Re: Adding gluten and bed wetting

[Guest guest]

My son wet the bed until he was 14.  He was probably deficient in the hormone

which concentrates urine during the night.  He wore pullups --nighttime type.  I

never did the medicine to prevent this as I felt he had too many other meds in

his body.   My nephew did it until he was 16. 

Barb Katsaros

barbkatsaros@...

From: elaine free <elaine4u@...>

Subject: Adding gluten and bed wetting

nids

Date: Sunday, July 6, 2008, 12:17 AM

I have a question I hope someone can

answer. We've been GFCF for 4 years and just added gluten back in 8

days ago (following the diet, white flour). We haven't seen a

change in behavior but for the last 2 nights, we've had bed wetting.

I've been searching the arhives but don't see anything on this.

Has this happened to anyone else's child? Also, has anyone followed

Dr. Goldberg's diet after being GFCF for a while? Did you have

success? I've been reading up on food challenges and some people say

that it takes a month or 2 to see negative effects of adding gluten

back into a diet. Has anyone had this experience? I'm sorry for all

the questions, I just don't know who else to ask. Thank you.

____________ _________ _________ _________ _________ _________ _

Making the world a better place one message at a time.

http://www.imtalkat hon.com/? source=EML_ WLH_Talkathon_ BetterPlace

[Guest guest]

Was other stuff added at the same time? For us, bedwetting and

accidents started with the ssri's. Could also be yeast if you've

just added an antifungal at the same time.

Cheryl

On Jul 5, 2008, at 10:17 PM, elaine free wrote:

> I have a question I hope someone can

> answer. We've been GFCF for 4 years and just added gluten back in 8

> days ago (following the diet, white flour). We haven't seen a

> change in behavior but for the last 2 nights, we've had bed wetting.

> I've been searching the arhives but don't see anything on this.

> Has this happened to anyone else's child? Also, has anyone followed

> Dr. Goldberg's diet after being GFCF for a while? Did you have

> success? I've been reading up on food challenges and some people say

> that it takes a month or 2 to see negative effects of adding gluten

> back into a diet. Has anyone had this experience? I'm sorry for all

> the questions, I just don't know who else to ask. Thank you.

>

> __________________________________________________________

> Making the world a better place one message at a time.

> http://www.imtalkathon.com/?source=EML_WLH_Talkathon_BetterPlace

>

>

[Guest guest]

Thanks for writing. We don't want to use medication to correct this, either.

And we don't know if it's going to continue to be a problem. It's just 2 nights

in a row seems important, like we are missing something.

From: barbkatsaros@...

Date: Sun, 6 Jul 2008 07:29:32 -0700

Subject: Re: Adding gluten and bed wetting

My son wet the bed until he was 14. He was probably deficient in

the hormone which concentrates urine during the night. He wore pullups

--nighttime type. I never did the medicine to prevent this as I felt he had too

many other meds in his body. My nephew did it until he was 16.

Barb Katsaros

barbkatsaros@...

_________________________________________________________________

The i’m Talkaton. Can 30-days of conversation change the world?

http://www.imtalkathon.com/?source=EML_WLH_Talkathon_ChangeWorld

[Guest guest]

Hi Elaine,

I know for 'me' (I'm 25 years old and male) that I am FAR better off

avoiding wheat & gluten altogether. While Dr. Goldberg has said he

feels refined flour/wheat to 'typically' not be a big deal, some

patients do better on a totally gluten free diet. This also includes

no wheat, Oats (Oats are supposed to have some gluten in them), etc.

I'm on the protocol, and I'm being treated for Neuroimmune disorder,

BUT I need to point out that I've been diagnosed with Chronic Fatigue,

OCD, ADHD- and not with 'Autism.' Although there has been some things

in my past that could 'point' to symptoms at least related or similar

to Autism.

Good luck.

- F.

>

> I have a question I hope someone can

> answer. We've been GFCF for 4 years and just added gluten back in 8

> days ago (following the diet, white flour). We haven't seen a

> change in behavior but for the last 2 nights, we've had bed wetting.

> I've been searching the arhives but don't see anything on this.

> Has this happened to anyone else's child? Also, has anyone followed

> Dr. Goldberg's diet after being GFCF for a while? Did you have

> success? I've been reading up on food challenges and some people say

> that it takes a month or 2 to see negative effects of adding gluten

> back into a diet. Has anyone had this experience? I'm sorry for all

> the questions, I just don't know who else to ask. Thank you.

>

> _________________________________________________________________

> Making the world a better place one message at a time.

> http://www.imtalkathon.com/?source=EML_WLH_Talkathon_BetterPlace

>

>

[Guest guest]

Hi -

We did not have any problems adding gluten back, but my kids weren't potty

trained at the time anyway so I wouldn't have noticed.  But the timing would

suggest that the two are connected.

However, that doesn't mean that this isn't temporary and will resolve on it's

own.  So many things can trigger bed-wetting - especially strep & increasing

ASOs (affects the urinary hormones), as well as med changes, and diet changes.

If you do not see major foggy brain or major increases in irritability, I would

recommend riding it out for a while and see if it improves.  After devoting so

long to being GFCF, it may be terrifying to see a reaction like that.  But the

ease of the diet may really be worth it if you don't see a major regression. 

Plus, GFCF can really be allergenic and increase IgE, etc, and keep a system so

reactive to foods that the allergies don't cool down. 

For us, after we switched to the diet, I was constantly having to search

out foods they were reacting to.  But 2 years into the meds, they were far less

reactive, and now, even off meds around 3 years, they have very few reactions to

foods anymore.  If your child is on the meds, then even if he does react to

gluten, what really matters is how the labs look and what Dr G says about it. 

Otherwise, time on the meds is the key.

HTH-

Adding gluten and bed wetting

I have a question I hope someone can

answer. We've been GFCF for 4 years and just added gluten back in 8

days ago (following the diet, white flour). We haven't seen a

change in behavior but for the last 2 nights, we've had bed wetting.

I've been searching the arhives but don't see anything on this.

Has this happened to anyone else's child? Also, has anyone followed

Dr. Goldberg's diet after being GFCF for a while? Did you have

success? I've been reading up on food challenges and some people say

that it takes a month or 2 to see negative effects of adding gluten

back into a diet. Has anyone had this experience? I'm sorry for all

the questions, I just don't know who else to ask. Thank you.

____________ _________ _________ _________ _________ _________ _

Making the world a better place one message at a time.

http://www.imtalkat hon.com/? source=EML_ WLH_Talkathon_ BetterPlace

[Guest guest]

Thanks . I really appreciate your insight.

Elaine

From: javanfirkins@...

Date: Mon, 7 Jul 2008 04:17:34 +0000

Subject: Re: Adding gluten and bed wetting

Hi Elaine,

I know for 'me' (I'm 25 years old and male) that I am FAR better off

avoiding wheat & gluten altogether. While Dr. Goldberg has said he

feels refined flour/wheat to 'typically' not be a big deal, some

patients do better on a totally gluten free diet. This also includes

no wheat, Oats (Oats are supposed to have some gluten in them), etc.

I'm on the protocol, and I'm being treated for Neuroimmune disorder,

BUT I need to point out that I've been diagnosed with Chronic Fatigue,

OCD, ADHD- and not with 'Autism.' Although there has been some things

in my past that could 'point' to symptoms at least related or similar

to Autism.

Good luck.

- F.

_________________________________________________________________

The i’m Talkaton. Can 30-days of conversation change the world?

http://www.imtalkathon.com/?source=EML_WLH_Talkathon_ChangeWorld

[Guest guest]

Thanks for writing . I am watching her like a hawk now, but we are

planning on riding it out. We have a few months before school starts so I am

trying to relax about this. The reason we are adding gluten back in is because

of reactions to the replacement flours. Besides watching behavior, is there

any physical evidence we can see? We are having blood drawn in a few weeks, is

there anything that will show up if gluten really is a problem?

Thanks again for your information.

Hi -

We did not have any problems adding gluten back, but my kids weren't

potty trained at the time anyway so I wouldn't have noticed. But the timing

would suggest that the two are connected.

However, that doesn't mean that

this isn't temporary and will resolve on it's own. So many things can trigger

bed-wetting - especially strep & increasing ASOs (affects the urinary

hormones), as well as med changes, and diet changes.

If you do not see major

foggy brain or major increases in irritability, I would recommend riding it out

for a while and see if it improves. After devoting so long to being GFCF, it

may be terrifying to see a reaction like that. But the ease of the diet may

really be worth it if you don't see a major regression. Plus, GFCF can really

be allergenic and increase IgE, etc, and keep a system so reactive to foods that

the allergies don't cool down.

For us, after we switched to the diet,

I was constantly having to search out foods they were reacting to. But 2 years

into the meds, they were far less reactive, and now, even off meds around 3

years, they have very few reactions to foods anymore. If your child is on the

meds, then even if he does react to gluten, what really matters is how the

labs look and what Dr G says about it. Otherwise, time on the meds is the

key.

HTH-

_________________________________________________________________

Use video conversation to talk face-to-face with Windows Live Messenger.

http://www.windowslive.com/messenger/connect_your_way.html?ocid=TXT_TAGLM_WL_Ref\

resh_messenger_video_072008

[Guest guest]

I'm on so many lists, I forget where I learn about things..someone posted

about soy lecithin and the behavior problems it created in their child, and

this post made me think of that. I've removed it from my son's diet while

also taking him off many of the GF replacements so we can try processed

flour for the diet. After 8 or so weeks, he's doing well.

Kristy

From: [mailto: ] On Behalf Of elaine

free

Sent: Monday, July 07, 2008 8:15 PM

nids

Subject: RE: Adding gluten and bed wetting

Thanks for writing . I am watching her like a hawk now, but we are

planning on riding it out. We have a few months before school starts so I am

trying to relax about this. The reason we are adding gluten back in is

because of reactions to the replacement flours. Besides watching behavior,

is there any physical evidence we can see? We are having blood drawn in a

few weeks, is there anything that will show up if gluten really is a

problem?

Thanks again for your information.

Hi -

We did not have any problems adding gluten back, but my kids weren't

potty trained at the time anyway so I wouldn't have noticed. But the timing

would suggest that the two are connected.

However, that doesn't mean that

this isn't temporary and will resolve on it's own. So many things can

trigger

bed-wetting - especially strep & increasing ASOs (affects the urinary

hormones), as well as med changes, and diet changes.

If you do not see major

foggy brain or major increases in irritability, I would recommend riding it

out

for a while and see if it improves. After devoting so long to being GFCF, it

may be terrifying to see a reaction like that. But the ease of the diet may

really be worth it if you don't see a major regression. Plus, GFCF can

really

be allergenic and increase IgE, etc, and keep a system so reactive to foods

that

the allergies don't cool down.

For us, after we switched to the diet,

I was constantly having to search out foods they were reacting to. But 2

years

into the meds, they were far less reactive, and now, even off meds around 3

years, they have very few reactions to foods anymore. If your child is on

the

meds, then even if he does react to gluten, what really matters is how

the

labs look and what Dr G says about it. Otherwise, time on the meds is the

key.

HTH-

__________________________________________________________

Use video conversation to talk face-to-face with Windows Live Messenger.

http://www.windowslive.com/messenger/connect_your_way.html?ocid=TXT_TAGLM_WL

_Refresh_messenger_video_072008

[Guest guest]

Thanks Kristy, I am happy to hear that's he is doing well. I hope we'll be in

the same position! How often does he eat gluten? I've been trying to limit it

so as not to bombard her body all at once. I don't know if that is the right

thing.

From: krnardini@...

Date: Mon, 7 Jul 2008 23:35:15 -0700

Subject: RE: Adding gluten and bed wetting

I'm on so many lists, I forget where I learn about things..someone

posted

about soy lecithin and the behavior problems it created in their child, and

this post made me think of that. I've removed it from my son's diet while

also taking him off many of the GF replacements so we can try processed

flour for the diet. After 8 or so weeks, he's doing well.

Kristy

_________________________________________________________________

Making the world a better place one message at a time.

http://www.imtalkathon.com/?source=EML_WLH_Talkathon_BetterPlace

[Guest guest]

We started with the coating on the chicken nuggets from Trader Joe's (the

only kind I give him). Then we progressed to a PB & J sandwich (Dr. G ok'd

PB, and the J is approx. a teaspoon on a whole sandwich) on white bread for

school lunches. And, the occasional birthday cake (I try to remove as much

of the frosting as possible). That's about it. So, not every meal, and not

every day. I still give him rice pasta instead of wheat.

Kristy

From: [mailto: ] On Behalf Of elaine

free

Sent: Tuesday, July 08, 2008 8:08 AM

nids

Subject: RE: Adding gluten and bed wetting

Thanks Kristy, I am happy to hear that's he is doing well. I hope we'll be

in the same position! How often does he eat gluten? I've been trying to

limit it so as not to bombard her body all at once. I don't know if that is

the right thing.

<mailto:%40>

From: krnardini@... <mailto:krnardini%40cox.net>

Date: Mon, 7 Jul 2008 23:35:15 -0700

Subject: RE: Adding gluten and bed wetting

I'm on so many lists, I forget where I learn about things..someone posted

about soy lecithin and the behavior problems it created in their child, and

this post made me think of that. I've removed it from my son's diet while

also taking him off many of the GF replacements so we can try processed

flour for the diet. After 8 or so weeks, he's doing well.

Kristy

__________________________________________________________

Making the world a better place one message at a time.

http://www.imtalkathon.com/?source=EML_WLH_Talkathon_BetterPlace

[Guest guest]

Hi Elaine,

My sister-in-law has my niece on a no gluten diet because she has tied her

daughter's bedwetting problems to when she eats something with gluten. She

swears that when her daughter has gluten she loses control of her bladder.

She's 6 years old.

April

Adding gluten and bed wetting

I have a question I hope someone can

answer. We've been GFCF for 4 years and just added gluten back in 8

days ago (following the diet, white flour). We haven't seen a

change in behavior but for the last 2 nights, we've had bed wetting.

I've been searching the arhives but don't see anything on this.

Has this happened to anyone else's child? Also, has anyone followed

Dr. Goldberg's diet after being GFCF for a while? Did you have

success? I've been reading up on food challenges and some people say

that it takes a month or 2 to see negative effects of adding gluten

back into a diet. Has anyone had this experience? I'm sorry for all

the questions, I just don't know who else to ask. Thank you.

__________________________________________________________

Making the world a better place one message at a time.

http://www.imtalkathon.com/?source=EML_WLH_Talkathon_BetterPlace

[Guest guest]

Our son was GFCF for two years before we gradually started working back in

gluten when we knew we were going to see Dr. G. We noticed no ill effects and my

son is doing better than ever.

Robyn

April Jagnow <april@...> wrote:

Hi Elaine,

My sister-in-law has my niece on a no gluten diet because she has tied her

daughter's bedwetting problems to when she eats something with gluten. She

swears that when her daughter has gluten she loses control of her bladder. She's

6 years old.

April

Adding gluten and bed wetting

I have a question I hope someone can

answer. We've been GFCF for 4 years and just added gluten back in 8

days ago (following the diet, white flour). We haven't seen a

change in behavior but for the last 2 nights, we've had bed wetting.

I've been searching the arhives but don't see anything on this.

Has this happened to anyone else's child? Also, has anyone followed

Dr. Goldberg's diet after being GFCF for a while? Did you have

success? I've been reading up on food challenges and some people say

that it takes a month or 2 to see negative effects of adding gluten

back into a diet. Has anyone had this experience? I'm sorry for all

the questions, I just don't know who else to ask. Thank you.

__________________________________________________________

Making the world a better place one message at a time.

http://www.imtalkathon.com/?source=EML_WLH_Talkathon_BetterPlace

[Guest guest]

Hi Elaine-

I couldn't guess what you might see if she's sensitive ... it varies so much,

and illnesses can hit so often that we can mistake them for food reactions, and

vice versa.  But I'd look for mostly dark circles under her eyes, or being very

foggy or otherwise not functioning well cognitively.  In labs, I think mostly

eosiniphils are what will be elevated (on the CBC w/diff).  There are other

markers that Dr G watches with some foods ... I've never figured out what it is.

Wish I could help more ... time will tell.

HTH-