IVIG

[Guest guest]

We are currently waiting to get in for our first appointment, but have done

the DAN protocol in the past, which included IVIG for my son. So far, it

appears that my son has a hyperactive immune system. We did one round of IVIG

at the regular dose and his stims and OCD talk really increased starting after

it (already high, but have since returned to baseline). Because of this, we

were recommended not to continue, and I did not feel comfortable with any

further treatments either.

The treatments are also VERY expensive, even though our state disability paid

for the med itself only. The run time was 6 hours of nursing monitoring. My

intuition was that it was not the right thing for my son. The protocol

seems to make more sense to me and seems to treat longer term. There seems to

be some contoversy also on the effectiveness of IVIG, although I did know some

kids that did respond well to it also. Some of the information on it states

that the gains are not necessarily long term. I do not know the validity of

this.

This was an IV treatment, which is different than the treatments with

injections. Maybe others can speak to the injections for this that can be used

within . This was just our personal experience, but hope it helps.

Angie

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