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Re: EEGs/MRIs

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My oldest son, who has Asperger's, has a had two EEGs and one MRI. The EEGs

confirmed a seizure disorder and the MRI was clean, so no tumors, abnormalities,

etc. My middle son, mild/moderate autism, has also had an EEG but no MRI. He,

too, has a suspected seizure disorder. The EEG can be informative, but I've read

many posts on other listservs that you should get the 24 hour. It's more

accurate. My oldest son's EEG was indicative of a seizure disorder, but my

middle son's EEG was inconclusive. Neither was a 24 hour EEG. We did all of this

with a peds neuro before starting the protocol. Dr. G is interested in

getting an MRI on my middle son sometime in the future. He also has a

neurological disorder called cyclical vomiting syndrome and migraines, although

he has been asymptomatic since two months into the protocol.

HTH,

Robyn

theshabbysheep@... wrote:

Hi all!

I don't post often, but am always grateful for your informative posts. I would

like feedback from anyone whose child has had an MRI or EEG. If your child has

had either or both, did you gain any valuable insight from the procedure(s).

Also, did you have them done before or after starting the protocol? Feel

free to reply off-list, and thank you for any insight you could share.

Heidi

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Thank you, Robyn. I'm looking to rule out a seizure disorder and some

learning-related issues.

Heidi

-------------- Original message ----------------------

From: Robyn & Greg Coggins <rngcoggs@...>

> My oldest son, who has Asperger's, has a had two EEGs and one MRI. The EEGs

> confirmed a seizure disorder and the MRI was clean, so no tumors,

abnormalities,

> etc. My middle son, mild/moderate autism, has also had an EEG but no MRI. He,

> too, has a suspected seizure disorder. The EEG can be informative, but I've

read

> many posts on other listservs that you should get the 24 hour. It's more

> accurate. My oldest son's EEG was indicative of a seizure disorder, but my

> middle son's EEG was inconclusive. Neither was a 24 hour EEG. We did all of

this

> with a peds neuro before starting the protocol. Dr. G is interested in

> getting an MRI on my middle son sometime in the future. He also has a

> neurological disorder called cyclical vomiting syndrome and migraines,

although

> he has been asymptomatic since two months into the protocol.

>

> HTH,

>

> Robyn

>

> theshabbysheep@... wrote:

> Hi all!

>

> I don't post often, but am always grateful for your informative posts. I would

> like feedback from anyone whose child has had an MRI or EEG. If your child has

> had either or both, did you gain any valuable insight from the procedure(s).

> Also, did you have them done before or after starting the protocol? Feel

> free to reply off-list, and thank you for any insight you could share.

>

> Heidi

>

>

>

>

>

>

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My son has had several EEGs -- one prior to and several afterwards.

The early ones were done for seizures, more recent ones were QEEGs for

neurofeedback training. The ones for seizures were somewhat helpful but not

that

much. The QEEGs have been very interesting and helpful.

Gaylen

**************Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars.

(http://autos.aol.com/used?ncid=aolaut00050000000007)

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Have you had any success having insurance companies reimburse for the

QEEG. My clinic provides bio and neurofeedback and I try my best to

take insurance that reimburses the families (I too have a child with

severe autism so I know the financial burden). I am looking into adding

QEEG's but I am worried insurance companies will not reimburse the

families. If anyone has knowledge to reimbursement success and codes, I

would really appreciate it. Thanks!

Sincerely,

L. Juarez, PhD Candidate, M.S., Marriage and Family Therapist

On Wed, Jul 9, 2008 at 8:03 AM, Googahly@... wrote:

My son has had several EEGs -- one prior to and several

afterwards.

The early ones were done for seizures, more recent ones were QEEGs for

neurofeedback training. The ones for seizures were somewhat helpful

but not that

much. The QEEGs have been very interesting and helpful.

Gaylen

************ **Gas prices getting you down? Search AOL Autos for

fuel-efficient used cars. ( http://autos. aol.com/used?

ncid=aolaut00050 000000007

<http://autos.aol.com/used?ncid=aolaut00050000000007> )

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In a message dated 7/9/2008 11:23:05 A.M. Central Daylight Time,

jamieandsal@... writes:

<<Have you had any success having insurance companies reimburse for the

QEEG. >>

United Healthcare and BCBS have paid for one of the codes but not the other

so we always end up paying about half of the cost. Strangely, Aetna who was

terrible on almost all claims except that one, paid for both codes. I don't

recall the codes since they were filed directly with our insurance but I can

ask, if it would be helpful.

Gaylen

**************Get the scoop on last night's hottest shows and the live music

scene in your area - Check out TourTracker.com!

(http://www.tourtracker.com?NCID=aolmus00050000000112)

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While improved on the seizure meds, we didn't see really good results

until starting the protocol. I actually think the virus had something to do

with the seizures. We've already cut Noah's seizure meds in half with no ill

effects. I'm looking forward to getting both boys off the meds as soon as the

virus is under control. The problem with seizure meds is that they dampen all

electrical activity in the brain; that's how they prevent the seizures. Although

we initially saw improvement with on seizure meds (related to attention),

he began to experience an overall decline (especially in school). His learning

problems just got worse. It's very frustrating! With my boys, though, it's

easier because they have absence, or staring, seizures. Not as scary or as

dangerous as grand mal, so we can afford to reduce the meds.

Good luck. I definitely think an EEG and MRI will be helpful.

Robyn

theshabbysheep@... wrote:

Thank you, Robyn. I'm looking to rule out a seizure disorder and some

learning-related issues.

Heidi

-------------- Original message ----------------------

From: Robyn & Greg Coggins <rngcoggs@...>

> My oldest son, who has Asperger's, has a had two EEGs and one MRI. The EEGs

> confirmed a seizure disorder and the MRI was clean, so no tumors,

abnormalities,

> etc. My middle son, mild/moderate autism, has also had an EEG but no MRI. He,

> too, has a suspected seizure disorder. The EEG can be informative, but I've

read

> many posts on other listservs that you should get the 24 hour. It's more

> accurate. My oldest son's EEG was indicative of a seizure disorder, but my

> middle son's EEG was inconclusive. Neither was a 24 hour EEG. We did all of

this

> with a peds neuro before starting the protocol. Dr. G is interested in

> getting an MRI on my middle son sometime in the future. He also has a

> neurological disorder called cyclical vomiting syndrome and migraines,

although

> he has been asymptomatic since two months into the protocol.

>

> HTH,

>

> Robyn

>

> theshabbysheep@... wrote:

> Hi all!

>

> I don't post often, but am always grateful for your informative posts. I would

> like feedback from anyone whose child has had an MRI or EEG. If your child has

> had either or both, did you gain any valuable insight from the procedure(s).

> Also, did you have them done before or after starting the protocol? Feel

> free to reply off-list, and thank you for any insight you could share.

>

> Heidi

>

>

>

>

>

>

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Hi ,

We did Neurofeedback at ADD Treatment Center with Dr. Schummer. Our

insurance did cover about 60% of the cost. You may want to call them

and ask how they do their billing. Their office is located in

Torrance,CA.

Good luck!

On Jul 9, 2008, at 9:22 AM, L Juarez wrote:

>

> Have you had any success having insurance companies reimburse for the

> QEEG. My clinic provides bio and neurofeedback and I try my best to

> take insurance that reimburses the families (I too have a child with

> severe autism so I know the financial burden). I am looking into

> adding

> QEEG's but I am worried insurance companies will not reimburse the

> families. If anyone has knowledge to reimbursement success and

> codes, I

> would really appreciate it. Thanks!

>

> Sincerely,

>

> L. Juarez, PhD Candidate, M.S., Marriage and Family Therapist

>

> On Wed, Jul 9, 2008 at 8:03 AM, Googahly@... wrote:

>

> My son has had several EEGs -- one prior to and several

> afterwards.

> The early ones were done for seizures, more recent ones were QEEGs for

> neurofeedback training. The ones for seizures were somewhat helpful

> but not that

> much. The QEEGs have been very interesting and helpful.

> Gaylen

>

> ************ **Gas prices getting you down? Search AOL Autos for

> fuel-efficient used cars. ( http://autos. aol.com/used?

> ncid=aolaut00050 000000007

> <http://autos.aol.com/used?ncid=aolaut00050000000007> )

>

>

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