson) and I don't think either exchange was > positive for him :-) > There is a CFIDS center in polis that looks > 'interesting' .. It's headed > by Dr Teitelbaum (From Fatique to Fantastic) > I called them once to see about doing some bloodwork > on me. The initial > consult / cost = $8000. They will work with you on > getting insurance to > reimburse > most of the costs. According to CFIDS sources, he's > well respected and > the bloodwork > he does is very similar to Dr G's. > > Some of the parents in this area travel to NNY to > see Kathy and her crew. > I understand it's about a 7-8 hr drive. > > doris > sville, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 I feel quite the opposite about Dr. Gutstein. Sorry you had the experience you had. Thanks for the information. Best, Dawn --- Doris and Steve <sjsmith@...> wrote: > personally, I would stop doing RDI. I attended a 3 > day talk/workshop by > Dr Gutstein > and found him to be rude, intolerable of new ideas > and boring. His ideas > are good but > there are many other Drs doing similar techniques > who are more > knowledgeable. > > What is significant progress? how has this been > measured? before and after? > Doesn't Compart do chelation and color therapy? > > To be more informed on what is, I would buy the > Mississippi DVD > from the office. I would also look at the articles > posted on the 2 > websites: > www.nids.net > www.neuroimmunedr.com > I would locate the article on SPECT scans done by Dr > Mena and Dr Goldberg. > I would read Zimmerman/Pardu (JHU)'s article on > brain inflammation. > > d > > Doris, > > Thank you for your information. I'm currently with > Dr. > Compart in Columbia and Dr. Gutstein for RDI. We > have > seen significant progress. I think I need to learn > more about . What is the best way to do that? > > Best, > Dawn > --- Doris and Steve <sjsmith@... > <mailto:sjsmith%40cablespeed.com>> > wrote: > > > > > <sigh> , Sharryl, Aimee, Edwin and I could > > only hope! > > > > All of us are working with a variety of > physicians > > who remain 'open' to > > the idea. > > Dr Compart in Columbia told a mother once that > she > > would recommend patients > > to Dr Goldberg but she herself didn't know that > much > > about the immune > > system to > > treat children. We use a pediatrician in Severna > > Park who monitors > > and helps us with prescriptions and blood sucks. > > I continue to exchange thoughts and ideas with Dr > > Zimmerman as his crew > > is doing a great job in the research arena. > > We're all slowly passing around the > Mississippi > > dvd to physicians to > > show them what Dr Goldberg is doing. > > I *understand* that Dr G has talked with Dr > > Zimmerman and Dr Layton > > (allergist > > in Towson) and I don't think either exchange was > > positive for him :-) > > There is a CFIDS center in polis that looks > > 'interesting' > . It's headed > > by Dr Teitelbaum (From Fatique to Fantastic) > > I called them once to see about doing some > bloodwork > > on me. The initial > > consult / cost = $8000. They will work with you > on > > getting insurance to > > reimburse > > most of the costs. According to CFIDS sources, > he's > > well respected and > > the bloodwork > > he does is very similar to Dr G's. > > > > Some of the parents in this area travel to NNY to > > see Kathy and her crew. > > I understand it's about a 7-8 hr drive. > > > > doris > > sville, MD > > > [Non-text portions of this message have been > removed] > > > ------------------------------------ > > Responsibility for the content of this message lies > strictly with > the original author(s), and is not necessarily > endorsed by or the > opinion of the Research Institute, the > Parent Coalition, or the list moderator(s). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2008 Report Share Posted April 13, 2008 I don't think it's fair to throw the baby out with the bath water. *Any* behavioral therapy you enter is only as good as the therapist you have, not the person that created it. If we all judged everything on that, we wouldn't be doing *a lot* of things that we do, including see Dr. G. I'm sure we all have areas where we disagree with him to some extent. If I based ABA/Floortime/RDI/ TEEACH/etc. on their creators, I wouldn't have anything to do with any of them and mostly because they don't believe in biomed (I have numerous other reasons I could use but that's the biggie). But then that would only be a disservice to my son. Do what works, it's more important for children to get the help than it is to refuse a program that may be of great benefit because you don't like the creators attitude. If I based my decision on what other people thought of Dr. Goldberg, I never would have been here as I had way more people volunteering how unhappy they were with him than people telling me how much they love him. Dr. G and I don't see eye to eye on many things but he has done the most for my child and I won't leave him just because I don't agree with his view on vaccines. Results are what matter. Any program is only as good as the therapist. I've had bad therapists, I've had great therapists. It has to fit the child and the therapists have to understand how best to work with the child. Cheryl On Apr 13, 2008, at 6:29 PM, Doris and Steve wrote: > personally, I would stop doing RDI. I attended a 3 day talk/ > workshop by > Dr Gutstein > and found him to be rude, intolerable of new ideas and boring. His > ideas > are good but > there are many other Drs doing similar techniques who are more > knowledgeable. > > What is significant progress? how has this been measured? before > and after? > Doesn't Compart do chelation and color therapy? > > To be more informed on what is, I would buy the Mississippi DVD > from the office. I would also look at the articles posted on the 2 > websites: > www.nids.net > www.neuroimmunedr.com > I would locate the article on SPECT scans done by Dr Mena and Dr > Goldberg. > I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. > > d > > Doris, > > Thank you for your information. I'm currently with Dr. > Compart in Columbia and Dr. Gutstein for RDI. We have > seen significant progress. I think I need to learn > more about . What is the best way to do that? > > Best, > Dawn > --- Doris and Steve <sjsmith@... > <mailto:sjsmith%40cablespeed.com>> > wrote: > > > > > <sigh> , Sharryl, Aimee, Edwin and I could > > only hope! > > > > All of us are working with a variety of physicians > > who remain 'open' to > > the idea. > > Dr Compart in Columbia told a mother once that she > > would recommend patients > > to Dr Goldberg but she herself didn't know that much > > about the immune > > system to > > treat children. We use a pediatrician in Severna > > Park who monitors > > and helps us with prescriptions and blood sucks. > > I continue to exchange thoughts and ideas with Dr > > Zimmerman as his crew > > is doing a great job in the research arena. > > We're all slowly passing around the Mississippi > > dvd to physicians to > > show them what Dr Goldberg is doing. > > I *understand* that Dr G has talked with Dr > > Zimmerman and Dr Layton > > (allergist > > in Towson) and I don't think either exchange was > > positive for him :-) > > There is a CFIDS center in polis that looks > > 'interesting' > .. It's headed > > by Dr Teitelbaum (From Fatique to Fantastic) > > I called them once to see about doing some bloodwork > > on me. The initial > > consult / cost = $8000. They will work with you on > > getting insurance to > > reimburse > > most of the costs. According to CFIDS sources, he's > > well respected and > > the bloodwork > > he does is very similar to Dr G's. > > > > Some of the parents in this area travel to NNY to > > see Kathy and her crew. > > I understand it's about a 7-8 hr drive. > > > > doris > > sville, MD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Dr. Greenspan (Floortime) believes biomed is important, and sometimes necessary. Have you read " Engaging Autism " ? Kristy Re: re: in MD I don't think it's fair to throw the baby out with the bath water. *Any* behavioral therapy you enter is only as good as the therapist you have, not the person that created it. If we all judged everything on that, we wouldn't be doing *a lot* of things that we do, including see Dr. G. I'm sure we all have areas where we disagree with him to some extent. If I based ABA/Floortime/RDI/ TEEACH/etc. on their creators, I wouldn't have anything to do with any of them and mostly because they don't believe in biomed (I have numerous other reasons I could use but that's the biggie). But then that would only be a disservice to my son. Do what works, it's more important for children to get the help than it is to refuse a program that may be of great benefit because you don't like the creators attitude. If I based my decision on what other people thought of Dr. Goldberg, I never would have been here as I had way more people volunteering how unhappy they were with him than people telling me how much they love him. Dr. G and I don't see eye to eye on many things but he has done the most for my child and I won't leave him just because I don't agree with his view on vaccines. Results are what matter. Any program is only as good as the therapist. I've had bad therapists, I've had great therapists. It has to fit the child and the therapists have to understand how best to work with the child. Cheryl On Apr 13, 2008, at 6:29 PM, Doris and Steve wrote: > personally, I would stop doing RDI. I attended a 3 day talk/ > workshop by > Dr Gutstein > and found him to be rude, intolerable of new ideas and boring. His > ideas > are good but > there are many other Drs doing similar techniques who are more > knowledgeable. > > What is significant progress? how has this been measured? before > and after? > Doesn't Compart do chelation and color therapy? > > To be more informed on what is, I would buy the Mississippi DVD > from the office. I would also look at the articles posted on the 2 > websites: > www.nids.net > www.neuroimmunedr.com > I would locate the article on SPECT scans done by Dr Mena and Dr > Goldberg. > I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. > > d > > Doris, > > Thank you for your information. I'm currently with Dr. > Compart in Columbia and Dr. Gutstein for RDI. We have > seen significant progress. I think I need to learn > more about . What is the best way to do that? > > Best, > Dawn > --- Doris and Steve <sjsmith@... > <mailto:sjsmith%40cablespeed.com>> > wrote: > > > > > <sigh> , Sharryl, Aimee, Edwin and I could > > only hope! > > > > All of us are working with a variety of physicians > > who remain 'open' to > > the idea. > > Dr Compart in Columbia told a mother once that she > > would recommend patients > > to Dr Goldberg but she herself didn't know that much > > about the immune > > system to > > treat children. We use a pediatrician in Severna > > Park who monitors > > and helps us with prescriptions and blood sucks. > > I continue to exchange thoughts and ideas with Dr > > Zimmerman as his crew > > is doing a great job in the research arena. > > We're all slowly passing around the Mississippi > > dvd to physicians to > > show them what Dr Goldberg is doing. > > I *understand* that Dr G has talked with Dr > > Zimmerman and Dr Layton > > (allergist > > in Towson) and I don't think either exchange was > > positive for him :-) > > There is a CFIDS center in polis that looks > > 'interesting' > .. It's headed > > by Dr Teitelbaum (From Fatique to Fantastic) > > I called them once to see about doing some bloodwork > > on me. The initial > > consult / cost = $8000. They will work with you on > > getting insurance to > > reimburse > > most of the costs. According to CFIDS sources, he's > > well respected and > > the bloodwork > > he does is very similar to Dr G's. > > > > Some of the parents in this area travel to NNY to > > see Kathy and her crew. > > I understand it's about a 7-8 hr drive. > > > > doris > > sville, MD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 My son responds really, really well to Floortime. Dr. Stanley Greenspan is offering an online course for parents starting soon to 'teach' Floortime techniques. www.stanleygreenspan.com has the details. I'm registered and looking forward to the course, even though I've been doing Floortime with my son for 3+ years. Kristy Re: re: in MD A follow up question- which doctors are doing similar things and of what type? Would these other techniques then be in place of RDI? I am always curious about therapies out there and would be intersted in researching this. We did some ABA and my son was bored with it, and we have a hard time still with his very poor play skills. Is your opinion of Dr. Gutstein based on his personality, or also in regards to his therapy / philosophy program? Thanks for any info. Angie Doris and Steve <sjsmith@...> wrote: personally, I would stop doing RDI. I attended a 3 day talk/workshop by Dr Gutstein and found him to be rude, intolerable of new ideas and boring. His ideas are good but there are many other Drs doing similar techniques who are more knowledgeable. What is significant progress? how has this been measured? before and after? Doesn't Compart do chelation and color therapy? To be more informed on what is, I would buy the Mississippi DVD from the office. I would also look at the articles posted on the 2 websites: www.nids.net www.neuroimmunedr.com I would locate the article on SPECT scans done by Dr Mena and Dr Goldberg. I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. d Doris, Thank you for your information. I'm currently with Dr. Compart in Columbia and Dr. Gutstein for RDI. We have seen significant progress. I think I need to learn more about . What is the best way to do that? Best, Dawn --- Doris and Steve <sjsmith@... <mailto:sjsmith%40cablespeed.com>> wrote: > > <sigh> , Sharryl, Aimee, Edwin and I could > only hope! > > All of us are working with a variety of physicians > who remain 'open' to > the idea. > Dr Compart in Columbia told a mother once that she > would recommend patients > to Dr Goldberg but she herself didn't know that much > about the immune > system to > treat children. We use a pediatrician in Severna > Park who monitors > and helps us with prescriptions and blood sucks. > I continue to exchange thoughts and ideas with Dr > Zimmerman as his crew > is doing a great job in the research arena. > We're all slowly passing around the Mississippi > dvd to physicians to > show them what Dr Goldberg is doing. > I *understand* that Dr G has talked with Dr > Zimmerman and Dr Layton > (allergist > in Towson) and I don't think either exchange was > positive for him :-) > There is a CFIDS center in polis that looks > 'interesting' . It's headed > by Dr Teitelbaum (From Fatique to Fantastic) > I called them once to see about doing some bloodwork > on me. The initial > consult / cost = $8000. They will work with you on > getting insurance to > reimburse > most of the costs. According to CFIDS sources, he's > well respected and > the bloodwork > he does is very similar to Dr G's. > > Some of the parents in this area travel to NNY to > see Kathy and her crew. > I understand it's about a 7-8 hr drive. > > doris > sville, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Hi I have a 16 year old and did ABA from 7 yrs old till he was 13 yrs old and then ABA didnt fit for my child . So I changed to RDI and have found it brill ant and wished I had got onto it earlier ..... I have been doing Biomeds for 5 yrs and my son still has Aspergers and is behind in academics . I feel personally what ever works for your child go for it . As there is a time when the certain therapys dont work for your child ! I find RDI more natural and every day living and the parents get back some control over the child therapy Virginia Cheryl Lowrance <c.lowrance@...> wrote: I don't think it's fair to throw the baby out with the bath water. *Any* behavioral therapy you enter is only as good as the therapist you have, not the person that created it. If we all judged everything on that, we wouldn't be doing *a lot* of things that we do, including see Dr. G. I'm sure we all have areas where we disagree with him to some extent. If I based ABA/Floortime/RDI/ TEEACH/etc. on their creators, I wouldn't have anything to do with any of them and mostly because they don't believe in biomed (I have numerous other reasons I could use but that's the biggie). But then that would only be a disservice to my son. Do what works, it's more important for children to get the help than it is to refuse a program that may be of great benefit because you don't like the creators attitude. If I based my decision on what other people thought of Dr. Goldberg, I never would have been here as I had way more people volunteering how unhappy they were with him than people telling me how much they love him. Dr. G and I don't see eye to eye on many things but he has done the most for my child and I won't leave him just because I don't agree with his view on vaccines. Results are what matter. Any program is only as good as the therapist. I've had bad therapists, I've had great therapists. It has to fit the child and the therapists have to understand how best to work with the child. Cheryl On Apr 13, 2008, at 6:29 PM, Doris and Steve wrote: > personally, I would stop doing RDI. I attended a 3 day talk/ > workshop by > Dr Gutstein > and found him to be rude, intolerable of new ideas and boring. His > ideas > are good but > there are many other Drs doing similar techniques who are more > knowledgeable. > > What is significant progress? how has this been measured? before > and after? > Doesn't Compart do chelation and color therapy? > > To be more informed on what is, I would buy the Mississippi DVD > from the office. I would also look at the articles posted on the 2 > websites: > www.nids.net > www.neuroimmunedr.com > I would locate the article on SPECT scans done by Dr Mena and Dr > Goldberg. > I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. > > d > > Doris, > > Thank you for your information. I'm currently with Dr. > Compart in Columbia and Dr. Gutstein for RDI. We have > seen significant progress. I think I need to learn > more about . What is the best way to do that? > > Best, > Dawn > --- Doris and Steve <sjsmith@... > <mailto:sjsmith%40cablespeed.com>> > wrote: > > > > > <sigh> , Sharryl, Aimee, Edwin and I could > > only hope! > > > > All of us are working with a variety of physicians > > who remain 'open' to > > the idea. > > Dr Compart in Columbia told a mother once that she > > would recommend patients > > to Dr Goldberg but she herself didn't know that much > > about the immune > > system to > > treat children. We use a pediatrician in Severna > > Park who monitors > > and helps us with prescriptions and blood sucks. > > I continue to exchange thoughts and ideas with Dr > > Zimmerman as his crew > > is doing a great job in the research arena. > > We're all slowly passing around the Mississippi > > dvd to physicians to > > show them what Dr Goldberg is doing. > > I *understand* that Dr G has talked with Dr > > Zimmerman and Dr Layton > > (allergist > > in Towson) and I don't think either exchange was > > positive for him :-) > > There is a CFIDS center in polis that looks > > 'interesting' > .. It's headed > > by Dr Teitelbaum (From Fatique to Fantastic) > > I called them once to see about doing some bloodwork > > on me. The initial > > consult / cost = $8000. They will work with you on > > getting insurance to > > reimburse > > most of the costs. According to CFIDS sources, he's > > well respected and > > the bloodwork > > he does is very similar to Dr G's. > > > > Some of the parents in this area travel to NNY to > > see Kathy and her crew. > > I understand it's about a 7-8 hr drive. > > > > doris > > sville, MD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 I have it and I *love* Floortime. Out of all the behavioral therapies, this one is probably my favorite, mostly because my son responds so well to it. Our ABA program is very similar. Cheryl On Apr 13, 2008, at 11:12 PM, Kristy Nardini wrote: > Dr. Greenspan (Floortime) believes biomed is important, and sometimes > necessary. Have you read " Engaging Autism " ? > > Kristy > > Re: re: in MD > > I don't think it's fair to throw the baby out with the bath water. > *Any* behavioral therapy you enter is only as good as the therapist > you have, not the person that created it. If we all judged > everything on that, we wouldn't be doing *a lot* of things that we > do, including see Dr. G. I'm sure we all have areas where we > disagree with him to some extent. If I based ABA/Floortime/RDI/ > TEEACH/etc. on their creators, I wouldn't have anything to do with > any of them and mostly because they don't believe in biomed (I have > numerous other reasons I could use but that's the biggie). But then > that would only be a disservice to my son. Do what works, it's more > important for children to get the help than it is to refuse a program > that may be of great benefit because you don't like the creators > attitude. > > If I based my decision on what other people thought of Dr. Goldberg, > I never would have been here as I had way more people volunteering > how unhappy they were with him than people telling me how much they > love him. Dr. G and I don't see eye to eye on many things but he has > done the most for my child and I won't leave him just because I don't > agree with his view on vaccines. Results are what matter. Any > program is only as good as the therapist. I've had bad therapists, > I've had great therapists. It has to fit the child and the > therapists have to understand how best to work with the child. > > Cheryl > > On Apr 13, 2008, at 6:29 PM, Doris and Steve wrote: > > > personally, I would stop doing RDI. I attended a 3 day talk/ > > workshop by > > Dr Gutstein > > and found him to be rude, intolerable of new ideas and boring. His > > ideas > > are good but > > there are many other Drs doing similar techniques who are more > > knowledgeable. > > > > What is significant progress? how has this been measured? before > > and after? > > Doesn't Compart do chelation and color therapy? > > > > To be more informed on what is, I would buy the Mississippi DVD > > from the office. I would also look at the articles posted on the 2 > > websites: > > www.nids.net > > www.neuroimmunedr.com > > I would locate the article on SPECT scans done by Dr Mena and Dr > > Goldberg. > > I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. > > > > d > > > > Doris, > > > > Thank you for your information. I'm currently with Dr. > > Compart in Columbia and Dr. Gutstein for RDI. We have > > seen significant progress. I think I need to learn > > more about . What is the best way to do that? > > > > Best, > > Dawn > > --- Doris and Steve <sjsmith@... > > <mailto:sjsmith%40cablespeed.com>> > > wrote: > > > > > > > > <sigh> , Sharryl, Aimee, Edwin and I could > > > only hope! > > > > > > All of us are working with a variety of physicians > > > who remain 'open' to > > > the idea. > > > Dr Compart in Columbia told a mother once that she > > > would recommend patients > > > to Dr Goldberg but she herself didn't know that much > > > about the immune > > > system to > > > treat children. We use a pediatrician in Severna > > > Park who monitors > > > and helps us with prescriptions and blood sucks. > > > I continue to exchange thoughts and ideas with Dr > > > Zimmerman as his crew > > > is doing a great job in the research arena. > > > We're all slowly passing around the Mississippi > > > dvd to physicians to > > > show them what Dr Goldberg is doing. > > > I *understand* that Dr G has talked with Dr > > > Zimmerman and Dr Layton > > > (allergist > > > in Towson) and I don't think either exchange was > > > positive for him :-) > > > There is a CFIDS center in polis that looks > > > 'interesting' > > .. It's headed > > > by Dr Teitelbaum (From Fatique to Fantastic) > > > I called them once to see about doing some bloodwork > > > on me. The initial > > > consult / cost = $8000. They will work with you on > > > getting insurance to > > > reimburse > > > most of the costs. According to CFIDS sources, he's > > > well respected and > > > the bloodwork > > > he does is very similar to Dr G's. > > > > > > Some of the parents in this area travel to NNY to > > > see Kathy and her crew. > > > I understand it's about a 7-8 hr drive. > > > > > > doris > > > sville, MD > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Hello, I wasn't going to go into this as I feel its offline, so please disregard my post if you are not interested. Dr. Gutstein offers some genius to understanding Autism. He has been met with opposition from some more established Autism politics but I would not say he is controversial. His program has complimented what we have done biomedically and therapeutically because they deal with the coexisting conditions of Autism. RDI starts with teaching parents to remediate developmental steps that have been missed due to the Autism based neurological issues and help the child develop competencies around those deficits. (I think of it as all the development my son missed while he was biomedically overwhelmed.) Its not play based and its complex because he defines neurotypical development with over 20,000 steps. I see huge changes in my son and the objectives are tracked and measured through evaluation with an RDI consultant using the steps and objectives defined in his program which is now online by subscription. My son's biggest shift is in guided participation, dynamic thinking, experience sharing, grey area thinking and overall connectedness with people and the give and take that requires. I find Dr. Gutstein to be a very caring person who has contributed a new view of remediating Autism's core deficits. I have seen him in action with many children and have seen his dedication and love for kids. I feel anyone who offers a new view can be met with opposition and skepticism and that can be frustrating for that person. Dr. Gutstein has ADD (he openly shares this), has a very high IQ, and finds the parent 2 and 3 day programs hard for him to take questions and stay on track so I have seen him get bothered by certain questions. Its a commitment also to making lifestyle changes mainly slowing down the pace and allowing for more thinking time. For me, it was a match and seemed very common sense oriented. It is a big commitment but I feel empowered as a parent to take this on with my son. As a remediation it fits my goals. We have been in this for a year and we plan to continue. I hope this helps. We find he is open to parents choosing their treatment options but he does share his opinions. There are so many people and programs that are helping children. Another program is called Sonrise. I think the common denominator and bottom line for us has been taking this on ourselves and getting in there to figure out ways to help our kids. We have a DAN! Protocol we follow and are open to cranial sacral. We are not trusting of pharms and go out of our way not to support them in lieu of natural solutions. I'm interested in NID protocol because I have epstein bar and CFS and wonder how the virus affects offspring. I have looked at environmental insult but not this. Best, Dawn Sent via BlackBerry by AT & T Re: re: in MD A follow up question- which doctors are doing similar things and of what type? Would these other techniques then be in place of RDI? I am always curious about therapies out there and would be intersted in researching this. We did some ABA and my son was bored with it, and we have a hard time still with his very poor play skills. Is your opinion of Dr. Gutstein based on his personality, or also in regards to his therapy / philosophy program? Thanks for any info. Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 Question on RDI. I met with an RDI consultant when I was visiting another city. She seemed to know her stuff and she wanted us to talk with Dr. G. before making a decision as to using her therapy. (My son had late onset of symptoms, which is something she hasn't seen). My son has a difficult time following instructions right now or following through. From what I gathered, RDI might be more helpful if he were farther along in his recovery. Right? We need to do something, however. He needs to have more boundaries and learning opportunities. I need a formal program to help me through this. I can certainly modify something. We have done Floortime since onset of his symptoms, and I think it helped me into his world. But I also think the program (at this point) has reinforced some stimming that he wouldn't have had as much. But I think this may be because of the limitations of our therapist. Also, the Floortime therapist dumped us last week. She and I did not see eye to eye on diet and medication. Dr. G. is very much against ABA and I understand his concerns, but I'm wondering if such a program if done well could help my son improve his attention span. I know that ABA could be disasterous if not done correctly, but I've heard of great successes too. I'd love any feedback you could give. I have a non-verbal child who does not play with toys. He spends a great deal of time climbing and spinning sticks. Re: re: in MD I don't think it's fair to throw the baby out with the bath water. *Any* behavioral therapy you enter is only as good as the therapist you have, not the person that created it. If we all judged everything on that, we wouldn't be doing *a lot* of things that we do, including see Dr. G. I'm sure we all have areas where we disagree with him to some extent. If I based ABA/Floortime/RDI/ TEEACH/etc. on their creators, I wouldn't have anything to do with any of them and mostly because they don't believe in biomed (I have numerous other reasons I could use but that's the biggie). But then that would only be a disservice to my son. Do what works, it's more important for children to get the help than it is to refuse a program that may be of great benefit because you don't like the creators attitude. If I based my decision on what other people thought of Dr. Goldberg, I never would have been here as I had way more people volunteering how unhappy they were with him than people telling me how much they love him. Dr. G and I don't see eye to eye on many things but he has done the most for my child and I won't leave him just because I don't agree with his view on vaccines. Results are what matter. Any program is only as good as the therapist. I've had bad therapists, I've had great therapists. It has to fit the child and the therapists have to understand how best to work with the child. Cheryl On Apr 13, 2008, at 6:29 PM, Doris and Steve wrote: > personally, I would stop doing RDI. I attended a 3 day talk/ > workshop by > Dr Gutstein > and found him to be rude, intolerable of new ideas and boring. His > ideas > are good but > there are many other Drs doing similar techniques who are more > knowledgeable. > > What is significant progress? how has this been measured? before > and after? > Doesn't Compart do chelation and color therapy? > > To be more informed on what is, I would buy the Mississippi DVD > from the office. I would also look at the articles posted on the 2 > websites: > www.nids.net > www.neuroimmunedr.com > I would locate the article on SPECT scans done by Dr Mena and Dr > Goldberg. > I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. > > d > > Doris, > > Thank you for your information. I'm currently with Dr. > Compart in Columbia and Dr. Gutstein for RDI. We have > seen significant progress. I think I need to learn > more about . What is the best way to do that? > > Best, > Dawn > --- Doris and Steve <sjsmith@... > <mailto:sjsmith%40cablespeed.com>> > wrote: > > > > > <sigh> , Sharryl, Aimee, Edwin and I could > > only hope! > > > > All of us are working with a variety of physicians > > who remain 'open' to > > the idea. > > Dr Compart in Columbia told a mother once that she > > would recommend patients > > to Dr Goldberg but she herself didn't know that much > > about the immune > > system to > > treat children. We use a pediatrician in Severna > > Park who monitors > > and helps us with prescriptions and blood sucks. > > I continue to exchange thoughts and ideas with Dr > > Zimmerman as his crew > > is doing a great job in the research arena. > > We're all slowly passing around the Mississippi > > dvd to physicians to > > show them what Dr Goldberg is doing. > > I *understand* that Dr G has talked with Dr > > Zimmerman and Dr Layton > > (allergist > > in Towson) and I don't think either exchange was > > positive for him :-) > > There is a CFIDS center in polis that looks > > 'interesting' > .. It's headed > > by Dr Teitelbaum (From Fatique to Fantastic) > > I called them once to see about doing some bloodwork > > on me. The initial > > consult / cost = $8000. They will work with you on > > getting insurance to > > reimburse > > most of the costs. According to CFIDS sources, he's > > well respected and > > the bloodwork > > he does is very similar to Dr G's. > > > > Some of the parents in this area travel to NNY to > > see Kathy and her crew. > > I understand it's about a 7-8 hr drive. > > > > doris > > sville, MD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 No, Dr. G is not a fan of ABA. But also remember that Dr. G was in UCLA when Lovaas (Lovass, in my opine but that's neither here nor there) was using electroshock punishment, straight jackets, isolation, etc. all in the name of ABA study. So Dr. G isn't a fan and really, who can blame him? *But* ABA has changed a lot since the 70's and like any other, it's only as good as it's therapists. He doesn't mind if you are using ABA so long as it's done in a very natural manner. He does not like DTT, he doesn't like being spoonfed scripts, etc. Pretty much all the things I don't like about ABA, he doesn't like so we get along great on that aspect! He's okay with it but it's a fine line between being okay with it and not. It really needs to be a very " loose " ABA program and if you have good therapists, you should be able to accomplish the goals of ABA in a manner that's acceptable. If I was using an ABA company that did not take my child's needs into consideration, I wouldn't stay with them. They have to be able to work *with* you and it takes a while to learn the difference between a good ABA therapist and a bad one. My first few were bad and I really had no clue as it was my first experience with ABA. When I got some good ones, I could immediately tell the difference. Now I don't have any problem knowing when someone is going to be good and when someone isn't. cheryl On Apr 14, 2008, at 8:51 AM, Robins wrote: > Question on RDI. I met with an RDI consultant when I was visiting > another city. She seemed to know her stuff and she wanted us to > talk with Dr. G. before making a decision as to using her therapy. > (My son had late onset of symptoms, which is something she hasn't > seen). My son has a difficult time following instructions right now > or following through. From what I gathered, RDI might be more > helpful if he were farther along in his recovery. Right? We need to > do something, however. He needs to have more boundaries and > learning opportunities. I need a formal program to help me through > this. I can certainly modify something. > > We have done Floortime since onset of his symptoms, and I think it > helped me into his world. But I also think the program (at this > point) has reinforced some stimming that he wouldn't have had as > much. But I think this may be because of the limitations of our > therapist. Also, the Floortime therapist dumped us last week. She > and I did not see eye to eye on diet and medication. > > Dr. G. is very much against ABA and I understand his concerns, but > I'm wondering if such a program if done well could help my son > improve his attention span. I know that ABA could be disasterous if > not done correctly, but I've heard of great successes too. I'd love > any feedback you could give. I have a non-verbal child who does not > play with toys. He spends a great deal of time climbing and > spinning sticks. > > Re: re: in MD > > I don't think it's fair to throw the baby out with the bath water. > *Any* behavioral therapy you enter is only as good as the therapist > you have, not the person that created it. If we all judged > everything on that, we wouldn't be doing *a lot* of things that we > do, including see Dr. G. I'm sure we all have areas where we > disagree with him to some extent. If I based ABA/Floortime/RDI/ > TEEACH/etc. on their creators, I wouldn't have anything to do with > any of them and mostly because they don't believe in biomed (I have > numerous other reasons I could use but that's the biggie). But then > that would only be a disservice to my son. Do what works, it's more > important for children to get the help than it is to refuse a program > that may be of great benefit because you don't like the creators > attitude. > > If I based my decision on what other people thought of Dr. Goldberg, > I never would have been here as I had way more people volunteering > how unhappy they were with him than people telling me how much they > love him. Dr. G and I don't see eye to eye on many things but he has > done the most for my child and I won't leave him just because I don't > agree with his view on vaccines. Results are what matter. Any > program is only as good as the therapist. I've had bad therapists, > I've had great therapists. It has to fit the child and the > therapists have to understand how best to work with the child. > > Cheryl > > On Apr 13, 2008, at 6:29 PM, Doris and Steve wrote: > > > personally, I would stop doing RDI. I attended a 3 day talk/ > > workshop by > > Dr Gutstein > > and found him to be rude, intolerable of new ideas and boring. His > > ideas > > are good but > > there are many other Drs doing similar techniques who are more > > knowledgeable. > > > > What is significant progress? how has this been measured? before > > and after? > > Doesn't Compart do chelation and color therapy? > > > > To be more informed on what is, I would buy the Mississippi DVD > > from the office. I would also look at the articles posted on the 2 > > websites: > > www.nids.net > > www.neuroimmunedr.com > > I would locate the article on SPECT scans done by Dr Mena and Dr > > Goldberg. > > I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. > > > > d > > > > Doris, > > > > Thank you for your information. I'm currently with Dr. > > Compart in Columbia and Dr. Gutstein for RDI. We have > > seen significant progress. I think I need to learn > > more about . What is the best way to do that? > > > > Best, > > Dawn > > --- Doris and Steve <sjsmith@... > > <mailto:sjsmith%40cablespeed.com>> > > wrote: > > > > > > > > <sigh> , Sharryl, Aimee, Edwin and I could > > > only hope! > > > > > > All of us are working with a variety of physicians > > > who remain 'open' to > > > the idea. > > > Dr Compart in Columbia told a mother once that she > > > would recommend patients > > > to Dr Goldberg but she herself didn't know that much > > > about the immune > > > system to > > > treat children. We use a pediatrician in Severna > > > Park who monitors > > > and helps us with prescriptions and blood sucks. > > > I continue to exchange thoughts and ideas with Dr > > > Zimmerman as his crew > > > is doing a great job in the research arena. > > > We're all slowly passing around the Mississippi > > > dvd to physicians to > > > show them what Dr Goldberg is doing. > > > I *understand* that Dr G has talked with Dr > > > Zimmerman and Dr Layton > > > (allergist > > > in Towson) and I don't think either exchange was > > > positive for him :-) > > > There is a CFIDS center in polis that looks > > > 'interesting' > > .. It's headed > > > by Dr Teitelbaum (From Fatique to Fantastic) > > > I called them once to see about doing some bloodwork > > > on me. The initial > > > consult / cost = $8000. They will work with you on > > > getting insurance to > > > reimburse > > > most of the costs. According to CFIDS sources, he's > > > well respected and > > > the bloodwork > > > he does is very similar to Dr G's. > > > > > > Some of the parents in this area travel to NNY to > > > see Kathy and her crew. > > > I understand it's about a 7-8 hr drive. > > > > > > doris > > > sville, MD > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 RDI would be appropriate for this situation. The children don't have to be at a certain level. Mine just happened to be further along when we started because I did not know about RDI before that. Dawn Sent via BlackBerry by AT & T Re: re: in MD Question on RDI. I met with an RDI consultant when I was visiting another city. She seemed to know her stuff and she wanted us to talk with Dr. G. before making a decision as to using her therapy. (My son had late onset of symptoms, which is something she hasn't seen). My son has a difficult time following instructions right now or following through. From what I gathered, RDI might be more helpful if he were farther along in his recovery. Right? We need to do something, however. He needs to have more boundaries and learning opportunities. I need a formal program to help me through this. I can certainly modify something. We have done Floortime since onset of his symptoms, and I think it helped me into his world. But I also think the program (at this point) has reinforced some stimming that he wouldn't have had as much. But I think this may be because of the limitations of our therapist. Also, the Floortime therapist dumped us last week. She and I did not see eye to eye on diet and medication. Dr. G. is very much against ABA and I understand his concerns, but I'm wondering if such a program if done well could help my son improve his attention span. I know that ABA could be disasterous if not done correctly, but I've heard of great successes too. I'd love any feedback you could give. I have a non-verbal child who does not play with toys. He spends a great deal of time climbing and spinning sticks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2008 Report Share Posted April 14, 2008 When we saw Dr. G for the first time, he asked us how much ABA helped our son. To be honest, it helped some, but did little to address core deficits in communications and socialization. I believe he's support of interventions such as ABA, speech and OT to " catch up " a healed, whole child--a child who's not in pain all the time and whose immune system is functioning properly (or at least better). I don't know of anyone whose child recovered through ABA. Anyway, just my two cents. Robyn Cheryl Lowrance <c.lowrance@...> wrote: No, Dr. G is not a fan of ABA. But also remember that Dr. G was in UCLA when Lovaas (Lovass, in my opine but that's neither here nor there) was using electroshock punishment, straight jackets, isolation, etc. all in the name of ABA study. So Dr. G isn't a fan and really, who can blame him? *But* ABA has changed a lot since the 70's and like any other, it's only as good as it's therapists. He doesn't mind if you are using ABA so long as it's done in a very natural manner. He does not like DTT, he doesn't like being spoonfed scripts, etc. Pretty much all the things I don't like about ABA, he doesn't like so we get along great on that aspect! He's okay with it but it's a fine line between being okay with it and not. It really needs to be a very " loose " ABA program and if you have good therapists, you should be able to accomplish the goals of ABA in a manner that's acceptable. If I was using an ABA company that did not take my child's needs into consideration, I wouldn't stay with them. They have to be able to work *with* you and it takes a while to learn the difference between a good ABA therapist and a bad one. My first few were bad and I really had no clue as it was my first experience with ABA. When I got some good ones, I could immediately tell the difference. Now I don't have any problem knowing when someone is going to be good and when someone isn't. cheryl On Apr 14, 2008, at 8:51 AM, Robins wrote: > Question on RDI. I met with an RDI consultant when I was visiting > another city. She seemed to know her stuff and she wanted us to > talk with Dr. G. before making a decision as to using her therapy. > (My son had late onset of symptoms, which is something she hasn't > seen). My son has a difficult time following instructions right now > or following through. From what I gathered, RDI might be more > helpful if he were farther along in his recovery. Right? We need to > do something, however. He needs to have more boundaries and > learning opportunities. I need a formal program to help me through > this. I can certainly modify something. > > We have done Floortime since onset of his symptoms, and I think it > helped me into his world. But I also think the program (at this > point) has reinforced some stimming that he wouldn't have had as > much. But I think this may be because of the limitations of our > therapist. Also, the Floortime therapist dumped us last week. She > and I did not see eye to eye on diet and medication. > > Dr. G. is very much against ABA and I understand his concerns, but > I'm wondering if such a program if done well could help my son > improve his attention span. I know that ABA could be disasterous if > not done correctly, but I've heard of great successes too. I'd love > any feedback you could give. I have a non-verbal child who does not > play with toys. He spends a great deal of time climbing and > spinning sticks. > > Re: re: in MD > > I don't think it's fair to throw the baby out with the bath water. > *Any* behavioral therapy you enter is only as good as the therapist > you have, not the person that created it. If we all judged > everything on that, we wouldn't be doing *a lot* of things that we > do, including see Dr. G. I'm sure we all have areas where we > disagree with him to some extent. If I based ABA/Floortime/RDI/ > TEEACH/etc. on their creators, I wouldn't have anything to do with > any of them and mostly because they don't believe in biomed (I have > numerous other reasons I could use but that's the biggie). But then > that would only be a disservice to my son. Do what works, it's more > important for children to get the help than it is to refuse a program > that may be of great benefit because you don't like the creators > attitude. > > If I based my decision on what other people thought of Dr. Goldberg, > I never would have been here as I had way more people volunteering > how unhappy they were with him than people telling me how much they > love him. Dr. G and I don't see eye to eye on many things but he has > done the most for my child and I won't leave him just because I don't > agree with his view on vaccines. Results are what matter. Any > program is only as good as the therapist. I've had bad therapists, > I've had great therapists. It has to fit the child and the > therapists have to understand how best to work with the child. > > Cheryl > > On Apr 13, 2008, at 6:29 PM, Doris and Steve wrote: > > > personally, I would stop doing RDI. I attended a 3 day talk/ > > workshop by > > Dr Gutstein > > and found him to be rude, intolerable of new ideas and boring. His > > ideas > > are good but > > there are many other Drs doing similar techniques who are more > > knowledgeable. > > > > What is significant progress? how has this been measured? before > > and after? > > Doesn't Compart do chelation and color therapy? > > > > To be more informed on what is, I would buy the Mississippi DVD > > from the office. I would also look at the articles posted on the 2 > > websites: > > www.nids.net > > www.neuroimmunedr.com > > I would locate the article on SPECT scans done by Dr Mena and Dr > > Goldberg. > > I would read Zimmerman/Pardu (JHU)'s article on brain inflammation. > > > > d > > > > Doris, > > > > Thank you for your information. I'm currently with Dr. > > Compart in Columbia and Dr. Gutstein for RDI. We have > > seen significant progress. I think I need to learn > > more about . What is the best way to do that? > > > > Best, > > Dawn > > --- Doris and Steve <sjsmith@... > > <mailto:sjsmith%40cablespeed.com>> > > wrote: > > > > > > > > <sigh> , Sharryl, Aimee, Edwin and I could > > > only hope! > > > > > > All of us are working with a variety of physicians > > > who remain 'open' to > > > the idea. > > > Dr Compart in Columbia told a mother once that she > > > would recommend patients > > > to Dr Goldberg but she herself didn't know that much > > > about the immune > > > system to > > > treat children. We use a pediatrician in Severna > > > Park who monitors > > > and helps us with prescriptions and blood sucks. > > > I continue to exchange thoughts and ideas with Dr > > > Zimmerman as his crew > > > is doing a great job in the research arena. > > > We're all slowly passing around the Mississippi > > > dvd to physicians to > > > show them what Dr Goldberg is doing. > > > I *understand* that Dr G has talked with Dr > > > Zimmerman and Dr Layton > > > (allergist > > > in Towson) and I don't think either exchange was > > > positive for him :-) > > > There is a CFIDS center in polis that looks > > > 'interesting' > > .. It's headed > > > by Dr Teitelbaum (From Fatique to Fantastic) > > > I called them once to see about doing some bloodwork > > > on me. The initial > > > consult / cost = $8000. They will work with you on > > > getting insurance to > > > reimburse > > > most of the costs. According to CFIDS sources, he's > > > well respected and > > > the bloodwork > > > he does is very similar to Dr G's. > > > > > > Some of the parents in this area travel to NNY to > > > see Kathy and her crew. > > > I understand it's about a 7-8 hr drive. > > > > > > doris > > > sville, MD > > > > Quote Link to comment Share on other sites More sharing options...
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