Re: Re: Varicella titers + angie

[Guest guest]

I am not sure what the tipping point is. In my son's case, his hhv6 numbers were

off the charts. He indicated that hhv6 once it enters the body it does not

leave, and that my son would be on antivirals indefinitely.

First step, is to get a complete immune system panel. Dr Goldberg's site has all

of the labs listed in a nice condensed list. He also has patient data, its not

recent, but it will give good information if you can print that out and review

with your pediatrician. (This is what I did, and it made all the difference)

Its really important for you to get a copy of those labs so you can not only

have them for your own records, but also?so you can talk to other physicians?if

needed.

Another?great resource if you can locate?one in your area are physicians that

specialize in Immunology or that treat Chronic Fatigue Syndrome, MS,

Fibromyalgia, etc. This may be a good alternative.

I know my son's insurance would not cover the phone consults that some charge,

so its great if you can get your son's doctor on board or find someone else

local to your state.

If you can't get help locally, you may consider the NY clinic, they do have

offices in New York and Texas. And ofcourse there is?Dr. Goldberg in California

if thats closer for you.?

Rollie

Re: Re: Varicella titers +

Hi, my son has IgM antibodies to MEasles and mumps, I have found that as we

continue with valtrex, which isn't even for that, but his immune system seems to

get better, those titers are falling, because his owm system will begin to deal

with that, it is very scary, we have these 2 1/2 years post vaccination. If you

do find out any info, please share. Hope this helps, NoelLINDA A

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's also a

pediatrician with a child with ASD, thought it would be a good idea to check my

sons Varicella titers. After reviewing his vaccinations and his history of

immune disorders, it was pretty obvious that his health declined after the MMR

and Varicella which was given along with the HIB. has persistent low grade

fevers, cannot get off antibiotics, and like most of our kids does well on

antivirals.(Valtrex)She was curious to see what his Varicella titers were. Well,

now we have a problem, as he still has a detectable level of IgM

to Varicella, and a high ,ACIF (IgG). He received his vaccination eight years

ago. He should have cleared the IgM within weeks to a few months.Last week he

was also diagnosed with a IgG deficiency, and after reading about this, he

should never have been given many of his vaccinations, especially Varicella, OPV

and MMR. What I'm worried about is that he may have Varicella circulating in his

CSF affecting his brain. Has anyone had a similar issue with their child and

does anyone know of a GREAT infectious disease doctor that treats children on

the spectrum ? Also, I was thinking about Dr. Singh in Utah. Has anyone had any

experience with him? (neuroimmunologist)Thanks so much, [Non-text portions

of this message have been removed]Sincerely Noel[Non-text portions of this

message have been removed]

[Guest guest]

How high were his intial titers before you started treatment? Do you see Dr. G.

or a local doc for management. I am nearly done compiling all my son's medical

records. My local pediatrician seemed a bit understanding about the immunology

thing, esp when my son had petecheia SP! on his neck and found himself saying it

was from an over active immune system and it matching the philosophy of . I

also think he thought the use of a ssri was good for behavior but not sure he

really would think it for another purpose? Our local DAN and the nurses there

are very open to working with kids and are willing to order the panel listed on

line - of labs- so that is great.

I am not sure about seeing a local immunologist. I am sure Dr. G. is not

really able to work with a local MD either? I have also read from this site

about other md's not using a high enough dose of anit-viral or for long enough

to rid the infection?

rollipolli222@... wrote:

I am not sure what the tipping point is. In my son's case, his hhv6 numbers were

off the charts. He indicated that hhv6 once it enters the body it does not

leave, and that my son would be on antivirals indefinitely.

First step, is to get a complete immune system panel. Dr Goldberg's site has all

of the labs listed in a nice condensed list. He also has patient data, its not

recent, but it will give good information if you can print that out and review

with your pediatrician. (This is what I did, and it made all the difference)

Its really important for you to get a copy of those labs so you can not only

have them for your own records, but also?so you can talk to other physicians?if

needed.

Another?great resource if you can locate?one in your area are physicians that

specialize in Immunology or that treat Chronic Fatigue Syndrome, MS,

Fibromyalgia, etc. This may be a good alternative.

I know my son's insurance would not cover the phone consults that some charge,

so its great if you can get your son's doctor on board or find someone else

local to your state.

If you can't get help locally, you may consider the NY clinic, they do have

offices in New York and Texas. And ofcourse there is?Dr. Goldberg in California

if thats closer for you.?

Rollie

Re: Re: Varicella titers +

Hi, my son has IgM antibodies to MEasles and mumps, I have found that as we

continue with valtrex, which isn't even for that, but his immune system seems to

get better, those titers are falling, because his owm system will begin to deal

with that, it is very scary, we have these 2 1/2 years post vaccination. If you

do find out any info, please share. Hope this helps, NoelLINDA A

<lsa5885@...> wrote: Hi all,Last week a friend of mine, who's also a

pediatrician with a child with ASD, thought it would be a good idea to check my

sons Varicella titers. After reviewing his vaccinations and his history of

immune disorders, it was pretty obvious that his health declined after the MMR

and Varicella which was given along with the HIB. has persistent low grade

fevers, cannot get off antibiotics, and like most of our kids does well on

antivirals.(Valtrex)She was curious to see what his Varicella titers were. Well,

now we have a problem, as he still has a detectable level of IgM

to Varicella, and a high ,ACIF (IgG). He received his vaccination eight years

ago. He should have cleared the IgM within weeks to a few months.Last week he

was also diagnosed with a IgG deficiency, and after reading about this, he

should never have been given many of his vaccinations, especially Varicella, OPV

and MMR. What I'm worried about is that he may have Varicella circulating in his

CSF affecting his brain. Has anyone had a similar issue with their child and

does anyone know of a GREAT infectious disease doctor that treats children on

the spectrum ? Also, I was thinking about Dr. Singh in Utah. Has anyone had any

experience with him? (neuroimmunologist)Thanks so much, [Non-text portions

of this message have been removed]Sincerely Noel[Non-text portions of this

message have been removed]

[Guest guest]

Angie, if you google " blood flow ssris " you'll get a ton of hits that

you can give to your doc. for the use of ssris other than behavior.

Our kids have blood flow issues in the brain, which you will find

info on in any of Dr. G's papers.

Cheryl

On Mar 24, 2008, at 6:16 PM, angie huiz wrote:

> How high were his intial titers before you started treatment? Do

> you see Dr. G. or a local doc for management. I am nearly done

> compiling all my son's medical records. My local pediatrician

> seemed a bit understanding about the immunology thing, esp when my

> son had petecheia SP! on his neck and found himself saying it was

> from an over active immune system and it matching the philosophy of

> . I also think he thought the use of a ssri was good for

> behavior but not sure he really would think it for another purpose?

> Our local DAN and the nurses there are very open to working with

> kids and are willing to order the panel listed on line - of labs-

> so that is great.

> I am not sure about seeing a local immunologist. I am sure Dr. G.

> is not really able to work with a local MD either? I have also read

> from this site about other md's not using a high enough dose of

> anit-viral or for long enough to rid the infection?

>

> rollipolli222@... wrote:

>

> I am not sure what the tipping point is. In my son's case, his hhv6

> numbers were off the charts. He indicated that hhv6 once it enters

> the body it does not leave, and that my son would be on antivirals

> indefinitely.

>

> First step, is to get a complete immune system panel. Dr Goldberg's

> site has all of the labs listed in a nice condensed list. He also

> has patient data, its not recent, but it will give good information

> if you can print that out and review with your pediatrician. (This

> is what I did, and it made all the difference)

>

> Its really important for you to get a copy of those labs so you can

> not only have them for your own records, but also?so you can talk

> to other physicians?if needed.

>

> Another?great resource if you can locate?one in your area are

> physicians that specialize in Immunology or that treat Chronic

> Fatigue Syndrome, MS, Fibromyalgia, etc. This may be a good

> alternative.

>

> I know my son's insurance would not cover the phone consults that

> some charge, so its great if you can get your son's doctor on board

> or find someone else local to your state.

>

> If you can't get help locally, you may consider the NY clinic,

> they do have offices in New York and Texas. And ofcourse there is?

> Dr. Goldberg in California if thats closer for you.?

>

> Rollie

>

> Re: Re: Varicella titers +

>

> Hi, my son has IgM antibodies to MEasles and mumps, I have found

> that as we continue with valtrex, which isn't even for that, but

> his immune system seems to get better, those titers are falling,

> because his owm system will begin to deal with that, it is very

> scary, we have these 2 1/2 years post vaccination. If you do find

> out any info, please share. Hope this helps, NoelLINDA A

> <lsa5885@...> wrote: Hi all,Last week a friend of mine, who's

> also a pediatrician with a child with ASD, thought it would be a

> good idea to check my sons Varicella titers. After reviewing his

> vaccinations and his history of immune disorders, it was pretty

> obvious that his health declined after the MMR and Varicella which

> was given along with the HIB. has persistent low grade fevers,

> cannot get off antibiotics, and like most of our kids does well on

> antivirals.(Valtrex)She was curious to see what his Varicella

> titers were. Well, now we have a problem, as he still has a

> detectable level of IgM

> to Varicella, and a high ,ACIF (IgG). He received his vaccination

> eight years ago. He should have cleared the IgM within weeks to a

> few months.Last week he was also diagnosed with a IgG deficiency,

> and after reading about this, he should never have been given many

> of his vaccinations, especially Varicella, OPV and MMR. What I'm

> worried about is that he may have Varicella circulating in his CSF

> affecting his brain. Has anyone had a similar issue with their

> child and does anyone know of a GREAT infectious disease doctor

> that treats children on the spectrum ? Also, I was thinking about

> Dr. Singh in Utah. Has anyone had any experience with him?

> (neuroimmunologist)Thanks so much, [Non-text portions of this

> message have been removed]Sincerely Noel[Non-text portions of this

> message have been removed]

>

>