Re: Re: Glyconutrients, autoimmune diseases and nobel prizes in medicine

[Guest guest]

,

I agree. For the most part glyconutrients were a " flavor-of-the-month "

treatment for autism and certainly the companies latched onto treating our kids

in the wake of the autism epidemic. We did try several of the products and

most showed no results. The other thing that bothered me was that they kept

saying it wasn't working because I wasn't giving enough of their " signature "

product (needed MEGA-doses), but it is super expensive and after six months, I

still saw nothing. And I HATE the multi-tiered marketing stuff.

I'm not promoting anything (just relaying our experience), but there was one

product that did help my son noticeably, and it is the only one I still use

after 3 years. It is a product called PLUS. The results I saw were that he

seemed to be much more " connected " and alert. He tends toward being spacey

when he is off. Not sure it would be appropriate for all our kids, but I have

tried to eliminate it twice, and both times noticed regression, so we keep

it. I just see more initiation of interactions, better eye-contact and an

increased interest in social interactions. I'm for anything that helps.

And no. I don't sell the stuff :-).

Sharon

**************It's Tax Time! Get tips, forms and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850)

[Guest guest]

Dr. G just got funding last year and is working on starting studies

on an immune modulator. He's pretty hush hush as to which drug it is

(he says it's one that is already available). Kutapressin was the

thing back in the day before it was taken off the market. But if

you're really interested, I'd just ask Dr. G about it at your next

appointment. Here's a study that might be of interest to you. I

highly doubt Dr. G would have anything good to say about it, though.

If you ask, let us know what he says. I'd be interested in hearing

his response.

http://www.ncbi.nlm.nih.gov/pubmed/9829439?

ordinalpos=4 & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubm

ed_RVDocSum

Cheryl

On Apr 12, 2008, at 6:33 PM, wrote:

>

> Thank you all for your posts. I fully understand what all of you think

> about this one company that use the multi level marketing to sell the

> product and the way this company has used the name of the person that

> discovered the glyconutrients. I understand that, I agree with all of

> you and I don't like it either. That is why I just want to concentrate

> only in the benefit that the glyconutrients could provide our

> children.

>

> I have been reading everything about in the past month and I am a

> strong believer. My son is a living proof of it. My son developed

> " autism " exactly at the same time that he developed " Vitiligo " . We

> were

> able to control the Vitiligo taking my son to an immunologist and his

> " autism " has improve dramatically. We just started seeing Dr. Goldberg

> a few weeks ago because we wanted to take our son's treatment to the

> next level and we strongly think Dr. Goldberg can helps us with that.

>

> The reason I am so interested in the glyconutrients is because they

> are

> immune system modulators and that is one of the areas in which is

> still waiting for clinical trials before they can start to be used in

> children. Please look at the facts page for which I have included

> the link below. It says, " new agents called immune modulators,

> currently in the developmental pipeline, can potentially restore

> immune

> systems to normalcy and reduce dependence on other combinations of

> medicines " .

>

> I am just thinking that if the glyconutrients are such a huge

> discovery

> (worth of 4 of the last 9 nobel prizes in medicine) and they also are

> immune system modulators are something that our children might get

> benefited from using. In my opinion, we should take a closer look at

> them. They might not work by themselves, but they could be very

> benefitial if used in conjunction with Dr. Goldberg's protocol as

> specified in the facts page.

>

> You don't need to get the glyconutrients from this multi level

> marketing

> company. There are plenty of places in the internet you can buy them.

> I want to make really clear, I can careless about that multi level

> company. I do care about helping our children get better.

>

> Thanks,

>

>

> Vitiligo

> http://www.curevitiligo.com/vitiligo.htm

> <http://www.curevitiligo.com/vitiligo.htm>

> 14.Is it true that some Vitiligo

> <http://www.curevitiligo.com/vitiligo.htm> may be related to a

> suppressed immune system?

> Yes. While MOST cases of vitiligo seem to involve overactive immune

> response, in which the immune system is essentially attacking its own

> pigment cells, a minority of cases may be related to a suppressed

> immune

> response. Many experts feel that a suppressed immune system CAN co-

> exist

> with an autoimmune condition. For this reason, many doctors choose to

> evaluate immune function, especially in advance of using certain

> treatments, such as those which work to suppress the immune response.

>

> http://www.nids.net/nidsfacts.htm <http://www.nids.net/nidsfacts.htm>

>

> Most promising treatment: If used properly, new agents called immune

> modulators, currently in the developmental pipeline, can potentially

> restore immune systems to normalcy and reduce dependence on other

> combinations of medicines.

>

> Clinical trials: Immune modulators are NOT currently slated for

> medical

> research in children, especially in relation to conditions, which

> are still being thought of as developmental delays or disorders. The

> Neuro-Immune Dysfunction Syndromes Research Institute is ready to

> begin

> trials as soon as funding is obtained.

>

> Glyconutrients are immune system modulators

> http://glycoshare.com/foodal.php <http://glycoshare.com/foodal.php>

>

> Glyconutrients are the specific immune system modulators which restore

> immune system " balance " . If the immune system is

> overactive…glyconutrients restore it to normalcy. If the immune

> system is underactive, the glyconutrients restore it also to normal

> function.

>

>

> >

> > ,

> >

> > I agree. For the most part glyconutrients were a " flavor-of-the-

> month "

> > treatment for autism and certainly the companies latched onto

> treating

> our kids

> > in the wake of the autism epidemic. We did try several of the

> products

> and

> > most showed no results. The other thing that bothered me was that

> they

> kept

> > saying it wasn't working because I wasn't giving enough of their

> " signature "

> > product (needed MEGA-doses), but it is super expensive and after six

> months, I

> > still saw nothing. And I HATE the multi-tiered marketing stuff.

> >

> > I'm not promoting anything (just relaying our experience), but there

> was one

> > product that did help my son noticeably, and it is the only one I

> still use

> > after 3 years. It is a product called PLUS. The results I saw were

> that he

> > seemed to be much more " connected " and alert. He tends toward being

> spacey

> > when he is off. Not sure it would be appropriate for all our

> kids, but

> I have

> > tried to eliminate it twice, and both times noticed regression,

> so we

> keep

> > it. I just see more initiation of interactions, better eye-

> contact and

> an

> > increased interest in social interactions. I'm for anything that

> helps.

> >

> > And no. I don't sell the stuff :-).

> >

> > Sharon

> >

> >

> >

> > **************It's Tax Time! Get tips, forms and advice on AOL

> Money &

> > Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850)

> >

> >

> >

[Guest guest]

Something else I want to ask Goldberg about. The checkout guy at Whole Foods

was talking about how these nutrients saved his daughter. Hmmm

Re: Glyconutrients, autoimmune diseases and nobel prizes in

medicine

Thank you Cheryl,

Very interesting study, I would love to see more studies like this.

If you have found more, please share them with us.

I have also forwarded this link to a close friend of mine that was

the one who told me about them. She has a daughter that is a brain

tumor survivor. Her daughter was confined to her bed during the

chemotherapy. Once she started giving her daughter the

glyconutrients her daughter got better and never missed a day of

school from that point and on.

I asked her if she had any supporting documentation about

glyconutrients and she said no. She told me that it didn't matter

what people said about it that she knew that glyconutrients is what

helped her daughter. Her daughter has been cancer free for the past

two years. My friend gives her daughter glyconutrients every day.

I am sure she will be happy to see this study and to confirm that

the glyconutrients might have definitely help her daughter because

they enhanced her daugther's natural killer cells activity and

helped her boost her immune system.

Very interesting...

Thanks again Cheryl

>

> Dr. G just got funding last year and is working on starting

studies

> on an immune modulator. He's pretty hush hush as to which drug it

is

> (he says it's one that is already available). Kutapressin was

the

> thing back in the day before it was taken off the market. But if

> you're really interested, I'd just ask Dr. G about it at your

next

> appointment. Here's a study that might be of interest to you. I

> highly doubt Dr. G would have anything good to say about it,

though.

> If you ask, let us know what he says. I'd be interested in

hearing

> his response.

>

> http://www.ncbi.nlm.nih.gov/pubmed/9829439?

>

ordinalpos=4 & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.P

ubm

> ed_RVDocSum

>

> Cheryl

>

[Guest guest]

Again, I wouldn't expect Dr. G to be a big fan when you talk to him.

He's very much not interested in metabolic supplements as he feels

they are totally barking up the wrong tree but it's definitely worth

asking about just to hear his response.

Cheryl

On Apr 14, 2008, at 9:03 AM, Robins wrote:

> Something else I want to ask Goldberg about. The checkout guy at

> Whole Foods was talking about how these nutrients saved his

> daughter. Hmmm

> Re: Glyconutrients, autoimmune diseases and nobel

> prizes in medicine

>

> Thank you Cheryl,

> Very interesting study, I would love to see more studies like this.

>

> If you have found more, please share them with us.

>

> I have also forwarded this link to a close friend of mine that was

> the one who told me about them. She has a daughter that is a brain

> tumor survivor. Her daughter was confined to her bed during the

> chemotherapy. Once she started giving her daughter the

> glyconutrients her daughter got better and never missed a day of

> school from that point and on.

>

> I asked her if she had any supporting documentation about

> glyconutrients and she said no. She told me that it didn't matter

> what people said about it that she knew that glyconutrients is what

> helped her daughter. Her daughter has been cancer free for the past

> two years. My friend gives her daughter glyconutrients every day.

>

> I am sure she will be happy to see this study and to confirm that

> the glyconutrients might have definitely help her daughter because

> they enhanced her daugther's natural killer cells activity and

> helped her boost her immune system.

>

> Very interesting...

>

> Thanks again Cheryl

>

>

>

> >

> > Dr. G just got funding last year and is working on starting

> studies

> > on an immune modulator. He's pretty hush hush as to which drug it

> is

> > (he says it's one that is already available). Kutapressin was

> the

> > thing back in the day before it was taken off the market. But if

> > you're really interested, I'd just ask Dr. G about it at your

> next

> > appointment. Here's a study that might be of interest to you. I

> > highly doubt Dr. G would have anything good to say about it,

> though.

> > If you ask, let us know what he says. I'd be interested in

> hearing

> > his response.

> >

> > http://www.ncbi.nlm.nih.gov/pubmed/9829439?

> >

> ordinalpos=4 & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.P

> ubm

> > ed_RVDocSum

> >

> > Cheryl

> >

>

>

[Guest guest]

If you go to Pubmed.com you can pull up some studies. Just use

" glyconutrients " in the search and see what pops up. Pubmed is

*great* for looking for studies.

cheryl

On Apr 14, 2008, at 7:21 AM, wrote:

> Thank you Cheryl,

> Very interesting study, I would love to see more studies like this.

>

> If you have found more, please share them with us.

>

> I have also forwarded this link to a close friend of mine that was

> the one who told me about them. She has a daughter that is a brain

> tumor survivor. Her daughter was confined to her bed during the

> chemotherapy. Once she started giving her daughter the

> glyconutrients her daughter got better and never missed a day of

> school from that point and on.

>

> I asked her if she had any supporting documentation about

> glyconutrients and she said no. She told me that it didn't matter

> what people said about it that she knew that glyconutrients is what

> helped her daughter. Her daughter has been cancer free for the past

> two years. My friend gives her daughter glyconutrients every day.

>

> I am sure she will be happy to see this study and to confirm that

> the glyconutrients might have definitely help her daughter because

> they enhanced her daugther's natural killer cells activity and

> helped her boost her immune system.

>

> Very interesting...

>

> Thanks again Cheryl

>

>

>

> >

> > Dr. G just got funding last year and is working on starting

> studies

> > on an immune modulator. He's pretty hush hush as to which drug it

> is

> > (he says it's one that is already available). Kutapressin was

> the

> > thing back in the day before it was taken off the market. But if

> > you're really interested, I'd just ask Dr. G about it at your

> next

> > appointment. Here's a study that might be of interest to you. I

> > highly doubt Dr. G would have anything good to say about it,

> though.

> > If you ask, let us know what he says. I'd be interested in

> hearing

> > his response.

> >

> > http://www.ncbi.nlm.nih.gov/pubmed/9829439?

> >

> ordinalpos=4 & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.P

> ubm

> > ed_RVDocSum

> >

> > Cheryl

> >

>

>